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First Post - Numerous Health "Quirks"

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Old 11-27-2012, 11:06 AM   #1
Join Date: Nov 2012
Location: Las Vegas, NV USA
Posts: 1
DazzlinM HB User
Question First Post - Numerous Health "Quirks"

Hello, I am new here and I am very grateful to have found this board. Hoping someone here will be able to offer me some answers. And hopefully I am posting this in the right place!

I suspect I have several issues and they may not necessarily all be related, but rather than do three separate posts, I am going to go over all of it here.

About a year and a half ago, I went to the doctor complaining of sore joints and an all around unwell feeling. I suspected I had rheumatoid arthritis. I was 31 at the time and though that might be on the younger side for that disease, my mother and both of my aunts are all afflicted with it and were diagnosed around that age.

My doctor had me complete bloodwork. The test for the arthritis came back negative, but I did test positive for having an autoimmune disorder and my blood platelet levels were elevated (this was not surprising to me as it had shown up in a blood test a few years earlier, but this time they were in the 500 range, so she was somewhat concerned).

I was sent to a hematologist and rheumatologist, since apparently false negatives for the rheumatoid test are fairly common. At that point, the hematologist could not determine whether my platelets were elevated due to a reaction of something else that was wrong with me (it's can happen when you are sick or have some sort of inflammation) or if it is a primary condition - thrombocytosis. Basically, he decided to wait and see. The rheumatologist repeated the same bloodwork and also tested me for lupus. Negative for both.

Around this time, I also started feeling a lot more fatigued. I started napping on my lunch break every day and going to bed earlier, but I never felt rested. My platelets were still elevated, but relatively stable, so it was decided my doctor would monitor their levels and wait and see if we could determine which autoimmune disorder I have. This was around October 2011.

Around April of this year, I started having migraine-like headaches that would last for days. I also noticed if I ran up stairs or did something that would cause my heart rate to increase, I would have numbness and tingling in my hands and legs. I went to my GP and she was very concerned that my platelets had jumped up over 700. She sent me to a neurologist for the headaches, just in case, and also to the hematologist.

The neurologist advised me these were not true migraines, but likely caused by the platelets being elevated. My hematologist confirmed that I have essential thrombocytosis. He and my GP were both very concerned that I was going to have a stroke, but I was reluctant to let the hematologist put me on medication to reduce my platelets. From my research, most of them can ruin your fertility (I very much want to have a baby). He sent me to a high risk pregnancy specialist to see what she recommended. She decided again that they would watch me closely and advised me to take baby aspirin daily (it doesn't reduce my platelets, but it makes them less sticky). Over the next few months, my platelets went back down to the 500 range.

I've gotten better at managing my headaches with Zebutol, I also take the aspirin, 45 mg of Zoloft and a prescription prenatal daily. I was going along without incident until the end of August.

Towards the end of August, I got what I think was a cold. Started with a sore throat, moved into coughing/sneezing/conjestion. I believe it turned into a sinus infection and I eventually got better after being sick for about 3-4 weeks. I know this is not normal, but my immune system is very weak, so it takes me longer to recover.

However, a few weeks later in the beginning of October, I got sick again. I believe this time (based on sinus pain) this was a sinus infection and I was only sick for about a week and a half.

Then, about three weeks after that, in the beginning of November, I got sick AGAIN. When I was just as sick a week later, I caved and went to my GP. She suggested that this might actually be an issue with allergies that are causing problems with my sinuses. She put me on antibiotics for the infection, gave me a couple Veramyst nasal sprays and a presciption for Singulair.

It's been 2 weeks and the infection is gone. I feel somewhat better, but I am still coughing, hoarse and conjested. Additionally, I tend to get a lot of blood when I blow my nose and I suspect it's the Veramyst.

I don't know if anyone had the patience to read through all of this, but I wanted to give ALL the information I have. If any of you have and you have any suggestions for the cause of any of my conditions, I would love to hear them. I'm sick of being sick (and tired... so very tired).

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allergies, autoimmune diseases, sinuses, thrombocytosis

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