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    Old 11-30-2003, 07:02 PM   #1
    Leroi
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    9 week headache

    Hello,

    I am new here and searching for help for my wife who has had a severe headache for 9 weeks now. She has had only a few days where the pain was not as severe and one day with little or no pain, it was immediatlely after an injection of an antibiotic called Claforan (or similar). She had been on antibiotics for 2 weeks prior (we suspected a sinus infection because she has had sinus headaches before) and 2 weeks after, the first two weeks she was on Augmentin (amoxicillin) then Cefaclor and finally Floxin for a week. She has been to an ear nose and throat specialist who ordered an MRI which came back normal. She is now taking treatments from a chiropractor who X-Rayed her neck and found two vertabrae out of place and says two more treatments are needed to get them back into line, she has had three treatments so far.

    Hydrocodone does nothing for the pain, tylenol, ibuprofen and aspirin as a "cocktail" seem to help some (an hour or two of sleep), but she is taking more than a standard dose. If she takes ibuprofen alone she takes three at a time, the "dose" of tylenol and aspirin has been two of each at a time and it settles her head down a while. Imitrex has no effect (the one time we have tried it), she kept it down (two 25 milligram pills) for six hours, but the nausea from the pain caused her not to be able to keep the contents of her stomach down. She cannot eat much at all.

    At first smells and tastes were terrible to her, very sensitive to cooking smells and food either tasted too salty or too sweet even when fixed very bland to the rest of the family. This seems better since the chiropractic treatments, but she still isn't eating much at all, really scares me.

    We are not very affluent (no insurance) and the money we have already spent has us broke.

    The pain is centered around her left eye and forehead and top of the head above the left eye, which at one time would not look to the left, but that seems better since the chiropractic treatments? Her neck feels tight when I massage it, also the muscles in her upper back are tight and don't loosen up much even when I massage them a long time.

    We really could use some advice, we pray constantly for help.

     
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    Old 11-30-2003, 08:30 PM   #2
    Mz Migraine
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    Re: 9 week headache

    Your wife needs to see a Neurologist that specializes in migraines/headaches.
    Make an appt, explain to them that you have no insurance, make arraingements to set up a payment plan & do not be ashamed to ask for free samples of medications. I do this all the time.

    Drug manufacturers also give away free meds. Check out Needymeds.com

    Since you have access to a comp, check out the websites of the drug manufacturers of all the medications that your wife is taking for "coupons".
    Most if not all are found on the above website.

     
    Old 12-02-2003, 12:24 PM   #3
    Leroi
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    Re: 9 week headache

    Quote:
    Originally Posted by Mz Migraine
    Your wife needs to see a Neurologist that specializes in migraines/headaches.
    Make an appt, explain to them that you have no insurance, make arraingements to set up a payment plan & do not be ashamed to ask for free samples of medications. I do this all the time.

    Drug manufacturers also give away free meds. Check out Needymeds.com

    Since you have access to a comp, check out the websites of the drug manufacturers of all the medications that your wife is taking for "coupons".
    Most if not all are found on the above website.
    Thankyou Mz Migraine,

    I will heed your advice, I appreciate it very much.

    The chiropractic treatments have not resulted in less pain, but we have stumbled upon something that seems to really be helping so far.

    A lady down the road is a retired nurse and she told us about a lady she once knew that had an affliction called Trigeminal Neuralgia, she said once you have seen this affliction you never forget it.

    I have done a small amount of online research about the disease and some of the symptoms match my wife's condition closely. One of the alternative treatments is a topical arthritis cream called Zostrix. After three applications, my wife is much improved! For the first time in weeks she is sitting up, reading the newspaper and she went to the mail-box to get the mail today!

    We are still going to seek more help, but this "miracle" has been such a blessing so far. She actually slept all night and has been able to eat and keep down some solid food.

    If anyone else tries Zostrix, follow the directions and do not apply heat or bandage the area where it is applied. It burns intensely, but that effect is supposed to go away after several days of application, but the medicinal value is not supposed to be reduced even when the burning goes away. The effects are supposedly cumulative.

    Do not get this stuff in your eyes or mucous membranes, it is very hot. The active ingredient is purified capsaicin, which is the substance that makes hot peppers hot. It works by depleting Substance P, which from my understanding is what nerves use to transmit pain to the brain.

    The usual treatments for TN are anticonvulsant drugs. We plan to get opinions from more doctors.

    I hope this can be of help to others who have had trouble finding relief.

     
    Old 12-10-2003, 07:39 PM   #4
    Jane13
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    Re: 9 week headache

    Quote:
    Originally Posted by Leroi
    Hello,

    I am new here and searching for help for my wife who has had a severe headache for 9 weeks now. She has had only a few days where the pain was not as severe and one day with little or no pain, it was immediatlely after an injection of an antibiotic called Claforan (or similar). She had been on antibiotics for 2 weeks prior (we suspected a sinus infection because she has had sinus headaches before) and 2 weeks after, the first two weeks she was on Augmentin (amoxicillin) then Cefaclor and finally Floxin for a week. She has been to an ear nose and throat specialist who ordered an MRI which came back normal. She is now taking treatments from a chiropractor who X-Rayed her neck and found two vertabrae out of place and says two more treatments are needed to get them back into line, she has had three treatments so far.

    Hydrocodone does nothing for the pain, tylenol, ibuprofen and aspirin as a "cocktail" seem to help some (an hour or two of sleep), but she is taking more than a standard dose. If she takes ibuprofen alone she takes three at a time, the "dose" of tylenol and aspirin has been two of each at a time and it settles her head down a while. Imitrex has no effect (the one time we have tried it), she kept it down (two 25 milligram pills) for six hours, but the nausea from the pain caused her not to be able to keep the contents of her stomach down. She cannot eat much at all.

    At first smells and tastes were terrible to her, very sensitive to cooking smells and food either tasted too salty or too sweet even when fixed very bland to the rest of the family. This seems better since the chiropractic treatments, but she still isn't eating much at all, really scares me.

    We are not very affluent (no insurance) and the money we have already spent has us broke.

    The pain is centered around her left eye and forehead and top of the head above the left eye, which at one time would not look to the left, but that seems better since the chiropractic treatments? Her neck feels tight when I massage it, also the muscles in her upper back are tight and don't loosen up much even when I massage them a long time.

    We really could use some advice, we pray constantly for help.
    Have her get her atlas (c-1) which is located at the tip of her spine checked for a slight displacement. It took me 4 yrs of constant headaches and pressure to find out this was the problem. Some chiros do the adjustment ask them when u call. Or, like me, find a p.t. who knows about c-1 displacement. This was my saving grace and I want to pass on the info to everyone who suffers daily!! In my prayers!!


    Jane

     
    Old 12-28-2003, 09:13 PM   #5
    Leroi
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    Re: 9 week headache

    Quote:
    Originally Posted by Jane13
    Have her get her atlas (c-1) which is located at the tip of her spine checked for a slight displacement. It took me 4 yrs of constant headaches and pressure to find out this was the problem. Some chiros do the adjustment ask them when u call. Or, like me, find a p.t. who knows about c-1 displacement. This was my saving grace and I want to pass on the info to everyone who suffers daily!! In my prayers!!


    Jane
    Thankyou Jane,

    I will have the atlas (c-1) checked out, we are still searching for help and her eye is worse again now. We have an appointment with a neurologist in Memphis (no one here has helped) on the fourteenth, praying he/she will know what to do. The headache still has not ceased and it is so severe. I have never witnessed anything like this and she is so kind and good. I feel sometimes like GOD has forsaken us.

     
    Old 12-29-2003, 08:31 AM   #6
    Ratatosk
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    Re: 9 week headache

    Several years ago I had an entire of summer with headaches that felt like a hangover. Horrible pounding headaches that made me dizzy. I've always had sinus problems -- went to several doctors, was given a number of samples of nose spray, was told to do nasal irrigation (snort salt water). Around the same time, a coworker who also has sinus problems went to HER doctor and turns out she had an inner ear infection. I don't know what caused my headaches. At the time I did all kinds of research online -- read about people with vertigo, inner ear disorders, chronic sinus problems, migraines...

    Eventually they went away, but was the worst experience of my life. The next summer I had my tonsils removed for an unrelated health issue and I rarely get sinus headaches anymore. I don't know WHAT I would do if I ever got those headaches again.

     
    Old 01-10-2004, 12:52 PM   #7
    Leroi
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    Re: 9 week headache

    Well we finally made it to a neurologist in Memphis (Semmes Murphey Clinic), weird experience, didn't understand much anything he said except that he does not believe this is a neuralgia, which I guess is a good thing if he's right; the prognoses are not good for Atypical Facial Pain, which is what we suspected. He examined the MRI films for quite a while and he said everything looks normal.

    Another doctor at Urgent Care Clinic got our appointment moved up at the neurologist (from the 14th to the 8th) after prescribing Tegretol, the neurologist told my wife to stop taking that and prescribed Indocin, an old arthritis/gout drug. We found that unusual, but we are doing as he said.

    He examined her left eye for a long time and said he did not see pressure on it, but he also did not make a diagnosis. He told us nothing of what it might be. He is either a genius or can't find his *** with both hands.

    So far she seems to be experiencing less intense pain, was even able to lay her head down on a pillow for several hours last night, the first time in several months. Lying down has been impossible for her for several months now.

    The neurologist said to double the dosage on Monday and to call him after a week of taking Indocin (Thursday). The drug has some very dangerous side effects (nausea, internal bleeding etc.), he told us to use Prilosec OTC in order to lessen the chance of nausea, so we are.

     
    Old 02-15-2004, 11:04 AM   #8
    Alayna
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    Re: 9 week headache

    Hi,
    My husband has had a constant headache now for 3 yrs.
    It has been hell.
    He had tried everything, and we are $20000 as a result. We have seen many specialists, and in the end analysis, they did not want to help him, because they certainly felt their own inadequacy when he was in their office.
    The first 9 months were the worst. By the end of every day, he had a full blown migraine, that was completly untreatable. He has been given every narcotic, some, like anything with codein in it, made it worse. He has taken all manner of herbla treatments, for extended periods of time, to no avail.
    He has had a CT, that showed no anomolies, and has even had lidocain injections directly in the temple.
    We had to start looking at the whole body, not just the head.
    He also suffered from gastric trouble, and had been on renididine (zantac) for quite some time. He had horrible bouts of what seemed like coli-systitis (gall bladder attacks) and he would, well, belch, prolifically.
    I was listening to this burping one day, and I noticed that the burps were getting bigger, not smaller, as you'd suspect, when someone is letting go off excess gas. I thought if a mental picture of bread dough rising, producing air bubbles. My next thought was, hey, what makes bread rise in the first place? Yeast. Then my mind was flying at a thousand miles an hour, excess yeast causes toxins in the body. Any female who has had a yeast infection knows how painful this can be. Well, what if the toxins from the yeast were causing not only the belching, but the headaches!
    I did a quick google, asking if yeast was related to migraine, and bang, a thousand hits or more.
    I flew to my van, and went to the health food store, asking what they had to kill yeast. I got Candida, grapefruit seed extract, caprilic acid oil, oregano capsules, and we imediatly cut out any and all sugar, flour, rice, pasta, dressings like salad dressing, ketchup, mustard, and also anything with vinegar, anything that has undergone a fermentation process or has been aged, in esssence, anything good! (lol, sorry, gotta laugh or we'd cry) We also added more salmon, and ate only low glycemic fruits and veggies.
    The effect, while not imediate, was felt, as the end of the day migraines stopped entirly, leaving only the dull pain that marked the beginning of each day, but at least it was getting no more intense. As an added side effect, he was able to get off the zantac entirely, and has had no more gastric episodes. If he eats very strictly, the headach is barely perceptable. If he has one bowl of high glycemic anything, he develops a migraine within the hour. One would think this would be enough of a deterent, but he really likes his mom's peach pie!
    We also had to look at other factors, other than dietary. That being allergies, and environmental toxins. Working downtown, on a street level, smogged out street has got to be a factor. And we are only now dicovering the effect of sitting in front of a computer screen all day. But aside from chucking it all and moving up to the wild north of Saskatchewan, I'm not sure what more to do.

    I hope this can be of some help. It might seem worse than the headache, to some people, but it was the only thing that even remotly helped my husband. If anyone has any more sugestions on how to help the constant dull pain, I'd love suggestions. Alana
    .QUOTE=Leroi]Hello,

    I am new here and searching for help for my wife who has had a severe headache for 9 weeks now. She has had only a few days where the pain was not as severe and one day with little or no pain, it was immediatlely after an injection of an antibiotic called Claforan (or similar). She had been on antibiotics for 2 weeks prior (we suspected a sinus infection because she has had sinus headaches before) and 2 weeks after, the first two weeks she was on Augmentin (amoxicillin) then Cefaclor and finally Floxin for a week. She has been to an ear nose and throat specialist who ordered an MRI which came back normal. She is now taking treatments from a chiropractor who X-Rayed her neck and found two vertabrae out of place and says two more treatments are needed to get them back into line, she has had three treatments so far.

    Hydrocodone does nothing for the pain, tylenol, ibuprofen and aspirin as a "cocktail" seem to help some (an hour or two of sleep), but she is taking more than a standard dose. If she takes ibuprofen alone she takes three at a time, the "dose" of tylenol and aspirin has been two of each at a time and it settles her head down a while. Imitrex has no effect (the one time we have tried it), she kept it down (two 25 milligram pills) for six hours, but the nausea from the pain caused her not to be able to keep the contents of her stomach down. She cannot eat much at all.

    At first smells and tastes were terrible to her, very sensitive to cooking smells and food either tasted too salty or too sweet even when fixed very bland to the rest of the family. This seems better since the chiropractic treatments, but she still isn't eating much at all, really scares me.

    We are not very affluent (no insurance) and the money we have already spent has us broke.

    The pain is centered around her left eye and forehead and top of the head above the left eye, which at one time would not look to the left, but that seems better since the chiropractic treatments? Her neck feels tight when I massage it, also the muscles in her upper back are tight and don't loosen up much even when I massage them a long time.

    We really could use some advice, we pray constantly for help.[/QUOTE]

     
    Old 02-17-2004, 12:12 AM   #9
    tmoore1974
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    Re: 9 week headache

    I am a migraine sufferer and have been for the past 18 years. I have a migraine at least once every two to three months and fortunately they don't last but a few hours. I do however have a friend that I went to nursing school with who has had severe migraines for the past five years. While working she had a pallet fall on her head. Her migraines last anywhere from 2-10 days. She makes constant stops into the ER for Demerol injections. Demerol only takes the edge off of the migraine, it never gets rid of it completely. She tried all the Rx migraine meds with no relief. She's had CT scans, MRIs- you name it. They all come back with the same statement, "we can't find anything physically wrong with you that is causing your headaches".
    Finally her doctor put her on a Beta Blocker and so far she's had really good luck with that. That may be a option for your wife. Feel free to ask her doctor for free samples of medication and if he/she has none then write to the manufacturers about receiving free medications. If you do not have insurance and limited means the manufacturer will send you a form to have your doctor fill out stating the medications are necessary for her well being and that you are unable to pay for those prescriptions.
    I suggest that she at least speak to a neurologist and see what they think. They probably will want a head CT which is really expensive I know but there may be something that everyone has missed that's causing these headaches.
    I wish you and your wife the best of luck, I hope I was somewhat helpful



    Quote:
    Originally Posted by Leroi
    Hello,

    I am new here and searching for help for my wife who has had a severe headache for 9 weeks now. She has had only a few days where the pain was not as severe and one day with little or no pain, it was immediatlely after an injection of an antibiotic called Claforan (or similar). She had been on antibiotics for 2 weeks prior (we suspected a sinus infection because she has had sinus headaches before) and 2 weeks after, the first two weeks she was on Augmentin (amoxicillin) then Cefaclor and finally Floxin for a week. She has been to an ear nose and throat specialist who ordered an MRI which came back normal. She is now taking treatments from a chiropractor who X-Rayed her neck and found two vertabrae out of place and says two more treatments are needed to get them back into line, she has had three treatments so far.

    Hydrocodone does nothing for the pain, tylenol, ibuprofen and aspirin as a "cocktail" seem to help some (an hour or two of sleep), but she is taking more than a standard dose. If she takes ibuprofen alone she takes three at a time, the "dose" of tylenol and aspirin has been two of each at a time and it settles her head down a while. Imitrex has no effect (the one time we have tried it), she kept it down (two 25 milligram pills) for six hours, but the nausea from the pain caused her not to be able to keep the contents of her stomach down. She cannot eat much at all.

    At first smells and tastes were terrible to her, very sensitive to cooking smells and food either tasted too salty or too sweet even when fixed very bland to the rest of the family. This seems better since the chiropractic treatments, but she still isn't eating much at all, really scares me.

    We are not very affluent (no insurance) and the money we have already spent has us broke.

    The pain is centered around her left eye and forehead and top of the head above the left eye, which at one time would not look to the left, but that seems better since the chiropractic treatments? Her neck feels tight when I massage it, also the muscles in her upper back are tight and don't loosen up much even when I massage them a long time.

    We really could use some advice, we pray constantly for help.

     
    Old 02-25-2004, 09:58 AM   #10
    mek918
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    Re: 9 week headache

    This sounds so much like my headache, which I also thought originally was sinus-related. It began in July and has not gone away. Lots of pressure, particularly centered around my right eye, although it is on both sides of face. Occasional twitching.

    My neurologist suggests botox injections, which I have not tried yet. He would put me on depakote but I am trying to get pregnant so that is not an option right now

    I just posted about xanax. I don't know why, but it definitely helps me - lessens the pain at least 60%. It might be something to consider.

     
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