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  • Pain in Both Feet That Doesn't Get Better

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    Old 12-02-2013, 09:15 PM   #1
    carolweb's Avatar
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    Pain in Both Feet That Doesn't Get Better

    I thought I would share my daughter's story of her bilateral foot pain and the 4 years it took to get diagnosed. Her pain was on both heels and started at age 14 out of the blue with no apparent cause--she wasn't in sports or on her feet alot. Suddenly she couldn't be on her feet for more than 20 minutes without being in pain and if she overdid it, the soreness in her feet would last for weeks. None of the PT exercises helped. We went to 3 Podiatrists, an Orthopedic Dr., 2 Sports Medicine Drs., a Neurologist, a Rheumatologist, 3 rounds of physical therapy, several X-rays and MRIs, an EMG test, which all came out negative. She had various diagnoses of achilles tendonitis, plantar fasciatis, and other foot problems. I told the doctors she also had muscle weakness and seemed to fatigue really easily for her age. But all the tests they ran for those symptoms came out negative too. Finally I took her to a doctor who was very attentive to all her symptoms and ran a bunch of blood tests and diagnosed her with Bartonella and Lyme Disease, both tick-borne illnesses. She was treated with antibiotics by a Lyme Disease Specialist and now her feet are much better. Bartonella causes bilateral foot pain. It's a little known bacteria carried by ticks and fleas and it can also be transmitted by the scratch of a cat. Many ticks carry more than one bacteria so even though I did look at Lyme Disease symptoms it didn't match her foot pain. But I wasn't aware of Bartonella and that it also causes foot pain. After four years I remembered she was bitten by a tick at Girl Scout camp but didn't get any type of rash afterward so I forgot about it. I later found out 40% of Lyme tick bites don't show up with a rash. Anyway, I wanted to share this bit of info because when we were bouncing around from doctor to doctor and her feet still kept hurting I would come to these forums and try to see if there was any other foot problem that could be causing it. I hope this helps someone who may have the same issues.

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    Old 12-02-2013, 09:50 PM   #2
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    Re: Pain in Both Feet That Doesn't Get Better

    What an incredible story. You and your daughter deserve great praise for continuing your search for her foot problems. It's great that you are sharing this with others. It's sad that it took so many dead ends before you found the one doctor that recognized this was worth taking the time to solve your daughters mystery.

    I wish you both all the best.
    PTT Transfer, Calcaneal Osteotomy, Gastroc Recession, Achilles lengthening, Triple Arthrodesis, as well as some other fine tuning while he's in there.
    October 9, 2013 Surgery date

    Old 12-03-2013, 07:57 AM   #3
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    Re: Pain in Both Feet That Doesn't Get Better

    Thank Goodness your daughter was finally diagnosed! And how thoughtful of you to write this post. My sons are into scouts and camp out often. This is excellent to tuck into my memory bank. With so many other feet problems common in my family, I am certain I would never consider an infectious disease if they ever had a problem. Thank you.

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