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FM 12 yrs ago, now told lyme disease is true problem..

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Old 10-27-2005, 08:03 PM   #1
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FM 12 yrs ago, now told lyme disease is true problem..

Hi all
17 yrs ago I contracted Lyme disease and was treated 10 days. (I know now it should have been 6 wk treatment) Testing for co-infections were not available at that time. My lyme titer did come back postitive. I was told that since I was treated, I was cured. (I never saw a bulls eye rash)

12 yrs ago, I started treatment for Fibromyalgia. My dr was rheumataglist. Some of my symptoms just didn't add up. I had alot of one sided pain, neck, head, Lt face numbness & arm numbness. Major fatigue.

4 yrs ago, eye problems sent me to neuroglist. Test revealed lesions on my brain. He said it could be strokes, MG, MS. I never quite accepted either of these. Last 2 yrs with all my symptoms getting worse, memory problems, Dr wanted me to get 2nd opinion from another neuro. That 2nd opionion, was one I would not recommend to anyone. He told me first visit, looked at xray film and said probable MS. Wanted xray of my cervical. I went to him for 2nd opinion, His secretary said he was in a hurry to catch plane, she was to move patients out quickly. He stated that I was just like his wife, complained too much. Just take vitimins and accept fact I am getting older (54) When I ask him about my first visit, he went to computer and said, oh yea there is something there. Lets just wait few months and see then. He walked out. I didn't go back.

I went to my family dr and told him I was going to lyme clinic. He told me I did not have lyme disease. He told me this several times. Told me I was wasting my time. I told him I had tested pos 17 yrs ago, he said okay just keep me informed.

I went to LLMD (Lyme Literate Medical Doctor) who is infectious disease dr specializing in HIV, Lyme (with Fibromyalgia) He tested me, I was never rid of lyme, and have 3 co-infections with lyme. Fibromyalgia actually came in my case from the Lyme infection.

Jump over to the lyme board, see the symptoms for lyme and the co infections.

I am being treated for late chronic lyme, babesosis, bartenella, mycoplasma, while I still have FM. If I can be of help, please let me know. So many people are misdiagnoised each year, make sure you are not one of them.

Prayers, Marsha

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