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The List

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Old 07-14-2004, 04:57 PM   #1
Join Date: Nov 2000
Posts: 520
Copper HB User
Cool The List

Hi All,

I figured it was time to bring out "The List" again for all the new folks to the board (and for anyone else who may have forgotten where they put it )

It is a great tool to use to present your symptoms in a concise form to sometimes, slow to catch on doctors.

____ Fatigue, made worse by physical exertion or stress
____ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____ Sore throat
____ Hoarseness
____ Tender or swollen lymph nodes (glands), especially in neck and underarms
____ Shortness of breath (air hunger) with little or no exertion
____ Frequent sighing
____ Tremor or trembling
____ Severe nasal allergies (new allergies or worsening of previous allergies)
____ Cough
____ Night sweats
____ Low-grade fevers
____ Feeling cold often
____ Feeling hot often
____ Cold extremities (hands and feet)
____ Low body temperature (below 97.6)
____ Low blood pressure (below 110/70)
____ Heart palpitations
____ Dryness of eyes and/or mouth
____ Increased thirst
____ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
____ Symptoms worsened by stress

____ Headache
____ Tender points or trigger points
____ Muscle pain
____ Muscle twitching
____ Muscle weakness
____ Paralysis or severe weakness of an arm or leg
____ Joint pain
____ TMJ syndrome
____ Chest pain

____ Lightheadedness; feeling "spaced out"
____ Inability to think clearly ("brain fog")
____ Seizures
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
____ Sensation that you might faint
____ Vertigo or dizziness
____ Numbness or tingling sensations
____ Tinnitus (ringing in one or both ears)
____ Photophobia (sensitivity to light)
____ Noise intolerance

____ Feeling spatially disoriented
____ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
____ Dropping things frequently
____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
____ "Not quite seeing" what you are looking at

____ Hypersomnia (excessive sleeping)
____ Sleep disturbance: unrefreshing or non-restorative sleep
____ Sleep disturbance: difficulty falling asleep
____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
____ Sleep disturbance: vivid or disturbing dreams or nightmares
____ Altered sleep/wake schedule (alertness/energy best late at night)

____ Depressed mood
____ Suicidal thoughts
____ Suicide attempts
____ Feeling worthless
____ Frequent crying
____ Feeling helpless and/or hopeless
____ Inability to enjoy previously enjoyed activities
____ Increased appetite
____ Decreased appetite
____ Anxiety or fear when there is no obvious cause
____ Panic attacks
____ Irritability; overreaction
____ Rage attacks: anger outbursts with little or no cause
____ Abrupt, unpredictable mood swings
____ Phobias (irrational fears)
____ Personality changes

____ Eye pain
____ Changes in visual acuity (frequent changes in ability to see well)
____ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision

____ Sensitivities to medications (unable to tolerate "normal" dosage)
____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
____ Sensitivities to foods
____ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing

____ Frequent urination
____ Painful urination or bladder pain
____ Prostate pain
____ Impotence
____ Endometriosis
____ Worsening of premenstrual syndrome (PMS)
____ Decreased libido (sex drive)

____ Stomach ache; abdominal cramps
____ Nausea
____ Vomiting
____ Esophageal reflux (heartburn)
____ Frequent diarrhea
____ Frequent constipation
____ Bloating; intestinal gas
____ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (____ lbs)
____ Weight loss (____ lbs)

____ Rashes or sores
____ Eczema or psoriasis

____ Hair loss
____ Mitral valve prolapse
____ Cancer
____ Dental problems
____ Periodontal (gum) disease
____ Aphthous ulcers (canker sores)

____ Difficulty with simple calculations (e.g., balancing checkbook)
____ Word-finding difficulty
____ Using the wrong word
____ Difficulty expressing ideas in words
____ Difficulty moving your mouth to speak
____ Slowed speech
____ Stuttering; stammering
____ Impaired ability to concentrate
____ Easily distracted during a task
____ Difficulty paying attention
____ Difficulty following a conversation when background noise is present
____ Losing your train of thought in the middle of a sentence
____ Difficulty putting tasks or things in proper sequence
____ Losing track in the middle of a task (remembering what to do next)
____ Difficulty with short-term memory
____ Difficulty with long-term memory
____ Forgetting how to do routine things
____ Difficulty understanding what you read
____ Switching left and right
____ Transposition (reversal) of numbers, words and/or letters when you speak
____ Transposition (reversal) of numbers, words and/or letters when you write
____ Difficulty remembering names of objects
____ Difficulty remembering names of people
____ Difficulty recognizing faces
____ Difficulty following simple written instructions
____ Difficulty following complicated written instructions
____ Difficulty following simple oral (spoken) instructions
____ Difficulty following complicated oral (spoken) instructions
____ Poor judgment
____ Difficulty making decisions
____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
____ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive

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Old 07-15-2004, 05:52 AM   #2
Join Date: Jun 2004
Posts: 242
PapaRoux HB User
Re: The List

Good for the newbies and a nice review for me.
50% of pre-illness activities is a big one for me and I have so many of the others I wanted to lay my head on the table and just say 'Why me?'

That's life. Lyme Disease has led me down a wrong turn in life. But, then again---who doesn't have something these days?


Old 07-15-2004, 08:25 PM   #3
Join Date: Jul 2004
Posts: 321
wishn HB User
Re: The List

Thanks! Great list. I am about to "doctor search" again. I will print copy and print this out tomorrow.

Old 07-17-2004, 03:10 AM   #4
Join Date: Jul 2004
Posts: 70
kovena HB User
Re: The List

WOW! you just described me in your List. It was scarey yet reassuring to see that list. I have never seen it before. I certainally fit the description.
"Above All Do No Harm"...Love and Healing Light to All...Kovena

Old 07-17-2004, 06:59 PM   #5
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: The List

Hi There,

Thanks for this list. I think it will be really helpful. It's hard with the number of symptoms and brain fog to get it all said to the doc.

- Andy

Old 07-18-2004, 02:51 PM   #6
Senior Member
Join Date: May 2004
Location: Dallas, TX, USA
Posts: 220
mollymadison HB User
Re: The List

Did I miss something. Shouldn't headaches or migraines be on the list?

Old 07-19-2004, 09:22 AM   #7
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: The List

Hi Molly, Headache is right under PAIN. Don't feel bad, I tried to read a magazine article three times this morning, kept having to start over and finally gave up.

My Mom has fibro too and we went shopping together so between the two of us we manage to compensate for each other's brain fog so we remember everything.

- Andy

Old 07-19-2004, 12:27 PM   #8
Junior Member
Join Date: Feb 2003
Location: USA
Posts: 37
MrsChickapea HB User
Re: The List

Thanks for the list, Copper. I copied it and pasted it in Word for future use. Have seen similar, but none that hit the nail right on the head like this one does!! When I go in to see the Dr., I feel like a tongue-tied kid on a first date. Just can't talk so anyone would understand. I'm sure it isn't easy for the Drs. either; I sound like a blithering idiot some days. And the size of the list of symptoms is enough to scare the beegeebers out of anyone. Really don't think they know what to address with us first. If I were treating a patient with a list that long, I'd be stumped and overwhelmed too!!!!!! On the other hand, how are we suppose to handle the illness, if they can't handle The List??

Just answer me that!! LOL There I feel better, how about you?
May you always have love to share and family & friends who truly care. I care!
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Old 07-20-2004, 09:07 AM   #9
Senior Member
Join Date: May 2004
Location: Dallas, TX, USA
Posts: 220
mollymadison HB User
Re: The List

Thanks Andy!
As I have posted before, the "fog" is really getting to me lately! I can't talk, I run into things, and I loose my balance quite often. I definitely can't concentrate. I have 3 books here to read to educate myself on fibro and can't read more than 2 minutes without having to re-read the few sentences to "get It". Even typing this message is hard. Mostly back spacing. I am managing to try and read posts to help cope. That IS working.

Thanks for the list!


Old 07-20-2004, 10:20 AM   #10
Junior Member
Join Date: Jun 2004
Posts: 17
foxwalker HB User
Re: The List

Hi from a newbie

Gee I never put all of the symptoms all together I never really thought about just how much we really end up having ,I was totally shocked to see how many of them I had and just didn't realize that it was fibro related .
Thanks for posting this info I found it very helpful .

Old 07-21-2004, 09:58 AM   #11
Senior Member
Join Date: May 2004
Location: Dallas, TX, USA
Posts: 220
mollymadison HB User
Re: The List

Just wondering.....Where did you find this list? I am curious if there is yet another book I should be referecing. Is this just from your researching?

Old 07-21-2004, 10:26 AM   #12
Junior Member
Join Date: Jun 2004
Location: Lost Creek, WV
Posts: 42
snslilly HB User
Re: The List

This list is wonderful. I was given a similar list just not quite as detailed when I went for an evaluation. This list will certainly be wonderful for me to take to my next doctors appt. My dr is wonderful but sometimes I feel like we are skipping over some of my symptoms and they are continuing to create problems for me. Maybe if I take in this list, my doctor can refresh on what all I have going on and try to take a different approach to some of the symptoms. I would also like to know where you got this list.

Old 07-21-2004, 04:57 PM   #13
Senior Veteran
Join Date: Dec 2002
Posts: 852
lovemythreeguys2002 HB User
Re: The List

Hi...I just wanted to say that many of those symptoms are over and above what fibro consists of......many of those could be symptoms for Lupus, MS, thyroid disease, etc etc.....please don't accept a Fibro DX until ALL other diseases have been ruled out. That includes lots of blood work....AND ask for your labs even if they tell you everything was normal.

They tried to tell me "well, we don't know what is wrong with you, so I guess you must have Fibro"...well, they were way off. As scary as it is to have a serious disease such as I do, I am getting the proper treatment and feeling better than I have in a long time.

Old 07-21-2004, 05:14 PM   #14
Senior Member
Join Date: Oct 2003
Location: oklahoma
Posts: 245
countrygal HB User
Re: The List

When you go to the Rheumy, do they give you a list then? Or is it the packet of ?s they send you? Is it best to have GP to order the test and take them with you ? Or is it best to let the specialist order them?

Old 07-21-2004, 06:38 PM   #15
Join Date: Nov 2000
Posts: 520
Copper HB User
Question Re: The List

Originally Posted by mollymadison
Just wondering.....Where did you find this list? I am curious if there is yet another book I should be referecing. Is this just from your researching?
To be honest with ya'll, I really don't remember who came up with this list first, or for sure, which of several boards I belong to that it came from. But, I do believe that I ORIGINALLY got it from this board many moons ago.

So KUDOS to the creator! I wish I could give a better answer than this - or give the author their due. But, whatever the case, it was tossed out into the efibro community, and I'll do my best to keep it going until, hopefully, everyone who needs it gets it!

Happy healing to all!

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