It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Fibromyalgia Message Board

Restless Leg Syndrome

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-15-2004, 12:51 PM   #1
Senior Member
Join Date: May 2004
Location: Dallas, TX, USA
Posts: 220
mollymadison HB User
Restless Leg Syndrome

Can someone out there explain and describe what restless leg syndrome is and what it feels like? What are you doing to help the problem? etc. Any information is welcomed and encouraged.


Sponsors Lightbulb
Old 07-15-2004, 01:05 PM   #2
Join Date: Jun 2004
Posts: 242
PapaRoux HB User
Re: Restless Leg Syndrome


I took a long train ride once to get to JFK Hospital in Edison, NJ. I wanted a second opinion about my seizures. During the course of all this they diagnosed me as also having restless leg syndrome.

For me what it is:

an itchy tickling feeling that feels like it's under the skin
legs jerking as a response to it
also legs jerking for no reason at all

I know some people have it worse than I do, but I guess they can explain their own symptoms. I just wanted you to know what went on with me and how it was taken care of:

I take Klonopin at night, also Lamictal.
It has taken care of the problem.


Old 07-15-2004, 02:48 PM   #3
Senior Veteran
Join Date: May 2004
Posts: 1,069
apriltones HB User
Re: Restless Leg Syndrome

what causes this? i feel like got this all over. I have neuro symptoms and the itchy tingly feeling is driving me potty, i want to scratch but nothing is there.

Old 07-16-2004, 03:42 AM   #4
Senior Member
Join Date: Sep 2002
Location: Ireland
Posts: 125
brend HB Userbrend HB User
Re: Restless Leg Syndrome

Hi there,
Just to add to the itching and tingling feeling in the legs of sufferers of restless leg syndrome. In bed at night my legs have an ache which is very difficult to discribe. It seems to come right from the bones in my legs and it feels as if my last bit of energy is being drained out of me. Getting a comfortable position for sleep is very difficult. Another aspect of this is just when I think I am drifting off to sleep I get a feeling as if I have had pin stuck in my legs and I have to start trying to relax all over again.
I have been on many cocktails of meds and they all work to varying degrees for a while. I am now using yoga breathing, mental and physical exercises. So far so good. But maybe not tonight.!!


Old 07-17-2004, 06:54 PM   #5
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: Restless Leg Syndrome

Hi Molly, I have this too. It comes and goes, I don't have it all the time. My soma and codeine help when it does happen. I've also found that ice packs and cold water seem to ease the trhobbing, itching, burning somewhat. I think what helps mine more than anything is a combination of everything I do to take care of myself. And also not overdoing. When I do it almost always happens.

- Andy

Old 07-21-2004, 01:02 PM   #6
Join Date: Jul 2004
Posts: 2
1passionfruit1 HB User
Re: Restless Leg Syndrome

Hi Molly,

I've had RLS my whole life and it's like an uncomfortable dull buzzy ache, usually in the legs, that is temporarily relieved by voluntary movement. It feels sort of like worms crawling under your skin or soda bubbles in your veins. The legs don't jerk on their own--that can be Periodic Limb Movement Disorder or Myoclonus. It most often happens after sitting awhile or at night, although it can occasionally occur earlier in the day. It can drive you crazy.

Caffeine, as well as certain meds like Benadryl can trigger it. I take Darvocet for it, as well as an occasional Ultram or Xanax.

There's a terrific organization called the Restless Legs Syndrome Foundation ( that has lots of information. Hope this helps!!

Old 07-28-2004, 11:15 AM   #7
Join Date: Jul 2004
Posts: 6
sanlee1 HB User
Re: Restless Leg Syndrome

Hi there
RLS Is a condition where your legs feel like they are "jittery" inside and won't unsettle. They even start moving on their own. Kicking movements are involuntary. Some meds can help, like some muscle relaxants. Unfortunately, the more meds you are on, the worse the RLS. Guess it relates to the liver overload. Hope that explains it.

Old 07-29-2004, 02:13 PM   #8
Junior Member
Join Date: Jul 2004
Location: I live in good ole Nashville, Tn
Posts: 45
Barberian HB User
Re: Restless Leg Syndrome

Over doing triggers RLS in me too, but not always.Support hose seem to help mine,I sleep in them when necessary. I know some can't stand it, but for me it works.
Wasn't it qinine (S?) that you used to be able to get for this? Some are lucky enough to have a doc that will rx it.


Old 07-29-2004, 03:24 PM   #9
Senior Member
Join Date: Jul 2003
Location: Salt Lake City, UT, USA
Posts: 206
painsucks HB User
Re: Restless Leg Syndrome

I would say that passionfruit hit the nail right on the head by saying it feels like worms crawling under your skin! I took Flexeril for years for it but then it wasn't helping any more so my dr. put me on Mirapex and it has helped a lot.

Old 07-30-2004, 11:38 AM   #10
Junior Member
Join Date: Jul 2004
Location: Arizona
Posts: 18
heather5 HB User
Re: Restless Leg Syndrome

Hmmm? I have RLS when I take benedryl.
So I just don't take benedryl.
I always just thought it was just a side effect of benedryl?
It HAS happened just a couple of times when I wasn't taking benedryl, but I thought maybe it was something I ate that triggered it.
Does it mean I have RLS, or maybe it's just a response to something else?

Old 08-01-2004, 07:31 AM   #11
Join Date: May 2004
Location: Western Colorado
Posts: 450
taurus3 HB User
Re: Restless Leg Syndrome

Hmmm, good question. I get it to usually from overdoing it. If you can't stand support hose pantyhose can help too without being quite so binding. - Andy

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Has the use of Opiods given anyone Restless Legs? schao Pain Management 4 03-18-2010 01:45 PM
Need tips, advice on restless leg syndrome!!!!!!!HELP melanie in mary Restless Leg Syndrome 14 05-01-2008 06:09 AM
Restless Leg.... Everywhere? AmieSue Thyroid Disorders 2 03-22-2007 05:59 AM
what is Restless Leg Syndrome? skiperdee1979 Restless Leg Syndrome 3 10-13-2005 02:37 PM
Herbs for restless leg syndrome... joquiero Restless Leg Syndrome 6 09-14-2005 11:42 AM
"Restless Legs Syndrome" LonelyTraveler Restless Leg Syndrome 4 08-02-2005 07:13 AM
Anybody having restless leg syndrome? Valley Back Problems 7 05-17-2005 09:52 PM
Restless arm syndrome? SGinDallas Restless Leg Syndrome 26 09-14-2004 11:57 PM
Help with ADD, Rhythmic Movement Disorder and Restless Leg Syndrome CHAOTIC MIND ADD / ADHD 2 03-05-2004 03:55 PM
Restless ARMS syndrome? cpvon Restless Leg Syndrome 3 06-18-2001 10:20 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:45 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!