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Fibromyalgia and more -- is this it for the rest of my life

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Old 10-09-2012, 09:10 PM   #16
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Re: Fibromyalgia and more -- is this it for the rest of my life

Hi Missy, Is it worth checking to see whether the local health food store might carry some supplements that might help you with the Fibro?

Of course you must speak with a practitioner or doctor before taking anything new because there's existing medication and negative interactions with other supplements need to be avoided.

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Old 10-15-2012, 08:59 AM   #17
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Re: Fibromyalgia and more -- is this it for the rest of my life

Originally Posted by mom477 View Post
Doctors don't usually give fibro patients narcotics because it is a nerve pain more than muscle pain and there is nothing that will take that nerve pain fully away or even majority.
Fibro IS as much a muscle pain as it is nerve pain. Apparently our doctors view Fibro in an entirely different light. My Rhemu doctor prescribed Lortab for several years but always told me I needed to be on a long acting medication as well as break through meds. She was not comfortable with prescribing stronger meds and wanted me to see a PM doctor. I was hesitant about seeing a Pain Management Specialist so put it off as long as I could and I'm so sorry I did that...I should have gone when she first told me to.

Before Fibro, pain medication did make me feel "fuzzy" when I had to take for various reasons. Since being diagnosed with Fibro I have NEVER had a fuzzy or drugged feeling, never ever feel drugged and I take a fairly large amount of pain meds. No, the pain does not entirely go away but it does help, mostly with telling my brain to cope with the pain more so than getting rid of the pain.

I have tried every trick in the book, been to more Physical Therapists than I care to remember, tried every drug that is approved for Fibro and none of it helps. The drugs all had severe side effects and the PT made me hurt more. All the talk about how exercise or PT will help - it's not for everybody...everybody is different. Because of other issues I have PT was limited but it always caused more harm than good..I'm not talking about a few weeks and giving up, I'm talking about 6 months of trying to find a PT exercise that would help. Everyone is wired differently and what works for some does not work for others. I wish it was that simple.

There have been studies about how pain medication works on the part of the brain that is the pain center....studies have shown that people who have true pain do not get high off of pain meds like people who take them just to get high....for one, the pain meds are doing what they are suppose to and working on the pain whereas a person who does not have pain and only wants to get high will because the pain meds don't have anything to work on (the pain). I'm sure with my heavy Fibro Fog I am not explaining it clearly but the article made a lot of sense and explains why some of us do not and have not ever gotten high off of the pain meds. Having said will still build a tolerance to the meds and it will take higher doses to be effective. I was able to put off going to a higher mg for two years and just recently had to up the mg on the Oxy. The draw back is that I do have a VERY high tolerance to any kind of sedative or pain medication. It is a problem when I have surgery as the surgical team tends not to believe you when you say it will take double or triple sedative to help or knock me out so we play this game of give her the "usual" dose and wait and see...doesn't work so give second dose and wait...doesn't work so they give the third this time we've wasted an hour, surgery has been delayed an hour, etc...and of course after the surgery is rough. I've had as many as five surgeries in one's no walk in the park. After the third one my pain management doc and I decided that she would send a note with me to the surgeon asking him to call her so that she could fill them in on me, I'm not some drug seeker wanting larger doses of meds and what my doses should be while in the hospital. Anyone in Pain Management cannot get drugs from another doc, it all has to go through the Pain doc. The ONLY time another doc can give me pain meds is when I'm in the hospital, as soon as I walk out I have to go through my PM doc.

It's not easy living this way but we all do what we have to do to survive. It may not take much for you to survive on a daily basis and for others it may take a lot. I make no apologies for having to take pain meds daily and likely for the rest of my life. Sure my body may be dependent on the dose (not addicted but dependent) but it's no different than a person being dependent on insulin and nobody tries to make a diabetic feel guilty for that but yet pain med people are.

MissyMousey I wish you luck and wish you well. Have you considered going to a Pain Management Specialist? They are not all evil like I have read about...I had read some horror stories many years back so that is what took me so long to make that jump but it was the best thing I did. My PM doc is wonderful, she understands, she takes the time to talk to you and not make you feel rushed. We've spent 30 minutes or more talking about various things. I've gotten two nerve blocks from her, the one in my neck worked and is still working. It was only predicted to work for around 12 to 18 months before the nerve would grow back and reattach itself and I'm going on 2 years. The nerve block in my lower back did not work. The procedure for my PM is I go every 30 days to see her, they do a pee drug test then I talk to the doc and get my new prescriptions. The drugs I take cannot be called in nor can be refilled....they have to be written out and taken to the pharmacy in person....been doing this for 2 years and have not had any problems.

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