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New here,need help

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Old 10-10-2012, 05:25 PM   #1
Join Date: Oct 2012
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MaCher HB User
Unhappy New here,need help

hi everyone, my name is Cheryl I haven't been diagnosed with fibromyalgia,YET,but I have been checked for lupus,Lyme,arthritis,all were negative, only thing that is positive on labs is high sed rate,and slightly low bit D,,how generalized is that ! i do have hypothyroid,Hashimotos &,IBS,and migraines,which I have been treating for years.
For about the past 6-7 months my pain has been getting progressively worse, joint pains,,muscle aches,total complete body feels like it weighs a million lbs, like a sponge full of soaked water,I feel like I have been hit by a truck,or like I have the worst cr of the flu that won't go away.i barely sleep at night,but can work 4 hrs a day and pas out for hours !! It takes all I have to get out of bed and if I don't HAVE to I don't.
I have seen a family dr, gastro ,neuro,and now a rheumatologistI am only 42.
Any help advice? I see my rheum qgqin wed, he wants me to get some scan with some injection and I am petrified its just to look for joint inflammation, I which he felt and Sid I didn't have any.I feel so alone like ppl think I am faking this
AS IF I'd want to feel this bad!

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Old 10-11-2012, 12:19 AM   #2
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Re: New here,need help

It is very frustrating to feel so sick and not have answers. Your sed rate being elevated is a clue that there is inflammation. I would ask your Dr to check your muscle enzyme CK since some of your pain is muscular. Every bit of objective evidence is needed to come to a diagnosis. Sometimes autoimmune symptoms precede the lab evidence, and you have one AI disease already which makes another one likely. I would continue to pursue lupus and rheumatoid arthritis testing at intervals, particularly when you are have a bad episode of pain. I would aslo review the symptoms suggestive of each and see if anything else fits. If you get rashes, take a picture of it to show your Dr and ask for a biopsy with immune fluorescent studies. Be sure your urines are checked for protein and blood as well. Hope you get some answers soon.

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