It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Hepatitis Message Board

  • Hepatitis C test

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 04-01-2002, 03:26 PM   #16
    thanbey
    Inactive
    (female)
     
    Join Date: Nov 2000
    Posts: 693
    thanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB User
    Re: Hepatitis C test

    I can't resist making this thread 15 posts long in order to start a fire.

    hope no one takes offense.

    th

    ------------------
    <p>[This message has been edited by moderator1 (edited 05-22-2002).]

     
    The Following User Says Thank You to thanbey For This Useful Post:
    luyingjie (01-25-2012)
    Sponsors Lightbulb
       
    Old 04-01-2002, 04:38 PM   #17
    mushroom
    Junior Member
     
    Join Date: Jan 2002
    Location: NY
    Posts: 36
    mushroom HB User
    Re: Hepatitis C test

    I read this whole thread already and I wanted to add my thoughts. My hubby has Hep C dx about three years ago, he has had it probably 20 to 30 years. He did everything wrong. He should have had a very damaged liver even without the hep, but instead he has the early stages of liver damage. My daughter and I were tested also. Mine came back negative, my daughter positive. apparently a false positive. I had the doctor do both types of PCR tests on her, which both came back negative.
    The doctors and the media made us think it was a death sentence for my hub, but its not. You can't panic over whatever results you get. I have seen my husbands viral load go from 50,000 to 6 million quickly just from stress, and it means little. The alt levels and such can send you into a panic if you let them. Just try to find a doctor who knows the disease well and do what he says.
    Keg

     
    The following user gives a hug of support to mushroom:
    luyingjie (01-25-2012)
    The Following User Says Thank You to mushroom For This Useful Post:
    luyingjie (01-25-2012)
    Old 04-01-2002, 05:56 PM   #18
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Hi, thanks again for the info, it is very scary to read all the info in books, etc. My only risk factor if I am HepC positive seems to be being overweight, thankfully, I have not drank hardly at all or smoked during the last 20 years. I know that's no guarantee that my liver is ok, though. But, it seems like, from what I'm hearing, that most people that have damaged livers (seriously) because they had HepC and didn't know it, and kept doing dangrous things for them like drinking, smoking, is that right? So, you guys think my chances are good at living to raise my kids (my youngest is 8) if I have not done these things? I am eating right now and trying to loose weight, and drinking lots of water. I know I shouldn't still be hoping for a false positive, but I have heard conflicting things on that, the lab did say that there are false positives even with the HCV-RNA for PCR test that I had. And, my doctor said that of 10 of these that he gets back, 5 will be false positives because of the sensitivity of the test. But, I don't want to set myself up, so I am trying to accept this, and it helps with you guys telling me that it is not a death sentence. But, it will surely shorten your life, right? Anyway, thanks again! Val

     
    Old 04-01-2002, 09:37 PM   #19
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Just one more question, do you guys think that if I do end up having a liver biopsy that it might come out not too, too bad since I have not abused my liver too bad? Or, could I have cirrosis really bad, and feel this good? I keep thinking that even if I do have this, then I have time, but who knows how long it's been there? My blood tests reassure me cause of everything else being normal, and the ALT and AST not being way out there. I think my ALT is 67, supposed to be 40. But, then I read some other terrible thing that says you can feel good, and still be in bad shape with this. I know the liver biopsy will tell more. Thanks, just a nervous wreck here. Finding it hard to function. Does it get easier? This thing dosen't take over your life after you get used to it? I am very anxious right now to get my kids tested, and get that over with. Soooo stressful!!!!! You wouldn't believe it with me, people have always teased me about being paranoid about germs, and I have just always been so careful about things. I ask the dentist if he sterilized correctly, etc. Anyway, thanks again, just rambling here! Val

     
    Old 04-02-2002, 02:29 PM   #20
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    OK, sorry to keep bugging you guys, but here I am again! I went to the specialist today, and he ordered more blood tests, and a liver sonogram. He said alot of different things, and then it's hard to remember the good things he said, but he seemed to think I had time to think about this, that it's a slow moving thing. The thing I was wondering is, if I have treatement, what is that, does it take a year, or what? And, is it pills that you take every day? I heard it can be pretty bad, is it bad all the time, or just at the beginning, good days, bad days kind of thing? I feel rushed to get my life in order now that this diagnosis looks confirmed, but my husband says to slow down. We live in Texas, and my whole family is in California/Nevada, so I would like to move back there to be near them, for support, etc., but my husband's job is here. I am so worried that I am going to leave my 8 year old behind so young. Anyway, thanks again! Val

     
    Old 04-02-2002, 05:05 PM   #21
    sean
    Senior Veteran
    (male)
     
    Join Date: Nov 2000
    Location: New York, NY&lt; USA
    Posts: 764
    sean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB User
    Re: Hepatitis C test

    hey val---slow down!!

    first, the specialist is telling you, as are we, that you will have lots of time to look into all of this. Your hubby is right. (how often does this happen? hey--take it easy, i've been a husband myself.)

    second, next time you go, take a list of questions with you, and blank paper and a pen. there is much to learn. in fact, call the doc back with your list of questions next to you. a good doc will find a few minutes for a focused, sincere phone call.

    check out what mushroom says, above. see what other posters here have said. you'll learn that hcv looks and sounds a lot worse than it usually turns out to be.

    fourth, the answers to your tx. questions are very variable, depending on your own, personal situation. for the first item, whether tx is even right for you at all at this time!

    next, if after your further tests and investigations you are interested in pursuing treatment, you MUST learn more--for example, pegylated interferon, called PEG, is usually one shot a week. ribavarin, usually (not always) prescribed with it (this is what is called combo tx) is a pill taken two or three, every day. Do you have to take ribavarin? it depends. If you have genotype one, it will probably be suggested that you use both drugs and treat for 48 weeks, if not geno 1, for only 24 weeks.
    BUT, if you don't show response within 12 weeks, it may well be suggested that you stop.

    yes, for many the side effects seem pretty bad, but many others report they get used to it, no big thing. there does not seem to be an easy way to predict who will react how. the high percent who get side effects, though, is one big reason most people will tell you to take your time and make sure you really need it, or want it, before starting ifn. I've been diagnosed two plus years now, and still have not treated.

    See what I mean? There are no certain right/wrong answers, and there is a LOT of detail to wade through, IF it turns out you are near to the day you have to make this choice. but we are not there yet. not at all.

    fifth the sonogram is one step short of biopsy. it is less invasive, and sometimes docs use it for what they think are mild cases. my doc wanted both the sono and the biopsy, to corroborate each other. sonograms can be used to detect the extreme cases--very little liver change at all, or serious fibrosis/cirrhosis. but for everything in between, your doc will agree, I'm sure, only the biopsy gives near-certain results.

    Maybe I shouldn't tell you to relax--your nervousness is bringing up so many good questions. I just worry that you are worrying yourself so much. You are already packing up the furniture to move to another state. and leaving your baby behind??? for such a drastic decision it is too soon, too soon......Look, you've had this for 20 years, maybe, and NOTHING happened! It is not going to suddenly turn fatal for you just 'cause now you know. promise.

    sean

    <p>[This message has been edited by moderator1 (edited 05-22-2002).]

     
    The following user gives a hug of support to sean:
    luyingjie (01-25-2012)
    The Following User Says Thank You to sean For This Useful Post:
    luyingjie (01-25-2012)
    Old 04-02-2002, 06:01 PM   #22
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Sean, thanks for the reply!! This board makes me feel so much better, that I am now avoiding going to the other places cause they can be all gloom and doom. Yea, that's what the doctor said today, that he has no idea how long I've had it, so it's hard to tell if it's done any damage. That's what makes me nervous. What if I've had it for 20 years or more, and I am sitting here with cirrosis. I am not jaundiced, and my other labs are good, but, apparantly, that dosen't seem to matter much in diagnosing how bad you can be. Do you think I would need a transplant soon if I have had it for 20 years, which I suspect? They would probably rather do a transplant when you are young and could deal with it healthwise rather than when you get older, and have other health issues to deal with, right? He acts like I may have years to deal with this first, but then I'll be older and other problems. Oh, and about moving out of state, see, my whole family is in California/Nevada, and I would never move without my kids and husband, I meant for him to look for a job out there somewhere. I really worry about my youngest daughter being left here in Tx alone if and when the older kids go to college, and then Dad is at work all day in Houston, and if I'm not around. At least out there, she would have my whole family, grandparents, etc. I don't know what I would do without talking to my Mom each day about this, which is also why it makes me so sad to think of not being here for my kids, all I want to do is to be here for them. I am hoping they come up with something better for this in the years that we supposedly have time to wait. But, I guess the question that I didn't get answered today really is that if I have cirrosis now, then the prognosis is not good, is that right? And, I could very well have that if I've had it for 20 years, even though I feel fine? I don't drink or smoke, so maybe that's in my corner, but I am overweight, but totally working on that now. I am so careful about what I'm eating, and actually mentally going through this, I have totally lost my appetite. I am buying a lot of organic stuff, but have held off on starting any herbs yet cause I have heard some can be dangerous. Anyway, thanks again, Sean, for the great letter, the only place I hear such uplifitng stuff is here! Thanks for caring, I wish I could be helping you! Val

     
    Old 04-02-2002, 06:05 PM   #23
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Sean, I just got done reading over my old letters, and I see how that sounded when I said about leaving my 8 year old daughter alone, I meant if something happened to me. I would never go anywhere without her, if I moved, all of us are moving!! ha ha thanks!! Val

     
    Old 04-02-2002, 06:23 PM   #24
    thanbey
    Inactive
    (female)
     
    Join Date: Nov 2000
    Posts: 693
    thanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB Userthanbey HB User
    Re: Hepatitis C test

    Well, Val, the fact is you are are going to die.

    The rest of the story is that it won't likely be anytime soon unless you worry yourself to death!

    Repeat after me: I am not dying, I am living. I am not dying I am living. I am not dying I am living.

    I hate to be maudlin here, but none of us is guaranteed a certain period of time. If/when you leave your daughter behind neither one of you are likely to be young at that time. Get used to getting wrinkles and being a grandma someday, okay?

    Sean makes a good point about the questions. You are a smart lady and you are doing everything right (with the possible exception of driving those around you nuts over this!) Your doctor is giving you good info and you have us.

    Stay the course, remain calm and take this one step at a time. No one can absorb all the information at once. Even cirrhosis is not a death sentence or a cause for a transplant. You must be very sick before transplant is even a consideration. You are nowhere near that point, and I doubt you ever will be.

    We're here for you. You are not dying, you are living...promise!

    teresa

    <p>[This message has been edited by moderator1 (edited 05-22-2002).]

     
    The Following User Says Thank You to thanbey For This Useful Post:
    luyingjie (01-25-2012)
    Old 04-02-2002, 10:29 PM   #25
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Teresa, once again you have made my night!! For some reason, the nights seem harder, like I get kind of depressed, and then I come on here, and you guys make me feel so much better. I just keep thinking that if I already had it for 20 years or more, even if I'm feeling ok, couldn't I be really sick right now? Or do you think I would seem sicker on the outside? Ok, I know, I'll shut up now. The specialist took a bunch of tests today, and I don't know what they all are yet, but because I have been reading up, I was the one who asked him if I should get immunized against A and B right now, and then he said he would check my blood to see if I ever got immunized against them before, but he didn't even think of it before I asked. So, I guess some good comes out of reading up on this, even if it is depressing. My Mom was telling me on the phone tonight about Naomi Judd's website, and she said she has been free of the virus for 7 years, I thought there was no cure, though. Can some people actually be cured even when there is some damage? I assume she had some damage cause she said she was very sick when she was diagnosed. This is alot to take in right now, and I will try to not make any quick decisions, but it's hard not to worry about my kids future, since my younges is only 8, and it's a whole 10 years till she's 18, and who knows how long this thing has been in me already. I'm sorry, I'm being depressing again, aren't I? The thing is, I'm probably older than you guys, being 42, so I am further along. You guys are lucky to be diagnosed young really. I wish I had known a while ago, and I wouldn't have gained weight. Anyway, thanks again for the letter, you guys have been really helping me!! Val P.S. I had one question, when you do treatement, is it like a committment for a year, where you have to get injections like once a week? I was wondering cause we usually go out to my parents house in Reno for the summer (the kids and I) and I was wondering if we would still be able to do something like that. My husband said that I could have the treatments there, but I don't know, you know how doctors offices are, everything has to be just right. Anyway, thanks again! Val

     
    Old 04-03-2002, 12:09 PM   #26
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Hi all, I am trying to keep my head up about this, but it's hard, and still this is all new to me. I am anxious for the next step, which is to see how the liver sonogram, and I assume, a biopsy will come out. According to the books I have been reading, if damage shows on these tests, the prognosis is poor. And, I have probably had it for 20 years, at least. One book I had says that some people with HepC live normal, long lives, but that seems rare, because HepC does to damage to your liver no matter what, right? It dosen't just sit there doing nothing, it does do it's damage eventually, right? I guess there's the hope that while we are waiting for this, better treatment comes out. Discouraging to hear that I could have cirrosis already and not know it, I figured that since I felt pretty good, looked good, and my labs weren't too bad, that I would hopefully be in good shape, also that I haven't drank or smoked, but I guess not. Anyway, I went to this other doc today, and I hate the way people look at you like they feel so sorry for you. Tell me this, is this just as bad as being diagnosed with HIV? I guess HepC is probably slower moving, and that would be the big difference, right? Anyway, thanks again! Val

     
    Old 04-03-2002, 12:31 PM   #27
    sean
    Senior Veteran
    (male)
     
    Join Date: Nov 2000
    Location: New York, NY&lt; USA
    Posts: 764
    sean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB Usersean HB User
    Re: Hepatitis C test

    Hi again,

    Good for you on the hep b and especially hep A immuizations!... these are very impt. for us. Although in general i am anti-alarmist about hep c, there is no doubt that getting another hep on top of it is bad news. very bad. so get those shots!!

    this is killing me, but you force me to state that I am 56. i did not discover this thing when young, but rather two and a half years ago or so.

    from what i've been able to reconstruct of my life history, it seems likeliest that i contracted it 30 plus years ago (by the way, I have had hep B, too, so now i show the antibodies to both. oh, and of course i took my own advice and got the vaccine for hep A, so all three must show up in my blood now...no one will EVER let me donate blood again, that's for sure.)

    to further reassure you: yes, you can be experiencing important stages of liver damage without having any symptoms--this does happen sometimes, but no this does NOT translate into: you will have cirrhosis or be near to transplant time and still have no inklings or hints. Yes, every individual case is unique, and yes this is a variable disease, but by the time of cirrhosis, there have usually been hints of illness. then, by the time the cirrhosis is so bad that someone is discussing transplant (!), there are a LOT of symptoms.--that person is ill, and knows it. so, once again, this does not seem to be you, and you can relax a bit.

    The liver enzymes are not a certain signal, but in general low is better than high. Without reason to suspect otherwise, if you feel well, and your numbers are low-ish (and they are), the assumption you should be working on is that you are one of the lucky majority, not one of the few who are in shorter-term trouble or may be soon.


    keep reading--the vaccine thing was a good catch--you're obviously picking up useful stuff.

    oh, and thanks for reasuring me (and your youngest) that you ain't taking off for Cali and leaving any kids behind! Whew.

    In the words of bob Marley, "EVERYTHING'S GONNA BE ALLRIGHT."


    ciao Val.....


    SEAN

     
    The following user gives a hug of support to sean:
    luyingjie (01-25-2012)
    The Following User Says Thank You to sean For This Useful Post:
    luyingjie (01-25-2012)
    Old 04-03-2002, 03:46 PM   #28
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Sean, ha ha thanks for the letter!! You made me smile! Anyway, yea, I am trying to hold onto good thoughts, it's all that keeps me going really! But, my sister in law called me today and actually she was helpful, but she had a friend that had an auto-immune disorder and received a liver transplant, and she was telling me how I had to stay strong, get my life in order, etc. It's scary, cause on the one hand, she was helping me by saying what to do, etc., but then I was thinking that ,"wait a minute, I thought I wasn't that bad yet!". I foolishly looked up auto-immune disorders and now am scared about that. It seems to say that having HepC can trigger this, and also taking the drug Interferon because of HepC can trigger it. Now, I know I don't need to borrow any more trouble, it's just that I was around my sister in law when her friend was going through this, and it was so bad. So, it's hard to imagine my life becoming like that. I keep reading the past posts where you guys say that you can sometimes live a long, healthy life with HepC, and I hope you guys are right. My sister in law said to get a liver specialist in Houston, not in the little town that I live in, which is an hour or so away. I have a liver specialist here, but she says thats not good enough, there are better ones up there, and have dealt with more. So, once you do have cirrosis, there is no treatment? Thanks again, the phone just rang and I have to go!! Val

     
    Old 04-04-2002, 03:53 PM   #29
    JeannieRee
    Inactive
     
    Join Date: Sep 2001
    Location: Tennessee
    Posts: 9
    JeannieRee HB UserJeannieRee HB UserJeannieRee HB UserJeannieRee HB User
    Re: Hepatitis C test

    Ok Val to help you thru your worry I will spill my guts. I am overweight by about 50lbs, I drank heavily for 20 years (I loved the tase of beer and I'm a girl!)and used drugs recreationally (no I am not a IV drug addict, I am a banker). I have had HCV for over 20 years and would never have known if I didn't give blood one day. I had a painless liver biopsy and I have mild fibrosis and feel pretty good most of my days (unless I let stress catch up with me) I've known for a little less than a year that I am positive and have kept this little secret mostly to myself. I totally understand how you feel right now and trust me you will get through the panic stage soon. Your feelings are natural but don't let them control you and be gloom and doom. You very well could get hit by a bus! <IMG SRC="http://www.healthboards.com/ubb/smile.gif"> I will take treatment at some point in time but I know I have time. I also live in a small town and there is not one liver specialist withing 250 miles so it wouldn't be covered on insurance. My GI didn't bother to test my genotype or stage my biospy. (creep, I'm firing him!)

    My advice is to not bury yourself before your dead, don't make any hasty decisions, and really take it one day at a time. Find out everything you can (and you will because you are asking the right questions) But the best part is you will actually get to the point you don't think about HCV for a whole day or more!!!!!!!! Those are my vacation days from myself <IMG SRC="http://www.healthboards.com/ubb/smile.gif">

    I have never heard of anyone being "cured" from natural herbs and supplements. I take them to slow the progression of my disease but only on the advise of a professional. I know some people who only take supps and are doing fine but they know this will not rid the virus from the body.

    Hang in here on this board and you'll get great info espcially from Theresa and Sean who hold everyone's hand until we can calm down.

    May God bless you!

     
    The Following User Says Thank You to JeannieRee For This Useful Post:
    luyingjie (01-25-2012)
    Old 04-04-2002, 06:53 PM   #30
    Unregistered
    Guest
     
    Posts: n/a
    Re: Hepatitis C test

    Hi all, I know, having Sean and Teresa has been like a Godsend. I read books, and get all caught up in the bad stuff, and then come on here, and read the previous posts for like the 100th time. It still seems so unbelievable to me, and I hope I get past that soon. I was feeling good today, like I just know my sonogram and blood tests will come out good, but then I was just reading up and it said how you can look and feel just fine, and have cirrosis. I do have one symptom of that I guess, and that would be an enlarged abdomen. My husband says it's just usual weight gain, that it's in proportion to the rest of me, but for about 5 years or so I guess, I have had a bloated abdomen. I just attributed it to the weight gain that I have experienced over the last few years, but you know how it is, now that I have this, everything seems like a symptom. I just told my husband on the phone how tired I am, and he was saying that he's tired, too, so is everyone. I don't know, I'm just really anxious to find out where I am on the spectrum, and I assume the blood tests and the sonogram will help me with that, right? So, it's hard to say how fast HepC progresses, right, but if I haven't drank hardly at all and smoked in the last 20 years, that would be good, right? I think it was Teresa who said that cirrosis comes when people don't know they have HepC and continue to drink and smoke, I haven't really done that, but I guess that's no gurantee of anything. I have been overweight, so I think that's a risk factor in itself. The thing is, the doctor said that he dosen't know of course how long I've had it, so I could be sitting there with cirrosis and he wouldn't know it. My books are kind of discouraging about it, they say that your numbers don't have to be too high, and you can look good, and still have it. I am trying so hard to do all the right things right now, still can't loose a pound though! I have been eating good and drinking tons of water since I found out, and no results yet! I have my appointment with the doc on Tuesday, so I hope to find out more about my tests then. Thanks again to all of you who have helped me on here, I really can't thank you enough. You are really what is keeping me going, I come on here everyday. I know I am driving you nuts with my questions, but I have a couple more (sorry!) So, are you guys saying that many people with HepC don't even need a transplant their whole life? How can that be, though, if it definitely leads to cirrosis? I was reading where cirrosis is definitely the thing that makes you need a transplant. And, Sean, if you read this, why haven't you started treatment yet? I went on Naomi Judd's website, and she said she suggests to people to be very aggressive in the treatment as early as you can. I guess the good thing about HepC is that it moves slow, so that gives people time to decide. Ok, it might move slow, but I am 42, and could have had it most of my life. When I think back, the only possible time for me to get it would have been in my childhood, when they didn't sanitize needles or something like that. It is just so unlikely that I would have gotten it from chilbirth in a Hospital setting, or piercing my ears at the mall, where I was annoyingly insisting on sterility. I can't tell you guys how ironic it is for me to have this, people joke about how paranoid I am about diseases. I won't even share a coca-cola with someone, always been that way. I know, it's transmitted in ways we don't know, but that is what makes me nervous for my kids. If I could get this, believe me, anyone can. I should go and talk to the government about this!! Anyway, thanks again and sorry to blab on and on here!! Val

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Hepatitis B test results mmx1233 Hepatitis 10 07-11-2010 05:31 AM
    Hepatitis C Blood tests positive Nina1959 Hepatitis 6 11-05-2008 08:31 AM
    Scared to death - Hepatitis C caitlyn38 Hepatitis 14 06-06-2008 10:13 AM
    Hepatitis C girlfriend - is she ok? stevie_23 Hepatitis 13 07-28-2006 05:19 PM
    Infectuous hepatitis questions Jack51 Hepatitis 9 09-11-2004 10:58 AM
    What is Nonspecific Hepatitis? pedgies Hepatitis 3 02-25-2004 05:31 PM
    My girlfriend has been diagnosed with Hepatitis C neilr Hepatitis 3 01-23-2004 07:08 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 03:51 AM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!