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a request from you?

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Old 06-06-2004, 02:56 PM   #1
Senior Member
Join Date: Nov 2003
Location: PA.
Posts: 160
tam821 HB User
a request from you?

HI, I need a favor from others with fibro. ...... My family looks at me and thinks nothing is wrong, they wont take the time to look it up to see what it it.... I need to prove my case here. My biggest problem is I cant sleep, I finally fall asleep at 6 am. and sleep til like 11. They think I can just fall alseep at nite, whats the big deal. but i try to tell them I CANT... they theres the brain fog, I forget stuff and mix up things, I laugh about it, ya have too..
and of course the muscle pain.. OUCH... I cant make plans at all, and I hate to promise i will do something, then back out, but I dont know if ill sleep tonite, and no sleep means, pain!!!

Will you pleaseeeeeeeee, tell my family that this is real, that sleep , imsomnia,
is a big part of fibro. and tell me a bit about how your getting thru this.

What I want to do is print all the replies out, make cpies and hand them to my family member, my dad, my sister, my sons,,, my husband does undertstand this, i am so glad...

I appreciate all your help..

many thanks,

Last edited by tam821; 06-06-2004 at 02:56 PM.

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Old 06-06-2004, 05:01 PM   #2
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Join Date: Feb 2003
Location: Tx
Posts: 1,125
Jenetti HB User
Re: a request from you?

ohhhh hon, so sorry for what youre going thru. Trust me, fibromyalgia has alot to do with sleep problems. For some reason people with fibro cannot get that deep sleep normal people do. Stage 4 i think, we dont get that, and thats what you need to get your cells renewed and to recuperate from the day. Without sleep, we hurt more, we cannot think straight, we cannot function. TRUST ME, this is for your family. IT IS TRUE. IT IS ONE OF THE number ONE problems with people with fibro. Along with fibro fog, irritable bowel sydrome and a bunch of other symptoms. One major one being extreme PAIN.
Do you take anything for sleep hon?? I take elavil for that deep sleep. Without it i cannot sleep and trust me i have gone up to 48 hours and more without sleep .
Elavil allows you to reach that deep sleep and even with that, we still have lots of other problems to deal with. Fibro is very real. I am also on lortab and soma (muscle relaxer) every day for the pain management. We never know when we will have a flareup which means extra pain on TOP of the normal pain.
We all live with the problems of saying yes to something, an event or plan something only to be let down because of the pain or the draining tiredness that goes along with fibro. Im glad your hubby believes you. I pray your family will learn to believe you as well. Simply because we look fine on the outside does NOT mean we are well. All i know is that with spousal/partner and family support, life is a bit easier for us. We all need that support. My prayer is that you receive it from your family sweetie and they educate themselves about fibromyalgia.
Love and hugs,

Old 06-06-2004, 06:43 PM   #3
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: a request from you?

Hi Tammy,

Jen said it all fabulously. I'm sure you will have many replies by tomorrow. We all go through what you're describing. I can't count after 12 years with fibro how many times I have had to cancel or change plans and spent the day crying because I was missing out on something. Just the word plan is a dirty word in my house. Luckily my husband also understands and I am thankful for you that yours does. But you need more than just your spouse.

It took several years for me to get my close friends to understand my unreliability. I worked up until two years ago and since then I've really become a flake. And I miss out on many things. I will write more tomorrow but I just wanted you to know you're not alone.

Will write more later...hands hurt. - Andy

Old 06-06-2004, 07:22 PM   #4
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Join Date: Mar 2003
Location: Balt. MD USA
Posts: 134
Pattyanne HB User
Re: a request from you?

I just wanted to tell you I am the mother of a daughter (age 36) with fibro. Her not sleeping and feeling so bad the next day has gone on for years. She thinks I am the only one who understands all the problems of this condition. We have both cryed as we tried to convince family, doctors and friends that this is a real condition and a problem that won't go away. Be thankful that this board is here because these people, (who have fibro) are the ones who truly understand and sympathize as they try to go thru their lives on 1 or 2 hours of sleep. Let's hope God doesn't punish the other people for their lack of compassion.

Old 06-07-2004, 01:53 AM   #5
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Join Date: Apr 2004
Location: Fond du Lac, WI
Posts: 250
typingterror HB User
Re: a request from you?

Really good answers. I am so glad your husband understands. Do not feel like you have to justify your actions to anyone. It is best to only be around positive people as the negativity will drag you down. We don't make plans we do things on the spur of the moment when we are able. "Normal" people will never understand so save your strength on more important things. Here is my own FIBRO definition - Feeling Impaired, Beaten, Really Overwhelmed. We are always here for the good/bad and will pass no judgment. (TT)

Old 06-07-2004, 11:53 AM   #6
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Join Date: Nov 2003
Location: PA.
Posts: 160
tam821 HB User
Re: a request from you?

oh thank you soooooo MUCH. ..and yep i do feel like I have to justify this all the time. thats the worse. I guess its hard to be so active, then BOOM, just getting thru the day. I will print this out, Hopefully, they will see this is not in my head, there are many others in my shoes, and we are trying out best to cope,
I want to thank you all for your letters, and I pray that each of you have a better day today than yesterday.

you guys are GREAT


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