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Daily, severe headaches

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Old 01-21-2010, 01:50 PM   #1
Join Date: Sep 2009
Posts: 8
ravyng HB User
Daily, severe headaches

I'm new here and I'm frustrated and need advice or just someone to listen.

I've had migraines in the past ever since 1997 when I had a head injury that caused a concussion. After I healed from the concussion, I only had migraines once or twice a year with the usual sensitivity to light and sound, blurred vision, and dizziness.

I've had auras twice, not very often. Well, last August, a migraine attack happened, but it never stopped. Every day since August 26th, I have had moderate to severe headaches with dizziness, a couple of episodes of fainting, memory loss, blurred vision, and concentration problems. I have been hospitalized once. I have tried so many drugs for pain and none have worked. I have lost my job and mostly stay home and rarely have a day without pain. I went to several doctors. The current one is at Mayo Clinic. After an extensive battery of tests, my doctor's prognosis yesterday was he does not know how to explain why I have headaches everyday and why nothing is working. He chose to keep having me to take 4 25 mg of Topamax and 25 mg of Elavil everyday. I' m tired of medications that make me sleepy and make my memory problems worse. I don't know what to do. I feel like I am not my old self. I hate not being able to remember not being able to think clearly. I am tired of always being in pain. I already had chronic back and neck pain thanks to degenerative disc disease caused by a car accident. I also have painful muscle spasms in my back, feet, hip/thigh joint, and hands. My hands and feet curl up all the time.

The only new thing that I found out from the Mayo CLinic was that I am high risk for developing autoimmune diseases. Should I try again and find another doctor that can correctly diagnose me and help me? If so, where do I start? Could this be firbromyalgia? Thanks for listening.

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Old 01-21-2010, 03:15 PM   #2
Join Date: Jan 2010
Location: the West Midlands
Posts: 3
dippidingo HB User
Re: Daily, severe headaches

Hi there newbie, you have my full empathy, sweetheart. I have had them for 12 years coming up this May. 24/7. The slightest move of the eyes hurts, doesn't it. It gets you down. I take Tramadol. Prescribed by the doc. I think mine is related to Cervical Spondylosis. It was checked out at the hospital, but to be honest, they can't do a lot for me. I have a flexible painful lump on the front of my head about the size of a penny. At the back of the head its so sore that its puffy to touch. Talk to me whenever you want, hun. Take care, hang in there. :-)

Old 01-22-2010, 09:31 PM   #3
Join Date: Sep 2009
Posts: 8
ravyng HB User
Re: Daily, severe headaches

Thank you for responding. The back of my head is really sore and tender to the touch. My scalp is tender and sore to the touch. I have stopped going to the hospital when my pain level reaches a 9/10 because of my experiences. I had an IV of Imitrex given to me on one occasion. It stopped the pain for a while, but the headaches returned much worse with a stabbing pain. The second ER visit was when I received a shot of the highest form of morphine they had and it caused me to black out for a few minutes. Then, I was hospitalized for a week where I received an IV of Phernegan, DH3, Torpadol, and Demetrol. The IV infiltrated my vein and pierced my tissue, so I had burns and swelling in my right hand and arm. After that happened, I vowed never to return to another ER room for my headaches. I'm glad to find someone who understands. Thank you.

Old 02-10-2010, 10:15 PM   #4
Join Date: Jan 2008
Location: Kentucky
Posts: 9
Mandy321 HB User
Re: Daily, severe headaches


I'm so sorry for your suffering.....I myself am going on 15 mos of chronic/daily migraines. They just never go away. My life sucks and I am pretty much a hermit anymore.....

I just wanted to throw out a suggestion to you as I've found that alot of females have the same issue....could they be related to hormone fluctuations? I'm 42 and I've suffered them the day of/day before my period for ever. Over the last two yrs they have become more frequent and lasted longer.... then last winter they hit and never let up....but I also started experiencing Peri symptoms...

Sorry I'm not trying to asume anything here....just wanted to throw that out there!

Old 02-11-2010, 10:31 PM   #5
Senior Veteran
Join Date: Jan 2002
Posts: 2,365
AnnD HB UserAnnD HB User
Re: Daily, severe headaches

I am so sorry for your daughter is also in your shoes ...she found a specialist in Germany who is known world wide for his skills on disorders of the brain. My daughter who is a young mother had no hope left and all we had left was to pray long and hard for her and after two failed brain surgeries from a different doctor that messed her even more... she found this last doctor quite by accident by someone mentioning his name to her husband. He takes complicated cases and saved her life just this week so all I can say is to keep looking and searching the internet and asking other doctors who they would recommend. I don't know if I can say the name of the German clinic on this forum but he takes complicated cases. ...perhaps I can send you a private message if you like? Otherwise, I understand your pain and frustration but please don't give up trying to find a doctor.

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