It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Headaches & Migraines Message Board

  • Head, Neck and Shoulder Pain (Left-sided)

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 02-26-2009, 07:23 PM   #1
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Angry Head, Neck and Shoulder Pain (Left-sided)

    I am a 31 year old white female from the northeastern US. I do not drink or smoke. I work in an office-type setting and I am in too much pain to exercise regularly.

    Since I fell on the ice four times in February of 2005, I developed back pain. Though this went away through physical therapy, I developed left-sided headaches in or around April of 2005. In the November 2005, it spread to my neck and shoulder. This prompted me to seek physical therapy, which consisted of various exercises, and only made the problem worse.

    On 26 Aug 2008, I had a total parotidectomy due to a 5 cm deep lobe tumor. After the surgery pain subsided, I was free from the head/neck/shoulder pain for about a month.

    Since then, the pain has gotten worse, however two additional locations have started to hurt. It is now on the side of my head (between my eye and ear) and deep in my neck. It has accelerated to a boiling point, much like it did right before I was referred to the ENT who performed my surgery. I feel like my body is trying to tell me something. I have the pain all day; morning, noon and night. It makes me nauseous, and today I had virtually no appetite.

    I have tried several OTC painkillers and none of them worked very well. I tried hot and cold compresses; they only aggravated the pain! I missed some work this week due to the pain, and last night, I only got one or two hours of sleep because of it.

    I've had other scary symptoms, like a short bout of amnesia (this week), a near fainting spell (a month ago), tons of confusion, and other annoying symptoms, like difficulty with word-finding, concentration, and speaking. It wakes me up sometimes, too.

    I saw my PCP on Monday and she referred me to a Neurologist. My appt. was supposed to be next week, but my problems were so severe that I called the office to see if I could get in sooner. I had an appt. today. This is what he had to say:

    He wrongly assumed that I was diabetic because I was obese and take Metformin. (I take it for Polycystic Ovary Syndrome). He advised me that the headaches were caused by a number of factors; mainly the blood sugar issues (which I do not have; all my blood sugar tests have come up normal), my psychiatric issues (I have Aspberger's Syndrome), my weight and all the meds I take (Abilify, Topamax, Lexapro, Metformin and Simvastatin). What really surprised me is that he had his mind made up before he even examined me!

    The examination consisted of mostly reflex tests of the arms and legs, and two or three short neurological examinations that one of my previous PCPs had performed on me. He never palpated my head or neck.

    He also didn't order any tests, saying that the tests would not add anything, because he found nothing in the examinations he performed.

    He contradicted himself, too. He suggested that my psychiatrist prescribe a sleeping pill, and kept suggesting Seroquel. I've heard nothing but bad things about that med, especially in regard to weight gain. I have two very close friends that gained a lot of weight on that medicine, and have read accounts of people gaining 60-80 lbs on that med; yet he wanted me to take that medicine!

    When I mentioned the weight gain issue to him, he said "we'll give you the lowest dose", yet when I mentioned another sleeping pill (one I had success with in the past), and how I wanted to go on the lowest dose, because it used to make me really sleepy, he said "it won't work on the lowest dose" and "doctors are afraid to put people on higher doses" and bla bla bla bla bla.....It was one contradiction bouncing off another...

    He also prescribed a painkiller, which I looked up online, and found out has been known work at first, and then cause "rebound headaches"...very professional...

    I feel disappointed. Should I get a second opinion? I feel like I was given the "run-around", but then again, I'm no doctor and I didn't know what to expect.


    Last edited by Alesis; 02-26-2009 at 07:25 PM.

     
    Sponsors Lightbulb
       
    Old 02-27-2009, 02:07 PM   #2
    janewhite1
    Senior Veteran
    (female)
     
    Join Date: Oct 2007
    Location: NJ, USA
    Posts: 9,368
    janewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    You have been given the run-around. Get another opinion. If possible, bring an ally.

    Do you have muscle knots in your shoulder? Are the muscles tight, hard, sore or lumpy? If so, after you get a proper medical examination to rule out serious injury, consider myofacial release or another form of massage therapy.

     
    Old 03-01-2009, 10:26 AM   #3
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    Thank you for your help. I am seeing my PCP tomorrow in the morning to ask for a referral to another specialist.

    I came across the chronic myofascial pain thing online, and it sounds a lot like what I have, except for the knots. I can't feel any, and I figured my doctor would have found them by now. However, I will mention it to her.

    Thanks again!

    A.

     
    Old 03-01-2009, 11:00 AM   #4
    janewhite1
    Senior Veteran
    (female)
     
    Join Date: Oct 2007
    Location: NJ, USA
    Posts: 9,368
    janewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB Userjanewhite1 HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    I saw a lot of doctors, none of them ever even mentioned my spasmed muscles as a cause of my pain.

    Sometimes the knots are easily palpable. Sometimes the entire muscle is just hard like a bone, and sometimes, when the knots are deep inside a large muscle, they are very difficult to find unless you know exactly where to look. The ones in my quadriceps and my gluteus muscles (thigh and rear end) are like that, just buried inside big muscles and covered in a layer of fat.

    In my upper body, the worst spot tends to be right between the shoulder blade and the spine.

    Exercise is the only permanent cure for muscle problems, but if you do the wrong exercises, or if you start exercising aggressively before you release the muscle knots and trigger points, it'll probably just get worse, at least, that's what I've found.

    Good luck, and let me know what happens.

     
    Old 03-02-2009, 04:14 PM   #5
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    Thank you again, Jane for your insight.

    I saw my PCP today and told her what happened. I then asked her about seeing a different neuro, as well as the possibility of myofascial pain.

    She advised me that my symptoms "don't fit the pattern of myofascial pain". She asked if I was still having muscle twitches/spasms in my left arm, and I told her "yes." She also pressed down on the lymph nodes of my neck and had me bite down, and open up.

    She said something about it not being "cluster headaches" because I have had headaches for four years, and they have gotten worse in the past two weeks. She also said that it was not a "temporal" somethingorother and I do not recall why...I'm not 100% sure, but I think she also ruled these both out because the pain is one-sided.

    After examining me, she decided to refer me to another neuro. The ladies in the office faxed my chart over and now it's a waiting game. I was told that I would not receive an appt. this week, as it takes that long to get set up in their system.

    At least I am heading in the right direction. I told a few people about this doctor and they said good things about him.

    Last edited by Alesis; 03-02-2009 at 04:17 PM.

     
    Old 03-03-2009, 03:52 AM   #6
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    Add another symptom to my list: sleep paralysis. I kept waking up scared and paralyzed last night. Also: I would start to fall asleep, and as soon as I would, I would feel scared. The slightest noise would scare the daylights out of me and wake me if I started to sleep, too.

    I eventually fell asleep, but it took forever!

    Weird!

    I *never* had SP before, save for one or two scant occasions.

     
    Old 03-04-2009, 03:22 PM   #7
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    Another update:

    I got some sleep last night! Yay!

    Today I tried different things to see if the pain would come/go away.

    I noticed that: Drinking cold drinks brought on the pain a little bit. Listening to music through headphones brought on the pain quite a lot. The latter could have been a coincidence, as it was late in the workday when I listened to it. I put down the music as soon as the pain kicked in. I still have the pain now, although it's wearing off a bit.

    My point: I think the pain may be sensitive to sound.

     
    Old 03-06-2009, 05:24 PM   #8
    Alesis
    Senior Member
    (female)
     
    Alesis's Avatar
     
    Join Date: Nov 2006
    Posts: 134
    Alesis HB User
    Re: Head, Neck and Shoulder Pain (Left-sided)

    Update:

    I still have not gotten the referral in the mail yet.

    Today, I had to go home early from work due to the pain and fatigue. It was so bad I could not concentrate. Not only do I feel the head/neck/shoulder pains, but I feel intense pressure in my head as well.

    I must also add that I feel these sensations that I can only describe as a "watery" feeling, as if fluid is flowing through certain parts of my head. It usually occurs in the area of the pain, and usually right before / after pain occurs.

    Anyone else experience this? Anyone ever hear of such a thing???

    I also have been feeling pain/pressure in and behind my eyes (mostly my left one). It also itches and burns. I think I have had this for awhile, but only started noticing it recently.

    For this, I went to the eye doctor.

    I explained to her about the pain I have been having. She ruled out glaucoma and uveitis. She said that my visual field was normal and so was the pressure in my eyes. In fact, my eyeglass prescription did not change since my last visit, almost two years ago.

    She concluded that my eyes were not the source of the problem.

    No clues still as to what is wrong with me, but at least some things were ruled out. I guess I will keep on keepin' on.

     
    Closed Thread




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 02:36 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!