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  • Multiple areas of pain, Lyme misdiagnosis?

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    Old 03-13-2017, 07:42 PM   #1
    Isabella318
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    Question Multiple areas of pain, Lyme misdiagnosis?

    My daughter is 13 years old. She has been diagnosed with RND, and for those who are unaware it is also known as joint hypermobility syndrome. She is experiencing most of her pain in the lower extremities. (hips, knees, ankles, and back as well) and has gone to physical therapy and now attending chiropractor for headaches (mostly resolved).

    Around 2014, she had a mysterious bite that was never officially diagnosed because of the time frame...as Lyme disease. She was treated on 14 day course of antibiotics. We went to an infectious disease specialist a month or two later. He said it may not have been Lyme. However, he never ran any tests to confirm the possibility of something else.

    All of my daughters symptoms include:
    Joint pain in the back, hips, ankles, and knees
    Chest pains usually on the left side
    Ribcage pain
    Leg pain (severe)
    Dizziness
    Lightheaded
    Very easily tired (even walking from one room to the next)
    Pale skin, sick looking
    Sensitivity to light
    Raynauds syndrome
    Anxiety occasionally, not taking any meds for it tho

    She has been tested for lupus, and they said it's not a possibility. My uncle had marphans, although she was told she did not have it. She was told she did not have Elhers danlos because she doesn't have the skin issue.

    I am still very concerned that there is something else.
    We have been to many doctors, though.

    Please leave any advice you can.

     
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    chronic pain, hypermobility syndrome, misdiagnosis



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