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pttd solutions?


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Old 07-03-2011, 02:12 AM   #1
molliefrog24
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pttd solutions?

i need some major help, advice, and encouragement. honestly, i've been kind of suicidal because of all this.
i am 26. i was born with severe overpronation/flat feet. when i was 11 years old, i had flat foot reconstructive surgery. eventually, my right foot became as severe as my left and i had the same surgery done on the right foot at 17 years old. i had always noticed my left calf muscles were always smaller than my right calf muscles. my parents and i assumed it was just a side effect from the surgery and also maybe from the fact that i didn't have the best physical therapy after the surgery.
over the years, my left foot slowly started overpronating again. when i reached about 21 i became limited in the amount of time i could spend on my feet without pain. normally, after about an hour i would have enough pain to where i would have to sit down and be done for the day. the pain would migrate. sometimes, it would be my heel.. other times, my calf...other times, the ball of my foot. just migratory aches and pains. i would also have quite a bit of fatigue in the left calf/leg. i attributed this to the calf muscle atrophy that always seemed to be present. a doctor i had gone to said the same. i was then referred to a pain clinic. they gave me oxycodone for when i wanted to be on my feet for longer than half an hour/hour. this was going great. given my surgeries and everything, i was thankful for this and didn't expect to be able to be really active or play sports. however, in 2010, i started getting some arch pain which i had never had before. it progressed to pain up the inside of the leg. this lasted 2 weeks and then felt better. once again, this pain showed up a couple of months later and lasted a month. i had to be on crutches because the pain was so bad. i ended up going to physical therapy where my therapist told me i had posterior tibial tendon dysfunction. after pt for a while, it felt better. well, in february 2011, i made a move to FL with my 2 year old. i had to carry him and a big backpack and a heavy stroller much more than i expected. i also did a lot of walking. when i arrived in FL the pttd had come back really bad and it didn't subside or go away on its own this time. i've been on crutches for 5 months now! (also moved back to NC) any time i try to walk on it, it becomes too painful. in the middle of those 5 months i bought myself an aircast pttd brace. it helps a tad but not much. now recently, my right foot started hurting in the exact way as the left! i believe the right has developed posterior tibial tendonitis because of being overworked.. since i've been putting most of my weight on the right for 5 months now.
now i am not able to walk at all without severe pain. i am confined to one room where i can only do the bear minimum .. like go to the bathroom. i can't even take care of my 2 year old by myself! it is extremely depressing. a nightmare...
i have worn custom made orthotics my whole life with supportive new balance sneakers and this still ended up happening! i am going to physical therapy again but i don't feel it will do much good given the extent of my pain and loss of functioning. my husband and i will be looking at wheelchairs soon so he can push me around when we go out... i have researched heavily on the subject of pttd and know pretty much all of the treatment options there are including surgery. but what would they do with me seeing how i have already had flat foot reconstructive surgery?? could they just repair the tendon?? i am on medicaid and have only seen one orthopedic doctor who had no clue about pttd. it seems as though medicaid only covers routine doctors when i obviously need to see a specialist who treats pttd!! if i were to try to cover up the pain with the oxycodone, i would be having to take a ton which would leave me completely out of it. i also know that it's not just about treating the pain with pttd since it is progressive and gets worse and will eventually tear if you mask the pain and keep stressing it. someone please give me advice on this?

 
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Old 07-03-2011, 05:52 AM   #2
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Re: pttd solutions?

I am so sorry you are going through this again. After going through the surgery once I could not imagine having to have it redone. You should try to find a foot and ankle specialist, one who is certified in midfoot/rearfoot surgery (actually get several opinions). I would think that they can repair the tendon, but you really need to see a specialist and have them do an MRI to see exactly what is wrong. I am sure that procedures that can be done now are different then what was done when you originally had the surgery to your feet.

 
Old 07-03-2011, 07:17 AM   #3
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Re: pttd solutions?

Mollie, so sorry to hear of your plight. I do know surgery can be performed on a foot that has already had surgery. It would be up to a doctor to inform you of what is best, from repairs to perhaps some fusion. Perhaps you could Google with keywords including orthopaedic, podiatrist, pttd and your state and find a doctor knowledgeable to help you. Then do your homework and find out about their success rate. I do believe there are those on these boards from NC who might be able to point you in the right direction too. Good luck! Bunnie

 
Old 07-03-2011, 07:21 AM   #4
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Re: pttd solutions?

Do you know what proceedures you had done for your flat foot surgery? It seems that you need to see a foot and ankle ortho who specializes in flat foot reconstruction. It sounds as if insurance is a major problem for you. Perhaps you can see about getting into a clincal trial. I know that they are doing some at *** in NYC. Good luck and I hope that you get an answer

 
Old 07-03-2011, 09:12 AM   #5
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Re: pttd solutions?

Not sure how your insurance works but there are four orthopedics in NC that I would recommend for this type of problem. They are all located at or affiliated with Duke University. Drs. Easley, Nunley, Parekh, and DeOrio.

 
Old 07-03-2011, 09:17 AM   #6
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Re: pttd solutions?

Oh Molliefrog24 - I'm so sorry you are in so much pain.

I agree with the others - you do need to find a good specialist. I also wonder if you found one if they could take do an exception and take you as a medicaid patient? I'm not sure how all that insurance stuff works. You could start pleading your case with them?

You do want to get this taken care of - and since you have already been through surgery twice - you know it is a long recovery. But, in the end, the no pain and the ability to walk again I think are worth it.

Take care and remember there are a lot of us here on the boards to cheer you on!

Angela

 
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