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    Old 05-19-2006, 10:55 AM   #1
    dinney
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    Side effects from statins ?

    Truly pray that someone will respond to my thread as I am about to go totally nuts. OK, I suffer from anxiety, mostly about my health and over the years have had many, many tests all were o.k. Well, my Dr. has me on cholestrial medication, changed me to a new one about 2 weeks ago, vytorin, this week I began having severe headaches, vision problems (seeing flashing lights, etc.). Went to my opthamoligist and he checked my eyes VERY good, asked if I had medication change and told him from lipitor to vytorin and he said "ah ha". That statins are very hard on the system, told me to visit with dr. Well I have been on a statin drug for several years BUT I have also felt like crap, NO energy, dizziness off and on, vision problems, muscle weakness, flu symptoms. Have just tried to deal with it (dr. is SICK of me and my complaints) BUt I DO want to feel good again, I am not making all of this up. Am on zanex for anxiety which helps for awhile but right now I am thinking I am dying, making mental plans for when I'm gone I feel that bad. Can medication such as this build up in your system and RUIN your life ? Please, please someone talk to me ...

     
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    Old 05-19-2006, 11:16 AM   #2
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    Re: Side effects from statins ?

    I am just comming off Vytorin myself. I had terrible side effects. mucle weakness, pain, etc. I thought i was dying...
    its been more than a week now comming off vytorin and after a full blood test/chest x-ray and determining no damage, i feel much, much better.
    the dr. did confirm it was the statins. she is looking at possibly just giving Zetia. I told her, i need sometime to recover from this nightmare.

     
    Old 05-19-2006, 11:38 AM   #3
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    Re: Side effects from statins ?

    Thanks SO much for responding, I have been about to go crazy wondering if my eye dr. knew what he was talking about with how badly the statins effect some people. Now I am wondering if all the years of being on lipitor didn't play a major role in the horrible way I felt too. Know I probably need something to control my cholestrial but just want to quit them all together and get it out of my system and see if I don't feel better. Not familiar with what your Dr. is thinking of putting you on. Were you totally exhausted, any dizziness, just total lack of motivation to do anything ,muscle weakness that you hadn't had before ? God bless you for responding to me, appreciate it so much. My Dr. just thinks all the side effects are "in my head"...depressing when you need someone to really listen/understand what you deal with on a daily basis...Sorry to go on so long but would like hearing from you again..side effects, etc.

     
    Old 05-19-2006, 12:34 PM   #4
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    Re: Side effects from statins ?

    Hi, I am kind of in a rush right now and will respond with more later. But yes, your problems could easily have been caused by lipitor. Also switching to the vytorin will NOT solve that problem. The statin study at UCSD has found that 98% of the people on Lipitor have muscle problems. Liver test are NOT an accurate measurement of muscle involvement. This has been documented by doing muscle biopsies. I think you might want to talk to the people at the statin study. Search (UCSD statin study). Talk to Marvin. I will post more for u later. In the mean time..if you are not taking Coq10 you should immediately start.

     
    Old 05-19-2006, 12:37 PM   #5
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    Re: Side effects from statins ?

    Thanks for all the info, truly appreciate your time and any further info you may be able to share later.

     
    Old 05-19-2006, 01:40 PM   #6
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    Re: Side effects from statins ?

    Just got on the website ucsd statin effects study. Very interesting to say the least. In addition to being on liptor for several years then switched to vytorin, I had a fungus on the side of my mouth and was prescribed clotrimazole and betamethasone cream (which if I'm reading the info correctly) this along with vytorin can cause adverse side effects. MAN ! Who are we, the ignorant patients supposed to have faith/trust in ? I plan to get some coq10, maybe cut back lipitor from the 40 mg. Dr. has me on to 20 mg for awhile. Does that sound like an o.k. idea ? Know I should talk this over with my Dr. but as I said, she thinks I am making up how rotten I feel and that EVERYTHING she prescribes for me I don't tolerate well (guess I don't ) Thanks again.

     
    Old 05-19-2006, 02:35 PM   #7
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    Re: Side effects from statins ?

    I was also on Lipitor and thought I was losing it because I had no concentration and couldn't finish a sentence because of loss of words. I knew it was the Lipitor and told my doctor - he said, "that wasn't a side effect". I also told him I felt like I had the flu all the time - again "that wasn't a side effect". My liver test were all coming back with good results and all I did was complain to this doctor and knew he was getting tired of hearing it from me.

    But when it got to the point where I was becoming a zombie...I couldn't speak or walk normal.. withOUT his permission I stopped taking it and it took a long while but I got my sanity back!

    Sadly, I was left with PERMANENT muscle damage AND....I was taking COQ10 for 2 years before I tried the statin - so much for the theory of using CoQ10 while on a statin. Lipitor didn't work for me without side effects and the COQ10 didn't stop the Lipitor from the side effects. None of it worked for me. It may well work for others but NOT for me.

    I still take CoQ10 to help me heal from the damage but that doctor and Lipitor are both history in life.

    Last edited by AFH; 05-19-2006 at 02:53 PM.

     
    Old 05-19-2006, 05:36 PM   #8
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    Re: Side effects from statins ?

    Quote:
    Originally Posted by AFH
    I was also on Lipitor and thought I was losing it because I had no concentration and couldn't finish a sentence because of loss of words. I knew it was the Lipitor and told my doctor - he said, "that wasn't a side effect". I also told him I felt like I had the flu all the time - again "that wasn't a side effect". My liver test were all coming back with good results and all I did was complain to this doctor and knew he was getting tired of hearing it from me.

    But when it got to the point where I was becoming a zombie...I couldn't speak or walk normal.. withOUT his permission I stopped taking it and it took a long while but I got my sanity back!

    Sadly, I was left with PERMANENT muscle damage AND....I was taking COQ10 for 2 years before I tried the statin - so much for the theory of using CoQ10 while on a statin. Lipitor didn't work for me without side effects and the COQ10 didn't stop the Lipitor from the side effects. None of it worked for me. It may well work for others but NOT for me.

    I still take CoQ10 to help me heal from the damage but that doctor and Lipitor are both history in life.
    It is really sad when U complain to these drs. and they look at you like your the ONLY one that has any problems. I have tried every cholesterol drug out there and have not tolerated any of them, yet the drs. roll their eyes in disgust when I tell them. Hubby took statins for 7 years, and had all kinds of side effects, but neither of us had a clue it was the statins, all he was told was it was arthritis....STANDARD answer!! After I became quite sick on the statins, I purchased a computer, found this site and almost flipped when I saw others having problems as well. At least I knew I was not a nut job, and as hubby and I talked more and more, we realized all his problems were from statins as well. Luckily his cardio guy agreed he just couldn't tolerate them, as he tried him on many, so told him, if the quality of his life is in jeapardy, then it isn't worth taking them. Holy moley, a dr. with a brain in his head!!!

    My new dr. is a total numbers freak, and even though I have been keeping my numbers pretty well in tact, she gets totally bent out of shape if I am more then 5 pts. over. Next visit I intend to tell her, I am NOT taking anything and if it causes her to get so bent out of shape, then write in my file she suggested med. therapy but I was unwilling to take it. At least this way she can cover her own butt and hopefully get off mine! Like I told hubby, if she keeps this up, she is next on the TO GO list, as I am sick of these drs. treating U like a nut job if U can't tolerate meds.
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    Old 05-19-2006, 07:11 PM   #9
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    Re: Side effects from statins ?

    Even if your numbers are somewhat elevated if you want to prove it to yourself it most likely isn't going to cause any problems if you stop them for a 3 months to see how you feel , if you feel 100% better then you know it was the medicine and then it will be up to you to determine if it is worth it to feel like crap all the time or take the medicine and have a poor quality of life... You can also try things like cinnamon capsules to bring down your numbers and I can talk for them in that I have seen no side effects from taking them and it does bring down the numbers... you can read about the studies at the USDA website..

    Last edited by vipergg22; 05-19-2006 at 07:13 PM.

     
    Old 05-19-2006, 09:14 PM   #10
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    Re: Side effects from statins ?

    Quote:
    Originally Posted by AFH
    I was also on Lipitor and thought I was losing it because I had no concentration and couldn't finish a sentence because of loss of words. I knew it was the Lipitor and told my doctor - he said, "that wasn't a side effect". I also told him I felt like I had the flu all the time - again "that wasn't a side effect". My liver test were all coming back with good results and all I did was complain to this doctor and knew he was getting tired of hearing it from me.

    But when it got to the point where I was becoming a zombie...I couldn't speak or walk normal.. withOUT his permission I stopped taking it and it took a long while but I got my sanity back!

    Sadly, I was left with PERMANENT muscle damage AND....I was taking COQ10 for 2 years before I tried the statin - so much for the theory of using CoQ10 while on a statin. Lipitor didn't work for me without side effects and the COQ10 didn't stop the Lipitor from the side effects. None of it worked for me. It may well work for others but NOT for me.

    I still take CoQ10 to help me heal from the damage but that doctor and Lipitor are both history in life.
    Unfortunately Co Q10 does not stop all of the side effects of statins. It only helps with the side effects of lowered CoQ10...which include among other things, muscle problems in the heart.

     
    Old 05-19-2006, 09:39 PM   #11
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    Re: Side effects from statins ?

    Hi All,
    I too was on Lipitor for several years with no problem,then all of a sudden I started getting cramping in my feet,then my legs,then all of a sudden I developed such horrible pain across my upper back,my chest and down my arms. I thought I was dying. I went to the ER,they did a whole lot of tests,coming up with all kinds of things,well,to make a long story short, I've had my gallbladder removed,see a lung specialist,had a slew of tests then a cardiolgist did a catherization,found 3 blockages,put in a stent gave me more pills,and guess what?? I still have the pain!! Finally my primary told me to stop taking Lipitor for a month,my cholestral went to 294 and my LDL went to 187. He gave me Zetia,after not quite a month my cholestral is down to 231 and the LDL is down to 145,my triglicerides are at 110 and the HDL is 60. Doctor says to stay on Zetia because the numbers are coming down, I had some trouble for about 2 weeks with cramping,bloating and some stomach discomfort from the Zetia but then it went away,but then I've always been over sensitive to medication. The pain from the Lipitor will take much longer to go away,it's only been 2 months since I stopped Lipitor. I also have started on COQ 10. Thought this might help with any questions on Zetia

     
    Old 05-20-2006, 07:59 AM   #12
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    Smile Re: Side effects from statins ?

    Hi, I have kind of been down this same road. I was on Lipitor and developed muscle pain, weakness, some joint aches and some numbness in one foot. At times I was also somewhat lightheaded. My Dr. switched me to Zocor and that brought out even more problems and made the problems I already had worse.
    It has been about 4 months now and I am starting to feel better being completely off of the statins. I refused Vytorin and was put on Zetia. The Zetia, for me, has not caused any muscle aches....but, it has caused a lot of "digestive issues". I am seriously considering discontinuing the Zetia and just trying more natural methods to control my numbers.

    It is easy to see how anyone who has gone through something like serious statin side effects, could feel like maybe they could be dying...or at least a serious health problem. But, I learned a lot right here on this board and found a lot of encouagement also. It has taken time to get to where I am today (about 4 months) and will take more time to get to where I hope to be (like I was before the statins rocked my world).

    My gut feeling is that there are many people here on this board with better information than my Dr. seems to have. My Dr. say there is no relationship between developing GERD and statins. However, since it developed at the same time as my other statin induced problems, and I had never had it before in my life-I think he is wrong. It is also getting much, much better as my recovery continues.

    You are in great company, probably more than any of us could imagine. I think of all of those who do not have computers and are at the mercy of their doctors-good or bad. I wish you well in your recovery and try to remember not to become impatient with time. Trying to live tomorrow before you finish today can cause a great deal of anxiety....I know you can get through this just like many of us are.
    Imacarbuff

     
    Old 05-20-2006, 12:44 PM   #13
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    Re: Side effects from statins ?

    Imacarbuff,
    Have you been taking Zetia more than several weeks? I ask because I have had digestive problems as I mentioned,but they let up after a little more than 2 weeks as a pharmacist told me they could. If it hasn't been that long,hang in there for a while and see if it goes away. The Zetia doesn't bring the numbers down fast as Lipitor does but it at least works without the horror of Lipitor side effects. At least it's what I'm counting on even though it's only been 2 months off Lipitor and still suffering from that torture pill.
    Good luck,keep posting your results.
    Zimm

     
    Old 05-21-2006, 06:02 AM   #14
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    Re: Side effects from statins ?

    Dinney,

    It sounds like you are suffereing from depression. Have you considered that taking Xanax for several years could be much of your problem and not the statins?
    I knew one woman who was really going bonkers taking a neverending stream of Xanax when her doctor tried to wean her, she got withdrawal problems not to be believed.

    I've taken Lipitor for 8 years with no problems.

     
    Old 05-21-2006, 08:11 AM   #15
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    Re: Side effects from statins ?

    Quote:
    Originally Posted by finres
    The statin study at UCSD has found that 98% of the people on Lipitor have muscle problems. Liver test are NOT an accurate measurement of muscle involvement. This has been documented by doing muscle biopsies. I think you might want to talk to the people at the statin study. Search (UCSD statin study). Talk to Marvin.
    Finres,

    I am not trying to cast doubt on your statements, but I have never seen any results of the UCSD Statin Study in any of my searches on the internet. If you go to their home page, they say the study is closed and they are in the process of data analysis and paper writing.

    How did you get information about study results? It seems they have not published any yet.

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    Last edited by HubbleRules; 05-21-2006 at 08:13 AM.

     
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