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    Old 02-22-2004, 02:46 PM   #1
    AngelaA
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    The connection between Lyme Disease & Fibro

    I recently started attending a local fibro support group. The leader suggested that instead of having fibro caused by autoimmune diseases that I am thought to have that I may be having fibro because of Lyme Disease. I have been tested for Lyme which was negative. However I had read research that Lyme will show up negative on many people's tests that actually have the disease because it can only be detected if it is in the bloodstream when the blood is drawn, yet its life cycle includes residing in one's muscle fibers much of the time. Now unlike many people I know for a fact I was bitten several times, back 8 years ago, when I found a tick imbedded in my scalp. As it was close to midnight I didn't go to the dr to have it removed. I had my father remove it and he did it wrong by grasping at the wrong part of tick and pulling the body away from the mouthpart which is suppose to make the tick regurgitate its stomach contents which can allow the bacteria that is Lyme disease, to be injected into the host's bloodstream. There has been recent research in US & England about Lyme being the real cause of fibro and that it may even account for someone having high ANA antibodies. At least this is what I have been told then was showed some data to back it up. Just wondering if anyone else has Lyme or has had a dr mention any connection. At this point I am going to try a natural treatment for Lyme to see if my fibro symptoms go away as I am not willing to undergo the usual Lyme treatment of several months to years of antibiotics as I am allergic to the ones commonly used and I hate the candida problems that follow antibiotic usage.

     
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    Old 04-25-2004, 09:41 AM   #2
    MrsChickapea
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    Re: The connection between Lyme Disease & Fibro

    Dear AngelaA,
    What is a natural treatment for Lyme's?? My husband had a positive result for Lyme back in the 80's, so dr. gave him one bottle of antibiotic and hubby has had aches and pains, UTI's, nite sweats, neck and back pain and sciatica since. They never removed any ticks from him at all.

    Right after hubby's problems began I got the flu that has never gone away, and was diag. as having FMS. We've both been sick for over 15 yrs..

    Have you tried this natural remedy and is it working? We fight with the yeast beast, also. Would much rather go natural! Thanx so much for any help or insight.
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    Old 04-26-2004, 07:15 PM   #3
    AngelaA
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    Re: The connection between Lyme Disease & Fibro

    MrsChickapea- The natural treatment I am using is called Lauricidin. They have a website that tells about their supplement, though the website does not directly state it will treat Lyme disease. However a friend has been using it for a year and she had heard about using it to treat Lyme from some other patients. I wrote to the Dr. that invented Lauricidin and he said he felt strongly that it would help me. I am also using something called The Zapper which is a form of Electromedicine created by a German doctor decades ago that kills neurotoxins and parasites. It sounds a bit goofy but the more I researched it the more it made sense. The idea is using an electric device to send negatively charged ions through the body because bacteria, neurotoxins and parasites are all positively charged and can not exist in a negatively charged environment. For more info I would suggest reading about Dr. Hula Clark. Would highly recommend you also research "chronic neurotoxins" and see some of the research being done on Lyme and how it is similar to something called Sick Building Syndrome and several other illnesses where the offending organism creates neurotoxins in the body and then systemically attacks the host.

    BTW- I started Lauricidin about 3 months ago and using the Zapper 2 months ago and my ANA antibodies have dropped from 640 to 320 and my fibro pain is not near as bad. So I am definitely going to keep using both things. My friend has been on both treatments for much longer. She no longer has fibro and oddly enough she no longer has asthma nor has to use Singulair or inhalors.

    Last edited by AngelaA; 04-26-2004 at 07:24 PM.

     
    Old 04-30-2004, 12:51 PM   #4
    DTemple
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    Re: The connection between Lyme Disease & Fibro

    AngelaA, I found your post fascinating because I became sick last September with lyme disease symptoms, only to be told after four blood tests that I was negative. I was on antibiotic treatment for four months, ended up with candida and now the past four months I have had all of the pain and symptoms of fibromyalgia. I have often wondered if there is a connection. Oddly enough, I read Hulda Clark's book after doing eight months of research and now my Dad is building the Zapper for me. I was hesitant to go back on antiobiotics because they caused me to feel "toxic". I am also seeing an environmental dentist for a possible connection to mercury toxicity. I am going to look into Lauricidin. Are there any side effects? Give us as much information as you can! I'm excited about this. In the past eight months, I have seen eleven different specialists...had MRIs, xrays, EMG tests, nerve conduction studies and blood tests!!! I am about to embark on physical therapy, just to relieve the symptoms.

     
    Old 04-30-2004, 01:08 PM   #5
    DTemple
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    Re: The connection between Lyme Disease & Fibro

    I forgot to ask you what is the ANA antibodies and how do you get tested for that? Can my doctor do a blood test from a regular lab?

     
    Old 05-01-2004, 10:01 AM   #6
    AngelaA
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    Post Re: The connection between Lyme Disease & Fibro

    Quote:
    Originally Posted by DTemple
    I forgot to ask you what is the ANA antibodies and how do you get tested for that? Can my doctor do a blood test from a regular lab?

    ANA means Antinuclear Antibodies which is a test to see if a person has antibodies which could denote an autoimmune disease. That said many people will test slightly positive on ANA test and the older they are the more likely they will develop some ANA. But what you are looking for is ANA to show up in a specific pattern which can suggest specific autoimmune diseases and you are looking for a high number of antibodies. Read up on autoimmune antibodies and see if you have symptoms of any of the diseases. If so get tested when you are feeling very symptomatic and if you are female when you are menstruating as then you are most likely to catch the highest number of antibodies. Its tricky because some people will have a different test result every week. Not many people know these are autoimmune diseases but some more common examples are diabetes, rheumatoid arthritis and some forms of hypothyroidism. There is a whole host of less common ones that people know more about like Lupus or Raynaud's Syndrome. Autoimmunity tends to run in families so if anyone you are blood related to has say even diabetes it makes you have even greater chance of having not only diabetes but also Lupus or any other autoimmunity. People tend to have more than one autoimmune disease if they have any at all.

    Your dr should be able to order the test from any lab. My neurologist ran ANA on me because I had a sudden unexplained onset of migraines with no previous history of it. Migraines can be a symptom of Lupus. She knew I had hypothyroid and adrenal insufficency with a family history of diabetes and rheumatoid which clued her in to possible autoimmune issue.

     
    Old 05-01-2004, 10:31 AM   #7
    DTemple
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    Re: The connection between Lyme Disease & Fibro

    I had the ANA blood test back in October and I was less than negative or unreactive at that time. I had been on Doxycycline for about four weeks for what we thought was lyme disease, perhaps that changed the test result and I should have it again. My thryoid has been tested and looks normal as well, even using the more specific criteria for fibromyalgia. I also have TMJ syndrome so that might be a connection to this pain, but the symptoms I started with in September were most definitely alot like lyme disease. Are you feeling better? I ordered the Lavricidin and my Dad is making the Zapper. I am so desperate to feel normal again, I will try any approach. Thanks for your information, we need as much as you can share.

     
    Old 05-01-2004, 10:41 AM   #8
    AngelaA
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    Post Re: The connection between Lyme Disease & Fibro

    DTemple,

    I encourage you to keep researching Lyme as there have been recent studies done in Europe coming up with same results as in America and these were two independent studies concerning Lyme's involvement as a neurotoxin which can actually change its form.

    Lauricidin is a brand name for a form of monolaurin. The only side effect is if you take too large a dose you will get a Herxheimer effect which exhibits as flu-like symptoms: feeling bad, aches and pains and diarrhea because the dying organism will release toxins as it dies. Anyone who has done a herbal cleanse will know about Herxheimer. Lauricidin dosage varies by person, but I started at one-half scoop twice a day for two weeks then on the 3rd week went to one scoop 2x day. There is a website by the same name that will tell you all about Lauricidin. I emailed questions to them about Lyme and actually got a response back from Dr. Kabara. I purchased a ready-made Zapper from World Without Parasites website. It was developed by someone that took Hulda Clark's design and made it into a small device you can wear instead of having to sit and hold onto to copper handpieces for hours. I wear it while I sleep taped to the bottom of my foot under a sock to make sure it contacts the skin. Wearing it on the leg or arm results in acid burns within a few minutes to couple hours depending on your body chemistry. As it alkalizes the blood, it will pull the acid molecules to the skin and with such a high concentration causes acid burns resulting as small holes in the skin which take weeks to scab over and heal. What I wasn't expecting that it could make the severe pain in my ankle go away. Two years ago I sprained (Grade 3 Sprain) and broke a small bone in my ankle. Despite physical therapy, NSAIDS and cortisone injections the pain lingered, but within two nights of wearing the zapper the pain went away. I recently went 9 days without the zapper when I went on vacation and didn't dare take the zapper on the airlines as no telling what they might think it was. My ankle started hurting about 4 days into my vacation. Two days after getting home and wearing the unit again and the pain is going away. I don't know why it works for my ankle pain because it supposedly only treats parasites. I know this all sounds weird to others reading, believe me I was skeptical too, but decided to try because I had exhausted all other "modern Western" treatment options. My doctor approved of me trying both treatments and my friend who heads the Fibro-support group, who had another doctor also got encourgement from her doc to see if these treatments would work.

    Last edited by AngelaA; 05-01-2004 at 10:49 AM. Reason: forgot something

     
    Old 05-01-2004, 10:49 AM   #9
    DTemple
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    Re: The connection between Lyme Disease & Fibro

    My Dad said that that Dr. Clark's book was amazing. I gave the book to him immediately because he is an electrical engineer and I knew he would understand what had to be done. I was overwhelmed with pain at the time. I wonder at what point you will be cured? And I wonder why it helps your ankle which has nothing to do with parasites? I am so anxious to get started. I had a herx reaction in my second round of doxycycline, but my doctor didn't know what a herx reaction was, so I quit the medication in the middle of the dose because I thought the drug was making me toxic. I read about the herxheimer reaction afterwards and realized that that was what was happening to me. Right now I am taking a homeopathic detox and organ support liquid. My homeopathic dentist tested me using Electra Dermal Screening and I was positive for several things, including mercury toxicity.

     
    Old 05-02-2004, 03:56 PM   #10
    AngelaA
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    Re: The connection between Lyme Disease & Fibro

    DTemple- I have a few theories on why the ankle pain ceased. Perhaps the Zapper reduces inflammation? Or when it kills parasites it frees up the body to start healing whatever is wrong when previously the bodies resources were being used to constantly fight an invading entity ie: Lyme, neurotocins or micoplasms.

    If you are considering chelation therapy for the mercury toxicity please beware that IV chelation has an end result of damaging the liver in some people. A friend with mercury toxicity found something else that she said helped her de-tox and it actually can pass through the blood-brain barrier which chelation does not. I forget the name of the stuff, but I can find out for you if you like.

     
    Old 05-02-2004, 04:17 PM   #11
    AngelaA
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    Re: The connection between Lyme Disease & Fibro

    Quote:
    Originally Posted by DTemple
    Are you feeling better? I ordered the Lavricidin and my Dad is making the Zapper. I am so desperate to feel normal again, I will try any approach. Thanks for your information, we need as much as you can share.
    I am feeling a lot better since using the Lauricidin. I don't have as many painful days as before. I increased my dose to see what would happen and I got a definite Herxheimer reaction. One scoop seems to be optimal which is good as that means one jar should last me a month. I don't know at what point I might be "cured". Some of what I've read suggests Lyme can never be completely erased from the body because it is efficient in disguising itself by changing form. I'm quit fascinated by the monolaurin. The way it works is by covering the Lyme Spirochete with lipid which effectively smothers it. I'm also researching taking DHA/EPA in the form of fish oil for its healing properties. Just curious what supplements, if any, have you tried to ease the fibro symptoms?

     
    Old 05-02-2004, 06:54 PM   #12
    typingterror
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    Re: The connection between Lyme Disease & Fibro

    I have tried taking magnesium, drinking tonic water, glucosamine and chondrontin, fish oil (about 24 capsules daily) and detoxifying body. I made sure I tried all treatments alone for at least 3 months so I could get a good reading, except for drinking that horrible bitter tonic water to no avail. Initially I always thought something was helping and perhaps it was because I was so desperate to find a natural substance to control symptoms since doctor was not helpful, but all it did was cost me a lot of money in vain. I have a friend that swears by taking rosemary leaf in liquid form which was unavailable here, but decided to not try anything else but throw myself on mercy of rheumatologist at end of month to see what suggestions she has. (TT)

     
    Old 05-04-2004, 06:11 PM   #13
    AngelaA
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    Re: The connection between Lyme Disease & Fibro

    I've never heard of drinking tonic water for any medicinal purpose. I've always assumed it was just a drink. May I ask what kind of fish oil capsules you took? Fish oil is generally very healing, though cod liver oil should be avoided by anyone with frequent sun exposure as that oil contains Vit D which may cause too much buildup of D in people living in warmer climates or at higher altitudes. I came across lab tests of dozens of different fish oils and it was found that most brands did not have near the amount of DHA & EPA that they claimed. The top brand was Carlson's Fish Oil (which is lemon flavored-a big plus in my book). Other brands in the top 10 were Twinlabs EPA and Puritan's Pride fish oil.

    Many FMS sufferers will get relief from taking calcium, magnesium (Slow-Mag is best), 5-HTP, Malic Acid and Boswellin. Malic is very cheap so I take it daily. Boswellin helps ease the pain for me when it gets really bad, like during weather changes, but the stuff is incredibily expensive to take very often.

    I've not heard much about using rosemary medicinally other than it having germicidal properties so it does make a good cleanser.

    I hope your rheumatologist will help you feel better. Mine is the only rheumy in town, in fact only one for hundreds of miles, he isn't on insurance and cost me $300 for one visit. He told me there's nothing he can do for me right now, but to come back when I have fullblown Lupus. Reassuring huh? Out of 30 people in our FMS group only 2 say anything positive about him. Said to have so many in town suffering!

     
    Old 05-04-2004, 07:21 PM   #14
    Montui
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    Re: The connection between Lyme Disease & Fibro

    [QUOTE=AngelaA] There has been recent research in US & England about Lyme being the real cause of fibro and that it may even account for someone having high ANA antibodies. At least this is what I have been told then was showed some data to back it up.

    Just to put a different perspective on things, here in New Zealand we do not have Lyme disease....and we still get fibromyalgia. So Lyme disease might be a cause, but it isn't the only one. I'm picking that the cause is some trauma to the body - illness, accident or stress.

     
    Old 05-05-2004, 05:06 AM   #15
    DTemple
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    Re: The connection between Lyme Disease & Fibro

    To put my two cents in: after eight months of research I have come up with some of the possible causes of fibromyalgia: Mycoplasma infection, TMJ disorder, Thyroid abnormalities, Chiari malformation, Unknown viral infection, Bacterial infection such as lyme, Trauma or injury (accident), Nutritional deficiency - "leaky gut" causing Candida/Parasites & Metals, Pollutants or Mercury Toxicity. Can anyone add to this? I am systematically trying to eliminate all of these possible reasons for my symptoms. For Mycoplasma infection, the therapy is antiobiotics, TMJ can be relieved with PT & exercises/possibly a splint, Thyroid needs thyroid meds, Chiari malformation needs surgery, Viral infection use EEG neurofeedback, Lyme or bacteria use antiobiotics and The Zapper, for an Accident use PT or craniosacral therapy, Nutritional deficiencies use supplements intravenously, minerals and detox program and metals/pollutants use detox program and remove amalgam fillings.

     
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