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  • Cervical cyst - no herniation

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    Old 09-05-2008, 02:47 PM   #1
    pbjmom
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    Cervical cyst - no herniation

    Hello!
    I just came back from a follow up appt with my Ortho. My MRI result does not indicate a c6 herniated disc as he originally diagnosed. I was immediately referred to the practice's spine specialist as the MRI shows a cyst on my spine in the same region of the c6. I see that Dr. on Monday. It is Friday afternoon.

    I have had pain in my neck, down my arms, in my upper back and through my chest (not heart, but breast...EKG done to rule out) and sporadic nerve pains. I have found relief with ibuprofen and muscle relaxers, but the pain has continued.

    I have tried to search the internet to be a bit more informed, but have used this board before for other issues and have found people here the most informative. The Ortho said he was not a specialiest with spines, so didn't on much. I felt rather floored leaving the office and wondering what does it all mean. He couldn't tell me what kind of cyst or even if that cyst caused the pain.

    Is there any advice from anyone? What treatments did you find helpful or not so helpful? I am remaining optimistic and hopeful that the doctors can help.
    Thanks!
    pbjmom

     
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    Old 09-05-2008, 09:51 PM   #2
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    Re: Cervical cyst - no herniation

    Sorry, I wish I had more information for you. But you do want to be seen by an Orthopedic Spine Surgeon or Neurosurgeon - as they specialize in spine care. It's hard to know what the cyst may actually be and it's impact on your neck. Make sure to get a copy of the dictated MRI report and the films so you can take them with you to the next doctor and so you can read the report and know exactly what it says.
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    Old 09-08-2008, 10:07 AM   #3
    MOMOFBOYZ
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    Re: Cervical cyst - no herniation

    HI there! I too have mirrored symptoms. I have 2 collapsed discs in lower back as well as cervical spine. at the c5-c-6 level there is also a small round tumor lighting up. So now I am waiting auth for a repeat mri with contrast to rule ths tumor out.
    Like you I posted everywhere but noone knew or had heard of this before. I also am ptty good at researching the web but came up wth zero answers. If you aren't sure what it is it is really hard to research.
    Pls let me know what comes of this. I'll keep you posted too.
    My orhto surgeon told me it is benign but I wonder if they know nothing about it than how does he know?
    Let me know anything you find out. I am on here right now to begin another day of research. Let me tell you not too many people have this problem on this board or the back board.

    Let me know and good luck!
    Best wishes,
    Deena

     
    Old 09-08-2008, 11:16 AM   #4
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    Re: Cervical cyst - no herniation

    Hi Deena! I, too, am a mother of boys. Twins that are 9! It is always fun.

    Thank you so much for posting back. I just got back from the Ortho Spine specialist. I felt there was conflicting info. I will try to explain... The MRI results list a small syrinx cyst from c6 to T1. The report also said "spinal cord is abnormal demonstrating increased T2 signal present centrally in the region of the central cord". I do not know if that is the cyst or not.

    I am going back for a contrast MRI Wednesday am and follow up again with Ortho spine guy. He is ruling out malignancy. Most syrinx are 99% benign, but he is wanting to rule it out just to be safe...fine by me! Just hate the tube as I am claustrophobic.

    THe Ortho said there is a c6 micro-annular tear and feels that is the source of the pain. My symptoms, he says, are indicative of peripheral nerve issues, not central. If it was the cyst, he said I would present with more neuro symptoms. YET!!! The symptoms I reported he said are more from c7/c8, but the tear is in the c6. The cyst is in the c7/c8 so I feel that maybe there is a combination of issues... see how confusing this is!?!?

    I am scheduled to have a neurological work up on the 24th. From there, if they rule out the cyst and pain is not better, then he wants to treat the c6 with a cortisone injection and maybe PT.

    Wow...what a day. When I first started searching this, I could not find a lot of info nor people who are in the same boat. I am so very glad you found me! I am so sorry about your collapsed discs. How much pain are you in from that? Hopefully the tumor is a cyst as well. If it is a cyst, then find out what kind. Apparently, that is helpful in research as well.

    I am a stay at home mom this year. We just moved and I am a teacher. I decided to not teach this year to get the boys settled in their new school and my husband in his new job. all of this pain started with painting 3 rooms in two days waiting for movers to show up. I think that is why the doc says the cyst is incidental...I am wondering if the tear aggravated the cyst...but that will be a question for Friday's appt!

    Keep me posted, Deena! I would love to provide support and share info with you. We may be a few, but I am here for you! Betsy

     
    Old 09-17-2008, 07:20 AM   #5
    littlelady2852
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    Unhappy Re: Cervical cyst - no herniation

    Hello everyone.. i see there are several people on here that have cyst on their spines. I also have a cyst on my spine as well. Its called a Arachnoid Cyst. Its very rare and i was probably born with it but i am not sure. Mine is in the Thoractic area.I started having problems with mine in 2005.I also hurt in my neck and mid back and up. Legs go numb and tingling feelings also.Its a very painful thing to have. I am on Neurontin 300 mg,Ultram,Zanaflex,Flearil. Nothing helps with the pain.They said i need to have surgery to have it removed but i don't haave health insurance or medicaid. I have been out of work for 3 years now. I applied for SSDI but i was denied.So i have a lawyer and we are in the appeals stage.Mine is not cancerous.Thank goodness for that !!
    I am soooooooo glad i have found some people with about the same problem as me.
    Please lets keep in touch on here and see how everyone is doing !!
    Karen in South Carolina

     
    Old 09-18-2008, 10:15 AM   #6
    MOMOFBOYZ
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    Re: Cervical cyst - no herniation

    I am so glad to have found some one out there with the same thing. I just did repeat mri w/contrast yeserday. But do not see the dr until Monday. So I have to wait to see. I have all of the symptoms that you guys emntioned. Numbness and tingling, spasms, shoulder pain, feet pain, leg pain.
    It is an awful way to live.

    Pls keep me updated on any new info you guys get.
    Thanks,
    Deena

     
    Old 09-18-2008, 12:27 PM   #7
    MOMOFBOYZ
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    Re: Cervical cyst - no herniation

    Hi girls, I just posted a new thread regarding this conversation. I posted the new MRI results. I too have a cyst on c6-c-7. Don't know what kind the radiologist suggested nerve root sleeve cyst or synovial. But like you girls have a very hard time finding information on this kind of cyst. And I am the queen of research. So this is very frustrating.
    I do see the doc on Monday. But am too curious b/c I am in so much pain to wait around for ideas.
    Do you know anything more about this kind of cyst?


    Thanks,
    Deena

     
    Old 09-18-2008, 01:04 PM   #8
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    Re: Cervical cyst - no herniation

    Momofboys.. I know what you mean about the pain you are in every day. I don't know anything about the cyst you have but it might be similar to mine.I had a MRI done 3 years ago when i had health insurance but i i have not had a MRI lately.I don't have health insurance and i have applied for SSDI and SSI. I was denied but i have a lawyer and we are in appeals.I have not been able to work since 2005.All i am able to do is stay at home pretty much. It hurts to even drive my truck. I know its very painful and its getting worst and worst.I am even on antidepressants.
    Hope to hear from you guys soon.
    Karen

     
    Old 09-18-2008, 03:32 PM   #9
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    Re: Cervical cyst - no herniation

    Hi! I was able to get a diagnosis of my spine/neck issue. First off, I have a micro-annular tear of my c6. They cyst in my spine is called a syrinx which means a diagnosis of syringomyelia. This type of cyst can be caused by a variety of reasons. Fortunately, my cyst is small. The doctors are wanting to treat the tear which they believe is the cause of my pain. I

    I have been through a workup from a NL to see if there is nerve damage (none!!) I have started Physical Therapy and went to see a pain management doc.

    I have done a ton of research on this syrinx. Few doctors are specialists in syrinx and chiari malformation. Chiari is a major factor to syrinxes, but I do not have Chiari from what I have been told. Most specialists of syrinxes will also treat Chiari.

    Apparently, finding out what type of cyst you have is crucial. Finding the right doc is as well. Most of the docs I have seen don't discount my cyst, they just think it is a birth thing and are more interested in the tear in the disc. I am going to keep up with this cyst and find a specialist who can help more.

    My pain has been better. It seems I have a few good days, then I am laid up with pain in my back. I figure my muscles are not strong enough to do simple tasks right now and then I am just fatiguing them. Hopefully, the PT will help build them up. My pain mgmt doc wants to do shots, but I really want to delay that until I give this therapy a shot.

    It is good for us to help one another. I find we can share knowledge and help each other. For me, it is good to hear I am not alone. It doesn't mean I am glad you are in pain, don't get me wrong. Just always good to have others around.

    how is everyone else doing?
    pbjmom

     
    Old 09-18-2008, 04:03 PM   #10
    pbjmom
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    Re: Cervical cyst - no herniation

    Hi! I was able to get a diagnosis of my spine/neck issue. First off, I have a micro-annular tear of my c6. They cyst in my spine is called a syrinx which means a diagnosis of syringomyelia. This type of cyst can be caused by a variety of reasons. Fortunately, my cyst is small. The doctors are wanting to treat the tear which they believe is the cause of my pain. I

    I have been through a workup from a NL to see if there is nerve damage (none!!) I have started Physical Therapy and went to see a pain management doc.

    I have done a ton of research on this syrinx. Few doctors are specialists in syrinx and chiari malformation. Chiari is a major factor to syrinxes, but I do not have Chiari from what I have been told. Most specialists of syrinxes will also treat Chiari.

    Apparently, finding out what type of cyst you have is crucial. Finding the right doc is as well. Most of the docs I have seen don't discount my cyst, they just think it is a birth thing and are more interested in the tear in the disc. I am going to keep up with this cyst and find a specialist who can help more.

    My pain has been better. It seems I have a few good days, then I am laid up with pain in my back. I figure my muscles are not strong enough to do simple tasks right now and then I am just fatiguing them. Hopefully, the PT will help build them up. My pain mgmt doc wants to do shots, but I really want to delay that until I give this therapy a shot.

    It is good for us to help one another. I find we can share knowledge and help each other. For me, it is good to hear I am not alone. It doesn't mean I am glad you are in pain, don't get me wrong. Just always good to have others around.

    how is everyone else doing?
    pbjmom

     
    Old 09-18-2008, 04:41 PM   #11
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    Re: Cervical cyst - no herniation

    Hello.. Well i am not doing too good today. Pain all day, every day.I take several meds but they dont even touch it.I don't even know why i am taking them. I guess its just a habit.
    Has anyone ever heard of anyone with a Arachnoid Cyst in the spine ? It is rare and its usually in the brain.
    Karen
    Pbjmom, What are your symptoms ? What do you do for the pain ?

     
    Old 09-18-2008, 05:48 PM   #12
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    Re: Cervical cyst - no herniation

    My symptoms have varied and from day to day. I have had anything from numbness and tingling down my arm, sharp pains in my back and actually in my breast, sometimes dull aching pain along my spine, feeling lightheaded and nauseous when a spasm or sharp pain occurs. My left shoulder has felt like it was burning.

    The hard part is trying to determine which of my problems is causing what. I hurt myself painting three rooms in two days (moving to new house!!). I thought I had a herniated disc, but it was a tear instead and the cyst was discovered. Also, I may have screwed up the muscles in my back while painting and the muscles haven't been able to recover yet. It is all sooooo confusing. Most docs are saying this is a tear issue and weak muscles. No one is saying it is the cyst.."it is too small" they say. Through research of syringomyelia, even small cysts cause pain.

    It does make sense that I had no symptoms until I did all that work, so why would it be the cyst. The tear was a result of the work I did, but I wonder what part this cyst plays, if any. I understand where the docs are coming from, but I am a bit more concerned about this cyst long term than they are.

    From research on my type of cyst, prognosis can be scary. I need to keep up on my cyst, watch for symptoms and go for a followup MRI in a year. I am looking into a specialist with this. They are truly few and far between...not every Neurosurgeon deals with this nor thinks it is an issue. I for one do...it is something inthe middle of my spine...that is a biggie for me!

     
    Old 09-18-2008, 06:04 PM   #13
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    Re: Cervical cyst - no herniation

    I rambled in my last post....sorry! you asked about medicines

    Right now I am taking a muscle relaxer and ibuprofen. My pain management doc gave me ultarcet to take as well. Percocet rocked my head! Where I find the most relief...lying down and taking pressure off my back.

    Betsy

     
    Old 09-18-2008, 06:28 PM   #14
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    Re: Cervical cyst - no herniation

    My pain is in upper back center. But my back from the waist up is in pain every day. One dai i was working at my job then the next day i had to apply for Short Term Disability, then turned into Long Term Disability.Now i am in the process of appeals with SSDI.
    I have never heard of anyone having the kind of cyst i have.Its very rare and the neurologist i went to said i was probably born with it. My cyst was small at first but as the years go by the pain is getting worst and worst , i believe its getting bigger in there. That is what scares me.
    The doctors say there is nothing they can do for the pain except to have it taken out.ARGGGGGGGGG
    I also have numbess in my left leg and weekness in both. Plus i have tingling in my legs too. Fells like they are falling asleep.
    I believe i have nerve damage and i don't think i will ever be the same as i was, and thats whats so depressing to me.
    Thanks for the chat..
    Karen

     
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