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    Old 06-21-2010, 08:28 AM   #31
    collegemomma83
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    Re: How helpful is narcotic pain medication on your FM symptoms

    im not sure about how your doc is but some of the docs i have seen are weary about perscribing different pain meds because they say that they are afraid of addiction and rebound pain when taken off them. i suffer from pain all day they keep perscribing different muscle relaxors but not doing much good. i agree that pm docs are supposed to help relieve pain though. my problem seems to be that the lyrica they perscribed me made my headaches worse so they had to take me off of it.

     
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    Old 06-22-2010, 01:57 AM   #32
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    Re: How helpful is narcotic pain medication on your FM symptoms

    The meds I take (long list) to keep my pain tolerable without activity are (20 mg Opana ER (1 am & 1 pm); 15 mg Oxycodone for break through pain, 10 mg Baclofen (muscle relaxer), 450 mg Lyrica / day, 60 mg Cymbalta / day, & .5 mg Ativan (as needed for anxiety / stress, because the higher the stress = more pain = anxiety).

    What sucks is my pain is tolerable, but I'm not able to do alot of every day tasks like shopping w my wife or vaccumming wo having to take 10-15 min breaks every 15-30 minutes, because my pain increases. When the possibility of fibro was mentioned my pain management (pm) doc made the statement that, "he doesn't like to treat fibro w narcotic pain meds because he doesn't feel they are affective against fibro pain." Savella significantly reduced my muscle & joint pain, but even at it's lowest dosage I had to quit taking it because of side effects.

    I agree pain meds do not take my pain away, but it DOES help me go from wanting to lay down all day to being able to do things (be they small things, but something is better than nothing)! I've tested his theory by reducing my current pain meds and during that time period my activeness / quality of life decreased significantly.

    The last time I saw my pm doc (his nurse practioner) I told him we (my wife was there) were not happy with my current pain coverage and wanted to know what else we could do. My Lyrica was increased from 2 to 3 150 mg capsules / day & said if that didn't significantly reduce my pain level then he'd speak w the doctor to see about increasing the Opana ER.

    After 1 1/2-2 wks my burning pain was less intense & my muscle twitches in my arms/legs decreased giving my wife and I more/better sleep, but my joint/muscle pain overall didn't drop by that much. So, as instructed I asked my pm doc to possibly increase my Opana ER, but they called me back saying he didn't want to make any changes at this time. So, I asked them what should I do because I'm tired & frustrated because I'm tired of what I can / can't do, but all I was told was to bring it up again on my next visit w the doctor (which my earliest appointment is on 8/9).

    My pcp is referring me to a rheumatologist so HOPEFULLY I'll get better relief.
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    Old 08-17-2010, 09:23 PM   #33
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    Re: How helpful is narcotic pain medication on your FM symptoms

    I am also in Indiana and have been fortunate enough to get a good PCP that is knowledgeable about fibromyalgia. She ruled out other autoimmune disorders and treated my joints to reduce the inflammation and sent me to a pain management clinic in southern Indiana. I have a lot more confidence in my PCP than in the pain management MD., however. They are too quick to want to burn nerves, do multiple injections and use implants and prescribe fentynal patches. My pain is bad and I want relief, but I also want to live my life to the fullest it can be lived and not have my senses blurred by high doses of potent pain medications. I think all of us just want some sense of normalacy. My current medication does not even begin to make me pain free and the pain never goes away, but I can function and make it through the day inbetween doses of medication.

     
    Old 08-17-2010, 09:30 PM   #34
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Quote:
    Originally Posted by dcarbs View Post
    I recently have had a very painful knee but kept going to work just hobbling around. But last Monday I couldn't weight bear, pain was off the chart. Seen a orthopaedic surgeon & he injected my knee--it was heaven for 8hrs. Now I'm back to the pain, it is lessening but I'm so over it!!! The rest of my body seems to have joined in, I feel like just crying+++, taking pain killlers just makes me tired. Any suggestions on getting over this hump?
    Have you tried ice? My ortho man sent me home with a cyro-cast that worked wonderful for me during the healing time. Good luck to you.

     
    Old 08-18-2010, 02:35 AM   #35
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Hello!! I am taking Lortab 7.5 for pain right now. It helps alot. However, my problem is the stupid tolerance issue. Geez. They work for awhile and then don't help as much. Then, when the flare up is bad enough, nothing seems to help. I have just been diagnosed and have an appt. with the fibro specialist at my pain clinic. My pain doc said that they do not treat fibro with narcotics but she was kind enough to leave me on the Lortab until I get some help from their specialist. From what I hear, he is really into diet, exercise, and lifestyle changes. In my short time on this board, I have realized one thing....everyone is so different in this. I do not really think there is a right or wrong in this....I think is depends on the individual and what works for them. Oh, one Robaxin muscle relaxer at night before bed seems to help me sleep and help with some of the muscle pain the next day.

    oh, and I agree that it is frustrating how hard it is to get narcotic pain medicine when you DO need it. My PCP wanted to wean me off the Lortab before we even knew what was going on!!! They are all big into rebound pain now. AND I , too have a truck load of muscle relaxors which I cannot even function on!!! I can't work or drive on them, YUK!

    Last edited by biogirl71; 08-18-2010 at 02:59 AM. Reason: added comment

     
    Old 08-18-2010, 05:33 AM   #36
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Cheryl, I just started dating again as well, and am unsure when to tell them about my disease. I like to be upfront so they have a chance to run, which I think is a good idea because it shows they couldn't handle it anyway. It takes a lot out of me to get ready, but thank goodness I feel better in the evenings.

    I take gabapentin at 1200 I upped from 900 and I take 10-20mg valium. I spend most of the day in bed as these meds make me sleep. Which I need as I have nightime insomnia. I also am on wellbutrin, lexapro, trazodone(which I take when the insomnia hits) atenolol and dyazide for hypertension. I also take prenatal vitamins and omeprazole for horrible gerd..I think thats it. I take nothing if I have to go out anywhere (and shouldn't be driving) and thats when the suffering takes place, I cannot walk normally. I stumble into things, I fall. It's ridiculous, I cannot even type without constantly fixing my misspelled words when I used to be an awesome typist. Ugh enough..

    Cheryl good luck in the dating world, may you find someone caring and believeing...hugs to all

     
    Old 08-18-2010, 06:32 AM   #37
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    Re: How helpful is narcotic pain medication on your FM symptoms

    One last thing, has anyone tried medical marijuana? I smoke and believe me it really helps, especially at night when one cannot get comfy for the pain, and I am talking small amounts cuz thats all thats needed..

     
    Old 08-19-2010, 03:21 PM   #38
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Hi all, sorry it's been a while since I've posted. Updates about my situation:

    1. I am having to search for a new pain management doctor. In June when I went to pick up my break-through medication and upon receipt I realized the quantity was reduced. I inquired why the prescription had been reduced and was told by the receptionist that, "The doctor feels that the current medications I am on should provide ample coverage and with the reduction I should still have proper coverage." I tried to explain that the current medications of Opana 20 mg (1 am & 1 pm); Opana 10 mg (1 every 6 hrs). I'm also taking Lyrica 300 mg (150 am & 150 pm); Cymbalta 60 mg; Baclofen 10 mg (1 every 4 hours) keeps my pain level tolerable, but if I try doing house work or go shopping with my wife my pain level increases. The receptionist continued that, "This is what the doctor has decided and if I disagree I would have to discuss it with the doctor on my next visit." One of the problem with this logic is this happened around June 20th or so and the earliest appoint I could get was on August 8th (which was made during the first week of June.) I then "tucked my tail between my legs and left their office." My wife called me and when she found out what had happened she called the pm dr office (with me on the line) & this was the conversation:
    -----------------------------------------------------------------------

    Wife: Hi, I am calling on behalf of my husband because she was wanting more information about what I just told her about what had happened.

    Receptionist: Yeah, we just finished speaking with your husband and we're not going to change his dosage

    Wife: I can understand that, but I would like to speak with the dr to have an explaination for the sudden change w/o warning / consultation

    Receptionist: The dr doesn't speak with patients on the phone, because that's what he has nurses for.

    Wife: Ok, so are you saying the dr refuses to speak with patients if they specifically requests to speak with him?

    Receptionist: You will not be able to speak with him

    Wife: Well, that is too bad because how ... *THEY HUNG UP THEIR LINE*
    -----------------------------------------------------------------------
    So, After that we went to my pcp and as of right now I am under his care until I am able to find a permanent pm doc. Luckily, my pcp is more understanding and changed my medication from 20 mg Opana (1 am & 1 pm) to 40 mg Oxycontin every 8 hours (this is because that's about how long it is effective).

    2. Was referred to a Rheumy who is wanting to see about having an MRI done on my SI Joints to see if that is causing any of the problems and if those test results are normal that it will be labeled with Fibromyalgia.

    3. I "interviewed" a pm doc and wasn't very impressed with his ideas about administering pain medication. He told me that the only way he would treat me is if I went through medical detoxification and then I would have to come back and then he would prescribe medication at a very low dose and then work up from there, but I may be without any medication as it may take 1-2 weeks to get an appointment.

    He then stated that all of the doctors I have seen thus far do not know how to correctly prescribe these medications, because regardless of what I feel the medication should only be taken in 12 hour increments. He added that if the medication is not lasting the full 12 hours then the overall dose should be increased and that the the LA medication should be strong enough so that I do not need IR medication. He concluded by saying that it's not good to take IR meds with LA meds because it affects how the LA med works and significantly reduces the half-life of the LA prescription. I've seen 2 other pm docs and my pcp all have said the same thing, but this guy says differently. I think he is the one in error.

    Ok, that's about it .. Hopefully I will have some resolution soon, but even if this new MRI does show something wrong with my SI Joints how does that explain all the aching / burning pain I feel throughout my shoulders / shoulder blades. I can understand SI Joint problems causing my hips / lower back to ache and some of the pain in my legs, but does SI Joint problems cause your calves ache? Very rarely do I exhibit any sciatic nerve pain. Who knows .. What does everyone else think? Heck, I could have something wrong with my SI Joints AND have Fibro .. Now that'd suck ..
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    Old 08-20-2010, 03:10 AM   #39
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Seriously, it is awful how Dr.s treat people sometimes. I went to the ER awhile back ago when I was in horrible pain and had run out of Lortab. I thought I could go back on the Darvocet I had previously and then wean off of it (this was when I though it was some sort of tendonitis rxn form Levaquin and I kept thinking it would get better on its own).. WRONG! I was in so much pain that my BP and HR were throught the roof and I was in tears. The Dr. gave me Elavil and Tramadol...now I had a bad experience with Tramadol when I was taking it every 4-6 hrs. I was also on a high dose of Paxil and I started vomiting, having sweats, and heart palpatations. Stopped taking it and was prescribed Darvocet...then Lortab...possible seratonin syndrome. I am very sensitive to meds. Anyway, when I told this ER doc this he said "Tramadol does not cause seratonin syndrome" and prescribed it to me anyway. Well, I finally took off my monitors and went to the desk and had to ask for lortab. He gave me 16 and I made an appt with my Dr first thing monday (this happened on a Sun). Worst thing is, I WORK THERE IN THE LAB AND HE STILL TREATED ME LIKE THAT. Ugh. Good luck with a new Dr, I hope u find one. sorry so [email protected]!

     
    Old 08-20-2010, 05:08 AM   #40
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    Re: How helpful is narcotic pain medication on your FM symptoms

    I've always been one to agree with f150stx's doc and say that no amount of prescription pain meds would help, but lately I have a new appreciation for the fact that some can take the desperation down a notch.

     
    Old 08-20-2010, 06:11 AM   #41
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    Re: How helpful is narcotic pain medication on your FM symptoms

    Since I have written on this thread which I think was back in May I have found out about a symptom of long term use of opiates. It is called Hyperalgesia. I was diagnosed with Fibro 8 years ago and then spinal stenosis.Over the years I had to increase the pain meds (using oxycotin and morphine)thinking my pain was worse. For the past year my pain got so bad and the doctors could not figure out why. Finally I found out about hyperalgesia and started to reduce my pain meds. I could only go down to a certain point myself and needed the help of Suboxone. It is a drug to be able to wean you off the pain meds with as little withdrawals as possible. The pain I was having in my thigh and down my leg and buttocks disappeared after a few days on the Suboxone. So I conclude that long term use of pain meds can actually cause you more pain than help you. It is a vicious cycle with these opiates. The more you take the more you need and so on to where it actually turns on you. Please rethink using heavy amounts of pain meds. < edited > I am begging anyone who reads this because the doctors don't tell you that this can happen. They want to keep you as a patient and make the money.The doctor I was seeing did it for 5 years. I saw him every month and had injections and tests done when maybe this was my problem all along.
    I wont know my true pain level until I complete the treatment. Suboxone its still an opiate which does not make you have that euphoric feeling. And does not make you a zombie.
    Please do yourself a favor and don't do what I did. It ruined 5 years of my life. I now feel like a new person. I feel alive and my head is so clear. It's AMAZING!!
    Thank you tooolgirl for the words of encouragement on the dating scene. Now I hope to really find someone to make me happy and love again.
    Take Care
    Cheryl

    Last edited by hb-mod; 08-20-2010 at 11:53 AM. Reason: Please do not post unapproved website links. Thanks!

     
    Old 08-20-2010, 09:51 AM   #42
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    Re: How helpful is narcotic pain medication on your FM symptoms

    I have been taking .5mg Xanax 3 times a day, 150mg Lyrica 1am-1pm (300mg total), 10mg tramadol 2am (20)-1pm (10), 1 flexeril in pm for sleep. I have been on this regimen for at least 6 mos. I still have my bad days and I still have my good days. I do not believe that these meds are not controlling at least some of my pain as I do not take more if I go into a bad flare. A bad flare for me is not being able to get out of bed and in an intolerable amount of pain. I average probably 2 of these per month and they last about 24 hrs. I have tried going off the Lyrica once because of the cost before our insurance changed and I weened. It totaly brought my daily pain levels back up. I do believe in the meds and when I asked my rhuemy for a higher dose she said no. Her reasoning was if you take a higher dosage now there is no where to go later in my life when things will probably get worse. I am 57 years old and work fulltime. So to say you can live without the drugs is not a fair statement as we are all very different in our desease. I respect everyones opinions on this subject but do believe to each his own and feel for those that can't get the treatment they need. Ok, I'm done ranting. Feel better all and best of luck in your future finding care.
    Stay low pain all,
    Cat ;0)

     
    Old 08-20-2010, 02:44 PM   #43
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    Re: How helpful is narcotic pain medication on your FM symptoms

    That's the bad thing about opiates. Tolerance, and rebound pain!! Oh, and the hassle of trying to get from your Dr. That is why I am praying that diet, exercise, cymbalta, and a muscle relaxer before bed works for me. I am really looking forward to seeing the specialist!! Everyone is so different, though, and we all have to do what we have to in order to get through this. My goal is 1. try natural, 2. if that doesn;t work, try other drugs such as lyrica 3. if nothing works, then i guess pain meds. Who knows!

     
    Old 08-20-2010, 04:48 PM   #44
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    Re: How helpful is narcotic pain medication on your FM symptoms

    I agree with cherdox57 although, I myself, am a pain med user. I have previous posts on the fact that I am convinced that the pain meds make my pain much worse unless I keep on and on and on taking them! When they begin to wear off, I get SEVERE, debilitating muscle spasms that cause deep pain for days/weeks... It's a double edge sword.... you hurt if you don't take them and you just might hurst worse if you do!

     
    Old 08-21-2010, 12:13 PM   #45
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    Re: How helpful is narcotic pain medication on your FM symptoms

    I agree to each their own, because each person's genetic makeup requires specialized treatment. I have tried EVERY fibro script (Cymbalta, Savella, Lyrica) and I have had major help from Savella, BUT I can't take it because of I can't function on it. Even on the lowest dose 12.5 mg, cut in half = 6.25 (on order of the doctor), I would fall asleep in mid-sentence. It really helped my pain, but I can't use it. Lyrica only helps the burning pain I feel between my shoulders, but did nothing for my pain. Cymbalta did nothing. I hate to say it and I hate depending on it, but my pain meds have been the only thing that has helped me. I wished it wasn't so, but it is what it is.

    I do not feel the meds make my pain worse because I've been lucky enough that I have not had to request an increase in dosage. Some days I take 1-2 break-through med and some days 4-5 depending on my physical activities.
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