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Hair Loss / Alopecia Message Board

  • Persistent hair loss and red scalp

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    Old 05-16-2019, 06:02 PM   #1
    RedScalp
    (female)
     
    Join Date: May 2019
    Posts: 1
    RedScalp HB User
    Persistent hair loss and red scalp

    Iíve never posted on sites like this before, but saying I could use help is an understatement.

    Iím a 35 yo female with a history of very well controlled crohns previously on remicade. 15 months ago I started noticing significant hair loss and a very red, inflamed scalp. It wasnít always painful, but sometimes it would feel like it was sunburned. I saw a dermatologist who did a biopsy, said probably cutaneous lupus but also noted possible CTCL and I was started on plaquenil. I was on that for 4 months with no benefit. I saw another dermatologist who did other biopsies which showed nonscarring alopecia, not lupus or ctcl. I was eventually taken off of remicade thinking it was a side effect of that, but with no change in my symptoms. I was recently started on humira for possible psoriasis along with crohnís, but so far no relief. I have completely changed my diet and lifestyle to be anti inflammatory and autoimmune friendly, but nothing I do helps. My hair keeps falling out and my scalp turns red/sometimes tender without the use of topical steroids given to me by my dermatologist. I have talked to a rheumatologist, my PCP, 2 dermatologists and my GI who all have no idea what is going on. I am beyond frustrated and donít know where to turn. Please help! Any insight would be greatly appreciated.

     
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