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  • Negative HIDA ... now what?

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    Old 10-10-2019, 05:19 PM   #1
    missyou009
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    Negative HIDA ... now what?

    My HIDA scan was completely normal...so we're pretty much back at square 1

    I have a GI appointment in a few weeks...but until then, what? I can't keep going on like I am daily, and I also can't miss any more work.

    Any other ideas?

     
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    Old 10-10-2019, 05:23 PM   #2
    Titchou
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    Re: Negative HIDA...now what?

    what was your score?

     
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    Old 10-10-2019, 05:37 PM   #3
    missyou009
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    Re: Negative HIDA...now what?

    It was 79%

     
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    Old 10-10-2019, 06:20 PM   #4
    Titchou
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    Re: Negative HIDA...now what?

    Actually that is not normal. Between 35% and 75% is considered normal. While this isn't horribly out of range, I'd certainly check with a GI to find your options.

     
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    Old 10-10-2019, 06:47 PM   #5
    missyou009
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    Re: Negative HIDA...now what?

    I had read the numbers you mentioned, but my doctor, and the report he got from nuclear med said normal.

     
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    Old 10-10-2019, 07:05 PM   #6
    Titchou
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    Re: Negative HIDA...now what?

    Well, everything I have found online says 79% is out of normal range...all from well respected institutions. I have a friend whose PCP told him his 25% was normal.The GI had him in surgery days later to remove it and it was diseased. I'd trust the specialist. Your score is considered biliary hyperkenisia. Research it.

     
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    Old 10-10-2019, 07:12 PM   #7
    missyou009
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    Re: Negative HIDA...now what?

    I tried to tell my doctor that I had read 79 is high and he said it was normal, so IDK. Maybe the GI will say differently and I'll be getting it out. I sure as heck hope that's the case! Because I've been researching too.

     
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    Old 10-10-2019, 07:36 PM   #8
    Titchou
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    Re: Negative HIDA...now what?

    Ask your PCP if he's heard of biliary hyperkenisia. I'd bet he hasn't.

     
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    Old 10-10-2019, 07:41 PM   #9
    missyou009
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    Re: Negative HIDA...now what?

    I unfortunately won't be seeing him again. I'm on medicaid an I moved counties, so after October 31st, I have new insurance that my current PCP doesn't take. I can meussage him, but it has to be pretty simple stuff.

     
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    Old 10-12-2019, 04:00 PM   #10
    miniguy
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    Re: Negative HIDA...now what?

    Have you had an EGD (upper endoscopy) to be sure nothing is going on within the stomach itself?

     
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    Old 10-12-2019, 04:59 PM   #11
    missyou009
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    Re: Negative HIDA...now what?

    No. I haven't yet been to a GI, but will be going week after next.

     
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    Old 10-13-2019, 05:25 AM   #12
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    Re: Negative HIDA ... now what?

    This is a GI issue...unfortunately you are going to have to wait until the GI doctor sees you to find out what they want to do, but you should be in good hands once you see him.

    Make sure you have your test results with you or that he can access them through the computer as these results are very important.

    Good luck! Let us know what he says once you see him!
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    Old 10-13-2019, 06:15 PM   #13
    missyou009
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    Re: Negative HIDA ... now what?

    I thought it a GI issue almost immediately, and made an appointment as fast as I could. Unfortunately, they were booked close to a month out.

     
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