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Kendra01 09-09-2010 12:21 PM

Tuberous Sclerosis in infant
Is anyone here familiar with Tuberous Sclerosis. It is an inherited disease that causes tubers to develop on the skin and on organs such as the kidney, heart and brain. Frequently it causes seizures when the brain is effected.

My 6 month-old niece was diagnosed yesterday and we are still in shock. I have done tons of research and wanted to know if there was anyone with this condition on this board. I think it's rather rare.

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