HealthBoards (
-   General Health (
-   -   Sorry long post- Trying to get to root of my problems (

RAINIE73 05-04-2007 10:54 PM

Sorry long post- Trying to get to root of my problems
Help, I feel like I am a hypochondriac! But I just know, I am sick & tired of feeling sick, tired & in pain! My whole life, I have always had health problems! I will be 34 next month. Not that I want sympathy from anyone, but I am going to list all problems I have or ever had, just to give an idea of where I am coming from & maybe someone can point me in a good direction. (I am listing them in date order from as early back as childhood):
-Age 7- Fell on patch of ice, landed on tail bone.
-Age 8- back problems started, my back went out for 1st time in life.
-Age 9 to 15- Thyroid problems & goiter. Goiter just disappeared one day!
-Age 11- Started 1st period but didn't have another for @ 2 years, then only had 1-3 per year up until mid 20's.
-Age 12- Lower back went out again. Just for the day though! From age 8-16 always had problems in gym class & could not doing any exercises that involved sitting on the ground or anything like sit ups. Also, I was always in pain having to sit in the chairs in school.
-Age 13- Hair started falling out. (had always had very thick hair) by age 15 I had lost over half my hair. Was pretty noticeable.
-Age 15- Mom took me to a dermatologist for my hair loss. He did blood work & said I had normal estrogen & thyroid levels, but very high testosterone levels. I also remember this was about the time I was told my goiter was gone. I had the iodine injection to view the goiter 3-4 times in my teens.
-Age 16- excessive facial hair (started growing a beard! Not good for a girl in her teens, had a hard enough time w/ being teased w/out adding being bald & bearded!)
-Age 16/17- Back starts aching on daily basis & alot of burning sensation in my hips.
-Age 18- my back went out at school one morning & was the worst thing I ever remember feeling! I missed over a month of my senior yr. Found back specialist. He sent me for a MRI. I had 3 herniated disks, scoliosis & the starting of degeneration in my spine.
-Age 18- 1st visit w/ gyno. Was not very helpful. Said because I very rarely had periods & was a little bit overweight that I would not be able to have children. (I did not go to find that out!) just thought something was not right because I was not having regular periods. His recommendation lose weight & that would solve all of my problems!
-Age 20- Found new gyno, he put my on birth control to regulate me. 2-3 years later, went for another visit, told him how my arms were always going to sleep & I was afraid it was due to the pill. He did not agree, but said it was ok to go off of them if I wanted. MY ARMS STOPPED FALLING ASLEEP.
-Age 21- Back went out again for about a week.
-Age 22- Periods stopped completely again for a few years.
-Age 23- Back went out again. this time for 3 months, lost job & took me another 3 months to find another job, The job I ended up landing- well I am still there & hopefully still counting! Another MRI was done & this time it showed 4 herniated disks w/ a good amount of degeneration in my spine. Was told at that time by my back specialist, that it would be a matter of time & I would end up on permanent disability for the rest of my life.
-Age 24/25- Diagnosed with high blood pressure. Put on blood pressure meds.
-Age 25- Hair started falling out again. It never grew back when I was in my teens. So I couldnít afford to lose anymore. Becoming even more insecure about my looks because of it.
-Age 25/26- Started having bad cramps all of the time, like really bad period cramps. Then all of the sudden I started a period that lasted months. Finally I said enough & went to my family dr. He sent me for an ultrasound, which showed I had 2 large ovarian cysts. He sent me to a gyno, which he put me on Provera to stop the bleeding & he monitored the cysts for about a year. He said that the Provera should shrink the cysts.
-Age 26- Ovarian Cysts increasing in size. Was also diagnosed with Polycystic ovarian syndrome (PCOS) which the ovarian cysts are not related to the PCOS. He then decided it was time to remove the cysts, because the cramps were increasing along with the cysts getting bigger. Went in for laparoscopic surgery, he was going to remove both cysts & 1 of my ovaries. During the surgery, he found that the cysts were not on my ovaries, but on my fallopian tubes. He stopped, took pictures & closed me up! He said this was serious & that I had to get this taken care of, or they would rupture & it would take all chance away if I ever wanted children. Said it would also be very painful. He sent me to a reproductive fertility specialist. This dr had me go for a Hysterosalpingogram, which showed that the cysts were not blocking my fallopian tubes & then did a minor surgery to drain the cysts. No problems since this.
-Age 27- Horrible depression sets in. Cried several times a day for about 4-5 months. Didnít want to live. Was actually physically hurting myself. Everyone urged me to get help. Went to a guidance clinic & to my family doctor. The therapist was great! I was apprehensive about going. My doctor did all sorts of blood work & diagnosed me with diabetes. I was also at an all time high for my weight. I changed my life style, went on diabetes meds, & lost over 60lbs. Depression went away after several months, but I told my doctor I still think I need an antidepressant. He was very surprised, because he said I was doing so well. I wanted Paxil. I told him I was not really depressed, but always had a lot of social anxiety. Had big fears of being in public. Paxil was a wonder drug! Also, found out that diabetes & PCOS run hand in hand. Diabetes meds basically regulated my periods. In the past 7 years, I have very rarely missed a period because I usually have my diabetes under control.
-Age 28- Left Leg goes numb! Family dr. said it was probably sciatica. Also started getting recurring tendonitis in my left knee, before and after my leg went numb. I basically walked with a really bad limp for about 6 months. Went to physical therapy for 3 months(max., that insurance would allow), leg still numb, but @ a month later it went away as quickly as it came. Dr put me on Celebrex for tendonitis.
-Age 29/30- Back starts bothering me on a daily basis again. Pretty much need some sort of pain pill on a regular basis. Anti-inflammatory medicines never help lower back. Just upper back. Sometime in this time frame I fell down the stairs again and upper back bothers me on a regular basis too. Went to a chiropractor for first time. She was amazed with all of my back problems. She took x-rays and looked over my MRI reports. Stated I had the spine of a 70 year old woman. Her x-rays also showed bone spurs along most of upper spine. Went to her for @ 6 months. After 6 months, I was still seeing her 3 times a week, with not much relief. Canít afford her anymore.
-Age 29/30-Went to family doctor for recurring headaches. I thought they were sinus. He said it is TMJ. I grind teeth & clench jaw too much.
-Age 31- Bought a wig! Couldnít handle how I looked anymore. Best thing I ever did for my appearance! Now own over 20 wigs!
-Age 32- Back still bothersome & left shoulder bothersome. Went for another MRI on lower back & shoulder. Still shows 4 herniated disks (3 major, 1 minor), still shows scoliosis & more degeneration. Disk spaces are getting more narrow. MRI of shoulder shows degenerative joint disease.
-Age 32/33- Not sure exactly when, but most joints start bothering me regular basis. Especially right elbow. Also keep getting recurring tendonitis in hands/thumb region. Start noticing pain in arms, neck & chest. Flares up even more when very stressed. Not sure when, but I noticed sometime (29-33) in this time frame that my memory is not as good, I have trouble concentrating, very clumsy, tired all the time, in a fog a lot (even some of my family noticed the fog or being spaced out), not being able to grab onto things & hand/arm weakness, feeling agitated easily by people & loud noise, possible IBS, muscle spasms/muscle twitching in hands and legs. Pain starting in fingers.
-Age 33- I start looking into things, because family doctor keeps blaming all of my pains, issues & problems on my diabetes. I have gut feeling it is not. I keep thinking it is possible thyroid issues. He does blood work, which shows all results normal on thyroid. Go to new doctor. Internal specialist. Am diagnosed with fibromyalgia. She switches some of my medications. Cholesterol levels way out of wack. Always have been, but all cholesterol meds give me leg pains. Trying Omacor (fish oil). Hands start going numb on regular basis. New doctor thinks may be ulnar nerve, so recommends me to an orthopedic doctor. He said I have muscle wasting or degeneration in right arm & both hands. Sends me for an EMG. Doctor for EMG performs tests & her findings were: no ulnar nerve damage, but possible irritation of nerve. Finds carpel tunnel in both hands & says that my muscle wasting is Myopathy. She thinks right away that the Myopathy is thyroid related.

Now I am lost! I think some of these issues coincide with other issues. Not sure what direction I should go in.

Current Meds: -Diazide (blood pressure), Metformin & Januvia (diabetes), OMACOR (fish oil for trigercerides), LISINOPRIL (but for kidney function), CYMBALTA (depression & pain), ORPHENADRINE (muscle relaxer), Darvocet (pain), Voltaren (anti-inflammatory/ pain)

Nyxie63 05-05-2007 03:49 AM

Re: Sorry long post- Trying to get to root of my problems
Hi Rainie!

Wow! You've got a lot going on. You look like a classic untreated hypothyroid case in a lot of ways. Many drs will only go by the TSH and if it's normal will say there's nothing wrong with you. I don't know if it's ignorance or laziness on their part, but that's not how to dx thyroid issues. You need to be tested for FT4, FT3, and thyroid antibodies (TPOAb, TgAb, & TRAb). Your TSH can be within the "normal" range and you can still have serious thyroid issues. Btw, the range for TSH is now is .3-3.0. Many drs and labs still use the old ones which are much higher.

You should also have your cortisol and ferritin tested. The cortisol is to check for adrenal stress, which is common in long-term untreated or undertreated thyroid disease. The ferritin is to see if you might be anemic and can also be an indicator of how well you'll handle thyroid meds. You might also consider having a urinary iodine measurement, along with a full metabolic/nutritional panel done.

The good news is, if it's your thyroid, once you're properly medicated, you should be able to seriously cut down or completely eliminate some of your other meds. If it's not your thyroid, then I suggest you get tested for Lyme or Celiac (there's a DNA test for that now). Both can cause many symptoms similar to thyroid, and then some. Just to let you know, if your antibodies do come back positive for thyroid antibodies, then you should probably be checked for Celiac anyway, as it's a common combination.

If your dr won't do these tests for you, then find another dr who will. Start reading and educate yourself. Once you're armed with information, you'll know what questions to ask your dr and have an idea of the treatments available.

Good luck, be strong, and please keep us posted. :)

curiousforever 05-05-2007 07:00 AM

Re: Sorry long post- Trying to get to root of my problems
Hun....I really don't know.

But I will say i saw on your post about the klutz remark you made - and you could have described me. Then I had to chuckle about the slipped on ice - and tailbone comment. I did the SAME thing and I've fractured my tail bone TWICE.

I'm still a klutz - I'm just a tad older.

Have you take a list like this to any doctor?

curiousforever 05-05-2007 07:00 AM

Re: Sorry long post- Trying to get to root of my problems
Hun....I really don't know.

But I will say i saw on your post about the klutz remark you made - and you could have described me. Then I had to chuckle about the slipped on ice - and tailbone comment. I did the SAME thing and I've fractured my tail bone TWICE.

I'm still a klutz - I'm just a tad older.

Have you take a list like this to any doctor?

curiousforever 05-05-2007 07:01 AM

Re: Sorry long post- Trying to get to root of my problems
I only hit submit twice cause my computer (I thought) was not moving.


midwest1 05-05-2007 07:13 AM

Re: Sorry long post- Trying to get to root of my problems
Listen to Nyxie and investigate the thyroid angle further.
Most doctors who say they ran a "complete thyroid panel" either don't run the [b]right[/b] tests, don't run [b]enough[/b] tests, or don't know how to interpret the results correctly.
I'd bet the farm your thyroid isn't as "normal" as they say. You have many of the classic symptoms, and low thyroid is known to run in diabetes/PCOS/fibromyalgia circles.

If you happen to have any recent thyroid test results to share with us over on the Thyroid Healthboard, someone should be able to tell you what the MDs might be missing.

RAINIE73 05-05-2007 09:02 AM

Re: Sorry long post- Trying to get to root of my problems
Oh thank you, all of you!

Funny thing is back in November, I was having another bout of tendonitis in my hand and this time it was really bad. I couldn't handle the pain. So I called my doctors office and he was out, but they were able to get me into see one of the physician assistants. She looked at my hand and said it was tendonitis. I told her how I was tired of getting tendonitis all of the time. So she started looking through my file and said that alot of my symptoms sounded like something more serious was going on and that there could be a reason why I keep getting tendonitis. She wasn't much of a help after that comment. No recommended tests or anything. But it did get me thinking. So that night I went home and typed in recurring tendonitis online. The first thing it brought up was Thyroid. So I really started thinking about everything over the years and to my early teens, when I had the goiter.

First off to mention there is a family history of thyroid also. My grandmother (moms mom) had Grave's disease. Unfortunately it was not diagnosed until later in life for her. She was always treated like she was crazy when she went to the doctors. From what my mother tells me, she was always sick throughout her life. (my dad's mom was also always sick/health issues throughout her life too) She finally found a doctor, whose main focus was diagnosing what other doctors could not. After seeing him, she was always on thyroid meds and had very little problems after that. Now my mom, she said she never had thyroid problems until she became pregnant with me. She lost weight during her pregnancy instead of gaining. I guess she had a slight weight issue within the year before getting pregnant and then started losing weight during the pregnancy. She also said, the day after she had me, she was down 35lbs, from her weight of before she was even pregnant. But she started having health issues and went to my grandmothers doctor and he diagnosed her with thyroid problems. He put her on very low dose medication and she said she felt better than she has ever felt. Unfortunately since this was years ago, he has since retired, and I believe also passed on. Since he retired, my mom went to other doctors and they always told her her thyroid tests were fine and she would always have to argue in order to get any kind of medication. She said that all the meds they would give her would never work the same way as the first meds she was on. She has since then given up. I also just found out recently that my father was just diagnosed with an underactive thyroid last year. So my grandmothers was over active and both of my parents have underactive.

Now with myself , like I mentioned in first post, around age 9, I was diagnosed with a goiter and underactive thyroid. My mother had taken me to Children's Hospital. Now all of my bloodwork though, was in the normal ranges. I am not sure what the test is, but I had iodine injected and they x-rayed my thyroid. I think I had this done about 3-4 times from age 9-15. They always prescribed me thyroid meds, but being a child, I would not take my medicine! Lol! Honestly I do remember how I felt when I took it. I always felt like my heart was racing and it would jump out of my chest. At age 15, they injected the iodine one last time and it showed that the goiter was gone. Since then over the years (as an adult when I would go to the doctors on my own) I always tell my doctors about the thyroid problems I did have. They run bloodwork and tell me its normal.

Now back in November last year, after some research, I went back to my family doctor and told him all of this and how he would need to run both the T3 and T4, along with the TSH. He always leaves my paperwork in the lab for me, because I have to come back when I am fasting. I noticed on the paperwork, he only marked TSH and T3. Well after that he took about 3-4 weeks to get back to me with my results. I left numerous messages wanting my results. I finally got disgusted and found a new doctor. She is an internal doctor. She called the lab and got those results. But she told me my thyroid was normal. Now the bad thing is, she is not going to run the thyroid tests again and wants to just monitor my sugar and cholestol. Just like my family doctor. My family doctor blames all of my issues and aching on the diabetes and the internal doctor diagnosed me with Fibromyaraglia. Well I went for an EMG yesterday for possible ulnar nerve damage, and she told me that the muslce wasting that I was having (It looks like there is a huge dent in my right forearm and she said that it is also in both hands). She asked me about my thyroid and I gave her a short and quick history. She said I need some very extensive bloodwork done. She said she could not order it as I was just there for the EMG and she primarily deals with back problems. She told me that if my internal doctor will not order these tests for me, to make an appointment with her for my back and she will get the bloodwork ordered for me. She also was going to fax over her report to both the orthopedic that sent me for the EMG and to my internal doctor.

So I guess I am going to wait this week out and see if she contacts me in regards to the results of the EMG or see if the orthopedic recommends me to someone else. I do have a follow up appointment my internal doctor at the end of this month, but do not feel like waiting that long to see what should be done next. I am definately going to print all of this up and send it to her. I am going to see that they do run all of the bloodwork you mentioned, Nyxie.

Thanks so much and thanks for listening.

Once I do get some bloodwork and results I will definately post in the thyroid board.

Later Rain:blob_fire

All times are GMT -7. The time now is 09:59 AM.