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  • Burning, tingling and red fourth toe on left foot.

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    Old 10-22-2015, 11:21 AM   #1
    robinmiles's Avatar
    Join Date: Oct 2015
    Location: Edmonton
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    robinmiles HB User
    Burning, tingling and red fourth toe on left foot.


    I am at my wits end here. I started experiencing pain in my 4th left toe in February 2015, it went away on June 5th, and now it's back.

    At first I noticed it when I was just walking to work and it felt like all of a sudden a bad blister formed (the burning sensation). I inspected my toe and everything looked totally normal (no blister). When I touched my toe though, the skin was desensitized and almost numb, but was burning and tingling anyway.

    This pain got worse and worse and turned into throbbing and stabbing pain so bad that I would groan (for real, I know it sounds weird but nothing has ever hurt this bad). I inspected my toe often; when something hurts this bad you would expect some sort of sign, but no. Nothing.

    The pain was ALWAYS there. Base line was about a 5 on the pain scale and it would get up around a 9 when it was flaring up. The left side of my left foot would turn purple when the pain was the worst, and my toes would be red and purple.

    Now, one day when I looked at my toe (on the bottom) there was a red mark. It was very small and wasn't on the surface of my skin, but looked like it was inside. This mark grew to a spot and the spot surfaced, and the skin was keritinized (hard and thick).

    When the pain started I visited a doctor and she thought Morton's Neuroma - I went for ultrasound and x-rays that showed nothing (Neuroma is typically between the 2nd and 3rd toe anyway). I saw a foot specialist who recommended orthopedics - got them; didn't help. I saw a skin cancer specialist - nothing. I saw a dermatologist - nothing. I have been tested for every single disease out there and I am perfectly healthy.

    Now, I initially thought it was connected with Raynaulds maybe, and there is a thing called "Secondary Raynaulds" that is Raynaulds that is so severe that you get tissue death. Usually this is caused by some other underlying problem so I had a pulmonary function test and a ECG. They showed nothing.

    During all of this, by the time I got to the ECG the pain was gone, the skin looked normal and I went back to the activities I was doing before. My doctor still thought maybe Raynaulds so they put me on a very low dose of high blood pressure medication to stop my capillaries from spasming and cutting off blood flow, and maybe this wouldn't come back. We didn't to cortisone injections though. They didn't want to do that because they don't know what this is.

    Well, this morning it is back with a vengeance. I know there is nothing my doctors can do - they have exhausted their resources (I am going to the UofA hospital doctors - they have all the resources).

    Anyone, anywhere, have you heard of this? Or experienced this? I really need help and I CAN'T go through this again.

    Thanks a lot.


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    chronic pain, foot, neuroma, raynaulds, toe pain

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