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Struggling with fibromyalgia pain. Doctors won't do anything.

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Old 06-01-2012, 06:27 PM   #1
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SkyIsTheLimit12 HB User
Unhappy Struggling with fibromyalgia pain. Doctors won't do anything.

I am Sky. I am from Michigan. I am struggling with fibromyalgia pain. All over the body. It runs in my family. as well as lung cancer and Diabetes. I was wondering what I can do about this. All he tells me to do for the pain is take aspirin I can't take aspirin. I am just not getting blood drawn today. I am loosing a lot of weight and have been feeling really sick. I am thinking my only conclusion is Medical Marijuana..

My last doctor told me to loose weight.. 6 months ago.. I weighed 200 then I'm 178 now.

Can anybody help me with this?

I would greatly appreciate it
- Sky
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Old 06-02-2012, 06:47 AM   #2
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Re: Struggling with fibromyalgia pain. Doctors won't do anything.

hi sky,
welcome to the boards. my first thought is find another doctor. second, there really isn't much in the way of meds to ease fibro. an otc nsaid would be more helpful i would think.
losing weight is good if you are trying. getting the weight down does help. i was 180+ when i started this journey. i am 130 now. i started losing weight without trying. turned out to be sjogrens disease. worth testing for, a simple blood test.
for now hot baths, plenty of fluids, a healthy diet, a regular schedule of sleep, and exercise are good ways to start being your own doctor. massage helps me a great deal. many have sliding scales for payment. swimming is the best when hurting. well, actually floating, giggle.
i also find if i read a book or paint or go out gardening the pain eases off. i think it's because i focus on something else besides my body.

Old 06-02-2012, 10:15 AM   #3
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Re: Struggling with fibromyalgia pain. Doctors won't do anything.

Welcome to the board! Coming here is one of the best things you could do for yourself! The help & support here is often better than hat any dr could do for you. I would have been worst off if I didn't find this place when I did.
Like blue said, you need a new dr. Please see a Rhumetologist. If you are already then you need to see another one. It wouldn't hurt to see an Endocrynologist also...
Congrats on the weight loss! I wish I could do that... Less weight to pack around would make it soo much easier...
What meds are you taking? I hope you are on Savella, Lyrica or something like it. I've tried med free & just couldn't do it. I hurt to much to do anything... Unfortunetly even with those my pain has only gotten worst and worst. I take Tramadol every day now. Used to take it only when I was in a bad flare. But feel like I'm always in a flare these days. Tramadol is the least addictive I believe for prescription pain meds. I take IB Profren with it which helps it work better for some reason... Tress make pain worst so controlling that really helps... My husband is really against marijuana but even he has mentioned me getting a prescription for it. I may actually do that one of these days. I often drink a glass (or two) of wine in the evening which helps take the edge off. I know we aren't supposed to drink but it helps me... I can't take tramadol after 5pm or I'm wide awake all night. I also tke a muscle relaxer at night which helps me sleep through the night.
Do you have any idea how you lost the weight? I'm lucky if I can just keep from gaining more... I was 145 after I gave birth to my last child a few yrs ago... Within just a few months I was upto 170 & have maintained that... I'm only 5' 2" & this is a lot of weight for me. My healthy weight ha always been 120.
Blue, why did sjogrens cause you to carry weight? What did you do to lose it? I'm going to a new Fibro Specialist (yay!!!) on Monday & wanna be tested for sjogrens... I'm going to be going to a specialist at OSHU which is the best around! This dr only treats fibro so can't wait to see if she can help!
Sky, my Rhum gave me answers I needed and has put me on the meds I needed. But otherwise he doesn't listen & blaimed fibro for everything. There is nothing wrong with seeing more than one dr. I see one primary for my thyroid, another primary helps me with my fibro & tests I need done yearly & really listens to me, then there is my Rhum. There is nothing wrong with being picky about drs
Fatigue & Derealization~ 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia~ 2009

Old 06-02-2012, 11:15 AM   #4
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Re: Struggling with fibromyalgia pain. Doctors won't do anything.

It's really tough to find a doctor who listens. I wonder if some medical schools have a class on detaching from patients.

you are obviously in a flare situation right now, and you have to hang on for some relief. I hooe you are not avoiding movement. i am usually able to walk more than I can right now, and boy does my body miss it.

I hope to be able to get over my breathing problems and walk more soon, or take a yoga class. My adrenals are fatigued and so I have to get the OK before I can. yoga has been shown in one study to raise cortisol levels in fibro patients. It is an important hormone. If you can't exercise, you have got to stretch. Develpo a habit. I just posted to someone's thread who's having cramps, and I just can't say enough use it or lose it.

Dr. Lowe, who has extensive experience with firbro, and has a book, estimates at least 90% of fibro patients are hypothyroid. Google thyroid and symptoms to see. Then if u are, you'll want to read up on it, because most doctors are in the dark ages on treating hypothyroidism. They haven't kept up.

Please don't skip meals, and avoid simple carbos. if you can't get yourself to eat enough protein, my doc just put me on a whey protein drink, 25 gr. At each meal. I'm not allowed to add fruit right now because of my adrenal problems.

A lot of people use pain meds. I have to for a growth abnormality that gives me a back problem, but I noticed the fibro pain just kept increasing with each upping of the pain meicine. I did some research, and that seems to be pretty common, so I'll never take that for my fibro. It's a dead end street for me. I dont judge people who do. For all I know, that's what is getting them through this tuff life. I just don't want to chance nerve damage, which one book warns of. if you do go that route, research. Seems I've read that ultram or tramadol is an effective place to start. I'll warn you not to come out and ask for something by name. A doctor may label you as drug seeking.

Many people have found natural ways to relieve pain. Fibro patients are deficient in Vitamin D and Magnesium. I don't know where you are on this journey, but start doing some reading.

Have hope, lots more research is being done than ever before. We're gonna get help, in the meantime read.

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Old 07-11-2012, 03:21 PM   #5
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Re: Struggling with fibromyalgia pain. Doctors won't do anything.

Hello Sky,

So sorry to hear your doctor isn't being very helpful. I was diagnosed in 2006 and was very lucky to have a Fibromyalgia literate doctor. She retired last year and I miss her so! My new doctor follows the treatment plan in place from my old doctor but she seems to view Fibro as not a real illness. She tends to ignore me when I bring it up and changes the subject. If I could find another doctor I would but absolutely nobody in my city is accepting new patients.

I highly suggest you find a new doctor that can help you. There are many medications out there that can help ease the pain, but there isn't a definite cure. I take 100mg of Amytriptyline every day and it has been wonderful for me. I walk on my treadmill 30-60 minutes 5x a week if I can. Exercise really does help. Swimming can be great, but I find personally it makes me ache more. That may not be the case for you though, we all respond differently. Some have luck with gentle yoga, ice packs and moist heat.

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