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  • My health won't stop deteriorating suddenly ... help!!

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    Old 07-27-2015, 01:10 AM   #1
    Fibrolife
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    Unhappy My health won't stop deteriorating suddenly ... help!!

    I've sat staring at the wall for hours today the tears coming and going and I don't know who to talk to or might relate. These past couple weeks I have noticed how much worse things have gotten. The weird part is I'm 28 and it was after I got healthy, gained weight, rid my life of stress, got on track and I was doing amazing! I thought my health would get better and so did the docs but no it's much much worse and I'm begging that someone has some suggestions to the rest below as I see my GP/main doc on wed....

    My arms sear in pain writing this and I'm scared to death about my future. I thought Fibromyalgia doesn't get worse? I mean yes it goes up and down in flares but not the long term prognosis. I had to adjust to life a bit before when I got my diagnosis 8-10 years ago but in the last 2 years I've become so sick I spend most of my time on the couch, don't work or see friends as much. The pain is not so bad, it sucks but the meds help and I could deal with it. It's the fatigue, feeling like I have a flu always, the fibro fog is so intense I can't think or focus, I can never stay awake I'm always getting dizzy I wanna get sick. I feel like I'm watching my life crumble before me it's like the worst virus 24/7 that is attacking my body.

    For 6 years it never changed that much and then bam....I'm confused and it doesn't make sense. They haven't completely given up on testing me for something else but were almost out of options I'm waiting for an MRI. I'm doubting they will find anything but I'm miserable and exhausted out of options, I can't do anything not even take care of myself or have the energy to cook %50 of the time. please tell me someone has gone through this?? could it just be a really long flare?? I can't imagine this being the rest of my life I always wanted to be a mom and have a PT career at least and i feel like I lost it over night and I don't know what changed...

    Last edited by Fibrolife; 07-27-2015 at 01:14 AM. Reason: missed something

     
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    Old 07-27-2015, 08:42 AM   #2
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    Re: My health won't stop deteriorating suddenly...help!!

    hello and welcome,
    yes it could be a very long flare. many years ago I had one that lasted almost 2 years. I am old so life has already been a gift. I quit cooking and taught my brother how. I don't do much these days. putter in the gardens and go to doctors. a lot. giggle. I do suggest you speak to your doctor again. I also suggest a good therapist to help you find peace with the body you have. to gain tools for this new different you. it was the wisest investment of time I have ever made. no matter how rough it gets I know I can do it and it will pass. that alone brings me peace.
    I have been diagnosed for close to 20 years and for me it has gotten easier. not today though, giggle. I had a fun busy day yesterday and must pay the price. it is what it is. crying feeds fibro it's favourite treat, your fear, your stress, your sadness. fibro takes all those emotions and barfs up pure pain. rest, drink lots of water and flush fibro down the toilet. breath, slowly and deeply. most of all love your body. kiss her and pamper her. she needs you.
    in deepest empathy and peace,
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    Old 07-27-2015, 09:28 AM   #3
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    Re: My health won't stop deteriorating suddenly...help!!

    I feel much the same as you, but am much older and have lupus and RA. As bad as you are feeling, I would ask your Dr. on Wed. to recheck you for autoimmune diseases such as lupus, mixed connective tissue disease, Hashimoto's thyroiditis with hypothyroidism, myositis, and anemia. There may be something more specific going on that could be treated that didn't show up on previous testing. You are too young to be so sidelined by fatigue and pain. Many people with autoimmune disease get diagnosed with fibro initially until the more specific disorder manifests fully. If all testing is negative again, I would try to find a support group for fibro or chronic illness that might give you support and ideas for coping and staying productive. Good luck to you and I hope you get some answers and more help.

     
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    Old 07-27-2015, 02:14 PM   #4
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    Re: My health won't stop deteriorating suddenly...help!!

    Thanks to both of you for answering, I am really starting to think I should find a support group but yesterday which was one of my hardest days I've had and finding this forum was exactly what I needed. I feel way to young to be this sick right now and I'm terrified by this rapid decline.
    However I will add that my 20's were a bit crazy and maybe it could be a big flare which would be good maybe. I admit I put my body through a lot in the few years before and maybe this is it's way of trying to bounce back to normal and learn to be healthy. No doctor has said so just a thought off the top of my head

    I will bring in a list of things on wed morning that I would like my Doctor to check or re check on my next blood test etc, thank you for some of the suggestions above and if anyone knows anymore that would be great?
    I have had so many tests already but I just can't seem to get my energy or shake this "Flu" no matter what I try. My specialist says I am extremely difficult and won't respond to any of the meds like I should or I get side effects. The only ones that help are extreme pain management medication which I hate that I have to be on but that's only for the pain which is the easiest part to deal with lately.

    A little background: I currently take medication for Hypothyroid, Bipolar(which is under control but effects the fibro) and anxiety. As well as vitamins, Iron (which was low), Omega oils, probiotics and softener for my IBS. Even adding in extra protein, fiber and so forth into my diet but it doesn't feel like much helps or if it does it only helps one little area but not the rest. I think you get the picture now or probably did 5 minutes ago I just feel like if I don't bring my GP suggestions he won't think up any anymore.

     
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    Old 07-28-2015, 09:06 AM   #5
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    Re: My health won't stop deteriorating suddenly...help!!

    it is very important that you advocate for your body. you are the team leader when it comes to your health. never forget that. all my doctors know I am in charge, not them. they are my helpers, not my leaders. if they don't agree I fire them.
    do you eat meat? I found giving up meat really helped with energy and general feeling of well being. I have been a vegetarian for 9 years and have to say I have much less pain and more energy.
    I do agree the body will lay us out flat when we are not behaving as we should. it was true for me as well. I have made so many changes in my thinking and what I allow to get in. I choose to be at peace. I choose to be happy and content as I am. my mind is a peaceful place I love to reside in. I love it!
    peace,
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    Old 07-29-2015, 11:25 AM   #6
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    Re: My health won't stop deteriorating suddenly...help!!

    Hi & I know what you're going through. This is how I've been feeling too, but my drs. can't come up with anything. Been tested for everything, I think. No dr. can find a reason for how I feel. I'm freezing most of the time, hate A/C that's on too high, hate the Winter, have low BP & body temp that I never had before. Every test done came back fine or negative except for high cholesterol. Don't sleep well except last night I got about 6 hrs. because my internist gave me a script for Imovane. I believe it depends on where you live in Canada as far as getting really good healthcare. I sure hope you can get some answers. Please post here so I can read what's going on with you. Also, you have some good suggestions here already. Gentle hugs!

     
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    Old 07-29-2015, 07:11 PM   #7
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    Re: My health won't stop deteriorating suddenly ... help!!

    Yes so I went to the Doctor's today, he is great and my healthcare experience has been wonderful with my fibro specialist too. It's been forever since I've had a complaint with my health so that sucked. I get so frustrated how the illness has no answers ever, it's always trial and error he can't just say oh this must be why you feel loads worse.

    I am doing blood tests again and ruling out any low levels and then regrouping next week with the doc. There is the possibility of a fibro relapse but not sure. It was nice to be able to talk it out with my doctor, I wish I saw him sooner but oh well. My exhaustion levels are super low and i'm just feel overall extra crappy, not anything I've felt before. hopefully things improve in time for my mini summer trip next month!!

    As for diet yes I do eat meat but not all the time. I'm not sure if i would be able to be a vegetarian but a nutritionist told me to eat avacadoes and not to eat processed meat or something(like deli slices). There are so many diets out there and what vitamins are best etc I just play around a bit to see what bothers me and what doesn't.

     
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    Old 07-30-2015, 09:12 AM   #8
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    Re: My health won't stop deteriorating suddenly ... help!!

    I'm so glad you have a good dr. I know how long you have to wait for a good one or a good specialist. When you eat foods that have gluten, do you feel any different, sicker or stomachaches? I'm gluten-intolerant & also have silent GERD which make my diet really frustrating because I love to eat. Also, gluten-free food is very expensive. Processed and deli meat is usually high in salt, MSG & preservatives unless you find a good one. I don't eat a lot of meat. Just a small portion & sometimes none. Can't say if it's made a difference yet or not. I hope you get some answers soon. I'm also tired of going for tests, giving loads of blood & everything coming up normal/negative or whatever. I hope you can go on your mini-vacation. I'll be checking back.

     
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    Old 08-09-2015, 06:34 AM   #9
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    Re: My health won't stop deteriorating suddenly ... help!!

    how are you doing, fibrolife? i hope you're getting some answers.

     
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