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    Old 09-11-2008, 11:54 AM   #1
    deb416
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    Can't stand the pain in my legs any more

    I have had severe leg pain for over 5 years. I think I have more than one problem going on at the same time. I do have RLS, but on top of that I just get the worst pain that keeps me awake most nights. My legs are the first thing I feel when I wake up and the last thing I feel when I finally go to sleep. I am taking Tylenol at night but that doesn't really help much. Last time I went to the doctor she sent me to hospital for a heart cath to see if I had any problems with circulation since it runs in my family. If I had to tell you exactly where it hurts I couldn't do that. If I had to tell you if it was a bone or muscle problem I couldn't do that either. That's what is so strange about it. I have been getting this icy cold feeling in the bones of my feet lately. Just feels like the bones are turning to ice. This is actually painful in itself. Add all this to the rls and you may be able to see why I can't sleep at night. Any ideas what this might be? Thanks

     
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    Old 09-11-2008, 12:47 PM   #2
    rudiraven
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    Re: Can't stand the pain in my legs any more

    Are you taking any medications? Sometimes meds can manifest in strange ways that the Drs. aren't aware of.

     
    Old 09-11-2008, 01:03 PM   #3
    Lindaru
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    Re: Can't stand the pain in my legs any more

    Have you been checked for PAD (peripheral artery disease)? If you have circulatory problems that run in the family, this might be a good place to start.

    Keep us advised as to how you are.

    Lindaru

     
    Old 09-11-2008, 01:28 PM   #4
    schao
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    Re: Can't stand the pain in my legs any more

    Hi Deb:

    I think we have the EXACT same problem. I've had the pain in my legs for 3 years now. It's absolutely worse at night. I've had every test under the sun done and we have no idea what is causing it. Currently I see a pain management doctor and take pain meds at night. Unfortunately they are pretty strong meds, which I don't like taking, but I won't get any sleep other wise.
    The pain is just like you said, maybe muscle, maybe bone, I really don't know. It's a deep ache from my hips, down to my feet...front and back of my legs. I haven't seen a neurologist in about 2 years, so my pain doc is sending me to see one again to be evaluated.

    If you find anything out that helps you...PLEASE let me know, I feel you pain

    schao

     
    Old 09-11-2008, 02:24 PM   #5
    deb416
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    Re: Can't stand the pain in my legs any more

    Mine is also in my hip area. I can't lay on either side because it makes the pain worse. I can only sleep on my stomach. Oh I forgot to add this. Just a few nights ago I also started to get this terrible burning sensation along with the pain. This is a new symptom.

    Last edited by deb416; 09-11-2008 at 04:39 PM.

     
    Old 09-11-2008, 04:35 PM   #6
    bethsheba
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    Re: Can't stand the pain in my legs any more

    I'm with rudiraven, here...the first thing I would ask is "What medications/over the counters did you start taking about 5 years ago?"

    What you are experiencing sounds like side effects....and don't rely on your doctor for answers there....check with a number of sources, your pharmacist would be a good place to start.

    As for the restless legs, do you for whatever reason have problems absorbing magnesium?? Too much calcium may interfere with mag absorption...and a mag deficiency (among many things can contribute to RLS.

    Except for the burining sensation, I experienced similar side effects when taking blood pressure medication. In the past year and a half I have read of many, many other medications causing these symptoms as well...

    And by the way, the little red flag that waved to me was your inability to tell if it was muscle, bone, or nerve pain...boy, that brought back memories.


    As for the hip pain that would wake me nights or prevent me from going to sleep...it was caused by a water pill.

    Good luck!

    Bethsheba

    Last edited by bethsheba; 09-12-2008 at 05:14 AM. Reason: added over the counters with meds

     
    Old 09-11-2008, 04:43 PM   #7
    deb416
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    Re: Can't stand the pain in my legs any more

    The only drug I have been on that long is synthroid. I am taking 1800 mgs of calcium a day because of osteopenia.

     
    Old 09-12-2008, 03:56 AM   #8
    bethsheba
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    Re: Can't stand the pain in my legs any more

    Deb,

    If you are taking as much as 1800 mg of calcium, you must take at LEAST 900 mg of magnesium, although you could take more because the body excretes daily what it can't use. Magnesium deficiencies often don't show up in routine lab tests (I have explained why on other boards) and unless your doctor specifically requests mag tests that are more accurate (and alas, more expensive) you may have a mag deficiency and no one would know about it. And for your info, that water pill that caused me to wake or kept me from sleeping nights created an electrolyte imbalance in my body...once I stopped the pill, got the right amounts/ratios of calcium, magnesium, and potassium, my leg pain/movements and my hip pain went away...and hasn't returned since ( 3-4? years).

    Even if you supplement adequately, don't assume you will experience results immediately. I have read that it can take several months to several years to "restock" your body's mag supply, and given the fact that you've been experiencing these symptoms for years your "cure" may not happen right away.

    You might also do some reading on what types of mag supplements to use...there are about 4 different types, and some are more readily absorbed by the body than other types. If you haven't been on the RLS or sleep disorders boards recently, you might want to go back and read about mag there.

    Take care!

    Bethsheba

    PS I have no experience with synthroid whatsover, but based on my experience with blood pressure medication I would highly recommend an extensive review of the side effects/dosages for synthroid...even though there are meds for different conditions, they often have similar side effects.

    Last edited by bethsheba; 09-12-2008 at 05:34 AM.

     
    Old 10-15-2008, 08:28 PM   #9
    peggy4161
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    Re: Can't stand the pain in my legs any more

    Quote:
    Originally Posted by deb416 View Post
    I have had severe leg pain for over 5 years. I think I have more than one problem going on at the same time. I do have RLS, but on top of that I just get the worst pain that keeps me awake most nights. My legs are the first thing I feel when I wake up and the last thing I feel when I finally go to sleep. I am taking Tylenol at night but that doesn't really help much. Last time I went to the doctor she sent me to hospital for a heart cath to see if I had any problems with circulation since it runs in my family. If I had to tell you exactly where it hurts I couldn't do that. If I had to tell you if it was a bone or muscle problem I couldn't do that either. That's what is so strange about it. I have been getting this icy cold feeling in the bones of my feet lately. Just feels like the bones are turning to ice. This is actually painful in itself. Add all this to the rls and you may be able to see why I can't sleep at night. Any ideas what this might be? Thanks

     
    Old 10-15-2008, 08:32 PM   #10
    peggy4161
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    Re: Can't stand the pain in my legs any more

    Quote:
    Originally Posted by schao View Post
    Hi Deb:

    I think we have the EXACT same problem. I've had the pain in my legs for 3 years now. It's absolutely worse at night. I've had every test under the sun done and we have no idea what is causing it. Currently I see a pain management doctor and take pain meds at night. Unfortunately they are pretty strong meds, which I don't like taking, but I won't get any sleep other wise.
    The pain is just like you said, maybe muscle, maybe bone, I really don't know. It's a deep ache from my hips, down to my feet...front and back of my legs. I haven't seen a neurologist in about 2 years, so my pain doc is sending me to see one again to be evaluated.

    If you find anything out that helps you...PLEASE let me know, I feel you pain
    i recently went to a natural herbal store for help with this it was getting to the point i cant work she gave me a womans complete vitamin concentrating on the magnesium levels and fish oil i started i feel 80% better after a week
    schao

     
    Old 10-18-2008, 06:57 PM   #11
    alikat709
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    Re: Can't stand the pain in my legs any more

    YOu are experiencing the effects of an undertreated thyroid issue, join the club, I also was a synthroid sufferer for many yrs. You need to switch to armour thyroid . Many doctors will tell you its old school , outdated, etc.. but you tell them that its your money and its what you want to try. Armour is a natural thyroid hormone, from a pigs thryoid , safely made at forest pharma. it has t4,t3,t2,t1, and calcitonin.Synthroid only is synthetic t4 and leaves us sick ,and makes us look like we are nuts every time we go to the docs they think we are hypochondriacs ,because it doesn't work ,Yes it might get your levels somewhere in the lab range, but not optimal, and it doesn't work for so many people. I switched to armour in june and I also take lugols solution iodine ,and other supporting nutrients.
    The armour had relieved my symptoms within a few days, I have had a few come back lately,(nothing like when on synthroid though) but I am still working up my dose, my doc is a little slow at upping my dose. The lugols iodine has taken away all my heart palps, and gives that extra boost of energy , the thyroid NEEDS iodine... The RDA is WAY to low, look up Drs. Abraham and Brownstein, for iodine/thyroid info and all the research.
    Iodine is being used in cancer treatment too, thyroid , prostate, breast, ovarian, also fibromyalgia, pcos ,heart issues....

     
    Old 10-23-2008, 04:39 PM   #12
    k2626
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    Re: Can't stand the pain in my legs any more

    Hi Sc, I came across some of your posts and I am in a smiliar boat as you. How are you feeling? Any news?

     
    Old 01-05-2009, 06:28 PM   #13
    lfarquhar
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    Re: Can't stand the pain in my legs any more

    I have had the same problem for a number of years. I have visited many doctors, the last, a holistic Dr. suggested I get a cream called TRAUMEEL...
    wow! I rub it on my legs and night and I can sleep as the pain goes away.

    SF











     
    Old 01-05-2009, 07:30 PM   #14
    k2626
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    Re: Can't stand the pain in my legs any more

    My pains are more like nerve pains or deep stabbing pains. ALso I get muscle twitching all over, and extreme joint cracking

     
    Old 01-06-2009, 06:12 PM   #15
    nscrbug
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    Re: Can't stand the pain in my legs any more

    Burning pain sounds like sciatica or some other type of nerve-related issue to me. If there is any lower back pain or discomfort involved...I would definitely point the finger at sciatica. There are nerve pain meds that address this type of pain - such as Lyrica or Neurontin.

     
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