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  • I didn't fall off the planet....wish fibro could!

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    Old 09-16-2008, 07:22 PM   #1
    Glojer
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    I didn't fall off the planet....wish fibro could!

    I just caught up with all the nice wonderful posts from your fibro fannies. Blue and Ann Boylen, you guys are just a scream about your fanny innertubes. I hope you are both feeling better, I am sure when you get the injection your fibro will start to wilt away.

    I have been fighting this fibro flare in the neck, back left side. It gets a little better with the PT and then gets worse. You guys have the pain in the arse and I have a pain in the neck. Fibro thinks it is going to stress me out by just about going away and then BOOM it jumps right back on the neck again. I talked to the PT today about it and she says, when I run out of visits (approved by insurance) she can request more. She has not been digging in the muscle and pushing as hard, I mentioned to her today she could use more force if she wanted. So maybe she will do that and see how it works. It is the going over to PT twice a week and interrupting my schedule that is bugging me. Ha....Ha.....like I have so many important things to do.

    Time is getting short though, new grandson will be born on Nov. 6 (C-section) and with DIL's muscle weakness and other health issues, I am going to need to be up and running smooth to help out. Even if I am not the family will never know it, that is what we moms/grandmoms do. Heaven help the fibro that tries to get in the way!!!!

    I know it has been a whole week since I have been on the boards, I had a few rough days with fibro and a few fun filled days and a few 'you got to be kidding me' days. I will try to catch up on all everyones posts in the next few days. Tomorrow will be another fun filled day of docs and running for the family. I go to the dermatologist for the yearly mole check, which really happens every two or three years. So far all the things removed have come back negative. I always say I am a very 'moley' person, I even have one behind my eye....go figure. When the opthamologist told me that, I said, "a what...can you get a mole behind the eyeball." Obviously you can!

    Anyway fellow fibromights, I am off to see the sand man. Maybe when I get a few minutes I will do a thread on sleep and fibro, I have been having some great success with it lately. Been trying to work out some theorys on it and what is helping the most.

    Blue, keep on dancing....Jenn and Ann, thanks for all your wonderful words of support for one another and for me and blue and all of us. We all need it.

    Catch you later....
    Glojer

     
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    Old 09-17-2008, 12:51 AM   #2
    DeBeachSiren
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    Re: I didn't fall off the planet....wish fibro could!

    Hi Glojer,

    [removed] I feel like I really made a difference. Laughter is the greatest. Any venting is theraputic.

    I sure hope our bums will feel lots better. With this disease I'm sure we'll do something just as bizarre in the future, but for the life of me I'm not sure what. It will manifest itself.

    Know what? My bum pain is from the 1st husband trying to see how high I'd bounce on concrete 30 years ago. It's deteriorating and I have arthritis in there. Most of my problems are right above the bra line on my back, between the shoulders and up the neck. Mostly on the left side. We got rear-ended and I had my head turned to the left and my head went back and forth like that. Then the fibro took over. I have nerve entrapment in my neck and shoulders on that side, that's why I have the electrodes in my head. I had barfy headaches all the time and migraine medicines don't touch those kind.

    Try to keep with the massages though if you can, they really help me. There is a massage school here and I'd call and say "can anyone work me in my head is splitting "and they did. I know it's a pain to go out....I feel the same way. I am a night owl and when I know I have to get up at a certain time I don't sleep well. I just hate to drive all that way and when they get done you're laying there, at least I am, all untight and they say take your time getting dressed........I think they should let ya just stay there.

    I'll bet you can't wait for the new little one. That is such an amazing thing. I love newborns the best, they smell so good with baby magic on. I held one a couple weeks ago.......my pain like drifted away just looking at her. I wonder if they have hospitals where you could volunteer as baby rockers for crack babies. I know as they go through withdrawal they need cuddled. I may check that out.

    Wow, glad the moles are alright. My dad has to do that every now and then. I get the ugly red ones.........thanks Gram.

    Yep, when you get fully on here again fill us in on the sleep improvements.

    I enjoy the care and support from You, Blue and Jenn too.

    Oh, went to the doc today to get my knee checked out, it's messed up again, sorta fibro and not. I took my doc some home-made choc chip cookies and lyrics. He is such a nut and he's known me forever, I watched him go from new doc to one that's getting gray. I'm fortunate to have a doc that knows me so well and my pain specialist is the same. I've had the priviledge to see him turn into the best doc on the east coast.....I am a guinea pig with this head thing. I wish everyone could have such a good relationship with their docs. And they are in the same building now!!!!! I had on my cub shirt and I said here's cookies for your pity party and you need to learn these lyrics for the world series. I printed out the go cubs go song. Then after he quit laughing he said okay I want you to get an MRI. I said what??? and he said oh yeah you can't have one or your head will explode. And it will, so anyone out here reading this make sure you keep your info with you if you have a simulator, because this will happen.

    Nite-Nite
    AnneBoleyn

    Last edited by HBMod07; 09-17-2008 at 08:18 AM. Reason: Discussing moderators actions is not permitted. Please review the Posting Rules

     
    Old 09-17-2008, 06:21 AM   #3
    Paddy55
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    Re: I didn't fall off the planet....wish fibro could!

    Anne - you are so right about the babies! Something magical happens in our arms when we hold one. My 5 grandbabies are not babies anymore, but they still give me a hug and a chuckle now and then. You mentioned about crack babies or sick babies maybe needing cuddling as therapy. In my home town, 2 friends of mine started a program at our home for young unwed moms. The Moms move in there until the baby is born and then til they get a job or placement afterwards. Anyway, my friends babysit there once a week. On one night a week, they, along with 3 other ladies, go to the home and let the young moms go out for a while. It's only for a few hours, but it is a life saver for them and a wonderful adventure for the adult women. Everybody wins!
    Glojer - can't wait to hear about the sleep improvements. I can't get rid of nightmares - I'm always defending myself from some criminal, kicking and screaming, and sometimes h is unfortunately "in the way". It used to be funny, but h is losing his sense of humor fast. I have stopped napping - I allow myself to lie down midday to rest the body, but not to sleep. Jury's still out on that experiment.
    Hope this beautiful sunny and cool weather is wherever you are,
    Paddy

     
    Old 09-17-2008, 10:35 AM   #4
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    Re: I didn't fall off the planet....wish fibro could!

    I hope this message finds everyone doing as well as possible... Had my monthly appointment with the pain doc... Trigger point injections so I will be on the heating pad most of the day, dropped scripts off on the way home and need to go pick them up, but it will have to wait. Two more days this week, two more doc appointments, then another on Monday. I may have a party on Tuesday just to celebrate not having any for about 3 more weeks. I am just exhausted, no pity party just exhausted. Just wanted to give everyone my best. Hang in there my friends, Jenn

     
    Old 09-17-2008, 03:24 PM   #5
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    Re: I didn't fall off the planet....wish fibro could!

    Hi Glojer!
    I'm so glad your feet are still on planet earth. I can imagine that a new grandbaby is lots of fun. Both my kids are in the 30's, unmarried, no grandkids. I'm beginning to wonder if I'll ever see the day.

    I have a mole behind the iris of my left eye. How interesting your doc found a mole in your eye. Isn't that peculiar!?

    Bye!
    Kirstee

     
    Old 09-17-2008, 05:13 PM   #6
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    Re: I didn't fall off the planet....wish fibro could!

    Mole check went fine today. Our dermie is so nice, braveman started with her and grandson and DIL saw her for a while, and I finally took the opportunity to do something for me. Boy wasn't that an exciting thing to do.....giggle!

    Ann, I have trouble in my back just right at the bra line, just below the shoulder blades. Fibro likes to play there a lot. It gets better when I can do my regular exercises but PT doesn't want me to do anything above my head until she gets the neck straightened out. After PT is over I am going to start to therapuetic massage therapy. It is done at the hospital medical building. My PCP recommends it highly, but I don't think insurance will pay (have to check it out). I am on a campaign to get some of the kinks worked out though.

    I can share what I think is helping my sleep. Exercise for one thing really got me started sleeping more soundly. I have been a little lax in the e-cise dept. of late, but am still doing well with the sleep. I don't worry so much about not taking a nap. I have found that if I really need to close my eyes in the afternoon, that sometimes helps me sleep better at night. You know that not too tired to fall asleep or rest thing. Also eating an early supper, anything after six pm start to scale down the amount you eat. If I eat late and eat a heavier meal or too much it affects my ability to fall asleep. Of course I have already mentioned sleeping alone, I can't tell you how much that helps.....really! I was just so use to getting woke up all night long I didn't realize how much better I would feel with a full nights sleep. Of course this didn't happen over one night, but once a habit was established of sleeping all night and not worrying if braveman was alright and not jumping everytime I heard him up and about, thinking he was sick or having trouble. I began to relax more and enjoyed an entire 7 to 8 hours of sleep. Sometimes with the occasional potty break of course at my age!! I know some of you don't have sick hubbys, but for years his snoring and cover hogging and bed hogging and talking in his sleep. He was a night worker and would get in bed at all the wee hours of the night or morning and of course that wakes you up too. Of course in those days we always had a couple kids and the dog in bed too....I don't think I slept for several years.

    Now all that said, I do take meds to help me sleep. I take an ambienCR and 20mgs of baclofen (muscle relaxer), but I have found the secret to the baclofen is to take it about 2 or 3 hours before bedtime by that time my muscles are relaxed enough to let my body drift off to never never land. If I do still have trouble falling asleep, then 10 more mgs of baclofen and all is well. The doc suggested this and it has worked really well. One other thing that I have noticed lately, but it does need more research, is to take enough sinus meds (OTC) to clear up the stuffy nose and ear problems. I live in the sinusitus capital of the world and I usually stop the sinus meds (OTC) as soon as possible cause they disrupt my sleep. I worked out a way to take them early in the morning, and for a longer time and I think even that has been helpful. Of course we are going into another allergy season so time will tell.

    Sleep is a very important thing for my fibro. If I don't get enough good sleep, I have a ridiculous amount of pain. I can't afford that now. I hope some of my suggestions help.

    Catch you all later
    Glojer

    PS. Paddy, boy you are having some tough sleeping issues. Is some of your meds maybe causing the awful nightmares? Like we use to tell our kids, maybe your watching too many scary things on TV.

    Last edited by Glojer; 09-17-2008 at 05:23 PM. Reason: forgot to mention paddys nightmares.

     
    Old 09-17-2008, 05:19 PM   #7
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    Re: I didn't fall off the planet....wish fibro could!

    Kirstee maybe having a mole behind the eye isn't that unusual. It sure sounds like it should be, but we prove it is just a fact of life.

    Jenn, I am ready for a party. So glad you are going to get some relief. Hang in there.

    Glojer

     
    Old 09-17-2008, 05:34 PM   #8
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    Re: I didn't fall off the planet....wish fibro could!

    Glojer - funny you mention the nightmares and whether any meds are doing it. I just finished researching Verapamil, which I take as a prophilactic for migraine. They list night terrors and restlessness as possible side effects. I'll review it next time I see the doc. Have yet to research the rest of the list. And I avoid tv shows with that kind of imagery, but sometimes the news program is worse!
    Wishing you peace and comfort,
    Paddy

     
    Old 09-18-2008, 06:22 AM   #9
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    Re: I didn't fall off the planet....wish fibro could!

    hi glojer,
    i think fibro figured out the world is round and if it just keeps at it it willl find us. it sure hit me, along with everything else. i have to be off some meds for the fanny procedure. needless to say i run all night and my goodness some of those meds must have been helping more than i realized! sorry it found you too.
    i know the change in temp and meds has sparked this flare. so has worry. personal. i sit where you were with braveman, only it is one of my daughters. just found out last night.
    you take care of you. you will be needed soon.
    peace and hugs to all,
    blue

     
    Old 09-18-2008, 07:33 AM   #10
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    Re: I didn't fall off the planet....wish fibro could!

    Oh Blue. I am sending lots of positive energy your way. Hang in.
    And Glojer - I am heading out for some exercise - it is a beautiful day for a walk. I will try to do it every day, on a mission to resolve these sleep issues. So thanks for reinforcing exercise as helpful.
    Paddy

     
    Old 09-18-2008, 10:21 AM   #11
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    Re: I didn't fall off the planet....wish fibro could!

    Fibro must be running all over the planet sooner or later it has to wear out and fall off... I am really PI**ED off at it today However, I am sending whatever positive energy I have left to Blue and whoever else may need it.

    I truly understand about the sleep issue. I wish I had an extra bedroom in my house. Okay, for those who do not wish to listen to me vent, please go on to the next post... Hubby tells me he cannot help his snoring. Well, let's put it into perspective... He quit drinking for about a month back in February, didn't hardly snore at all. Starts drinking again, and viola', snoring is back. Drinks til he passes out and falls into bed which if I am already asleep, wakes me up or starts snoring right away and wakes me up. Give me a hammer with a claw side and let me have one swing. Off to the couch I go. Enough said about that.

    I know that we have to keep a positive outlook so that fibro does not win, right now, it is winning... I am sorry, but I don't think there is a place on me that does not hurt. The thing is though, it is not raining, snowing... whatever it is that usually makes a bad flare-up come on is not there.

    I know I have had to go out way more than usual this week but this thing is kicking my butt. No pun intended to my two friends that have those issues.
    The heating pad is not working.. I even tried ice packs which normally kill me, no luck... I don't know what else to do.. So I decided to come here and let off some steam and hopefully, somebody can give me some suggestions or something.

    I only wish the best for you all and I hate to complain because I know others are having a hard time as well but I had no other alternative. God Bless you all... Jenn

     
    Old 09-18-2008, 10:54 AM   #12
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    Re: I didn't fall off the planet....wish fibro could!

    Aaah, snoring. I am the culprit in my house.
    Jenn, you are quite welcome to vent in my ear anytime. I was working on the computer, so your post has given me a break. Let's see. Your heating pad is not working? How about putting a light blanket in the dryer on high and then wrap it all around you. Or towels, they always feel so nice when they're warm.
    If you are really serious about something new to add to your repertoire for fighting pain... how about visualization? At the risk of you guys saying I am nuts, I will explain the way I do it. There is no "right way" just what works for you.
    Get as comfortable, warm, and quiet as you can. Close your eyes, taking soft deep breaths for a few minutes. When you feel ready, imagine butterflies around you - fluttering everywhere - beautifully coloured butterflies. Use your imagination, keeping your eyes closed, picture the butterflies. They are getting close to you and leaving little "kisses" - soft flicking of their wings - all over you. Your eyes, your ears, your toes, and wherever you have pain. They are very gentle, and their touch quietly tugs away the pain in that spot, another spot, and then they move on to another spot. Sense the kindness of the butterflies and the warmth of their touch. Slowly allow the pain to be drawn from you as they take it away on their beautiful wings. Imagine the joy -- the feeling of each painful spot slowly easing as they flutter around you. A few deep breaths, and then, see how you feel. Snooze a bit if you can.
    This is just an example. I have a few different ones, depending on how terrible I am feeling. If nothing else, it distracts me from the pain and takes the stress away for a few minutes.
    Wishing you peace and comfort,
    Paddy

     
    Old 09-18-2008, 12:16 PM   #13
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    Re: I didn't fall off the planet....wish fibro could!

    Paddy, You are a Godsend... I will be visualizing I am laying on my purple foam raft floating on that lake with my mom next to me... Wish I really was.

    Thanks Much, Jenn

     
    Old 09-19-2008, 02:19 PM   #14
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    Re: I didn't fall off the planet....wish fibro could!

    Visualization, one of my favorite things. We use to all talk about being on Blues lake and floating around and just having a great time. It always worked, now I visit her mountain. My favorite visual visit is sitting on the front porch swing and feeling a beautiful summer breeze with all those wonderful scents of fresh cut grass and crops growing in the field and something cooking on the stove and all the smells of a beautiful day on the farm. I've spent many a afternoon just like that growing up, how peaceful and wonderful. Anything that helps us relax to release tension and let those tight fibro muscles ease up.

    Blue, when you need me I'll be here. Don't let the worry get you down. I'll send energy your way catch it and use it or store it in a jar on the shelf for use later on. It doesn't matter when you use it, as long as it helps keep the fibro away.

    I am beginning to have a lot better understanding of Blue and Ann and their constant and annoying pain. Not that I haven't felt for them, but this fibro pain in my neck is started to really annoy me. It gets a little better and then a little worse. I have had awful migraines before, but these headaches are from the tight muscles in my neck. A little better a little worse.....argh! Next week may be my last week of PT depending whether the insurance company says my neck doesn't hurt anymore or not.....lol!

    A fun filled weekend of painting at my son and DIL house. Just doing the walls from their laundry room remodel. I'm not suppose to do anything above my head, think I can work that out?????? Maybe we can lower the wall.....huh!!!!!! Warm and gentle hugs to everyone hope all your fibro pain is easing up a bit.

    Glojer

     
    Old 09-19-2008, 04:45 PM   #15
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    Re: I didn't fall off the planet....wish fibro could!

    Hi all,

    Gee I think I just returned from outer space, but the fibro came back with me. Sorry everyone is hurting, I guess we are not having fun at all.

    My Dil's bro was in a bad car accident the moring before he was to married, he is still unreponsive after 12 weeks. Dr. says he is not in a coma but unconscious, whatever that means.

    We have our granddaughers a lot, overnighters, the youngest age 4 clings to me, sleeps wth me, well she does I don"t. she snores, kicks and thrashes all night. I woke yesterday with her feet in my face.

    Been in flare also, one of those where it stops one place and starts another. had terrible low back spasms for 3 weeks, now have the rib and breast pain and tightness.
    I went for my colon and had a egd done, have been getting stomach pain on and off. When I went back to see the Dr. all I saw was the N/P or Drs. Assit. All he told me was what the gasro told my husband, 3 small polyps and a tiny bit of inflamation. I was asking her ?? and she walked out without answering. My old gastro passsed away so had to find a new one.

    I will never get caught up on posts and was wondering on Goldie is.

    Gee blue I hope your butt gets better soon. my butt cheeks are always ice cold. Guess poor circulation of the butt cheeks.

    Hope every one starts feeling better soon.

    Hugs, MIA but back, Linda
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