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  • Vertebral Hemangiomas & High Left Thoracic Scoliosis

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    Old 03-29-2012, 01:31 PM   #1
    belawe
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    Vertebral Hemangiomas & High Left Thoracic Scoliosis

    Hello,

    I'll try and keep this brief. A year ago I complained to my doc about having annoying 'knuckle in the back' pain in my mid back. She did an x-ray and didn't see anything, so sent me to physical therapy. The physical therapy helped relieve the knots in my left shoulder area, but the pain never went away. I'm now having more left shoulder pain, knotting, and the pain in my mid back has gotten worse. My doc ordered an MRI that came back showing an 'unusually high' left thoracic scoliosis; vertebral hemangiomas on T7, T8, T12, & L2. The pain around my T8 is extremely uncomfortable and nothing seems to relieve it. My doc referred me to an orthopedic specialist, but he will be out of town until the end of April. I've already been told by one orthopedic surgeon (my doctor was not happy with him at all) that he would not touch the hemangiomas because of the size (large) and that they are big bleeders. I've had a history of anemia, unexplained bleeding during pregnancies, post partum hemmorhaging, etc...so the thought of blood loss always freaks me out. I was also in contact with another specialist via email and he said that his protocol is to inject the areas of the vertebras with cement. Not looking forward to any of this. Just looking for input, suggestions, anything for a little piece of mind.

    Thanks!

     
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    Old 08-06-2013, 09:11 AM   #2
    river1628n
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    Re: Vertebral Hemangiomas & High Left Thoracic Scoliosis

    I have had Hemangiomas all my life (since birth) and as I go through life I seem to create more so I know how you feel. I have one on skin by left eye that plastic surgeons operated on but could not get it off. They did skin grafts to cover but that didn't work. I have them covering my tongue & inside right cheek. I also have them throughout neck and a large one on C2 vertebrae. I have been through X-rays, MRI scans, etc. Glad they are benign but I have a lot of pain in neck. I also have Scoliosis Doctors think from birth. I move a lot so every time I have to get a new Doctor I have to go through this all over again. I just moved, have a new Doctor, who doesn't seem to understand these tumors (aka: Vascular lesions & Fatty Tumors)...so he is sending me to an ENT Specialist for biopsy. I WILL NOT have a biopsy as these are "bleeders" and could hemorrhage, blood clots, etc. I already had one hemorrhage to my brain - don't need another lol. I have found a lot of pain relief with Chiropractors but they get frustrated after 3 months that I still have flare-ups of Nausea, Shooting pains, burning back, sores on my skin. dizziness. So I am currently looking for Chiropractor who understands our "little friends". I would be wary of having cement put into my spine. And I can't see surgery as they tend to grow back. Does anyone know of a natural treatment or supplement for Hemangiomas?

     
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