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Seeking an opinion, at least.


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Old 12-31-2009, 07:14 PM   #1
tiggerdavenport
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Unhappy Seeking an opinion, at least.

I was not sure where else to post this. I am looking to see if anybody else has had the same problem or even an opinion.

This started about 3 months ago. I had extreme pain in my pelvic area. Sharp pain that was somewhat off and on, but even when it wasn't acting up, there was a dull pain. It continued to get worse, acting up the worst after intercourse.
I finally went to see a doctor. After seeing three different doctors and having a series of ultrasound tests done, I was finally told that I had one ovarian cyst, measuring about 3 centimeters (which in my studies is normal). I was told to go home, take some pain killers and hope it goes away.
So, that is what I did. I did end up going away but has come back off and on since. I am now developing new symptoms and am scared to go see the doctor again because I can't afford another $7000 bill to hear 'just hope it goes away.'
The new symptoms are tender nipples, pain in the lower back, occasional nausea and overall 'sick' feeling, very very low energy and headaches.
I am 22 years old. Have had one child (currently 4 years old) and am not pregnant.
This pain is causing a lot of difficulties in my life and the doctors aren't helping. Anyone care to give me an opinion?
Oh, the pain is located exactly where the doctor says my left ovary is.

 
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Old 01-01-2010, 10:21 AM   #2
estria
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Re: Seeking an opinion, at least.

Hi Tigger,

Did they mention what type of ovarian cyst you have ? Do you have the radiologist's report ? You may want to get a copy of this, especially if you paid for it (!).

If the radiologist states that what you have is most likely a functional cyst, meaning a normal ovarian follicle that comes and goes with your menstrual cycle, then it is highly unlikely to be the cause of the problem. Functional cysts are normally fluid filled, with no septations (division within the cyst), thin walled and less than 5 cms. This type of cyst will go away within 1-3 menstrual cycles so if you are uneasy about it, schedule another ultrasound in about 10-12 weeks to make sure that the cyst is gone. Try to go around the time of your period as this is when you are the least likely to see ovarian follicles (it is the start of your cycle).

As for the pain, here are some things for you to consider:

1. When do these symptoms occur ? If it around day 12-14 after the start of your period then this is most likely ovulation and what you are experiencing is mettleschmerz or "middle pains" related to your ovulation. I have very painful ovulation and this normally lasts anywhere from 1-3 days, off and on. I usually use a heating pad and ibuprofen at this time until it passes.

2. Are you on any hormonal birth control ? Birth control pills, the patch, Mirena IUD or anything like that ? The symptoms you describe sound an awful lot like they are hormone related and certain hormonal birth control methods can cause this in some women.

3. On the ultrasound, did they look at the other organs such as the appendix, kidneys, uterus ? in order to see if they were of a normal size ? did they see any fibroids in your uterus perhaps ? These normally grow with estrogen.

4. Have you been checked for any sexually transmitted diseases such as chlamydia or syphilis ? I am not saying that this is what it is but cross these causes off the list and be done with it.

Start by getting a copy of the radiology reports and read them to see what the specialist thinks it may be. You may find that the report does not concur with what your doctor told you as often doctors will "interpret" the report and then tell you what they think.

I hope you get well soon.

 
Old 01-01-2010, 10:41 AM   #3
friendsville
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Re: Seeking an opinion, at least.

I do not understand women's plumbing,and it seems that the opinion came from a professional.However you could throw yourself on the mercy of a non-profit that could help you.Your United Way,(First call for help"Dept") could assist you.My area has an "SOS" shelter which normally helps battered wives,but they are very empathetic.Our Catholic Charities has received accolades(and deservedly so)for the work they did after a deadly massacre hit our town.You are in a serious situation
and deserve special assistance. Grandfatherly love, Bill

 
Old 01-02-2010, 08:33 AM   #4
estria
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Re: Seeking an opinion, at least.

Hi Bill,

I am a professional but not in the medical field. I am definitely not a doctor. Just someone who has had to go through the same situation of having an ovarian cyst and suffering from pelvic pain and (in my case) irregular bleeding. Let me tell you that you should be grateful not to have to deal with women's plumbing because it causes a lot of problems in many of us. In my case, I had to have my cyst removed through surgery so I have done A LOT of reading about this issue. I was also on the pill for over twenty years, something I now regret, and will have to go through menopause in about 8 years or so. I have therefore done a lot of research on hormone therapy as well (the pill, HRT etc..). I am determined to inform myself as much as possible so that any medical decision I make in the future will be solely my own.

I think that your suggestion is excellent and perhaps there is a women's centre somewhere nearby that, Tigger, you can access. These places may not have doctors necessarily on hand but at the very least they will have resources at their disposal and they can give you advice and connections which will not bankrupt you but will help you get to the root of your problem. They are also experienced with providing assistance and support so if you have any place like this in your area, it would definitely be a good idea to avail yourself of their services.

All the best.

 
Old 01-03-2010, 09:42 AM   #5
friendsville
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Re: Seeking an opinion, at least.

I was absolutely thrilled(really)that I was recognized on here.I think that Tigger has been through the gauntlet,and has to have some extra help.
You have beaucoup brains,and I hope that Tigger and you have a decent 2010.Bill

 
Old 01-04-2010, 08:06 AM   #6
tiggerdavenport
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Re: Seeking an opinion, at least.

Thank you all for your help. I am sorry that I have not been on for a few days.
So, to answer a few questions first ... No, I did not get a copy of the Radiologist's report, that is definetly something that I will look into.
Yes, I do believe the name they mentioned was functional cyst. The doctor was positive with taking it easy I should be rid of the problem within 10 days. Which is about how long it took for the pain to subside, but has continued to return.
No, it does not occur around any specific time or any particular rythym. It comes and goes off and on, staying and leaving for different amounts of time. This last time it was gone for about 10 days, (which made me quite happy it was gone that long) and returned 2 days after my cycle had completed. The pain levels are always different too. This time, it came on really slow and the pain has not been that bad. The last time the pain came on suddenly and severely.
No, I am not on any forms of birth control, never have been. But, have noticed that the heating pad helps.
When I told the doctor what I was feeling he was quite concerned and ordered for the ultrasound to be done on the entire pelvic area and all main organs, just incase the pain was a side pain from a problem somewhere else. They told me that everything looked normal everywhere. That my kidneys and gallbladder were quite healthy and free from stones. That everything in the 'female system' including uterus looked great except that one cyst. The doctor reiterated several times that everything looked perfect besides that one cyst. It was the only thing out of place.
I have been checked for all the STDs. Nothing. They also ordered a blood test and a hormone test. The blood test ran multiple pallets and the only thing that showed up abnormal there was low blood sugar - I already knew that. The hormone test was the check for the abnormal levels of estrogen that you are talking about, and nope, completely normal.
I will do what I can about getting that report. Thank you for that suggestion.
Also, I should have mentioned this before. I thought I had, but guess I didn't ... the doctor did have a previous diagnosis. When just listing the symptoms to him he came up with "diverticulitis" (dont know how to spell that. This is how it was pronounced.) But, when I showed him where the pain was, he said 'no, that is definetly where the female organs are.' The other reason that he ruled out the diverticulitis was because my bowel movements had been normal and without pain. The pain part has not changed since but my bowel movements are no longer normal.
I have also had another odd symptom occuring. Tender breasts, constantly, not in any time period or pattern. Which, also sounds like hormones to me.

 
Old 01-04-2010, 08:12 AM   #7
tiggerdavenport
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Re: Seeking an opinion, at least.

Thank you Bill for your opinion. I really appreciate that. I have actually looked into a clinic that we have here that works on a sliding scale income and will be going in there. I have been told the visit will only cost me around $35. I can afford that. Unless, of course, they order more huge tests.
If this does not work out for me, I plan to continue searching for a program that will help and very much appreciate these suggestions.
Thank you so much for all of your hopes in helping me overcome this. I really hope you all have a wonderful year as well. As for me, I plan to be over this by years end. That is my resolution, lol.
Thanks all.

 
Old 01-04-2010, 02:45 PM   #8
estria
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Re: Seeking an opinion, at least.

Hmmm ...

If the cyst is a functional one then I really doubt that this is the culprit. Women get functional ovarian cysts as a normal part of their cycles so most likely that cyst will regress back into the ovary.

You said that your bowel movements are no longer normal. If this has changed then perhaps you should mention it to your physician and see if either a colonoscopy or at least a sigmoidoscopy may be in order to check out the possible diverticulitis diagnosis that he had earlier. The "female organs" and the colon are all in the same area so I doubt that the doctor is able to tell from where the problem is originating simply by having you point to where you are having pain.

As for the hormone testing, you may want to have another test done at a different time in your cycle. Hormones are extremely difficult to test because they change over a woman's cycle. Estrogen builds up from the beginning of your cycle right up until ovulation, when it is quite high. Then progesterone levels take more of a front seat until you get your period and the cycle begins again. Therefore, they cannot really check your hormones unless they know where you are in your menstrual cycle. I know that whenever I had my hormones checked, in my case progesterone, they indicated the level and my assumed menstrual phase in brackets (ex. luteal phase, meaning this level is normal for the luteal phase but too high for any other part of the cycle). Hopefully this is how they conducted your tests.

I think it is a good idea to get a copy of that report and hopefully you will not have any problems getting it. Perhaps it may give you some additional information that you can follow up on to get to the root of the problem. If you find that this doctor is not helping you, you may want to see about getting a second opinion rather than continuing to funnel money where you are getting no results.

I hope you get some solid answers very soon. Hang in there.

Estria

 
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