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  • Nail patella syndrome

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    Old 10-26-2013, 03:30 AM   #1
    Robb1986
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    Join Date: Oct 2013
    Location: Birmingham, England, UK
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    Nail patella syndrome

    I have nail patella syndrome which means I have no fingernails. I have been wearing fake nails for around 10 years now but it's getting to be a bit if a chore! It's costly and can sometimes make my fingers sore.
    My mother mentioned that when I was younger, doctors suggested nail implants but my parents decided against it. This is now something I am looking for, does anyone know anything about it?

     
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    Old 11-25-2013, 05:25 PM   #2
    ynarakit
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    Join Date: May 2006
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    Re: Nail patella syndrome

    I have Nail Patella Syndrome, and it is somewhat severe in me. No two people have the exact same symptoms and it is such a very misunderstood disorder that most doctors have never even heard of it nor do they have any experience dealing with it. Well, in any case, NPS is a musculoskeletal syndrome as you probably already know and it seems you suffer from the most common symptom of having poorly developed nails but to a larger scale as you state you don't have any. It is more common to have it in only the thumbs. I actually don't have this symtom other than in my small toe. My mother has no finger nail on her thumbs and my sister has a partially developed nail on hers. As for nail transplants go...I have heard that other people with NPS have saught out that treatment as children and the results were more sub-par than what they had expected, leaving the site still significantly malformed. I don't really have any other info other than that because I have never see it myself. While my nails are fully formed, they are extremely brittle and sensitive. They actually hurt when I break them and I could NEVER wear fake nails myself, as it irritates my fingers so I commend you on that!

    What I would recommend, is that you visit your primary and ask them any questions you have regarding it, as they would be better versed in it and would be able to lead you in the right direction if that is what you feel would be best for yourself. If you do not have a primary, you can always call around for advice or to find someone who may specialize in that field. Generally speaking, I would probably not recommend it myself unless it is causing serious issues or health risks. I have learned to come in terms with my imperfections caused by NPS, but if I could, I would also get procedures done to correct them!

    If it is purely cosmetic and you want to do it for yourself, go for it! If you can afford it and it helps you, it is ultimately your choice. I am not too sure if it would fall as cosmetic surgery or what since generally, it doesnt usually have adverse effects on your health?
    You can also research for NPS specialists. There are one in a few and in major cities...but if you find information and call them I am sure they could provide some kind of advice.

    I understand that NPS can be extremely frustrating, especially with the cosmetic factors. My arms and my knees are extremely deformed and it has caused me some huge problems growing up. Even my small pinky toe being without a nail has caused me some stress. (Kids are not merciless!) I am 25 and well, I am not exactly in the best of health due to my NPS.

    I wish you luck.

     
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