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Old 11-11-2012, 08:42 PM   #1
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Join Date: Nov 2012
Location: Powder Springs
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Nhlsurvivor2008 HB User

I have NF and was wondering if anyone else on here does. If so how has it affected you? I have had 3 surgeries because of it, one being a pretty major surgery, but I have alot of other issues and not sure if it is because of the NF or some of my other medical problems.

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Old 07-17-2013, 08:58 AM   #2
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Join Date: Dec 2004
Location: Kansas
Posts: 106
spyrogirlkim HB User
Re: Neurofibromatosis

I do,Its left me disabled but because I have to live with my EX husband I can't get benifits so there fore I can;t see a doctor and get help .I can no longer walk well .I am so stressed out from SSA cause I NEED help but they wont give me nothing even though I been through 3 years of fighting to get papers saying I am disabled. Its like they want me to be so frustrated I do something stupid like kill self off.,They keep trying to get me to I wont comply

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