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Need to talk

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Old 03-22-2010, 08:08 PM   #1
Join Date: Mar 2010
Posts: 2
FrostyMagnolia HB User
Question Need to talk

I am new here and am looking for some ears to listen and tell me I am NOT crazy. Diagnosed w/fibro over 15 years ago. Next addition was Sjogren's Syndrome and then Lupus. Mainly feeling very overwhelmed tonight for some reason. Guess it might be that I have been doing well for several months and have now fallen back into terrible flare. As my age increases the times that I am comfortable decrease in spite of the medications....and I think I have tried them all. Fatigue is exceptionally bad and my new rheumatologist has asked if I would try IV infusion of remicade as well as a Vitamin infusion to boost my energy level. Has anyone tried or heard of these things and if so can you tell me anything about them. Thank you for any info you may have. I learned a long time ago that for me it is all about "one day at a time". And.....tomorrow is another day

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Old 03-23-2010, 10:24 AM   #2
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Join Date: Feb 2008
Location: USA
Posts: 579
baserockermom HB User
Re: Need to talk

Frostymagnolia, sorry you're dealing with a flare up right now and all the disappointment that comes with it. That sounds interesting what you're rheumy is talking about. Let us know if you do it and how it goes. Take care!

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