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clouth 04-23-2008 07:07 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I'm going to try to get in to see Dr. Chiodo in Boston, Mass.

kristim06 04-24-2008 06:06 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
That is my doctor clouth! he is a great guy! he will be honest and up front with you. we tried so hard not to do surgery seeing how young I am and really too young for these issues (24) but in the end it had to be done!

emmie54 04-24-2008 06:15 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Wow, that's great it's the same doctor. Even though I ended up being very pleased with my surgeon, it is such a gamble if you don't know anyone he/she has treated already. The doctor makes such a difference and feet are so complex. Sounds like he is a good one.

clouth 04-24-2008 06:15 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I couldn't get in until June 2, which bums me out. I was kind of hoping for a miracle quick appt. But I'm seeing Dr. Theodore in Boston in the meantime, on May 13.

This process is so trying on the patience.

I'm sorry you had this so young, Kristin. I hope that you can get on with some normalcy now!

clouth 04-24-2008 10:14 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I just wanted to add, that my last post seemed very negative! But, I truly am grateful that I have appointments coming up with some excellent doctors, who will most likely be able to help me. And I'm glad that someone here knows Dr. Chiodo!

It is a waiting game, but I need this period of immobilization anyway, so, an earlier appt. probably wouldn't have mattered.

kristim06 04-24-2008 12:07 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
It is always hard to get an appointment but they come fast and you can always call and say have them give you a call if someone else cancels. That is how my surgery was moved up.

Thank you I hope I can move on too but the only thing is it is well on its way to progressing in my other foot which is not a good thing but my main focus is healing the one I just had the surgery on first.

clouth 04-24-2008 01:48 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Sorry to hear that you're having trouble with your other foot. About three weeks ago, right after my foot/ankle ortho told me he would operate on my FHL tendon, I began having trouble in my "good foot." Pain in the inner ankle, similar to what's going on in my "bad" foot. It felt like getting the wind knocked out of me, and I swear I have cried every day since it started.

I'm hoping my good foot hurts because I've been wearing these old sandals. They're the only ones I have that match the height of my cam walker. I should probably hunt around for some advice on finding the right shoe to wear with this thing.

I read on the other thread that you've been able to start using the elliptical, bike and pool. That's awesome. It must feel great to break a sweat.

janewhite1 04-24-2008 02:34 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I did well with a hiking boot on my good foot while I used a cam walker. A lot of them have thick enough soles.

Yeah, the first injury rocks your world, but the second one just seems to take all the courage you've got left.

Hang in there. Life will get better. In the meanwhile, try to enjoy the little things.

clouth 04-25-2008 06:41 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Thanks, Jane, I know you're right. I have to focus, focus, focus on the positive. It's hard for me not to totally obsess, it really is. I would love about three days of absolutely no thoughts about my ankles!

Kris

clouth 04-25-2008 08:28 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Kristin,
I have a question for you. Did your MRI show definite tenosynosis of the PTT? How long did you have symptoms before you got your MRI? I had symptoms about three months. Mine showed a little synovial fluid by the heel but didn't state that it was on the tendon. It just said the tendon was unremarkable.

I'm not sure why my foot/ankle ortho at Newton Wellesley would have zeroed in on my FHL tendon instead of the PT tendon. He said because my toe won't bend up, but I've since been told by a pod that it's my big toe joint causing that, not a tendon.

I'm remembering now that I had a lot of pain on the top of my feet while walking last summer. I had to stop and stretch a lot, and it usually got better the more I walked. Also one ( I think just my bad one) of my ankles kept turning in when I wore wedge heels. Originally I thought that was how I hurt my ankle.

How did your symptoms start?

kristim06 04-27-2008 10:58 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Clouth, my mri did show definite tenosynosis of the ptt, but not tear in it (which when he went in and did the surgery he found a rather large rip.
I had some issues with my big toe associated with the pttd.
My symptoms is I had rolled it so many times and I had little stability with my ankle plus constant pain. my ankle turned in all the time

i hope this helps.

Kristin

clouth 04-27-2008 12:08 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Thanks Kristin, that does help.

Kris

clouth 05-02-2008 06:16 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Hi everyone,
Just an update. As I mentioned, I'm going to see Dr. Theodore in Boston on May 13. The podiatrist/foot surgeon examined me again last week and still doesn't think it's PTTD, despite my fears. But he has agreed to order an MRI with contrast, which I will have Monday afternoon. The machine is also stronger (3.0T vs. the 1.5T that I had in January) so maybe that will help.

He will also do weight-bearing Xrays for me next Thursday, and we're going to talk about orthotics but I don't think I can afford them right now. The custom ones are $400. I'll get them if I need to.

So, I feel nervous for the test results, but relieved that I will have these test results in-hand when I go to Boston.

Hope everyone's having a good day. My son's first communion is tomorrow so I'll be putting my ankle through it today getting the house ready. :)

Thanks for reading,
Kris

emmie54 05-02-2008 10:11 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I never knew there were different strength MRI machines! I've had 5 so you would think I would know more about it. Seems that would make a big difference. Congrats on the first communion. My son is in seminary to become a priest. He has 3 years left.

Don't overdo today or you will be miserable tomorrow! Just take the pain meds and you won't care if the house is dirty! Did the pod offer an opinion on what he thinks it is? Glad you are getting the second MRI.

clouth 05-05-2008 05:11 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Yeah, I didn't know about the different strengths either. I'm figuring, almost six months have gone by since the first MRI, that plus the added strength should help! Although, the MRI place called Friday afternoon, and they don't want to do the contrast. So now I have to call the podiatrist this morning and get that figured out.

The communion was wonderful. He wore a white suit. :) Lots of family here for the day. It got my mind off my ankle for the day, until it really started hurting at the end of it. And yeah, the house wasn't the "normal" clean, but who cares? Wow, you're son's in seminary, huh? That's awesome.

The podiatrist said that there's a mass there. He can't be sure what it is: vein, tendon, benign tumor. That's why he wants the contrast. He said it's "sizable," and not on the other ankle, and he thinks it could be the cause of my problems.

He doesn't see any weakness in the PT tendon, but until these tests come back, I guess it's anyone's guess. I should have a better idea of what's going on after this MRI, the standing Xrays, and my Mass General appt. next Tuesday. Now I'm just praying for something that's "easy" to fix. :)

emmie54 05-05-2008 09:54 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
I'm anxious to hear your results. I'm sure YOU are. Don't you hate it when they use the word "mass"? Sounds scary - but could be anything. We'll hope for the best.

maggietaz 05-06-2008 09:43 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Clouth,
How did the MRI go? Sure is frustrating when you have the pain and it doesn't show up well. When they did the tendon surgery for my peroneal tendons, it was worse when they went in, then what they saw on the MRI. I think I have decided to go back and see the foot and ankle specialist that I saw for the peroneal tendons and who did the surgeries. I am o.k. - not much pain some days and other days with just a bit too much exercise, I am in pain. It is hard to figure out where most of the pain is, since I have PF as well as problems with the PT tendon.

clouth 05-06-2008 12:06 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Thanks for thinking of me. I did get the MRI with (and without) contrast. And, the contrast was NOT injected into my ankle -- woo hoo!

I haven't gotten the results yet but of course popped the disc into my computer when I got home. There is a big bright area where my pain is. Bright like a Christmas tree! So now, I just wait.

I'll let you know when I hear!

clouth 05-06-2008 12:53 PM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Maggie,
I'm sorry you're going through this too. Sounds like a good decision to your foot/ankle surgeon again, especially if you had a good experience with him before. Glad you're not in too much pain at least some of the time. Today is a painful day for me. I just popped some advil. I think looking at the bright spot on my MRI made it hurt more. ;)

clouth 05-08-2008 11:00 AM

Re: Inner Ankle Pain: Struggling to get a diagnosis
 
Well, I got the MRI report today.

"There is increased signal surrounding the distal Achilles tendon. There is a small amount of fluid surrounding the posterior tibial and flexor digitorum tendons. No tendon signal abnomality is noted. The flexor hallucis longus tendon is unremarkable. There is a joint effusion. No evidence of mass lesion is noted.
1. Unremarkable MRI of the tarsal tunnel without evidence of mass lesion or muscular atrophy.
2. No evidence of tendinopathy, tear or tenosynovitis.
3. Achilles paratenotis.
4. Joint effusion.

He also did standing xray, noticed early arthritis in my big toe joint, said I have an accessory navicular, saw some bone degeneration that he said was from wearing the cam walker for 2.5 weeks (!), and said my arch was "fairly normal."

The podiatrist still believes cortisone and/or orthotics will be the best course of action.

I was surprised that with the fluid on the PT and FD tendons, that was considered normal and not a sign of tendonitis or a problem. I'm glad they're not torn, anyway.

My podiatrist still does not think it's PTTD. I'm not sure why. I guess I'll see what the guy at Mass General says on Tuesday!

Does this still sound like PTTD to any of you?


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