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anyone have any insight for me??

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Old 07-12-2004, 08:03 AM   #1
daniel Craig
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Join Date: Jun 2004
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daniel Craig HB User
anyone have any insight for me??

greetings fellow forum people

My Story starts when i was 12, i had a fall and landed of my upper neck joints..i remember losing all feeling from my neck down for at least 60 seconds ..then luckily for me ..all feeling returned to my body .,being a typical 12 year old .the next day it was like nothing ever happend and i was my usual spritely self, i wasnt even sore....

THEN,,,when i was 19 years of age i foolishly took a mere half a tab of LSD,,and it didnt affect me mentally, but 20 minz after ingesting the drug my neck joints were in alot of pain,,,this lasted 8 hours till i went to sleep ...

The next day,,the pain had subsided...

2 weeks later i started to feel a tiny pin prik, a kind of pinching inbetween my 2 of my neck joints,,,this sensation over the next few days grew until one night felt a week later it felt like someone was sticking a knife inbetween 2 joints of my neck....wierdly enough the next day this pain subsided and was replaced with stiffness and soreness instead...Then one week later i started to get tiny muscle spams / tremors in my legs n arms,,and i noticed it was becoming harder and harder each day to ride my pushbike...

Over the next few years these muscle spasms grew and started to attack every single muscle in my body ,,,from head to toe...i grew weaker and weaker left hand side was weaker originally therefore it has bore the brunt of the weakness....after around 5 years of this in my mid twenties i started to wake up with numb hands, typical carpel tunnel type symptoms..the stifness in my neck seemed to grow as well....i get sharp needle like pains and some kind of "creaking" sensation (like a door) in those neck joints where it all started,,

IM now 29 ,,,All my scans, MRI, CT and x-rays are all CLear...apart from a slight curve in my spine, which is the result of 10 years of muscle weakness around the spine not holding it in place any longer..Ive seen countless neuro's and other specialists,,ive tried acupuncture and massage ,,chairopractic and physio..all offering not one bit of releif to my problems....i did a Detox dietf recommended from a natropath, and although i lost some weight,,,i still deterioated in the same manner...One specialiast seems to think i have pinched nerves,,,but as nothing shows on MRI scans ,,he can not operate to releive the pressure...My left hand side of my body is becoming useless, and obviously im depressed and anxious as i fear not being able to move within the coming months.....i am on anti anxiety meds, have been for the last 3 years...and i take baclofen to ease the cramping of exhausted muscles...thats the only thing i seem to be able to control...the cramps ...but the actual spasms are servere,,,my entire bicep or tricep u can see shuddering and pulsating..same applies to every other muscle in my body ...

i havnt been diagnosed with fibromyalgia ,,,,but does it sound like i have it??

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Old 07-12-2004, 08:37 AM   #2
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: anyone have any insight for me??

Wow you've been through a lot. It could be possible fibro. I would ask your doctor to check you for the trigger points of fibro. These are tender points all over you body in specific places. You don't really know they are there until you press on them but then it's like HOLY CR&& that hurts. I've had fibro a long time but it didn't get really bad until two years ago. I believe the severe fibro in my right side is from an epidural I had. I felt much the same shooting, tingling shock and then numbness. My numbness lasted for weeks though and then became intermittent for months. I still get it.

Hope that helps a little. - Andy

Old 07-12-2004, 08:51 AM   #3
Join Date: Jun 2004
Posts: 242
PapaRoux HB User
Re: anyone have any insight for me??


I would go to a rheumatologist and get it checked out. Just asked if you have fibromyalgia or not. Get a second opinion also.

From what you wrote it doesn't sound like Fibromyalgia to me, but then again---I'm no doctor.

You could have something even worse, so it's worth the time and money to find out.

Good luck,


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