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    Old 10-30-2006, 03:17 PM   #1
    Loopy Lou
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    Question Help with foot drop ???

    Hello

    I am new to this but recently i went for a routine operation and woke up with no feeling in my right foot or thigh I was told by the hos that I had just slept on my foot to go home and not to worry about it as you can gather i was scared but did as they said a couple of days later i still had no feeling so went to hos it took them 3 hrs to work out what was wrong with me and they said i have drop foot due to nerve damage by my leg being crushed which should never of happened they sent me to a specalist who advised me that i would have to wait two wks for a splint mean while i was dragging my foot behind me and finding it really difficult to walk i now have my splint and still finding it hard to walk and have an appointment in a couple of days to go back and see him they dont know if the feeling will come back is there any one who has recovered from this ??? and how do I trust what my doc says I trusted them once but cant seem to get any straight answers any more please help so frustrated

     
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    Old 11-02-2006, 12:04 AM   #2
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    Re: Help with foot drop ???

    While it is true that many (if not most) cases of foot drop are caused by nerves; I am surprised they just said this was your issue. I would really demand nursing notes and/or complete records to find out what was "crushed" etc. You didn'tmention what your original surgery was for - anything foot or leg/back related? Did they at least do a nerve conduction test to determine the specific nerve(s) that was not working well? I would demand this.

    An AFO brace is most often used to prevent the foot from falling downward thus making it easier to walk and stand. 2 weeks sounds like a bit od a wait (ours took 5 days which included the weekend). It takes some practise to get the new gate pattern "down" so that walking is easier and smoother. PT really helps with this and will help your other muscles strengthen to take up the slack.

    Nerve damage is not always permanent but takes some time (think months) to show any improvemnt. Many doctors prescribe TENS/Estim and other therapies along with traditional PT work to improve the situation. Do you have a script for PT or an EMG (nerve testing).

    I hope you get more function and feeling and if all else fails, at least gain the ability to be functional in daily activites so that you can adapt well to your case of foot drop.

    Jane

     
    Old 11-02-2006, 12:28 AM   #3
    joastudio
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    Unhappy Re: Help with foot drop ???

    LOOPY I just joined this board to find help for my daughter, who at 28 (and now pregnant) has had foot drop for 1 year this month. SHE had NO surgery, and that is the most common cause of foot drop, or some injury trama to the leg/knee or back. She's had none she is aware of. Her foot started flapping one day she noticed it walking. about the same period, she started having hip pain. Doctor MRI'd and CT scanned, sent her to an orthopedic specialist who put her on prednisone for 3 weeks.

    All Tests and bloodwork showed nothing. On her own, she went to a Neurologist. He worked w/her doing test for MS, MG, and many other things that can also cause this; tumor on the back, brain, etc. Nothing. She had what I am convinced is the only thing a neurologist KNOWS HOW TO DO... an EMG. THis is a nasty thing where they stick needles in your leg and send little electrical pulses to measure the degree of damage to your nerves. YOu can look up EMG on med. websites and it tells you better.

    Months are going by. Pain in hip mostly went away, and now we think if she'd stayed on the prednisone, which she refused todo at the time cause it didn't seem to be an answer, just something to do when they don't konw anyting, it would have gotten better. Her foot is worse all the time and her limp is worse. Leg is cold. Numbness. She can barely wiggle toes.

    SO...she went bad to her primary care doc, and he sent her to a 2nd neuro. He did another EMG, very painful this time. Sent her to outpatient for a Myleogram/Spinal tap. (She was pregnant then and didnt know it.) This test showed nothing, but she had a horrific pain in her lower spine which shot down her leg, when they turned her over on the table. They said they NEVER happens, and it eased off, and no doctor has been able to tell her why that happened. YET, they say there is nothing on her spine doing this. Leg is now getting warm again, but she can only move 1 toe. Limp is bad and she falls all the time.

    This Neuro sent her to Another one, at Wake FOrest Univ. Baptist Med. Ctr, here in town. HE wasnt' available, so they gave her another Neuro. She saw my daughter, and all the tests results, had not CLUE, and said, well I could do another EMG.... she said no, so they she had to wait and see the 1st guy she was suppose to see, a month later to wait... By now she has lost all toe movement. (She is going to a Physical Therapist one neuro said todo. He recommends a brace $400... that is this plastic piece that is form fitted to bottomof her foot and goes up her leg to knee.) So she finally sees the 4th Neuro, a nuero-muscular specialist. He looks at the 2 EMGs she's had and all her tests, and says she showes improvement on the 2nd EMG, so he thoughtit was a virus and is getting better. Said a virus can run a course of 280 days before healing. Said to wear the brace at work to keep from falling, but not at home. Come back in 2 months.

    She didn't fall as bad w/the brace, then she got weaker real fast from using it, we think, and started falling WITH it. She fell and twisted the knee. The other leg is now showing signs of flapping. PTherapist gave up and said nothing he did was helping, go back to doc. She did, and he said hmmm well he didn't know.. must not be a virus...hmm he COULD do another EMG....

    She got her primary care to refer her to a Neuro SURGEON. Waited 2 months for that appt. She saw him last week, he ordered 2 MRIs of neck and lower spine without dyes (pregnant), to see if anything they missed. NOTHING. nothing nothing nothing. He said he'd keep looking and consult his colleagues.

    So here we are, her getting worse by the day, unable to go up an ddown the steps in her house, trying to sell house and move. She is so frustrated and worried she can't carry her baby across the room without falling.

    I hope your condition improves, and does not turn into this. Sometimes they do get better after surgeries from all the stuff I have read. DO go see some doctors; ask for referal to nuerologist or even a surgeon, caues if too much time goes by, you loose the chance for help. ALso search on Peroneal Nerve Palsy (another term assocciated w/F Drop). There are some simpler ankle braces and softer foot braces you can find on ebay, if your gait is not bad, that can help. I hope someone reads this and will help my daughter.

     
    Old 11-03-2006, 02:49 PM   #4
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    Re: Help with foot drop ???

    hello jprinz99

    The op i had was just a sterlization and therma choice which is for heavy periods nothing to do with my legs, back or hips what i have managed to get from them which is like pulling teeth because they dont want to say anything to me is that when i was under anaesthetic the operating team had me lying in the wrong position and my body weight was crusing my knee for an hour against a pole that the used to keep my legs up which has damaged my nerve that controlles my feeeling eg and has given me foot drop.

    Went to my gp out of desperation and he sent me for pt. I then had my appointment at the hospital who told me that pt would not help feel so frustrated and am now in constant pain. They are sending me for nerve tests in a couple of weeks so will wait to see what happens with that.

    Thank you for your imput

     
    Old 11-03-2006, 03:18 PM   #5
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    Re: Help with foot drop ???

    hello Joastudio


    I am sorry to here about what your daughter is going through I am only 27 and have a young family too and understand how hard it is and your worries for you daugter . I never had surgery on my legs hip or back I only had a sterization and a thermo choice for heavy periods what they have told me is in the operating room when I was under anaesthetic my body weight was crushing my knee for an hour against a pole which was being used to keep my legs up which has damaged my nerve at the side of my knee resulting in foot drop.

    I have very similar sytoms to your daughter but the first week i had no pain at all now I have pain all the time which also seems travel up my hip they told me this is due to me over compensating when i walk. I had my first pt session the other day but my consultant said this will do no good and will only help with my muscle wastage.

    I also have the splint your daughter has and found i got weaker in walking and getting up stairs etc. My consultant has know advised that I wear it and have spells when i try and walk without it but feel as if I loose my balance easy without it . The hospital told me about a case the had where a gentlemen they had had woke up with foot drop because in his life he used to sit on his legs that can damage the nerve in your knee without you realizing it has she ever sat on he legs in the past? as i have also heard that nerve testing can miss nerve damage.

    I Can only move my big toe and have no feeling on the bottomn of my foot and cant feel the ground when i walk i also has the cold foot like your daughter I was told that the nerve controlls your heat as well as feeling I also have a burning sensation in my foot . I have my nerve testing in a couple of weeks . I hope you get some answers as to why this is happened and wish your daughter the best of luck and that she gets back to good health.

     
    Old 11-03-2006, 07:43 PM   #6
    joastudio
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    Re: Help with foot drop ???

    LOOPY LOU, I am going to get my daughter to register and write to you. It seems you may have some issues that could be of help to each other!
    Thanks for writing back. I KNOW your frustration, as she is my only child and watching her pain is more than I can bare.
    Joan

    Last edited by joastudio; 11-03-2006 at 08:18 PM.

     
    Old 11-04-2006, 05:30 AM   #7
    Loopy Lou
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    Re: Help with foot drop ???

    Thank you for writing back i would love to speak to your daughter as we both have the same problems any information we both get may benefit each other i understand your worries as my mum is also worrying about me and how i cope in the fututure at present i am off work and finding it hard hope to speak to you both soon .

    Louise

     
    Old 11-06-2006, 04:49 PM   #8
    joastudio
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    Re: Help with foot drop ???

    Quote:
    Originally Posted by Loopy Lou
    Thank you for writing back i would love to speak to your daughter as we both have the same problems any information we both get may benefit each other i understand your worries as my mum is also worrying about me and how i cope in the fututure at present i am off work and finding it hard hope to speak to you both soon .

    Louise
    HI Loopy. I have told my daughter about your letter here and she has been in a bad way and no time to get to it, but wants to respond. She will do it as soon as she has time to register and search for you.[/B]
    Can I ask you if you ever had a flu shot before your troubles began?
    Joan

     
    Old 11-07-2006, 01:59 PM   #9
    Loopy Lou
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    Re: Help with foot drop ???

    hi joastudio

    I just had pt and he told me that he was running out of ideas and gave me exercises to do at home has your daughter had this ? Dont feel like you get any help with this will wait till i have my nerve tests in couple of weeks and see what the say then

    Last edited by Loopy Lou; 11-07-2006 at 02:13 PM.

     
    Old 11-07-2006, 02:04 PM   #10
    Loopy Lou
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    Re: Help with foot drop ???

    Hi

    No I have never had a flu shot do you think that has something to do with your daughters symtoms? I will keep an eye on my messages in case she writes. sent this twice whoops!!

    Last edited by Loopy Lou; 11-07-2006 at 02:15 PM.

     
    Old 11-07-2006, 07:10 PM   #11
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    Re: Help with foot drop ???

    Sorry to hear about your pain and I hope it resolves with time.

    The nerve on the outside of your knee if called the peroneal nerve and is responsible for motor control and sensation to the top of your foot.

    You mention not having feeling on the bottom of your foot. The nerve responsible for the sole of your foot is the posterior tibial nerve and it runs along the inside of your ankle bone, just below it.

    Both nerves originate from the sciatic nerve.

    Just some information, in case your want to look up more details.

    Let us know how it goes with the testing. Wishing you the best of luck!!!

     
    Old 11-08-2006, 04:42 AM   #12
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    Re: Help with foot drop ???

    hi creative2

    Thank you for your info they told me it was unusal for no feeling underneath my foot and that was all they could say so will look up what you have told me I will keep you posted on how my nerve testing goes still waiting on app

     
    Old 11-10-2006, 02:57 PM   #13
    Loopy Lou
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    Re: Help with foot drop ???

    Quote:
    Originally Posted by jprinz99
    While it is true that many (if not most) cases of foot drop are caused by nerves; I am surprised they just said this was your issue. I would really demand nursing notes and/or complete records to find out what was "crushed" etc. You didn'tmention what your original surgery was for - anything foot or leg/back related? Did they at least do a nerve conduction test to determine the specific nerve(s) that was not working well? I would demand this.

    An AFO brace is most often used to prevent the foot from falling downward thus making it easier to walk and stand. 2 weeks sounds like a bit od a wait (ours took 5 days which included the weekend). It takes some practise to get the new gate pattern "down" so that walking is easier and smoother. PT really helps with this and will help your other muscles strengthen to take up the slack.

    Nerve damage is not always permanent but takes some time (think months) to show any improvemnt. Many doctors prescribe TENS/Estim and other therapies along with traditional PT work to improve the situation. Do you have a script for PT or an EMG (nerve testing).

    I hope you get more function and feeling and if all else fails, at least gain the ability to be functional in daily activites so that you can adapt well to your case of foot drop.

    Jane
    hi

    just a note to say requested my medical notes and surprise surprise all the hospital wrote was procedure went well and wrote nothing regarding my foot by them or by me. I have wrote to a patient liasion officer to request a meeting to discuss this. I now have a script for pt which I am finding a bit helpful and am waiting for my app for my nerve testing. My splint is causing some problems with cramp but will keep on trying.

    Last edited by Loopy Lou; 11-10-2006 at 03:03 PM.

     
    Old 11-13-2006, 07:57 PM   #14
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    Re: Help with foot drop ???

    Loopy;

    I am sorry you've had such a runaround w/the doctors and your records. I'm glad you're pursueing it... there is no excuse for that.
    We think the flu shot is a culprit for the foot drop in her right leg for ONE YEAR NOW; nothing else seems to surface. And guess what; the doctor's records do not even show that she had it. Her dad was present when she got it, cause she was visiting me one day at our doctor's office while I was getting a chemo treatment. The chemo nurse had just given me one, and my daughter said she'd tried to get one in the clinic but her insurance wasn't covering it, so the nurse said she'd do it. She did get her to sign the waiver they have to sign, and she gave her one, saying she'd send it to her records there to update them. NOW they have no record of it at all.

    She saw the FIFTH neuro. this week; he says he's the one thats gonna find out what's causing the drop foot. sure... we'll see. They seem to all have alot of ego,and all they offer is yet another EMG. SHe's had 2 and they hurt REALLLLY bad. She's 5 months pregnant and is now loosing strength in her left leg, and the foot isn't working right; her legs feel like jelly when she tries to stand, and she is not only wearing the brace, she is using arm crutches.

    We are so scared.

    Since they know where your foot drop came from; or they THINK they do, have you consulted a neuro-surgeon, to get his take? Nueros say don't go to them they'll just put you under the knife, but the people that sent my daughter to one said he was the only one that could help them. However in my daughter's case, no he didn't have a clue either. . He did recommended this present neuro though.
    keep me posted. My daughter is so bad off she can't get to her computer but once a day for some quick stuff. She is on one all day at work, but can't do other stuff but bank stuff there. She can't get up and down the stairs; so she is trying to sell her house and move to a little old thing near to us.

    There is also a surgery for the knee that I"m wondering could take the pressure off, if they can determine thats where it is coming from. Thats why I thought a n-surgeon might be a better bet.
    GOOD LUCK

     
    Old 11-14-2006, 01:04 PM   #15
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    Re: Help with foot drop ???

    Hi joastudio

    I am sorry to hear that you are no further forward and find it discusting that your daughters medical records had no record of her HAVING the flu jab. I had crutches for a couple of weeks and found I got around better with them once I got the hang of them. Keep me posted on how she is doing and wish her all the best. I understand your frustration on the doctors having lots of ego and nothing to do to help you. I have the hospital tom and will wait to see what the say to me. I had a telephone call from the patient liasion officer today who said she was going to gather all my records and will have a meeting with me once she has her findings. I really have to tell them what they have done pysically and emotionally and make sure this never happens to someone else. I had a bit of a down day today missing work or even going out unatteded my work requires me to stand all day so cant go back till or if this gets better will keep on trying. will keep you posted.

     
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