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  • Accutane (isotretinoin) cured something in my body

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    Old 10-16-2014, 05:59 PM   #1
    jamie745's Avatar
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    jamie745 HB User
    Accutane (isotretinoin) cured something in my body

    Im a 27 year old male from Sweden who have been sick for perhaps all my life, or since i was very young.

    I have been going to the doctors for almost 10 years and im still undiagnosed, pretty much all of my tests have been normal.
    I recently found this forum and decided to share my situation.

    I divide my symptoms into 3 sections:

    Appearance - I look ill, pale and sick. My skin colour changes very easily depending on what type of lighting there is. If i for example go outside an autumn/winter day my face becomes very grayish/white or in the subway im very yellow pale.
    My eyes are most often tens and staring looking with eyelids hanging and dark underneath.
    I have never seen anyone else that looks like this, drug addicts are the closest to comparison.

    Brain - It feels like my brain and thinking is blocked. I have hard time learning new things because information doesn't stay, in conversations i often forget what im going to say, concentration problems, nervousness, easily irritated

    Body/The Rest - I have a bad body odor and my hair is dry and lifeless.
    Fatigue, no matter how much i sleep i feel tired. Its not that i have to sleep but always tired and no energy.

    I don't however have any pain whatsoever and i can move perfectly.

    Now to the part of my story that is very remarkable and the reason why i post on this forum:

    In 2004 i took accutane against my accne. I took a regular cure for 7 months and then stopped.
    A few months after i stopped i noticed that i looked much MUCH better then i have ever done before, skin color, eyes, hair and even body odor, everything changed to normal for me.

    Then i noticed that i could read articles, watch movies and understand pretty much everything. When i talked to people it was like i saw the words in front of me so i knew what i was going to say all the time. My brain started to work normally!

    And i also felt healthy in my body for perhaps the first & only time in my life, the feeling was unreal, the fatigue and tiredness went away.

    I now realized that accutane cured something in my body i didn't realize i even had. Sure i had my suspicion that something could be wrong but i was so young and i didn't take my health seriously.

    This healthy condition lasted for about 6 months and then when i noticed that i again looked pale i realized that i was going to be sick again.
    For every week i felt worse & worse, the symptoms slowly came back again.

    I have no idea what accutane cured in my body but i know that i have a disease that is treatable.

    I have never seen/heard about anyone being cured or feeling better by taking accutane, its always about the side effects and how it destroyed their life afterwards. Its SO weird that i got cured from a medicine that is only known for its side effects.

    I have done so many tests during the years and i have checked lyme disease, thyroid & so on
    The only thing i have had low levels of since my first blood test is cortisol, but i have had an endocrine investigation and they didn't find anything.

    It feels really hopeless, i have never been able to live a normal life and nothing in my situation tells that i will find this disease..

    If anyone have any ideas what accutane cured in my body or recognize the symptoms i would really(!) appreciate your comments & thoughts!

    I suspect that it may be some sort of autoimmune disease because i got cured by an anti-inflammatory drug.
    Bad body odor, urine and other body fluids may tell something else, im not sure, i just cant puzzle this thing together..

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    Old 10-17-2014, 02:06 PM   #2
    Karamelly's Avatar
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    Re: Accutane (isotretinoin) cured something in my body

    Accutane is a derivative of Vitamin A. Its possible you have a vitamin A deficiency, and other vitamin deficiencies.
    Deficiencies can be caused by abnormal enzymes, or lack there of enough enzymes. Possible unknown inflammatory bowel diseases such as Chron's or Celiac Disease. Ask for a vitamin panel and if you havent been tested for Celiac, I would ask to be tested for that as well.

    Last edited by mod85; 10-17-2014 at 05:59 PM.

    Old 10-19-2014, 06:00 PM   #3
    jamie745's Avatar
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    jamie745 HB User
    Re: Accutane (isotretinoin) cured something in my body

    I dont have Chron's or Celiac, i have tried avoiding gluten and other things but it doesn't make a difference.
    I have tested Retinol (Vitamin A) and will get an answer tomorrow, i will try to test for other vitamins as well.
    But to be honest this doesn't feel like Vitamin deficiency, people have that often and they just take supplements and they get "better".
    I have been sick for perhaps all my life, this is something worse then that..

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