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  • Could This Be Fibromyalgia?

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    Old 09-07-2016, 09:12 PM   #1
    Coyotesdawn
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    Could This Be Fibromyalgia?

    Hello,

    I recently saw a neck doctor who suggested that my myofascial pain and migraines may be related to fibro. Does any of this sound like it might fit the condition?

    1. Very very tight neck, shoulder, and jaw muscles. Some aches and pains come with it but those pains are not widespread below the neck.

    2. TMJ like symptoms and TMJ pain. My jaw has locked itself from the muscles being contracted too tightly. Relatedly, I have gotten experiences resembling trigeminal neuralgia.

    1. Very cold hands hand feet even in hot weather, but my blood pressure is ok and I don't get as many panic attacks as I used to. My hands react to heat as one would when putting hands under warm water after spending time out on a cold winter day.

    2. Migraines. I have a specific type of migraine known as an otic migraine, which means vasospsasms in the inner ear. I can get fluctuating or permanent hearing loss, tinnitus, vertigo, plus other typical migraine symptoms like tingly feelings everywhere, head pains in temples and sinuses and ears.
    -The weird thing about these migraines are the really weird triggers. Any loud noise can do it, sudden pressure changes can do it, as can touching multiple trigger points in the face and neck. Smiling, crying, laughing, straining, and bending over can also trigger them, I assume from muscle spasms. I have to be very careful about how I move my head and neck these days.

    3. Tremor like experiences here and there as well as seizure like experiences. I have also had 2 experiences of numbness and sudden weakness in my legs and arms.

    4. Cold like itchiness in the nose and in the mouth sometimes in the ears when there is no allergen and no cold

    5. I used to get floaters and visual snow/ black dots all the time. I still get little colorful auras which I believe are migraine related.

    5. Orthostatic hypotension like symptoms, although my blood pressure does not show this disorder. I frequently have dizziness, lightheadedness.

    6. Visual processing problems where I dissociate from one visual field or another as if I have trouble understanding the materiality of objects on one side of me. Some kind of malfunction with the proprioreception sense I think as well as higher level visual processing, as I have had spells of visual agnosia before.

    7. 1.5 years of depression and extreme emotional distress. I cry every day.

    8. Panic disorder that I have relatively under control with psychiatric meds now. But sometimes I do have trouble catching my breath which then sets off the whole thing again.

    If any of this sounds familiar, I would sure appreciate any insight or ah-hah's. Thank you for the help!

     
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    Old 10-03-2016, 03:53 PM   #2
    bjm0360
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    Re: Could This Be Fibromyalgia?

    Hello there,
    I really wish you knew what was wrong with you because I have very similar symptoms, but worse...

    I have everything you have but my muscular symptoms are body wide and VERY painful. Other than that I have everything you have. I have been to probably 30 Drs and I have had every blood test you can think of and have nothing to show for it...

    Last edited by mod85; 10-04-2016 at 02:42 AM.

     
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    Old 10-18-2016, 01:34 PM   #3
    allclass55
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    Re: Could This Be Fibromyalgia?

    Best doctor to see would be a rheumatologist. They specialize in this.

     
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    Old 10-18-2016, 01:41 PM   #4
    bjm0360
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    Re: Could This Be Fibromyalgia?

    I am in the same boat. I just saw a specialty Neurologist in Autonomic Dysfunction and he told me that I am experiencing autonomic nervous dysfunction. I have had these symptoms off and on for 4 years but this flare up is the worst by far.

    I have also developed orthostatic hypertension because of all of this. He said that my basic problem is an understimulated vagus nerve. He couldn't say if the cause was pathogenic, hereditary, autoimmune, environmental etx. I have to keep digging

     
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    Old 10-18-2016, 01:43 PM   #5
    bjm0360
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    Re: Could This Be Fibromyalgia?

    I am in the same boat. I just saw a specialty Neurologist who told me that I have autonomic nervous dysfunction.

    Basically my vagus nerve is not responding the way it should be. He couldn't say what the CAUSE was though. Hereditary, pathogenic, endocrine, etc.

    Keep digging

     
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    Old 01-11-2017, 06:26 PM   #6
    ninal
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    Re: Could This Be Fibromyalgia?

    Hey there! Just read through your post and I have a few things to say about each of your listings!

    Hello,

    I recently saw a neck doctor who suggested that my myofascial pain and migraines may be related to fibro. Does any of this sound like it might fit the condition?

    1. Very very tight neck, shoulder, and jaw muscles. Some aches and pains come with it but those pains are not widespread below the neck.

    2. TMJ like symptoms and TMJ pain. My jaw has locked itself from the muscles being contracted too tightly. Relatedly, I have gotten experiences resembling trigeminal neuralgia.

    Yes! So much yes here! But, I also have another issue that creates this pain as well. I have no doubt in my mind that Fibro is a culprit, but I also have two ribs that slip out of place occasionally as well as costochondritis! Costo what? Its the swelling of the cartilage on your sternum. When costo flares up, it usually puts my ribs out of place, but when I am lucky, no ribs slip out, but the pain radiates into my shoulders, neck and yes, sometimes the jaw! I am definitely not saying you have costo, but it might be a factor. Relief? Nothing is permanent but I use a heating pad or a tube sock filled with uncooked white rice, then microwave to your heat liking, apply to areas (feels really good when placed on your jaw). Naproxen helps alot (aleve) as it helps with inflammation. Hop on ****** and search for a roller massage ball. Its pretty easy to hit all of those locations yourself, but if you have someone around that could help you out and rollerball those areas with different pressure/movements/your instructions, you can work out some of those tight muscles. If you can afford a massage (usually priced at a dollar per minute), its ABSOLUTELY worth it! When I have a bout of fibro/costo/ribs out and my muscles just arent relaxing themselves and being normal, I will go in and get a (pretty tough pressure) massage. Tell the therapist to focus on your trouble areas and they can help unlock some of those tight and knotted areas.

    1. Very cold hands hand feet even in hot weather, but my blood pressure is ok and I don't get as many panic attacks as I used to. My hands react to heat as one would when putting hands under warm water after spending time out on a cold winter day.

    I am generally hot blooded (I overheat pretty easily, but that is also due to anxiety I believe), but I do experience cold hands and feet from time to time. Right now, my body is content with its temperature but I can feel my feet are pretty cold! When I have a Fibro flare, VERY painful and cold hands (definitely gets worse when exposed to cold) and yes, the cold feet with a tingly sensation. My mother has a disease called Reynauds. Its essentially poor blood circulation to your hands especially and feet. When a flare happens, your hands hurt, lock up, become hard to use and the fingertips get a pinkish red color to them. I have googled Fibro to no end and after tons of reading, Fibro can mimic the symptoms of Reynauds!

    2. Migraines. I have a specific type of migraine known as an otic migraine, which means vasospsasms in the inner ear. I can get fluctuating or permanent hearing loss, tinnitus, vertigo, plus other typical migraine symptoms like tingly feelings everywhere, head pains in temples and sinuses and ears.
    -The weird thing about these migraines are the really weird triggers. Any loud noise can do it, sudden pressure changes can do it, as can touching multiple trigger points in the face and neck. Smiling, crying, laughing, straining, and bending over can also trigger them, I assume from muscle spasms. I have to be very careful about how I move my head and neck these days.

    I do not have migraines per say, but I most definitely have headaches very often. I find that I have them more often and are worse when my shoulder and neck muscles are tight. All of that muscle pulling on your connected muscles can cause a lot of strain (I believe that, anyways). During a Fibro flare (and not as often on regular days), I do experience vertigo, tingly feelings, pain all over the place, if I move my head too fast I get light headed and that "fuzzy feeling" along with some weird visuals including a fog-over or blurriness, fuzzies, sparkles or a flutter of black spots.

    3. Tremor like experiences here and there as well as seizure like experiences. I have also had 2 experiences of numbness and sudden weakness in my legs and arms.

    I have definitely noticed that when I am feeling run down to Fibro or are in a flare, I have random muscle spasms or twitches. Ill be watching tv, surfing the net, even laying down and my arm will flinch, head will jerk a bit or just simply feel a muscle spasm. When I am in a flare, I definitely have major leg and arm weakness! Sometimes I also have a short bout of when I blink, my jaw moves/twitches. Very weird and slightly concerning!

    4. Cold like itchiness in the nose and in the mouth sometimes in the ears when there is no allergen and no cold.

    Oh my gosh.. I haven't seen too many people report this problem that have Fibro, but I get an itchy nose and itchy ears ALL THE TIME! It gets so itchy, its stupid.

    5. I used to get floaters and visual snow/ black dots all the time. I still get little colorful auras which I believe are migraine related.

    I have bouts of these here and there, especially when walking outside on a very sunny day or a bright overcast day. The floaters can definitely be just due to age. As your eye gets older, it can just "flake off" pieces in your eye and sometimes they just happen to cross your vision. I forget what causes visual snow (used to work at an eye clinic), but I also believe it might be migraine related as well.

    5. Orthostatic hypotension like symptoms, although my blood pressure does not show this disorder. I frequently have dizziness, lightheadedness.

    When I am in a Fibro flare or just really run down, this happens as well! Your body is just so darn tired from fighting that I think it gives up on a few functions for a few seconds and you experience this or other weird symptoms (like the visuals), a spasm, short burst of weakness, etc.

    6. Visual processing problems where I dissociate from one visual field or another as if I have trouble understanding the materiality of objects on one side of me. Some kind of malfunction with the proprioreception sense I think as well as higher level visual processing, as I have had spells of visual agnosia before.

    I dont think I have experienced this before, but I have noticed that my vision definitely gets messed up somehow when really run down and everything kind of looks slow-motiony. Turning my head fast, my eyes seem like they take .5 to 1 seconds to catch up. Its rather weird! I HATE having to drive when I feel that because it makes me feel like all of my motor skills have slowed down with it, plus all of the stuff moving past my car makes me a bit dizzy and feel like im going to start tunnel vision.

    7. 1.5 years of depression and extreme emotional distress. I cry every day.

    8. Panic disorder that I have relatively under control with psychiatric meds now. But sometimes I do have trouble catching my breath which then sets off the whole thing again.

    I am diagnosed with depression (was before I was diagnosed with Fibro) and working at my retail job DEFINITELY caused me some extreme distress. It is not just fibro/depression related, though. Before I finally got myself checked for depression and all that (gosh, like, 9ish years ago now), I started having panic attacks, couldnt get out of bed some days, BAD mood swings (happy to ****** off in seconds) even about the most minuscule things and one day when I had a BAD panic attack at work, I freaked and made an appointment. They took a look at my medical history and did some blood tests. Sure enough, I started to fight with low iron (anemia) again. The symptoms of low iron are terrifying. Maybe something to get checked for along with vitamin D levels? Never hurts to check it out!!

    If any of this sounds familiar, I would sure appreciate any insight or ah-hah's. Thank you for the help!

    I really hope some of this helps you out or gives you some ideas on what to ask a doctor and see what tests they can do to help you out. I recommend seeing a rheumatologist (I did and thats how I got diagnosed with Fibro) after doing a bunch of blood tests to rule out rheumatory or autoimmune diseases (like lupus, rheumatory arthritis, etc). GOOD LUCK and I hope you can find a doctor that will take you seriously and truly do what they can to help you find out what is going on! -Nina

    Read more: http://www.healthboards.com/boards/fibromyalgia/1025028-could-fibromyalgia.html#ixzz4VVWuehMH

     
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    Old 01-28-2017, 08:49 PM   #7
    taproctor
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    Re: Could This Be Fibromyalgia?

    It's good to know I'm not alone in all of this. I'm a man mid 40's and I've been diagnosed with FM for about 10 years now. Things that I used to contribute to stress and anxiety I've found are multiplied by the FM symptoms. I was first treated for depression even though I led a fairly happy life. Overworking my body and mind would just seem to put me under with no motivation, weakness and unknown pain. After finding my great rheumatologist, I tried all kinds of rx but the side effects kept me from staying on them. A few years ago I began to have these "transient" seizures where I would twitch mildly and then be in a zoned out state. Like so many of you I feel like I've had every test in the book ran on me and when they can't understand the cause they attribute it to Fibromyalgia. I've had some general doctors scoff at me when I tell them because they say it's only a women's disease. That did nothing but make me doubt myself. So if you're in that boat, don't listen to them. It may be more common in women, but not impossible for a man to suffer with it as well. The pain medication I'm on now at least keeps the edge off and as much as I want to exercise to feel better, like many will say, it's just not that easy. I have found radiant heat to be a tremendous help. I go to tanning beds regularly now to ease the tenderness and pain as well. I'll take the UV rays over the pain any day. Plus by relaxing that way it does seem to help my energy.
    Thank you everyone who posts here, I'm new to the site and look forward to being able to share together.

     
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    fibromyalgia, hearing loss, migraine headache dizziness vertigo, muscle cramps



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