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    Old 11-16-2016, 05:38 AM   #1
    Barrysouth
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    Stapdectomy 2016 updates

    Hi Guys

    I would like to know how you guys are doing after your Stapdectomy surgery, I am looking to get back people whom had done there surgery way back in the 90's. I have heard that Stapdectomy surgery can last from 3 months, 3 years, 10 years, 15 years and 20 years if you lucky. my aim is to find out why does it fail over the years and what exactly happens in the ear that goes wrong? are there people whom have had the surgery with 30years still going strong?

    I don't see the point of the surgery if it is successful it should last you a lifetime without any problems, but it feels to me that it is just a temporary solution, also is anything being researched to expand the lifetime of the surgery.

    It is 2016 it would be nice to come together and share experiences with people that have had this surgery way back in the past.

     
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    Old 12-10-2016, 11:10 AM   #2
    BigJohnloch
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    Re: Stapdectomy 2016 updates

    Hello My name is John I had my first Stapedectomy done in 1968 The second perhaps a year later This is now almost 50 years ago? I did very well with them but in later years I had to have hearing aids. A new problem has arisen this year (what can be "new" at age 86?:O) I love music but it is now scrambled when I play scales or listen to an orchestra. I am now searching the web looking for help and hope to perhaps find an answer here

     
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    Old 01-01-2017, 06:16 AM   #3
    tongi
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    Re: Stapdectomy 2016 updates

    Hello my name is Dom.
    Following on from what John said.
    My story is a bit similar to his. I had a stapedectomy in my right ear in 1989. It was all right for a few years. However in the early 2000s I had to wear an hearing aid, and my hearing is getting worse, but at a very slow rate. Obviously hearing aid technology is improving all the time and that helps too.
    So do not expect too much.
    Why does it fail over the years? I am no doctor, but I would say it is like the rest of your body.
    Same story about listening to music sometimes.
    I also wear an hearing aid on the left ear, which is getting worse too, and we are talking about having that one done as well, so I still think it is worth going through it.
    Best wishes.

     
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    Old 03-20-2017, 07:15 AM   #4
    Barrysouth
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    Re: Stapdectomy 2016 updates

    Thanks, I am sure there are people out there, that have had Stapdectomy last over 30years, if you think about it, there are thousands of people around the world whom have done this operation so the forums would be filled with a ton of people that would have shared there Stapdectomy story which lasted for a short period of time?
    on the internet, but you don't find them a good sign i guess, but i still wish these people come online and share there experience

     
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    Old 05-30-2017, 03:59 PM   #5
    verdinada
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    Re: Stapdectomy 2016 updates

    Hello - In Mar 2016 I had a stapedectomy on left ear with great success. After surgery, no dizziness, nothing. Two weeks later I was hearing great. The audiology test indicated moderate hearing loss and it was hurting my ability to communicate. After this operation, my right ear started going bad but not nearly as bad as the left. I went to the surgeon and they did a hearing test but it showed somewhat worse than before on the right but not nearly as bad as the left. The doctor recommended stape surgery. Because the first on the left ear went so well I figured what do I have to lose.

    I have never regretted anything so much in my life. Upon waking after the operation, I was very dizzy. I went home and experienced moderate dizziness but when getting in and out of bed I felt a thump in the operated area simultaneously accompanied by a intense wave of vertigo that lasted a second or so. This continued for three days. On the fourth night, I got out of bed and had the same occurrence but this time I noted somthing very different. I lost the hearing in the ear, tinnitus was intense and everytime I talked or cleared my throat my right side would vibrate and it made me dizzy. I contacted the doctor and it took him three days to tell me to come in. I drove 200 miles to the hospital (wife driving) and he said he needed to do the operation again because he said I likely had a granuloma. Imagine that. A 1% chance to get this and I got it. He told me he wanted to operate that night but I had eaten so I could not. He said it was extremely necessary to get this operation immediately or risk 100 hearing loss. He told me with this revision I had a 25% chance of getting my hearing or some of it back. I was terrified because I have a prosthesis in my left and if that goes bad I am a deaf mute. I had the operation on 26 May 17 and I am feeling somewhat better and I have hearing in my ear. But I am terrified that the granuloma will come back. He went back in and did a fiscia graft, used a different prsothesis, cleaned out the granuloma and closed me back up. Has anyone had any experience with this lousy luck?

    My biggest regret is having this operation when in reality I could have easily lived with my right ear the way it was and got a hearing aid when/if it got any worse. I am furious with the surgeon because in light of the state of hearing on the right ear should have caused him to advise me against it. I quesitoned him on this and I requested my medical records. He slipped in a statement in thei record saying that he recommended hearing aid over the surgery which is a LIE but I have no way of proving it. Neverthe less, water under the bridge. He is considered one of the best ear surgeons in Miami and I trusted his judgement.

    Does anyone know the success rate after revision surgery due to granuloma syndrome and what follow-on symptoms I could expect if this condition returns south?

    My advice to everyone. If you do not have a major hearing loss DO NOT get this surgery. It is not worth it. A hearing aid is much better than being deaf for life.

     
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    Old 06-13-2017, 04:54 AM   #6
    Barrysouth
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    Re: Stapdectomy 2016 updates

    Hi thanks for the information how is your left ear doing, and did the same surgeon operate on your left ear, did he
    do the right ear?

     
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