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  • Is this GCA (giant cell Arterities) or PMR or Vaculities?

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    Old 07-17-2016, 08:20 AM   #1
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    Is this GCA (giant cell Arterities) or PMR or Vaculities?

    Hi everyone

    I have a question. By the way, I am 37 years old. ☺️Even though, all the inflammatory blood works test results came back normal but I still have pain in my left side. The whole side is on pain from the scalp to the toe. It is very sensitive to touching. The left upper side of my scalp gets hot, itchy and sensitive to touch. It makes me to grab and pull the hair in that area hoping to release the pain. The pain goes to my inner left ear, then to my left eye, left chick and left upper side of my teeth. Then it goes to my troth and back of my neck the left shoulder left under arm left Brest lest hand then left hip left leg and left foot. Sometimes It gets so painful that I have to message the area forever.

    This pain get worse when I am in stressful situations. The pain gets better on its own but never leaves. I can feel it most of the tine. Specially my scalp and my eye. It's like there is something in my eye that I want to pull it out. When I touch the my left side of my throat it hurts then I trace the line it goes to my left shoulder and back of my neck specially on the left side. I keep messaging my left shoulder. If I touch the back of neck even its skin is sensitive to touch I feel radiation burning and itching over there. It's been years now that I am dealing with this problem. I went to many dentists to check on my teeth they took many x-rays but nothing showed up. Then I went to the optometrist to check on my eyes nothing showed as well. Well i wear glasses and my eye number changed for little bit. Then I keep complaining from my left side to my dr and he keep blaming the anxiety. Beacuse I am 37 years old he his not taking the situation seriously. And he does not think that I might be suffering from GCA due to my age and normal blood tests results.

    The only abnormal result that I've got was my brain MRI which showed flare hyperintensities in both of my frontal lobs. The radiologist suggested many conditions and one of the was Vasculitis and inflammation of the veins but my dr dismiss it just beacuse of my age.

    He referred me to the neurologist which I went to and I explained everything to him as well he was confused about it as well. Beacuse he checked on my neurological signs and it just they were normal he dismissed further evaluations.

    Here I am with many what ifs questions. What if I am suffering from GCA and doctors can not diagnose it?

    What if I get blind in my left eye just beacuse of doctors neglects to identified the problem?

    What if I'll have a stroke beacuse of it?

    I am terrified. I keep asking them calling them but I get no help.

    Honestly, I am not a dr but if the MRI shows something it means there must be something why they don't send me for more tests and images I don't understand. They keep telling me that its expensive.

    I reaserched on google about the signs and symptoms of the GCA and I've saw that some symptoms but not all are matching mine.

    Like sensitive scalp. But I don't know when it says sensitive scalp does it mean the whole scalp or just one side of the scalp.

    Beacuse as I said mine is only on the left side on the top part of my scalp it's like a size of a quarter. Only that part gets warm, itchy, painful that I can not touch it. But I grab the hair over there and pull it to relieve the pain. Sometimes I feel electricity bring released from that part that goes to my face and neck and the rest of my left side.

    Then I read about eye pain which matches mine as well. But I don't get double vision or blurred. I just get eye pain, pressure, itching, and burning.

    It's been years now that I have this problem.

    Then all the scalp around it gets in pain even my left chick. Then I have to put pressure on my left upper side of my teeth and chick.

    In the google it talks about

    jaw claudication which is one of the systematic signs of the GCA.

    Again as I've said I have that pain but not in the whole jaw only on the left upper side. I even pulled out my left upper side wisdom tooth hopping to relieve the pain. But nothing changed.

    So here I am lost and confused.

    One side I have abnormal MRI result, the other side normal ESR and C- receptive. But some overall body symptoms that no one takes it seriously.

    Will you guys please tell me know about the pain, signs and symptoms that you've had. I mean be specifics with details like I was that I could see if mine matches as well.

    Did anyone of you do MRI scanning that showed some abnormalities on your frontal lobs like mine did?

    Did you all have the abnormal blood works results or there were some exceptions?

    Did you do biopsy or head head ultrasound to confirm the GCA?

    Did you all go to neurologist or your primary care dr could diagnose you.

    Does GCA pain only occurs on on side of the body or on both side?

    Did you have the pain for a short time or for years to be diagnosed?

    Will you please help me to understand this problem better.

    I'll truly appreciates you all for putting time and reading my long list of concerns.


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