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    Old 05-05-2015, 12:54 AM   #1
    Jetter13
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    Atenolol

    Hi everyone,

    This is my first post here. At 39, I had a heart attack 7 months ago, was put on a wide array of drugs - statin, ace inhibitor, blood pressure meds, aspirin, beta blocker - the whole lot. I didn't have high cholesterol or high blood pressure before the event.

    I've proved pretty damn sensitive to the lot, and have been culling them down so that now I am only on daily aspirin, brilinta and atenolol.

    I feel I am sick ALL the time, the gastro-intestinal pain and gas, head spins and general ill feeling are are making it so I'm basically non-functional most of the time - panic attacks too. With a young family and teaching, being off the ball isn't really an option.

    I'm down to 12.5mg of Atenolol - hoping to be off it soon. Has anyone else had similar symptons, and what's the weaning off 12.5mg like? I've seen threads with people coming off 100mg, but what about a smaller dose like mine?

     
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    Old 05-05-2015, 03:30 PM   #2
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    Re: Atenolol

    Well I just made a post yesterday asking folks how long my withdrawals may last after having tapered off 50mg Atenolol after being on it since Oct 14 for my thyroid blowing up and nearly making my heart explode.

    No one answered.

    From what I could find on discussions on Google, some people taper off and are just fine, they will actually stop at 12.5mg. Some people continue to have some lingering anxiety, palps, etc. as their body tries to adjust without the drug suppressing it. I went and cut the 12.5mg in half for a week before stopping completely on April 27th.

    Ideally I should have cut much slower than a month long taper but I just wanted it over with. My cardiologist said I could stop at 25mg without having to worry as to him 25mg is a tiny dose. But I am having withdrawal symptoms going on 10 days atenolol free. It's actually no worse than when I was tapering, just wish it'd go away already. I have **** to do.

     
    Old 05-05-2015, 11:56 PM   #3
    Jetter13
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    Re: Atenolol

    Thanks for the reply, good to know I'm not alone. I too just want it over... Been on 12.5mg for two weeks, and just want to stop. Interesting that the tapering symptoms are the same as total withdrawal! I hope it gets better for you soon, I've heard two weeks is the norm.

    Has anyone else had the gastro intestinal issues? I get this wave of nausea then a dizzy spell. That or almost constant gas which gives me chest pain... Goes away with antacid so it can't be the heart. Got so bad that I couldn't get to work today, can't have this go on.

     
    Old 05-05-2015, 11:57 PM   #4
    Jetter13
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    Re: Atenolol

    Thanks for the reply, good to know I'm not alone. I too just want it over... Been on 12.5mg for two weeks, and just want to stop. Interesting that the tapering symptoms are the same as total withdrawal! I hope it gets better for you soon, I've heard two weeks is the norm.

    Has anyone else had the gastro intestinal issues? I get this wave of nausea then a dizzy spell. That or almost constant gas which gives me chest pain... Goes away with antacid so it can't be the heart. Got so bad that I couldn't get to work today, can't have this go on. Heart rate is consistently in the 60s, that's not great I think.

     
    Old 05-06-2015, 07:00 PM   #5
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    Re: Atenolol

    Hi all, new member here.
    I stopped taking Atenolol after one month because of the side effects. I weighed 150-155 lbs most of my adult life. After a month on Atenolol plus 40 mg. of Lisinopril+Diuretic (because my night time BP was over 150/85) I gained 12 lbs. in one month (mostly my belly area) and I experienced Erectile Dysfunction. The ED went away 4-6 weeks after stopping the Atenolol , but my metabolism hasn't gotten to where it once was and I can't seem to lose the 12 lbs. I gained in just one month (even on a modest 2000 calorie per day diet). Also, my BP didn't lower down much. Some taking Atenolol who have ED have solved it by getting a prescription for Viagra. I chose not to go that path.

    Yes, gassyness and stomach weirdness (discomfort sometimes during or after my evening meal) goes with some of these BP meds. The same with feeling tired constantly (it almost feels like I have a mild hangover 24/7). These are what modern medicine calls "trade offs".

    I'm going to ask my primary doctor to refer me to a cardiologist altho I wonder if my penny pinching health plan will approve a cardiologist for my high BP.

    Last edited by Caslon; 05-06-2015 at 07:15 PM.

     
    Old 05-07-2015, 03:54 AM   #6
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    Re: Atenolol

    Well, after a hellish day with GI issues I stopped the Atenolol. Noticed elevated heart rate, but apart from that felt pretty good.

    Went to the cardiologist and he stopped the atenolol, aspirin and Brilinta and put me on one tablet of Plavix a day... One tablet! Loving that...

    Will post what the changes are!

     
    Old 05-07-2015, 10:12 AM   #7
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    Re: Atenolol

    Quote:
    Originally Posted by zhunt View Post
    Well I just made a post yesterday asking folks how long my withdrawals may last after having tapered off 50mg Atenolol after being on it since Oct 14 for my thyroid blowing up and nearly making my heart explode.

    No one answered.

    From what I could find on discussions on Google, some people taper off and are just fine, they will actually stop at 12.5mg. Some people continue to have some lingering anxiety, palps, etc. as their body tries to adjust without the drug suppressing it. I went and cut the 12.5mg in half for a week before stopping completely on April 27th.

    Ideally I should have cut much slower than a month long taper but I just wanted it over with. My cardiologist said I could stop at 25mg without having to worry as to him 25mg is a tiny dose. But I am having withdrawal symptoms going on 10 days atenolol free. It's actually no worse than when I was tapering, just wish it'd go away already. I have **** to do.
    Not sure if my problem is related to yours or not. I was on 100mg atenolol/day for the past 2 months after switching from metoprolol. Doctor cut me back to 50mg/day last week and I had a bad spell today with numbness in my arms, hands and a little tingling in my face with some confusion. The ER didn't think I had stroke--EKG was normal, blood work was normal, BP was normal and the cat scan turned up an old lacunar infarct on the left caudate nucleus (whatever that is). He said it could have been a mini-stroke from years ago or I could have been born with it. They don't feel it was from today. I was discharged a few hours ago and referred back to my PCP for a follow-up and possible appt with a neurologist to check on the lacunar infract.

    Any similarities?

    Last edited by scott1965; 05-07-2015 at 10:14 AM.

     
    Old 05-08-2015, 04:05 PM   #8
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    Re: Atenolol

    @scott it always helps to get peace of mind from a specialist but I experienced cold hands and feet, poor circulation to those areas while on atenolol. It is one of the reasons I stopped it. My pulse was in the low 50s and dropping near the 40s which is not normal for me.

    I also gained weight while on it, but that could be because I went from hyperthyroid to hypOthyroid in a matter of months. When I was hyperthyroid I looked like a crackhead, so skinny. Was in the 90lb range but also was puking all the time. Had to be on the atenolol to prevent my heart from bursting pretty much but when I went hypo and my thyroid started to even out, I gained some weight back and then some. Am 116lbs on 5'1" frame. I look bloated a lot. I'm guessing I will go back to my usual 110lbs when my thyroid straightens out and I get some time away from the atenolol...

    It's just that... I've heard of a small handful of people here and there whose bodies experience lingering issues after tapering off because the body is trying to adjust. When you suppress adrenaline so much and so long, I imagine it will snap back once the suppressant (in this case atenolol) is removed.

    At least that makes sense to me. I can't figure out why else I feel like I'm going insane, not sleeping well, nauseous, anxious, shaky, and have a headache 24/7. I'm day 12 off the atenolol and tapered from 50 to like 3mg then quit on 4/27. I really got a lot of relief by simply cutting down the dose at first but after I got below 25mg I started to just have withdrawals. My blood pressure seems to be evening out but my pulse is in the 90s a lot, especially on waking, it goes way beyond 100 some mornings lately. When I was on it I took it in the morning. I remember the first few days off, my heart pounded in my chest like a hammer jonesing for that atenolol to suppress it.

     
    Old 05-08-2015, 04:17 PM   #9
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    Re: Atenolol

    Well I've been off the Atenolol for 4 days now. Resting heart rate is still up, but the best thing is that the brain fog is gone. On atenolol I was constantly jittery, having multiple panic attacks a day and feeling unsteady on my feet. I'm still getting aches and pains, but now I just shrug them off.

    Stomach issues lessening, but still there - but I now think that's more the aspirin than anything else! Thank god that's gone.

    I've read that people gain weight on atenolol, I was the opposite, shed 6kg (about 13 pounds) in the last few months, that's without doing any exercise - atenolol wouldn't let me!

    Last edited by Jetter13; 05-08-2015 at 04:20 PM.

     
    Old 05-09-2015, 03:17 AM   #10
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    Re: Atenolol

    Quote:
    Originally Posted by Jetter13 View Post
    Well I've been off the Atenolol for 4 days now. Resting heart rate is still up, but the best thing is that the brain fog is gone. On atenolol I was constantly jittery, having multiple panic attacks a day and feeling unsteady on my feet. I'm still getting aches and pains, but now I just shrug them off.

    Stomach issues lessening, but still there - but I now think that's more the aspirin than anything else! Thank god that's gone.

    I've read that people gain weight on atenolol, I was the opposite, shed 6kg (about 13 pounds) in the last few months, that's without doing any exercise - atenolol wouldn't let me!
    I get the brain fog symptoms as well, plus the unsteadiness on my feet. At times, I wonder if the benefits are worth it. Doctor had me on 100mg/day, then backed me off to 50mg/day because I didn't like how I felt. Turns out, the pins & needles symptoms are a pinched nerve, he thinks. Now I'm on Naproxen for that. I keep taking more and more drugs it seems like...

     
    Old 06-11-2015, 08:42 PM   #11
    Jetter13
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    Re: Atenolol

    Well, it's been over a month since I stopped atenolol. I'm happy to say that "most" of the headspin issues went with it, and overall I feel much better.

    The GI issues, however, are another story. Turns out the aspirin that was supposed to be such a help as torn out my stomach lining leaving me with chronic gastritis. Not fun, I can tell you.

    Went to the cardiologist and he goes "oh dear"... might have to stop the aspirin. One month on and things are getting better. As seems to be the case with me I'm overly sensitive to PPIs and H2 inhibitors so just have to tough it out "drug free" and hope the stomach recovers a bit. Just goes to show that medications can sometimes cause harm as well as helping something specific.

     
    Old 08-25-2015, 10:28 AM   #12
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    Re: Atenolol

    I'm glad to finally find a post from someone withdrawing from atenolol after being put on it due to hyper-thyroid. I've been on atenolol for about 15 years. I didn't have high blood pressure when I was put on it, but Graves disease. Then, two months later (while already on atenolol) I had high blood pressure. However, I had also gained FIFTY POUNDS in that two months!! So I always blamed the weight gain, which I knew wasn't my fault, for the high blood pressure, but blamed myself for not losing the weight all these years. So I never asked any questions, figuring until I lost weight the advice would be to stay on the med.

    I never noticed symptoms such as brain fog, dizzyness, etc., but now am experiencing ever-increasing joint pain and come to find out being on bp meds for so long can cause that. So, I spoke to my doc who said quit the atenolol. From reading posts I decided to cut in half (25 mg to 12.5 mg) for a week, then stop. The half dose was great, but stopping I've had spikes, palpitations, etc. It's been just over a week on no atenolol. After reading more posts, I'm going to give it a month before getting concerned.

    My question to you is, how did you go from hyper- to hypo-thyroid? I irradiated my thyroid, which I was told was my only option.

     
    Old 10-27-2015, 07:13 AM   #13
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    Re: Atenolol

    Hi All, I am a 45 yr old mother of three and lead quite a hectic life with an 8-5 job as well as running around from football to running to sleepovers...you get it.

    It all started with my BP being slightly elevated for a couple days in March 2015 (148-91)I went for a check up and my doctor put me on 10mg Lisinopril which brought it down to 120/68 but I did not think it worked for me because 3 days after I had a full blown panic attack (BP171-106) heart palpitations, dizziness, tingling skin....feeling to pass out. Thought I had a bad reaction to the drug.

    I got taken off of that and got put on Atenolol 12.5mg . Well woop tee doo! I thought I was in heaven for a couple days. Everything was going really good, but gradually as it got in my system the side effects began.I have had 3 panic attacks while on it and I had almost every side effect listed. Dizziness, heart palpitations, blurry vision, tingling skin and my BP started going back up a bit because I was just always anxious that I would have another attack. I ended up in the ER with another panic attack that scared my co-workers and had them call 911.

    I visited my doctors office and spoke with a different doctor in the practice who looked at my file and did some Hmmmm'ing. I told him I needed to know what was going on as I was taking my meds as prescribed. He suggested Hypoglycemia (low blood sugar) (wow look up the symptoms)and went in depth about it. It made perfect sense. I never ate a proper b/fast if any at all so my body was over producing adrenaline to use as energy which in turn would make me have a very fast heart rate which led to me freaking out and raising my blood pressure. The atenolol's side effects were just adding to the situation with the constant dizziness and blurred vision etc etc.

    I started to simply....eat. Complex carbs, raisins, nuts....stuff to steady my low blood sugar. I started feeling much better as my body was not forced to over produce adrenaline anymore. I also started research and reading these threads about the effects of atenolol. It gave me the confidence to come off it. I came to the realization that I still got panic attacks while on the meds so maybe I could stop.
    I chose a weekend and got through the whole thing without it. Eating properly!! I will say I was petrified of a work day as I was sure I would need it....but I didn't. It's been 11 days and I feel great!!!! Just great!!!! My dizziness has stopped, vision is clearing up and BP is steady around 118-120/70-80.

    All I needed was to eat.....and eat properly. Who knew it would be sooo simple.

    Last edited by Administrator; 11-01-2015 at 04:26 AM.

     
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