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brianpain33 12-31-2007 12:54 PM

Still suffering with gallbladder pain
 
Well everyone I had a gallbladder scan today which was loads of fun. I had to be still for 90 minutes. First they inject a radioactive substance and then after 60 minutes they inject something else to make my gallbladder contract. That is when I noticed the pain as it was contracting so there has to be something wrong with it. Good thing I took a Lortab before going in or the pain would have been worse. I have to wait until probably Thursday before the doctor gets the report.

Hey, at least I will be going to the dentist and getting my 2 crowns on wednesday. I will be getting that out of the way before any possible surgery. Please everyone pray for me and pray that they just go ahead and take my gallbladder out.

Can I request to the doctor just to have my gallbladder removed even if they don't find anything super out of the ordinary? I am just so frustrated.:mad:

mcda 12-31-2007 05:23 PM

Re: Still suffering with gallbladder pain
 
My thoughts and prayers go out to you, Brian. I would explain to the doctor that even if they don't find anything on that particular test wrong that you can't live with the pain of the gall bladder attacks and want it taken out. I have an aunt who went through several tests, and the doctors couldn't find anything wrong, and she demanded them to take it out. The doctor listened, and whenever they had taken it out, it was white! Sometimes, unfortunately, the tests don't show everything that is wrong...Please keep us updated about your condition!

scrappinmaniac 12-31-2007 07:19 PM

Re: Still suffering with gallbladder pain
 
[FONT="Comic Sans MS"]Hi Brian.

I don't understand why you had such a long scan. Has your dr already sent you for an ultrasound and was unable to find gall stones?

About 4 yrs ago, I had my gallbladder removed. When I would have attacks I would get terrible pain in my back right between my shoulder blades. The pain felt like someone was punching me so hard the air was being knocked out of me. I did my homework before seeing my GP. He didn't believe it was my gallbladder but sent me for an ultrasound I think to just shut me up (sorry for my bluntness), but it turned out that I was right. Go figure. Yes, I did find a new GP after he referred me to a surgeon.

What do your attacks feel like? I sure hope you're able to figure this out. I know how fustrating something like this can be.[/FONT]

brianpain33 12-31-2007 07:27 PM

Re: Still suffering with gallbladder pain
 
I did have an ultrasound last week and it was negative for gallstones. However this doesn't rule out the possibility that the gallbladder is diseased or not functioning properly. This is why he sent me for the gallbladder scan. It was pretty cool to see my liver light up on the screen and then slowly began to see my gallbladder as a round object and then after she injected the stuff to make my gallbladder contract the circle started getting smaller and smaller and then I saw my intestines starting to light up. I'm radioactive baby:D

It feels like I got punched underneath my lower ribs on the right side. I get cramping if I eat anything that is fried or has a lot of fat in it. I have been taking the Lortabs in addition to my normal chronic pain meds in order to keep it under control. I hope this test shows something. Of course with the holidays everything is getting slowed down. At least I remembered to call my doctor and request some more Lortab in case I need them. I will keep all of you posted.

Brian

skych 12-31-2007 07:45 PM

Re: Still suffering with gallbladder pain
 
Brian,

Sorry to hear that you are in pain, and thank you for posting on my thread.

I do not know much about having anything wrong with the GB but I have seen some friends go through it so I know it is painful. In the end I think I remember 2 that had theirs out. Made it so they could not eat alot of foods but small price to pay.

I hope that they figyre it out and get it taken care of asap. From my own experience I have learned if I feel there is something wrong and they say they can't find it I stand firm and do not take no for an answer until it gets sorted out.

Anyway thanks again....
Chrissy

forginon 12-31-2007 09:13 PM

Re: Still suffering with gallbladder pain
 
Brian,

As far as I know, things won't get better with your gall bladder, even if they find little and you are only in the early stages of gall bladder disease. That's what I would focus on. Why suffer until they can actually see stones?

So, if the tests come back inconclusive, you at least have proof that at the time of injection the gall bladder contracted and you felt hard pain. That's your evidence that there's a problem, since that doesn't happen to folks with healthy gall bladders. Ask the doc if it's going to get better. I've never heard of that happening and I have to believe that, if he's honest, he has to tell you it does not get better. Then ask him what can be done now to stop the suffering since treating a diseased gall bladder with hydrocodone isn't the best plan. I think the only treatment to stop the suffering is removal.

Best of Luck!

steve

butrfligirl28 01-01-2008 04:05 AM

Re: Still suffering with gallbladder pain
 
Brian,

I am so sorry you are still suffering! I wanted to share a story with you. After my last surgery, I had a wonderful lady for a roomate for a day or two. She had just gotten her gallbladder out. I asked her what her symptoms were, expecting to hear the usual. Instead she said that she only had back pain, and she went for two years with this pain! She said that they tested her for gallbladder problems early on, ultrasound, Hida scan, cat scan, ect. and it showed no gallbladder problems. Then she went to all different types of doctors. No one could find the source of her pain. She finally persuaded a general surgeon to do exploratory surgery, and had huge gall stones removed, plus a diseased gall bladder. How none of this showed up, I don't know, but she was so happy to have it out! :)

Are you sure this is gallbladder pain? I don't know how you will be sure, but if all else in the area is ruled out, it would probably be a good idea to talk to a surgeon. I know all surgeons can remove a gallbladder, but shop around just like it was neuro surgery and get the best one! I hope and pray for an end to your pain soon, my friend!

Your Friend,

Amanda

scrappinmaniac 01-01-2008 09:17 AM

Re: Still suffering with gallbladder pain
 
[QUOTE=brianpain33;3369902]It feels like I got punched underneath my lower ribs on the right side. I get cramping if I eat anything that is fried or has a lot of fat in it. I have been taking the Lortabs in addition to my normal chronic pain meds in order to keep it under control. I hope this test shows something. Of course with the holidays everything is getting slowed down. At least I remembered to call my doctor and request some more Lortab in case I need them. I will keep all of you posted.[/QUOTE]

[FONT="Comic Sans MS"][COLOR="Purple"]Hi Brian. It definately sounds like your gall bladder. I bet you would feel alot better if it were removed. There's a good chance they can remove yours laparoscopic, that's how mine was removed. The recovery is so much quicker then if they have to cut you open, but either way, I think you would do fine considering you deal with chronic pain now. My biggest problem for about the first month post-op was being nauseated, but that went away quickly and I've had no problems since. I hope you get the answers you're looking for in the next few days. Keep us posted.[/COLOR][/FONT]

forginon 01-01-2008 11:46 AM

Re: Still suffering with gallbladder pain
 
Laproscopic Gall Bladder removal and Adhesions

Brian,

For what it's worth, I suggest considering the open surgery to have the gall bladder removed. I know that runs counter to modern techniques.

I had mine out laproscopically in the early '90s and it has caused me no end of grief. What they are learning is that abdominal laproscopic surgery tends to cause adhesions. For me that translated into a bowel obstruction and the very worse experience of my life. I was having terrible gut pain and went to the ER. They couldn't determine the cause and also couldn't control my pain, as I was on the patch and the fentanyl lolipops, so they eventually called my pain doc who got them somewhat close to what I needed. I laid in horrible pain for about 36 hours before they learned that my bowel was obstructed and I would die if they didn't go in surgically. After surgery I had to go to the ICU since that was the only area that they could give me enough pain meds to control my pain. The surgeon said it was a bowel obstruction from adhesions from the earlier surgery.

Of course, it does not follow that everyone that has laproscopic surgery gets adhesions. All I know is I made myself a promise that if I knew of anyone contemplating laproscopic abdominal surgery, I would warn them. Your surgeon will tell you that it's a very low probability of this happening to you and it will be your choice. The benefit of the laproscopic method is that you're out of the hospital the next day and there's very little post-op pain. With the open surgery there's more pain and a longer hospital stay, but maybe less chance of adhesions. You do what you feel most comfortable with.

I hope you get your surgery very soon so you can move on from this pain and suffering.

steve

butrfligirl28 01-01-2008 03:36 PM

Re: Still suffering with gallbladder pain
 
Steve,

I also ended up with a bowel obstruction after a laparoscopy to treat endometriosis. This was the cause of my chronic pain. Two surgeries later, and I need a third, I still have pain. I also had severe adhesions, scarring, ect. due to the laps. Just wanted you to know that your experience is not that uncommon, and after 5 laps, I am living proof of that.

Thanks for your post! Definite food for thought!

Amanda

BrittleBones 01-01-2008 05:43 PM

Re: Still suffering with gallbladder pain
 
It sounds like this thread is going the way of horror stories about bowel obstruction so I thought I'd throw mine it too!! In 1996, without warning or any history of gastrointestinal disease or problems, I experienced increasing belly pain and constipation. My initial thoughts were that I had a stomach virus with gas and bloating. The one not so typical stomach flu symptom was that I thought I was constipated! No matter how hard I tried to move my bowels, nothing happened. Taking a couple of laxatives only seemed to make matters worse for me. By the fourth day I was obviously getting sicker. The pain was on the upsurge and I was uncharacteristiclly (sp?) lethargic and confused. Thank goodness that my husband put an end to my suffering by INSISTING that I go to the emergency room. I remember that as the hours dragged on they still couldn't figure out what was wrong. My insistance that I had already had my appendix out did nothing to convince the docs that I wasn't suffering from an appendicitis!! Finally, after a brief ultrasound, the tech told the doc that something didn't look right, but they couldn't figure out what was going on. The next thing I knew I was waking up from surgery with my poor husband weeping over me!! I remember mumbling, "What's wrong honey....what's wrong??" He told me that my colon had burst and I now had a colostomy! Wow was I shocked!!! My colon had indeed ruptured and the contents of my colon had been spilling into my abdominal cavity for a couple of days. I was pretty sick for awhile. After 7 months of living with a colostomy I had healed sufficiently to have the procedure reversed. In the end the surgeon said the culprit had been a small piece of hardened stool (sorry for the graphics here folks) that had lodged itself into a fold in my colon and in a back and forth motion had actually carved a small hole in my colon. Chances of it ever happening again are something like 1 in a couple hundred million.....and the chances of it happening the first time had even higher odds. I just think it's the luck of the Irish folks!! I've never had ANYTHING in a small way....everything has to be on the "unheard of" side of the coin!! I've only had one problem since. I had a partial blockage from a twisted intestine years afterward that only required a gastic tube and a week of hospitalization. Nothing since!! Memere

forginon 01-02-2008 07:31 AM

Re: Still suffering with gallbladder pain
 
[QUOTE=butrfligirl28;3370738]Steve,

I also ended up with a bowel obstruction after a laparoscopy to treat endometriosis. This was the cause of my chronic pain. Two surgeries later, and I need a third, I still have pain. I also had severe adhesions, scarring, ect. due to the laps. Just wanted you to know that your experience is not that uncommon, and after 5 laps, I am living proof of that.

Thanks for your post! Definite food for thought!

Amanda[/QUOTE]

Oh Amanda,

I am so sorry for your situation and pain. I didn't know the history, but I can certainly relate. I don't quite know why, but reading your story just now has brought me to tears. This sometimes happens when I feel the need to pray for someone - so I will. May I ask a question? Has your history of adhesions left you with any central abdominal pain? Right in the middle of the chest, just below the base of the sternum. My CP is from two destroyed knees, but it's also true that without the pain meds I wouldn't be able to tolerate the abdominal pain either. I'm really interested in your reply because I'd really like to know the cause of my abdominal pain. I do have a diagnosis of Irritable Bowel Syndrome, and they also say there's proof of an auto-immune problem - possibly Chrone's, but I haven't yet pursued that.

Please advise when you get a few minutes, OK?

Thanks,

steve

butrfligirl28 01-02-2008 06:50 PM

Re: Still suffering with gallbladder pain
 
Hey Steve,

Thank you for your post. I can always use prayers, so I really appreciate you saying one for me. I will return the favor and include a prayer for you as well. :)

It all started with an incisional hernia after one of my laparoscopy surgeries. They said that it was small, and would cause no pain. I had pain however, all the time. It was really bad when I strained the muscles there.

I suffered with on and off severe pain, bloating, distention, nausea, ect. Then they said that I had a bowel obstruction. After the emergency surgery, I awoke in the worst pain of my life. After a hell on earth nightmare experience in the hospital, I finally went home, still in severe pain. The pain continued long after I had "healed".

I went two years searching for answers and/or help. I finally went to a pain specialist and started daily pain meds. I found a surgeon in May who agreed to go in and remove the mesh they implanted after the bowel obstruction. The surgeon said that the area was a maze of adhesions. The mesh came apart from the abdominal wall on it's own, and he removed it. He left a small area, about the size of a quarter, that he called "a weak area in the muscle."

Sadly, that quarter-size weak area, is now the size of a small cantalope. :( My pain is worse than ever. I have also been diagnosed with IBS, but still have pain and problems that are not well explained. The last time I saw the gastro, he examined my stomach and said "Good Lord, what the hell happened to you??!!" Not a good sign, huh?:jester:

Steve, my pain is right below my sternum and directly above my belly-button. Kindof like where you would expect a "six-pack"......LOL I wish! My pain is a constant soreness that worsens with the slightest activity. It gets worse carrying anything over 5 lbs, pulling, stretching, yawning, coughing, standing for long periods, ect. The soreness is constant and in varying degress, but I also have sharp, pulling pain, and sometimes a burning, stinging pain.

I take several "anti-spasmodic" meds for my stomach problems. You list it, I have it. As far as adhesions, after every lap, the surgeon would say that the scarring and adhesions made it difficult to even operate, as it was hard to even see and locate normal anatomy. I always have bad pain in my lower left side. They can never find the source of the pain, but I believe that it is adhesions connecting my colon to itself, or other organs.

Tell me about your abdominal issues! We'll swap stories! :) Thanks again my friend!

Amanda

brianpain33 01-02-2008 07:14 PM

Re: Still suffering with gallbladder pain
 
Amanda:
I don't even think that I have a right to complain after reading your story.

forginon 01-03-2008 07:58 AM

Re: Still suffering with gallbladder pain
 
Brian,

Your post gave me a little giggle:)

One thing I've found with pain is that there's always someone out there worse off than I am. When I find them I get the same reaction - who am I to complain?

I've read your stories and you have every right to complain. You also have every right to be proud of yourself. On top of everything else, you're fighting addiction. Someday I'll tell my story about going through detox from pain meds... It's not at all pleasant and I don't go into it casually, but someday...

Keep up the good work!

steve


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