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After Stapedectomy, What was your Hearing Like?


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Old 01-21-2011, 05:54 AM   #31
nothearinghwell
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Re: After Stapedectomy, What was your Hearing Like?

Can anyone please instead of talking about packing and not hearing skip all that
and fast forward to the part (DID IT WORK OR NOT!) can you hear better than before and is your hearing like normal? I dont see ONE post explaining an answer to this simple question

 
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Old 01-23-2011, 11:02 AM   #32
Malstann
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Talking Re: After Stapedectomy, What was your Hearing Like?

Hi everyone.
Quick update from me.
Relax it'll come good, just read all my many many posts .
I'm almost 4 months in now after a right ear stapedotomy.
Had very similar results initially couldnt hear for weeks with bad bad vertigo and tinnitus.
All very worrying. Went for my check up last week.
Still improving, very pleasing looking graph when compared to before.
Not perfect because of previous noise damaged but still a really big improvement.
I do have clicking as my ear clears but so does my unoperated ear.
When I asked my doctor about it he said, well yes you would you can hear in that ear now...

My best advice is as ever; relax, rest, stay away from any kind of work of as long as possible I mean months. Its a major op and your ear is very swollen and will be for months... See a few old friends think about other things during your recovery look forward to hearing again.... yipee...

 
Old 01-23-2011, 11:04 AM   #33
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Re: After Stapedectomy, What was your Hearing Like?

Yes it works very well

 
Old 01-23-2011, 01:05 PM   #34
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Re: After Stapedectomy, What was your Hearing Like?

hi malstann, thanks for your update - very encouraging! unfortunately back to work tomorrow...
jp

 
Old 01-23-2011, 03:58 PM   #35
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Re: After Stapedectomy, What was your Hearing Like?

Hi Guys

Wonderful to hear most people are doing well.

I posted an update recently on a different thread but I thought I would put something here just to remind people to be very aware of the risks involved with this surgery.
The surgery is wonderful when things go as planned but sometimes things do go wrong.

My stapedectomy was done on my right ear on 01 December 2010. My surgeon is one of Australia's best ear surgeons, he's done several thousand stapedectomy's & I have total faith in his ability.

I was advised immediately after my operation that it was successful. However I started getting concerned several weeks after the surgery as I couldn't hear anything. Five weeks after the surgery my ear still felt fully blocked, had bad pressure in the ear, excessive tinnitis, vertigo & no hearing.

I went for audiology testing on 06 January 2011 & was advised total hearing loss including all sensory hearing. My ear is now fully deaf.

Went back to surgeon on 12 January & was immediately re-admitted to hospital for treatment for "perilymphatic fistula". Had IV steriod treatment for a few days & have been on total bed rest since. My doctor is hoping with reduced activity the fistula will heal itself. If it does't heal I will need further surgery. Very minimal chance of regaining any hearing in the ear. My doctor has no idea what went wrong, it's just one of those things that can happen with a stapedectomy.

I've been off work since the surgery (7weeks ago) & don't look like being able to return any time soon. Even once I'm well enough to go back to work, I won't be able to do my old job being deaf in one ear. Hearing aids aren't an option due to the sensory loss caused by the surgery.

I definitely don't want to scare people off having a stapedectomy but I think it's important to remember that things don't always go as planned.

 
Old 01-29-2011, 03:53 AM   #36
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Re: After Stapedectomy, What was your Hearing Like?

Austrailiagirl sorry to hear about the bad results.

I had a right ear stapedotomy in April 2010 which failed and a revision in August 2010. The revision worked (was able to hear my husband's heartbeat for the first time in years and all the wonderful sounds I had lost along the way) until I blew my nose on Christmas eve. No pain or anything like when it happened. I think it was a combination of being sick/congested, sneezing abunch,(mouth open) and blowing my nose. I get slightly dizzy sometimes and experience a dull ache my hearing is back to the way it was before the successfull revision. I am consulting with an Audiologist to talk about getting a Hearing aid. I'm also considering having another revision done to replace the existing prostesis with a longer one. However, the possible result of the longer prostesis is that if it is too long anytime I am exposed to loud noise it will cause vertigo. Which will result in another surgery to replace the too long prostesis with a shorter one.

 
Old 01-29-2011, 03:59 AM   #37
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Re: After Stapedectomy, What was your Hearing Like?

Hey Australiagirl just came across your thread sorry your operation has not been as successful as you no doubt would have liked. I am considering having the same op done and was interested in whom your Doc was? I work in an office atmosphere and as you have indicated you do too I was wondering do you think with your hearing loss will this affect your duties?

Also its still only early stages since op so try to think positive and dont let this get you down.

Cheers
Jonno

 
Old 01-30-2011, 02:47 AM   #38
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Re: After Stapedectomy, What was your Hearing Like?

Hey Joshysgirl & Jonno
Joshysgirl, sorry to hear you've had a problem with your revision surgery. It just isn't fair that you got so close to a good result then it was all taken away. I've become a bit skeptical about stapedectomy's, my complications have been a nightmare & I can't stop thinking "if only I didn't have it done". But I guess if my surgery was successful I would be over the moon. It's just hard knowing that prior to surgery my hearing was semi ok, most people weren't even aware I had hearing loss. The otosclerosis moved into my good (unoperated) ear mid last year so that's when I made the decision to have the surgery. The operated ear had otosclerosis for many years but I could still hear out of it. The most upsetting part for me is the fact that my ear now has nerve damage so nothing can help the hearing. Once the cochlear nerve's damaged, the brain can't make out any words/sounds so therefore hearing aids aren't even an option. Also, though I can't hear out of the ear, when I'm near anything loud (music/loud tv etc), I get a weird high pitched static vibration in my ear. So even listening to tv is almost impossible. Plus I've developed the perilymphatic fistula which is causing all sorts of horrible symptoms such as vertigo, nausea, intense pressure in the ear & roaring/hissing tinnitis. Also, I have long, thick hair & I haven't been able to shower without the dreaded vaseline cotton ball since 01 December 2010!!! My ear hasn't been washed for two months & trying to wash my hair & keep the ear dry is driving me crazy.
Good luck with your audiology visit, If I were you I would go for a hearing aid. The nerve damage I acquired is extremely rare but there's a chance of it happening & once it happens nothing can be done. I wish I had of thought more about the possible complications prior to surgery. Please keep us updated on your progress.

Hey Jonno
Thanks for your positive words but as you can see from my above comment, the nerve damage I have from the surgery is not able to be corrected. I now have what's known as a permanent 'dead ear'.
Do you mind me asking whether you're thinking about the surgery for otosclerosis or do you have a different ear disease?
In regards to your question about whether losing my hearing will affect my job, unfortunately yes it has. I worked for the Federal Goverment & I've actually had to resign. I had been in my job 10 years but it's impossible to do it with such severe hearing loss. Also, I'm not sure when I will be well enough to start looking for another job as I still have the perilymphatic fistula (caused by the surgery) . It's been 2 months since my surgery & I still haven't been well enough to go back into my work to say good bye to the guys. I honestly thought I would have the surgery & be back at work within a week or two, I never imagined still being pretty much house-bound 2 months later.

My surgeon is in Sydney & operates out of St Vincents Private Hospital. He's an amazing surgeon & in no way do I blame him for my complications. It's just one of those things that can happen & unfortunately sometimes does happen. I see him again on Tuesday & I will post the outcome of my visit. I'm not sure what state you live in but theres a ENT surgeon at Gosford (NSW) who is very experienced with stapedectomy's & has never had a patient lose hearing, Dr Salmon. I saw him last week for a 2nd opinion & he was wonderful. I know several people who he's operated on & they all speak very highly of him.
Hope this info helps, please don't let me scare you off the surgery. I just wish I had of thought more about the possible complications. Let us know how you go.
All the best
Aussie Girl

 
Old 02-01-2011, 03:20 AM   #39
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Re: After Stapedectomy, What was your Hearing Like?

Hey Aussie Girl

Really sorry to read your post. Please keep positive, the power of positive thinking really does work, take it from me. I also suffer from otosclerosis, but have also had cancer and through the power of positive thougts I believe have got me through a really tough time in my life. I know I have astounded the doctors where I am today.

I am really sorry to that you have had to resign from your job, sounded as if you really enjoyed it. Could you not work elsewhere within the job being government job? Reason I say that is I'm in the Police Force and I know there are numerous areas to work within. (just a thought for you!)

Hope all went well for you today? I have been thinking about you since reading your post. I have been considering having the same operation as you but I am still not sure what I will do? I have been checking out the net for answers to all my questions and came upon this web site and its helped me alot.

Its made me realise I am not the only one having this problem (although sometimes you really do feel like its just me - but in reality its not!)

Do you mind me asking if you have children and if so, do you worry this will have an affect at all? This is another reason I am still not sure what to do?

Take care Aussie Girl and remember to think positive!


JOnno

 
Old 02-02-2011, 04:52 PM   #40
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Re: After Stapedectomy, What was your Hearing Like?

Hello all,
I'm 19 days post surgery and although I'm getting more hearing back, I still have a loud whooshing sound that seems to override everything else.
Does anyone have experience with this noise (hard to describe it) and if so, did it go away? I can't believe I'm going to hear this forever.......

ellasgram

 
Old 02-04-2011, 03:02 AM   #41
snehalmanutd
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Re: After Stapedectomy, What was your Hearing Like?

My mother had her stapedectomy operation in her right ear 2 weeks back.Sponge has been removed from her ear but she is still unable to hear from her right ear. Also, she is hearing everything unusually loudly from her left ear. If she closes her left ear, she is unable to hear anything and feels better.

Is it normal? Is their any problem??


She is unable to hear from operated ear, and hears very loudly from the normal ear.

 
Old 02-04-2011, 04:47 AM   #42
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Re: After Stapedectomy, What was your Hearing Like?

snehalmanutd ~ Your mother should speak with her doctor if she is concerned. I know that after my first surgery(it didn't work) I couldn't hear much of anything out of the operated ear. After the revision(successful for 5 months) I could hear sounds I hadn't heard in years only a day later, but everyone and every surgery is different. After the surgery your brain has to relearn how to process sounds and you are hyperaware of any and all sounds in both ears. But again if you or she is concerned the best person to speak with is her doctor.

 
Old 02-05-2011, 04:05 AM   #43
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Re: After Stapedectomy, What was your Hearing Like?

Hi Aussiegirl,
I would be very interested to know about your operation. Hope it has been a good week for you?

Cheers
Jonno

Last edited by moderator2; 02-05-2011 at 05:09 PM.

 
Old 02-08-2011, 08:51 PM   #44
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Re: After Stapedectomy, What was your Hearing Like?

Quote:
Originally Posted by jonnohart View Post
Hi Aussiegirl,
I would be very interested to know about your operation. Hope it has been a good week for you?

Cheers
Jonno
Hey Jonno

Hope you're well. You probably haven't come to any decisions about your stapedectomy yet, it's a big decision to make. An important part is finding a really experienced surgeon, someone who's done hundreds of stapedectomy's. Things can go wrong with any surgery but obviously the chance of something going wrong at the hands of someone very experienced is minimal.

I've been to my GP twice over the last 3 days with side-effects from the IV steroids I was given when I was readmitted to hospital in January. Apparently the steroids stay in your system for ages hence the delayed side-effects. It seems like a powerful drug, but it actually did nothing to help with my hearing.

I remember you asked me whether I have kids & how this condition affects them. We don't have kids yet but were planning on starting a family once I had my surgery. But obviously things haven't gone to plan with the surgery so we're not sure where to from here. We've been married almost 12 years but I just kept putting the surgery off (saying I've been married 12 years makes me feel ancient!).

I've had no further improvement with my hearing, still nothing happening. The perilymphatic fistula is frustrating me, until it either heals or is operated on I'm very limited with what activities I can do. I'm finding it hard not being able to exercise, sitting around all day is driving crazy. My visit to the surgeon last week was pretty uneventful. I go back to see him again in 4 weeks. Hopefully he may have some suggestions when I see him then.

Take care
Aussie Girl

 
Old 02-16-2011, 10:00 PM   #45
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Re: After Stapedectomy, What was your Hearing Like?

Hi Aussie Girl

I am pretty confused at the moment deciding what to do next. I have seen two specialists and both have different ideas. I really need to weigh up which way to go and thank you your input has been very helpful to me.

I am a little limited in someways of what I can do in everyday life but I don't wont that to get any worse so I am reading all info and web surfing any info I can get my hands on to learn as much as I can.

I hope things improve for you with your next visit to dr. Remember "chin up"

Cheers
Jonno

 
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