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  • Mycobacterium avium complex (MAC/MAI) in the foot (bone)

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    Old 09-15-2008, 10:33 AM   #1
    Podushko
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    Lightbulb Mycobacterium avium complex (MAC/MAI) in the foot (bone)

    My name is Jenny and I am writing here on the behalf of my father; My father is 59 years old, he had a surgery done in 2007 for a Neuroma on his foot (his first and only surgery ever) after that; approx 4 months of complaining and his doctor ignoring him, he went to see another; whom then took and x-ray and said he thought he saw was a fracture. A few months went by again, with my dad wear a medical boot to heal the fracture, a lump started to develop in the spot and some type of liquid kept coming out, his doctor thought it was a ganglion cyst and schedule an operation to remove it. After the surgery, a few more days went by and the lump began to come back, then his doctor did another surgery to remove the “garbage” he called it and a part of his metatarsal bone, to get rid of the bacteria in the bone; where he assumed it was (I’m guessing). He sent it in for a culture to be done. The result came back that my dad had two bacteria’s/infection’s (not a cyst) in that spot and what he thought was a fracture was now – sign’s of bacteria on the bone. One bacteria was a regular bacteria and the other was initially unknown and my dad had to stay on an at home IV (Levaquin) until the culture grew out the other bacteria (6 weeks).

    When the bacteria grew out, his doctor told him the bad news, he had developed the MAC (Mycobacterium Avium Complex Disease) bacteria in the bone of his foot. That he would have to be on heavy antibiotics for a year at least.

    Now we are almost dealing with this for two years. His wound is still leaking and he is taking his prescribed medications (clarithromycin, ethambutol, and rifampin). He had an MRI done on Aug 20th 2008 and it show’s the he still has the infection on his bone (that was partially taken out)…

    So after 3 surgeries, he doesn’t know what to do anymore… We need any help/advice/guidance we can get; so far it’s been hopeless.

    Any reccomendation's to NYC Specialist's for this would be great too...


    THANK YOU

     
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    Old 09-15-2008, 02:23 PM   #2
    Sudie
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    Re: Mycobacterium avium complex (MAC/MAI) in the foot (bone)

    Hi Jenny: I would get an appt for your father with a infectious disease doctor. I believe they are more familiar with this type of bacteria. Good luck. Sue from Atlanta

     
    Old 09-16-2008, 03:50 AM   #3
    Podushko
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    Re: Mycobacterium avium complex (MAC/MAI) in the foot (bone)

    He's seen two, but you know sometimes you get a vibe (based on actions) that some doc's just don't care about your case? it's been difficult to find a genuine doctor; for us at least.

     
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