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    Old 09-20-2022, 08:09 PM   #1
    Shanesw
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    Lightbulb Chronic pain. No cause.

    So this is my first time posting here.. or anywhere really about my issue.. itís been ongoing now for 3-4 years so, for me to have dealt with this for so long and only now posting, I think itís fair to say Iím now at a loss.


    So;

    Iím a 28 year old male, and Iím from the United Kingdom.

    4-5 years ago I began getting some relatively weird pain in my upper left chest wall, it started gradually and didnít actually stop. It is never in just one place, and thereís nothing that can bring it on? Or get rid of it. Pain medication takes the ďedgeĒ off it but never truly goes.

    I can put weight on my chest wall and 10 minutes or so later I can still feel where the pressure had been as pain.
    I wake up in the morning and itís either THERE where Iíve been laying on my ribs or not there and will come on after around 20 minutes.

    I do have a good Day.. but itís only a day and generally returns at night.

    I initially thought I was having a cardiac event, I have had over 20 trips to the hospital emergency room; itís caused me severe panic disorder in the process which Iíve been dealing with.

    I have had a number of ECGs and CT scans in the area to no avail or any incline as to what is causing this; Iíve been diagnosed with Costocondritis.. but Iíve been told Costo usually goes after 6 months to 2 years.. but Iím here nearly 5 years later with this crippling pain..

    Iíve never had any trauma to the area; never done anything to it. And before it started I was relatively fit and healthy.. I cannot for the life of me get a doctor to take me seriously, or to investigate my problems.

    I really just want to be normal but my body feels like itís just in pain and on fire all the time.

    If I press where my pain is.. it amplifies it, itís between my ribs but also goes under my ribs to my stomach area? Itís most commonly in one place but I get radiating pain across my ribs which come and go.

    If anyone is going through something like this or anyone medical who can shed some light.. Iím more than happy to discuss!

     
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    Old 09-21-2022, 08:14 AM   #2
    JohnR41
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    Re: Chronic pain. No cause.

    Based on what you have said, I would guess that you might be having artery spasms. That's a temporary tightening or constriction of muscles in the artery wall. And as it reduces blood flow, that would cause pain, usually chest pain. The test to diagnose that is called an angiogram.

    The doctor would inject a chemical designed to relax blood vessels. But if instead it causes a constriction, that's a sign you are likely having artery spasms.

    Angiograms are performed by an interventional radiologist.

    There are risks associated with this procedure so do some research and talk it over with your doctor.

     
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    Old 09-21-2022, 11:20 AM   #3
    Shanesw
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    Re: Chronic pain. No cause.

    Hi,

    Thankyou for your reply. I have had multiple ECG's though, and this has come back fine, would this not show up on an ECG? Or evelated blood pressure atleast?

    Equally, the pain itself can be 'produced' by pressing on the area itself. It seems like it's a muscular ache opposed to something more sinister as such. But i just can't put my finger on it.

    I will definately talk with my doctor about this; But im 28 years of age, i wouldn't think there is anything wrong with my arteries.

     
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    Old 09-22-2022, 06:22 AM   #4
    JohnR41
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    Re: Chronic pain. No cause.

    Perhaps you are right that it's not artery spasms. I just thought I would mention it for your consideration. If it can be ruled out then other things can be considered. The next thing that comes to mind is inflammation. But why would there be inflammation in just that one area?

    There is one other thing but the name of it escapes me at this time. It is an autoimmune disease. I think it's called Vasculitis. It can affect any part of the body or just one area. And it can come and go. So there may be no pain at all and then for no apparent reason it comes back. It's unpredictable. You might want to look into that too.

     
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    Old 09-22-2022, 07:00 AM   #5
    Machaon
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    Re: Chronic pain. No cause.

    Quote:
    Originally Posted by Shanesw View Post
    ... 4-5 years ago I began getting some relatively weird pain in my upper left chest wall, it started gradually and didnít actually stop. It is never in just one place, and thereís nothing that can bring it on? Or get rid of it. Pain medication takes the ďedgeĒ off it but never truly goes.
    4-5 years ago did you get an unusual insect bite.

    Or... did you travel to other countries?

    The reason I ask is, I wonder if you've gotten some type of infectious disease? Have you ever considered going to an infectious disease specialist? They might even be able to check for some metabolic abnormality in your genes that are causing your problems.
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    Old 09-22-2022, 07:04 AM   #6
    Shanesw
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    Re: Chronic pain. No cause.

    I have genuinely been thinking this! Something like Lymes.. But here in the UK it's quite rare..

    Trying to get a referral to something like that here is really hard. but to my reccolection, i cant remember any insect bites as such. I will attempt my best. I think i really need to press my doctors to refer me to something.. I did go to the doctors about 2 months ago for pain management, and the doctor then prescribed me Naproxen and Gabapentin. but i dont really fancy taking Gabapentin, just for my own reasons really. Naproxen does help, but not massively, and i dont fancy putting my body through ibuprofen, i would rather stick to my paracteomol and morphine..

    See, the doctors prescribe me morphine because they can see my pain level, but havent addressed the route cause.. She did say she was going to possibly refer me to rheumatology, So i think i will press for that next, and query the lymes!

     
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    Old 09-22-2022, 02:35 PM   #7
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    Re: Chronic pain. No cause.

    Quote:
    Originally Posted by JohnR41 View Post
    Perhaps you are right that it's not artery spasms. I just thought I would mention it for your consideration. If it can be ruled out then other things can be considered. The next thing that comes to mind is inflammation. But why would there be inflammation in just that one area?

    There is one other thing but the name of it escapes me at this time. It is an autoimmune disease. I think it's called Vasculitis. It can affect any part of the body or just one area. And it can come and go. So there may be no pain at all and then for no apparent reason it comes back. It's unpredictable. You might want to look into that too.
    You are describing classic costochondritis which is an inflammation of the cartilage between the ribs or between the ribs and sternum. It is not serious but it can be quite painful. The clue is that it hurts when you press on it so it is clearly chest wall pain not internal pain from an organ. Anti-inflammatory drugs like naproxen or ibuprofen over-the-counter can relieve the pain. Heat can also help. Occasionally persistent costochondritis can be a manifestation of an autoimmune disease such as lupus. I would ask your primary care doctor to check a sed rate and an ANA blood test for that. I donít think you need any more trips to the ER!

     
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    Old 09-22-2022, 03:41 PM   #8
    Shanesw
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    Re: Chronic pain. No cause.

    Hi!

    I have had a Sed rate done, and that is within normal range. ive had it for some time though, would it still be costo 4-5 years on? and is there any tricks/tips to helping this?

     
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    Old 09-23-2022, 07:24 AM   #9
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    Re: Chronic pain. No cause.

    Quote:
    Originally Posted by ladybud View Post
    You are describing classic costochondritis which is an inflammation of the cartilage between the ribs or between the ribs and sternum. It is not serious but it can be quite painful. The clue is that it hurts when you press on it so it is clearly chest wall pain not internal pain from an organ. Anti-inflammatory drugs like naproxen or ibuprofen over-the-counter can relieve the pain. Heat can also help. Occasionally persistent costochondritis can be a manifestation of an autoimmune disease such as lupus. I would ask your primary care doctor to check a sed rate and an ANA blood test for that. I donít think you need any more trips to the ER!
    There are something like 20 different forms of Vasculitis, so I sort of gave up on that. Then I found costochondritis but was surprised to see that you had already found it, as though you were reading my mind. However, based on my source, they say costochondritis can also result from an injury or severe caughing.

    The problem with finding something that fits is that there are too many conditions that must be met: The biggest hurdle is finding something that has been happening, on and off, for five years. Well, that's why I tend to favor the idea of it being, as you have said, "a manifestation of an autoimmune disease." The problem with that is: There are about 100 different autoimmune diseases.

     
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    Old 09-23-2022, 08:57 AM   #10
    Shanesw
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    Re: Chronic pain. No cause.

    The only other thing i can actually put it down to, was that i had a very 'slight' car accident in 2018 on St Patricks day, car slid into a lamppost, but i was generally unharmed and got out just fine, no pain atall, no bruising.

    I havent excessively coughed or anything like that, even when i had covid christmas just gone i didnt even cough with that, my pulminary system has always been really good.

    I have however constantly felt unwell in myself the past 4-5 years, i dont know wether that is mentally, or just part of it. But i feel unwell, and fragile. Which is kind of why im agreeing it could be some sort of autoimmune.

    March 2019, around when covid first started, i was admitted into hospital for a week with an unexplained illness, my white blood count was severely low, and my spleen was slightly enlarged, they put this down to monoculosis, i assume then they would have tested for autoimmune.. I even had to give a stool sample, so i doubt they missed anything..

    I've scheduled a doctors appointment, it's in 4 days, i'm going to ask them to do a Panel on my bloods to check it, alongside refer me to rheumatology to see if they can give me any insight, or refer me on to somewhere else.

    It's time now i get to the bottom of this, i'm 28 years of age and should not be in constant pain like i am. It's honestly crippling.

     
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    Old 09-23-2022, 01:51 PM   #11
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    Re: Chronic pain. No cause.

    Quote:
    Originally Posted by Shanesw View Post
    Hi!

    I have had a Sed rate done, and that is within normal range. ive had it for some time though, would it still be costo 4-5 years on? and is there any tricks/tips to helping this?
    Yes it can be that persistent especially if thereís an underlying autoimmune process. Even though there are lots of AI disorders, this would fall into the group that has primarily musculoskeletal symptoms, which narrows it down significantly. A rheumatologist would be appropriate since you describe feeling unwell and fragile for so long. A rheumatologist will do a thorough investigation but it sometimes takes a long time to get an appointment. You can always start with your PCP and go when your symptoms are at their worst if you experience variation in severity. An anti inflammatory med on a regular basis will help some. Take it for 2 weeks daily and see how you feel.

     
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    Old 09-24-2022, 07:08 AM   #12
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    Re: Chronic pain. No cause.

    In addition to anti-inflammatory medication, you might want to consider an anti-inflammatory diet. There are foods that either cause or fight inflammation. With a little research you should be able to find lists of those foods.

     
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