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    Old 03-24-2010, 07:02 AM   #31
    gigi11
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    Re: Pain after Gallbladder Surgery and ERCP

    Not to sound negative but you are the worst story I have ever heard so far and I have researching on the internet for a year now. I will tell you my story:

    I had my gallbladder removed in 2008 because of stones. I had no problems after the surgery but once a month I started to feel tightness in my stomach like gas pains and the gas wouldn't come up real fast, some nausea that would be relieved with belching. I didn't pay any attention to it because I thought it came with the territory of having no gallbladder (like maybe I ate something bad) - I was not given a special diet to follow nor any other instruction as to what to follow. So I noticed acids would keep coming up in my throat so it was March 2009 I saw my regular doctor and asked what to do and she referred me to a gastro doctor and said it might be acid reflux. It runs in both sides of my family. Now before I had my gallbladder taken out I could eat anything NO STOMACH PROBLEMS WHAT SO EVER.

    So I went to the Gastro doc and he ran all kinds of test but I noticed my symptoms got worse because I was so nervous taking those test and my mind was racing thinking the worse. I figured stress was doing this to me because before it was once a month now it is everyday. I had a MRCP to check for stones maybe left behind - None, Hployria - neg, pancritits test - neg, Endoscopy - found mild non specific gastritis. So I did my own research and found that when the bile keeps hitting the stomach wall it can cause gastritis so I found by taking welchol it absorbs the bile and stops the diarrehea so I took it. Gastritis can cause nausea so I thought that was the problem. I also kept getting a pain in the upper right area under the rib and was only relieved if I sat down. It was like a back ache pain. The nausea or gas pain was livable I could stand it and I didn't have the pain like others have posted. So my gastro kept saying it was stress or your anxiety is acting up. I gave up on him and said to myself I can live with this pain. I did go ahead and have a colonoscopy to check for IBS. That test as well came back perfect. That doctor who performed it told me to check for SODS - I did all kinds of research and found that it not a good success rate for the ercp. So I basically gave up and said I can live with this. I recently got a checkup and my liver enzymes were slightly elevated for ALT but I thought I just got over a UTI and was injected with antiobiotic which will make your liver enzymes go up. So my doctor said we will keep an eye on that because maybe you have a autoimmune disease.

    So several months past and I was feeling good and I would have occassional gas but it would pass so fast. I was doing acupuncture, eating right and lost some weight. If I ever got a headache or my menstrual cycle came is when my stomach would get upset but I basically felt there is a reason for that because a headeache and menstrual cycle will do that. I don't want to believe I have SODS because of all the stories I heard. Plus I have really bad anxiety and panic attacks which came on strong because of all this. Sometimes the gas would make me dizzy - I was just full of it and it came out both ends belching and the other. Again, I always had an excuse for it.

    Well, I had to the doctor on Monday because the gas has gotten worse and the acid keeps going in my throat plus whatever I ate made me feel a little nausea. So she prescribed me Zantac to see if it is acid reflux. Her twin had sods and she said that could be it. So I made an appointment to see a specialist at John Hopkins. I feel so depressed because I homeschool my kids and I don't want to put them through this again of testing like I did last year. I feel there is no hope and my life is ruined because I won't get relief from the pain I go through once in awhile. How can I get through this - you sound so brave!!!

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    Old 03-30-2010, 04:59 AM   #32
    JodieK
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    Re: Pain after Gallbladder Surgery and ERCP

    Gigi:

    I am so sorry, I never got an email update that anyone had written to this thread and I was tracking it incase Angela posted something. I decided to check it on a whim and see that you wrote back 6 days ago!

    One thing I can suggest is if you get the ERCP, don't let them put a pancreatic stent in!

    Anyways, I had my surgery on the 22nd.. that was 8 days ago. I keep in contact with my doctor via fax and he does respond to everything... but 8 days is enough for me to know the ERCP did not work. At least I think it is. I have no idea. The pain, nausea, and tightness in my mid sternum area is gone. Hopefully those will not return. So, he actually DID fix that part of me and perhaps that is all the ERCP was meant to fix. I still continue to attack, it still feels the same way, it just comes on in the right now.

    I had to have an xray and bloodwork taken recently to see what my liver is doing and see if the stent had passed on its own. The stent didn't pass so I have to have that taken out by endoscopy on Friday. I'm not concerned as I sort of want it out of there.

    As a side note though... when I had my xray done, I asked the technician doing it if I could see my stent. She told me sure... so after she did my xray I went out to see it. That became secondary to what I did see. Exactly, and I mean EXACTLY where my pain originates from, was a glowing white line. I asked what that was and the radiologist standing nearby said "Did you have your gallbladder out? Those are metal clips". Now, I KNEW I was clipped. Alot of patients who get their gallbladder out have no idea that they leave clips behind- which are serving a purpose and that is to cut off the cystic duct and cystic artery as they are no longer being used. But I found it extremely odd that that is right where I have pain.

    I faxed my doctor the next day and was like "the stent is still in... but I seen these clips, could they in any way whatsoever be causing this pain?". After he got my bloodwork which indicated my AST and ALT normalized by my SGOT and GGTP were significantly elevated, his nurse called me. His nurse said that he had gotten my fax and at this point, would absolutely NOT rule out the clips as an issue and that he "may want to look at these".

    I wasn't all that nice on the phone with the nurse, to be honest. I wanted some type of pain relief. I got nothing. And then to be told my liver enzymes went even HIGHER? I wasn't happy. To top it off, I still have attacks of pain! All I want is some real answers, and some real answers now before I end up having another huge attack.I am like you, Gigi, now I am having anxiety attacks which is making it worse. After two hours of burping, nausea and mild belly pain last night, I broke down crying my eyes out. I don't want to continue to live my life like this.

    At this point, I'll let him look at the clips. I have read into some stories of clip obstruction, etc. Not only that, the clips could be ob securing a stone left behind, etc. I'm not exactly an easy xray either as I am going on 170 lbs, compliments of having my gb removed in the first place I guess.

    I am trying to hold it together. I get very anxious when I have to be alone. When someone is home with me, I figure if the pain starts, there is always the ER. I'd never be able to drive myself if I was alone.

    What is aggrivating me is that at FIRST my doctors nurse said that "no,if you still have pain after ERCP, then the ERCP did NOT work". THEN she said a few days later "Well the doctor said maybe the pains are things settling". Make up my mind. And if it was things settling, why are my liver enzymes even worse now than before?

    ERCP for pap stenosis is said to have a very good outcome.I fully do believe that he fixed the pap stenosis. Its sort of hard to have a SOD attack when you have a stent in place preventing full tightening down of the sphincter.

    In my case, he missed something. And he seriously needs to figure out what the heck it is. I am sick of this pain!

     
    Old 03-30-2010, 10:54 AM   #33
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    Re: Pain after Gallbladder Surgery and ERCP

    I went to my doctor yesterday and laid it all on the table to her yesterday. I have an appointment set up with John Hopkins but I will cancel because I don't want to ruin my whole summer with testing. So I showed her names of pain killers that people use and she kept saying ERCP is a choice and it is up to you but it is risky. I will try the pain killers to see if they work. I heard some people get an ERCP and it doesn't work and some end up with worse pain. Right now I just get pain after I eat- like it starts with gas and then pain in upper right side. So you just don't want to eat but you are so hungry. Sometimes when I eat I may not get any pain - I have no idea what foods trigger it. So I take prilosac plus prescription zantac for the heartburn. I am so tired sometimes - I don't feel like doing anything. I have cried many of times like you have. I was boo hoing to everyone last week saying "my life is over"

    I never have to go to the hospital but my worst fear is that this condition will get worse for me. They took my blood today and I pray it comes back normal. I do have a fatty liver and trying to get rid of it.

    All I want to do is feel good but I gave up. I drag myself everyday. I am dead inside - sorry to feel so gloomy but I was a healthy vibrant person before all this happened and now i feel wounded. I get easily irritated with no patience what so ever.

    Sorry your going through all of this. I have created this attitude now where I just don't care anymore and I am tired of thinking about it. If I die I die.

    Does it get worse if you have a headache? mine also gets worse when my menstrual cycle starts. I also notice it gets quiet when I have a real serious problem like another family is sick or some other emergency. That is why I thought it was a anxiety issue because why does it quit like that??? It will disappear for two months and then come back all of the sudden and stay with me for two weeks and go away - this is so weirdddddd!

    I do notice when I start to feel good and I go back and drink decaf coffee it will get irritated. If I walk in a mall for a long period of time I get the pain like a back pain in the upper right rib area. It can be relieved if I sit down. What is that???

    Last edited by moderator2; 03-30-2010 at 05:15 PM. Reason: please try using the Quick Reply button instead of Quote Reply

     
    Old 03-30-2010, 11:00 AM   #34
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    Re: Pain after Gallbladder Surgery and ERCP

    what were the results of liver enzymes? I was tested 6months ago and my ALT was 75 slightly elevated. I took a blood test today and praying my alt went down.

     
    Old 03-31-2010, 05:36 AM   #35
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    Re: Pain after Gallbladder Surgery and ERCP

    Gigi,

    There are a couple of enzyme tests. There is the ALT, AST, T. Bilirubin, SGOT and GGTP. I believe there may be others, but these were the ones my doctor was lookin at.

    My ALT and AST were in the 100's. My SGOT was VERY high, reaching 371 ( this was when I was admitted to the hospital) and my GGTP was likewise just as high. After my attack, these enzymes return to normal as they always have, EXCEPT the SGOT and GGTP which is now what is elevated in me. My white blood cell count also remains WAY up there as well, which is pretty much indicating to my doctor I still have an obstruction.. somewhere. Knowing that is really not making my days any better.

    So for me, and most SOD sufferers, you can have intermittent increases in the enzymes and then they will taper back off to normal. Except now, those two enzymes in me are still lingering very high. This is why my doctor is now looking into other things. ( I believe the SGOT and GGTP show direct liver injury.. I did look it up but got tired of scaring myself).

    I did get a call from his nurse yesterday. Actually they called me back as I have an endoscopy and stent removal scheduled for Friday but right now I have an allergy and asthma flare and I know sometimes they won't knock you out if your lungs aren't working right, etc. So I called and asked about that and she said they were just getting ready to call me. He wants to proceed with an exploratory and she said he is going to talk to me about this on Friday. I knew he was interested in looking at my gallbladder clips ( they leave these in you after surgery- some patients don't even know they have them and some do NOT get them), but she also said he is interested in seeing if I have any adhesions which will NOT show up on any MRI, CT scans or xrays, that you have to directly visualize them.

    One thing for me, I noticed ( you said you were on prilosec). I could not take that medicine for the life of me. It made my stomach and pain ten times worse. I have no idea what the mechanism is behind it, but I just threw that out three days ago and I already have huge relief in my stomach. Every darn time I ate I would burp, get nauseated, want to vomit and have pain in my stomach. I thought the ERCP had made it worse, but three days off the prilosec and those symptoms are gone. I had tried prilosec when I was 24 as well and my husband reminds me that all it did was MADE my stomach burn and made me nauseated all the time.

    I have read that fatty liver can cause the symptoms you are going through too and you said you have that. Maybe that is it? SOD will cause intermittent symptoms with intermittent elevations in enzymes ( or no elevation and I think thats a type 3 sod). For me though, I had a complete blockage at the papillary junction - biliary obstruction and that is why I ended up so so sick. I had papillary stenosis of the Sphincter of Oddi where fibrous tissue pretty much grew, tightened down the Sphincter and made it impossible for it to do its job- then causing a backup of bile and what not into me.

    I am still hoping that it is still going to take some time for things to settle and that perhaps this will pass. My liver enzymes are telling another story, but one can hope! At this point, I don't even mind if he wants to do an exploratory. Its pretty much the last thing for him to do is just open me up and go see what is complaining in me, haha.

    My stomach doesn't get worse if I have headaches, but I do suffer from headaches and the dreaded migraine alot. But like you, under pressure or stress I have often times never had any attacks. it DOES however get worse around my period. Knock on wood though, my cycle is due TODAY and I do not have any stomach symptoms which is a first for me in TEN years.

    My attack symptoms went like this:
    * I would feel a really, really deep hunger pang midline upper epigastric area. It didn't matter if I had just eaten a horse earlier in the day; it was just this really intense hunger that I know sounds strange, but didn't even seem like it was MY hunger. IF I ate something, I could prevent an attack right then and there. IF I didn't, the attack would move onto the next stage which was...
    * burning and gnawing, like something was eating straight through me,which would rapidly advance to
    * PAIN. Absolutely severe, insane, mind blowing, lay on the floor and cry in the fetal position pain, can't take another step pain. It would start midline, upper gastric area AND/OR also off to the right up under the rib. It was like these two areas talked to each other- I could never pinpoint exactly where the focal point was. The pain more often than not always wrapped itself around my back.
    IF you touched my back, it would push the pain straight back into the midline. If I touched my midline, it would push the pain straight out the back.
    * During the pain, I could feel an internal squeeze going on, like something was twisting me from the inside out. Just a very huge grip on my insides was going on, and would NOT let go. ONce it let go, my symptoms would subside.
    * more often than not, I would sweat, shake.

    I never had passing out nor vomitting or any of the like until 2009- that is when it all started with REALLY bad attacks. The two things that would always stop an attack was to hurry up and eat something, anything ( except chocolate) real quick. OR ice. Me and my children have made "mom ice sandwiches" for years now. My son would grab a frozen pack of ice and my daughter. One went on my back, one went on my stomach. That saved me from a full blown attack SO many times.

    I never had any burping, nausea, etc with anything.

    Now... my attacks after the ERCP are unfortunately, still there but...
    the pain, nausea, and pressure midline is completely gone. I really hope this stays gone.
    But the pain ( remember I never could tell where the focal point for pain was?)... the pain is IN that right sided focal point. So I don't know if for me, I had two obstructions going on like my doctor suspects or what. So now I still have the attacks, but they are on THAT focal point, and they come in the same manner, act the same way, wrap themselves around my back the same way, clamp down the same way, etc. Its just the same pain, different spot.

    One thing I can say though is that after I had my ERCP I kept having those hunger pangs CONSTANTLY. They also stopped once I stopped taking prilosec... so oddly enough, I am getting huge amounts of gastro relief from NOT taking a gastro med.

    I hope this helps in some way, at all?
    IF you can avoid the ercp and maybe find alternative ways.. I hate to say this, but maybe if you could.. I would? It took a decade for my attacks to land me in the hospital which also meant it took a decade for anyone to believe me. You have ears listening right now, so the choice is yours though. For me though, I knew the risks and I knew it could potentially make it worse but I couldn't bare to have another knock down throw up and pass out attack that lands me in the hospital for a week. So far, so good. Now I'm back to having my regular on a scale of 1-10 attacks, this is a ten. The one that sent me to the hospital? When the nurse asked me what is your pain on a scale of 1-10, I wasn't so nice as I was in so much pain and blurted out "holy crap, I've had kids lady, all four of them 1,2,3,4. I'd rather have them ALL coming out of me RIGHT now at the same time than be in this friggen pain". I wasn't lying!

     
    Old 03-31-2010, 01:11 PM   #36
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    Re: Pain after Gallbladder Surgery and ERCP

    I to have had my gall bladder taken out on 10-29-09 and ERCP on 10-30-09, and i did crash on the table of the ERCP due to low blood pressure.
    I still have all the symptoms as before. I was told to take prilosec otc by the doctors, but i read to try magnesium that is works better and only started it a couple of days ago. I will stop taking the prolisec and see how it goes.
    Another big problem i have is the pain that is coming from the belly button area, like the surgeon done something wrong; there is pulling or pinching on the inside, and i am tired all the time and it hurts when i get up just to walk in the next room, it does let up once i get going, (maybe just old age), but i have lost the will to go on.
    I go back to the surgeon on Friday on will confront him on the belly button area and hope he finds something that can be fixed. The more i move the worst it gets.
    Has anyone gone through this????
    I have lost hope on the feeling sick and the pain in my stomach, i don't know what to do next on that.

    Thanks for any suggestions,

     
    Old 03-31-2010, 03:31 PM   #37
    gigi11
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    Re: Pain after Gallbladder Surgery and ERCP

    Quote:
    Originally Posted by JodieK View Post
    Gigi,

    There are a couple of enzyme tests. There is the ALT, AST, T. Bilirubin, SGOT and GGTP. I believe there may be others, but these were the ones my doctor was lookin at.

    My ALT and AST were in the 100's. My SGOT was VERY high, reaching 371 ( this was when I was admitted to the hospital) and my GGTP was likewise just as high. After my attack, these enzymes return to normal as they always have, EXCEPT the SGOT and GGTP which is now what is elevated in me. My white blood cell count also remains WAY up there as well, which is pretty much indicating to my doctor I still have an obstruction.. somewhere. Knowing that is really not making my days any better.

    So for me, and most SOD sufferers, you can have intermittent increases in the enzymes and then they will taper back off to normal. Except now, those two enzymes in me are still lingering very high. This is why my doctor is now looking into other things. ( I believe the SGOT and GGTP show direct liver injury.. I did look it up but got tired of scaring myself).

    I did get a call from his nurse yesterday. Actually they called me back as I have an endoscopy and stent removal scheduled for Friday but right now I have an allergy and asthma flare and I know sometimes they won't knock you out if your lungs aren't working right, etc. So I called and asked about that and she said they were just getting ready to call me. He wants to proceed with an exploratory and she said he is going to talk to me about this on Friday. I knew he was interested in looking at my gallbladder clips ( they leave these in you after surgery- some patients don't even know they have them and some do NOT get them), but she also said he is interested in seeing if I have any adhesions which will NOT show up on any MRI, CT scans or xrays, that you have to directly visualize them.

    One thing for me, I noticed ( you said you were on prilosec). I could not take that medicine for the life of me. It made my stomach and pain ten times worse. I have no idea what the mechanism is behind it, but I just threw that out three days ago and I already have huge relief in my stomach. Every darn time I ate I would burp, get nauseated, want to vomit and have pain in my stomach. I thought the ERCP had made it worse, but three days off the prilosec and those symptoms are gone. I had tried prilosec when I was 24 as well and my husband reminds me that all it did was MADE my stomach burn and made me nauseated all the time.

    I have read that fatty liver can cause the symptoms you are going through too and you said you have that. Maybe that is it? SOD will cause intermittent symptoms with intermittent elevations in enzymes ( or no elevation and I think thats a type 3 sod). For me though, I had a complete blockage at the papillary junction - biliary obstruction and that is why I ended up so so sick. I had papillary stenosis of the Sphincter of Oddi where fibrous tissue pretty much grew, tightened down the Sphincter and made it impossible for it to do its job- then causing a backup of bile and what not into me.

    I am still hoping that it is still going to take some time for things to settle and that perhaps this will pass. My liver enzymes are telling another story, but one can hope! At this point, I don't even mind if he wants to do an exploratory. Its pretty much the last thing for him to do is just open me up and go see what is complaining in me, haha.

    My stomach doesn't get worse if I have headaches, but I do suffer from headaches and the dreaded migraine alot. But like you, under pressure or stress I have often times never had any attacks. it DOES however get worse around my period. Knock on wood though, my cycle is due TODAY and I do not have any stomach symptoms which is a first for me in TEN years.

    My attack symptoms went like this:
    * I would feel a really, really deep hunger pang midline upper epigastric area. It didn't matter if I had just eaten a horse earlier in the day; it was just this really intense hunger that I know sounds strange, but didn't even seem like it was MY hunger. IF I ate something, I could prevent an attack right then and there. IF I didn't, the attack would move onto the next stage which was...
    * burning and gnawing, like something was eating straight through me,which would rapidly advance to
    * PAIN. Absolutely severe, insane, mind blowing, lay on the floor and cry in the fetal position pain, can't take another step pain. It would start midline, upper gastric area AND/OR also off to the right up under the rib. It was like these two areas talked to each other- I could never pinpoint exactly where the focal point was. The pain more often than not always wrapped itself around my back.
    IF you touched my back, it would push the pain straight back into the midline. If I touched my midline, it would push the pain straight out the back.
    * During the pain, I could feel an internal squeeze going on, like something was twisting me from the inside out. Just a very huge grip on my insides was going on, and would NOT let go. ONce it let go, my symptoms would subside.
    * more often than not, I would sweat, shake.

    I never had passing out nor vomitting or any of the like until 2009- that is when it all started with REALLY bad attacks. The two things that would always stop an attack was to hurry up and eat something, anything ( except chocolate) real quick. OR ice. Me and my children have made "mom ice sandwiches" for years now. My son would grab a frozen pack of ice and my daughter. One went on my back, one went on my stomach. That saved me from a full blown attack SO many times.

    I never had any burping, nausea, etc with anything.

    Now... my attacks after the ERCP are unfortunately, still there but...
    the pain, nausea, and pressure midline is completely gone. I really hope this stays gone.
    But the pain ( remember I never could tell where the focal point for pain was?)... the pain is IN that right sided focal point. So I don't know if for me, I had two obstructions going on like my doctor suspects or what. So now I still have the attacks, but they are on THAT focal point, and they come in the same manner, act the same way, wrap themselves around my back the same way, clamp down the same way, etc. Its just the same pain, different spot.

    One thing I can say though is that after I had my ERCP I kept having those hunger pangs CONSTANTLY. They also stopped once I stopped taking prilosec... so oddly enough, I am getting huge amounts of gastro relief from NOT taking a gastro med.

    I hope this helps in some way, at all?
    IF you can avoid the ercp and maybe find alternative ways.. I hate to say this, but maybe if you could.. I would? It took a decade for my attacks to land me in the hospital which also meant it took a decade for anyone to believe me. You have ears listening right now, so the choice is yours though. For me though, I knew the risks and I knew it could potentially make it worse but I couldn't bare to have another knock down throw up and pass out attack that lands me in the hospital for a week. So far, so good. Now I'm back to having my regular on a scale of 1-10 attacks, this is a ten. The one that sent me to the hospital? When the nurse asked me what is your pain on a scale of 1-10, I wasn't so nice as I was in so much pain and blurted out "holy crap, I've had kids lady, all four of them 1,2,3,4. I'd rather have them ALL coming out of me RIGHT now at the same time than be in this friggen pain". I wasn't lying!
    I hope everything works out for you. Everyone keeps saying to me I will find an answer. They should have a support group for this type of pain - nobody would show up because we are so sick.

    I had an attack this morning and this is what I go through:

    I woke up at 5:00 a.m. and started to belch like crazy and then I went to the bathroom and then again but it wasn't diarreahea because I take welchel. Then the nausea started but no pain just nausea. I have to pace the floors to get the gas going and out of my body. So I took a nausea pill. After pacing the floors for an hour and crying to my husband that my life is over it finally stopped. The pain travels from side to side so I don't know where it is actually. My stomach will tighten up. You can hear my stomach having a war inside. I would say this pain is a number 4 but very uncomfortable. The gas is all over the place. I notice when the attack is over I felt like I went into another world or a hurricane and I came back from the shock. You just want to hold on to a table real tight. I notice when I do meditation/hyponsis the pain subsides.

    Another type of pain I get is just pain in upper right rib area like spasm but then I get no nausea and that pain is a number 3 - like a bad back pain.

    For two months I feel good and then it strikes for the whole month. I just kept thinking it was stress because I get alot of it day to day. I notice when I am in a store the belching will really act up but as I get home it slows down. I guess my home is my comfort zone.

    I swear I don't eat much at all. I am really worried about the blood test i just took - I hope it comes back normal. I know what you mean about looking up liver symptoms on the internet - you get scared and turn off the computer.

    I used to get scared everything i put in my mouth but it doesn't seem to matter what I eat. The attack will come either in the morning or night. I feel like my stomach rules my life and I have no control what so ever. Did you read the recent post? I just do not want an ERCP.

    I haven't tried the pain killer yet because I am scared that I might get dizzy. My kids probably think I am neglecting them because I am so wrapped up in my feelings. I homeschool and I feel so bad.

     
    Old 04-07-2010, 07:07 AM   #38
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    Re: Pain after Gallbladder Surgery and ERCP

    I had my gallbladder removed 13 days ago. I was really worried about life without a gallbladder due to the blogs that I read all over the internet. Aside from a little phantom gallbladder pain (which feels like a stretching or tearing sensation under my right rib cage) I feel really great. I started taking DIGESTIVE ENZYMES about six days after surgery. They stopped the diarrhea and pain after eating completely. I try to keep my fat intake under 5grams per meal, although I have gone over on occasion and haven't had any problems as long as I take these pills when I eat. The enzymes contain bile salts, among other things that help in the digestion of fat. According to the research I have done, they are safe and, so far, I am doing GREAT! Good luck to you. Let us know how you are doing.

     
    Old 04-08-2010, 05:43 AM   #39
    gigi11
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    Re: Pain after Gallbladder Surgery and ERCP

    Quote:
    Originally Posted by str8jacket View Post
    I had my gallbladder removed 13 days ago. I was really worried about life without a gallbladder due to the blogs that I read all over the internet. Aside from a little phantom gallbladder pain (which feels like a stretching or tearing sensation under my right rib cage) I feel really great. I started taking DIGESTIVE ENZYMES about six days after surgery. They stopped the diarrhea and pain after eating completely. I try to keep my fat intake under 5grams per meal, although I have gone over on occasion and haven't had any problems as long as I take these pills when I eat. The enzymes contain bile salts, among other things that help in the digestion of fat. According to the research I have done, they are safe and, so far, I am doing GREAT! Good luck to you. Let us know how you are doing.
    What kind of digestive enzymes are they? I use papaya enzymes but they dont' work - I belch all day sometimes.

     
    Old 04-08-2010, 09:27 AM   #40
    JodieK
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    Re: Pain after Gallbladder Surgery and ERCP

    Gigi ( and anyone else).

    I went in to have my pancreatic stent removed via an Electrograde endoscopy but as you would have it... the stent was already gone. ( passed "naturally" so to speak). The day before I went in to have it removed, I was in all KINDS of pain on the left side and kept feeling a tugging sensation on the left side and midline. I basically just stayed put that day with a heating pad on my stomach and unfortunately, had to keep running to the bathroom. The pains and tugging was obviously the stent working its way out and I had no idea.

    Anyhow, the next morning I was scheduled to be in Pittsburgh by 9. This was a two hour trip one way for me to get there. I wasn't allowed to eat anything and since my removal of the stent wasn't due until 10 am, I figured for sure I was just going to have an attack while I was there. I didn't. Once my surgeon xrayed me ( several times) to make sure the stent was really truly gone and told me I could get up and go home, I was relieved but I also wanted to make sure what HIS plans were if I continued to have pain.

    He gave me a blood slip for all the liver enzymes and pancreatic enzymes. He told me to carry it in my purse, and keep it on me at all times and if I attack, to try to get my blood work done as SOON as possible, but don't wait longer than 24 hours ( as the enzymes could have already gone back down after the pain leaves). I do live literally two roads away from a Quest Diagnostics so I figured that is working in my favor. He said IF I have another attack and IF my liver enzymes elevate and/or my pancreatic enzymes elevate, that he would suggest first doing another spinchterotomy. He said he cut my sphincter of oddi in such a way that he truly doubts I will ever have such a problem with it again. He said then, after he does that, if I continue to attack- he will be forced to open me up- first looking for any adhesions or non cancerous neuromas in the gallbladder fossa ( bed where the gallbladder used to be), and to look at my hepatic duct ( duct to the liver) "up close and personal", he said.

    The good news is, I am COMPLETELY pain free. I am going to assume that all that tugging and pain in my left side ( and subsequent running to the bathroom) was the stent coming out AND that all the pains I had afterwards was pancreatic aggrivation from having the stent in. I have not had one single attack since that painful day. I am waking up every morning feeling like a new person. It used to be wake up, sit up slowly, and then make a mad dash for ice packs and something to eat. I am no longer going through that- and after ten years of the pain... still getting used to it. As well, I have no pain in my right side, and the pressure has completely relieved itself.

    There is a "dip" in my midline that is very squishy now and quite noticeable. This is how my upper gastric area USED to look before I had my gallbladder removed. Once I had it removed, that area became hard as a rock and actually stuck out. My doctor insists that that was actually a build up of bile. I no longer have that.

    He also said after he cut my sphincter in the first place, he shot dye into my common bile duct several, several times and watched how it drained. He said before he made the cut NOTHING was draining, but after he made the cut- i drained beautifully.

    Considering that I NOW realize that the after pain from the ERCP was the aggrivation of the stent, and considering now that I am completely pain free AND was able to eat chocolate ( alot of it) as a test ( chocolate always, always produced an attack in me, no matter what), I would have to say that the SOD was my problem, and that my surgeon did in fact fix it.

    IF I have any other attacks down the road, I wouldn't hesitate to have another ERCP. My surgeon isn't into doing 5,6,7, 10 of these things. He will give me one more if I need it and move on to other possible problematic areas if that doesn't fix the problem. He did admit that the more the ERCP is done, the more changes of permanently injuring the pancreas and putting the patient in long term chronic pain that just cannot be helped. And, as he said "I only left myself a BIT of wiggle room with you. Some doctors only make a teeny tiny cut in the Sphincter. I basically cut yours completely open. I left under a mm to cut if you have any more problems. It never made any sense to me to partially cut the sphincter, so I pretty much sliced yours entirely open. The chances it is going to bother you again is pretty low". AND as always, he did again say I was a SOD TYPE 1. The type is very important. SOD type 1 has a very high cure rate. He also said that the sphincter itself has absolutely no nerve endings, and when we attack from SOD, it isn't the sphincter that is hurting us- its our actual liver and pancreas, because they can't drain properly... so to him, he takes a bit of an aggressive approach and just sort of completely cut my sphincter wide open.

    I'll take it. After ten years, I am pain free, losing weight ( we have no idea how this is happening, but it is) and I feel like a new person now. I would have it done again in a heartbeat- just not so sure about having another pancreatic stent put in.

    Good luck to each and every one of you.

     
    Old 04-08-2010, 12:28 PM   #41
    gigi11
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    Re: Pain after Gallbladder Surgery and ERCP

    JodieK,

    Glad your doing much better. That is wonderful your waking up feeling good. I just got my blood results back the good news is that my pre diabeties is gone and my blood sugar is normal. My Liver alt has come down from 75 to 65 and they concluded is was due to fatty liver because my triglerides are 212. My cholesterol is fine.

    I still have bouts with nausea and belching but they are not attacks it just comes one day and leaves another. Belching relieves it.

     
    Old 04-08-2010, 01:24 PM   #42
    nutsnky
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    Re: Pain after Gallbladder Surgery and ERCP

    I am happy for you, i will talk to my doctor and see what he say about the Enzymes? I know he said he don't know what else to do for me, so i don't know where to go from here. I just sent him a email about the Enzymens.
    I went back to the surgeon last Friday and he shot my belly button up with steroids, he said it may have been scar tissue; some people said it was to early for that, i don't know about that. The belly button is feeling a little better, i can bend it now, but i still want to be careful and not hurt it.
    Thanks once again for your reply.

     
    Old 04-11-2010, 04:19 AM   #43
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    Re: Pain after Gallbladder Surgery and ERCP

    i had gallbladder out monday have upper rt back pain no fever or vomiting i drove yesterday maybe should not have any idea for the pain or does it just take time to heal HELP

     
    Old 04-12-2010, 06:32 AM   #44
    gigi11
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    Re: Pain after Gallbladder Surgery and ERCP

    Quote:
    Originally Posted by Doll Baby View Post
    i had gallbladder out monday have upper rt back pain no fever or vomiting i drove yesterday maybe should not have any idea for the pain or does it just take time to heal HELP
    I took it easy for a whole week. Yes, you will take time to heal.

     
    Old 04-12-2010, 06:43 AM   #45
    nutsnky
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    Re: Pain after Gallbladder Surgery and ERCP

    Hey Doll Baby,
    I had both surgeries the end of October, back to back. I am still having a lot of problems being sick. My GP is sending me to another GI, becuase he does not have a glue at all.
    I was told to take Prilosec OTC for the nausea and it really helps. I forgot it a couples of days and wish someone would just shot me. Please give it a try. It will take several days to start working.
    I can't say if the ERCP will stop evreything for you and pray it will, but it did not for me.
    I also have problems with the belly button area. I told the surgeon he did something to it and he said it was scar tissue and shot me up with steroids there, "hurt like you know what", but it is not fixed either, so i don't know what to do about that. They may have to do more shots, yeah!
    Please try the Prilosc and let us know.
    Again i sure wish someone would figure this out for us.

    Gigi11 you might want to try the Prilosec too?

    Last edited by nutsnky; 04-12-2010 at 06:45 AM.

     
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