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Old 12-05-2003, 08:06 PM   #16
willsmom
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Quote:
Originally Posted by zuzu8
Hi willsmom-
Yes, I indeed avoided a lot of things...walking made me feel frightened..Simply going out anywhere did. Like you, I looked great and it was hard for my friends to understand how lousy I felt. I never actually has brief "dizzy spells".I just felt unsteady, lightheaded, un-grounded, 'floaty" all the time. But no true "vertigo" which I will get to in a moment. I am not familiar with the term "post-urography test", sorry, but I failed the test where you are standing, then fold your arms, put heel to toe and then CLOSE YOUR EYES. I toppled over every time. I can't remember if I felt worse in the dark...I think so.
Now, here's what I know about dizziness...it may be more information than you'll ever need but I hope by the time this post ends you'll feel somewhat reassured.

Dizziness is a very rich problem because it contains pieces of internal medicine, a lot of neurology, a lot of otolaryngology [ear, nose, and throat medicine], and a lot of psychiatry.
By now your doctor has probably figured out which kind of "dizziness" you are experiencing. There are four distinct types: vertigo, lightheadedness, disequilibrium, and anxiety.

Type 1 -- VERTIGO

Vertigo is the feeling of motion when there is no motion.

It's a feeling common to every child who's spun himself around and around. But if it happens in the course of normal daily living, it is a symptom, one that accounts for about half of all "dizzy" complaints.

Vertigo means there is a problem with the vestibular system of the inner ear -- the part of the nervous system that tells you which way is down (the sense of gravity), and also lets you sense the position of your head.
There are two very common causes of vertigo:
Infectious agents, such as the viruses that cause the common cold or diarrhea.This harmless condition usually goes away by itself within 6-8 weeks, although drugs are available if it is severe.
Benign paroxysmal positional vertigo or BPPV. This is another harmless condition caused by movement of a calcium particle in the inner ear the size of a grain of sand -- from the part of the ear that senses gravity to the part that senses head position.You feel as if your head is turning when it isn't. A two-minute therapy done right in the doctor's office can move this particle ( called the otolith) back where it belongs and fix the problem.


Another cause of vertigo is Meniere's disease, a disorder characterized by long-lasting episodes of severe vertigo. Usually there are episodes of nausea and vomiting as well.
Other typical symptoms of Meniere's disease are tinnitus -- a roaring and obnoxious buzzing, ringing or other noises in the ear. Also a feeling of pressure or fullness in the ear. My stepmother had Meniere's and it is very treatable, once diagnosed properly.

By the way, you said something very interesting. You used the word "BOUNCING".
This is a classic symptom of something called DANDY'S SYNDROME.

Dandy's syndrome is when everything bounces up and down.One of the causes of Dandy's is from taking certain antibiotics that are toxic for the ears. Had you taken any antibiotics before this all started? The world bounces up and down and sometimes all you can do is put your head against a building and hold on. Even a heartbeat will can make the world jump.

THE GOOD NEWS IS that Dandy's syndrome usually improves and disappears over time.

Regarding vertigo in general, people with vertigo from a truly serious cause (now pay attention here! This is meant to reassure you!) also have other symptoms, the most important of which are double vision and slurred speech. It would be VERY UNCOMMON to have only vertigo and to have a very serious [central nervous system] disease.

Then we have the second type of dizziness --Type 2- LIGHTHEADEDNESS. ...which is basically the feeling that one is about to faint.

Like vertigo, everyone knows what this feels like because we all know what it's like to breathe deeply enough times to produce a sensation of lightheadedness. Usually, lightheadedness is caused by some surrounding circumstance impairing blood flow to the brain when a person is standing up.

Blame this problem on our ancestors who learned to walk upright -- putting our brain above our heart. It's a challenge for the heart to keep the brain supplied with blood -- and it's easy for this system to break down.

When blood vessels in the brain become dilated, or expand, due to high temperature, excitement or hyperventilation, alcohol consumption, or prescription medications such as antidepressants, a person can become lightheaded.

Most of the time, lightheadedness is harmless. It becomes more of a concern if it occurs in an older person, in a person not on suspect drugs, or if it happens while exercising.

The next type of dizziness.. Type 3- DISEQUILIBRIUM ...creates a problem with walking. People feel unsteady on their feet, like they are going to fall.

Disorders that can cause disequilibrium include:

A kind of arthritis in the neck called cervical spondylosis, which puts pressure on the spinal cord.
Parkinson's disease, or related disorders that cause a person to stoop forward.
Disorders involving a part of the brain called the cerebellum.
Diseases such as diabetes (when the diabetic develops neuropathy (loss of sensation) in their legs. This is not you obviously or you would certainly have told us!!
Disequilibrium is diagnosed when your doc conducts a simple neurological exam and watches you walk.

Then there's the all-inclusive nightmare--Type 4- ANXIETY

People who are scared, worried, depressed, or agoraphobic [afraid of open spaces]sometimes use the word dizzy to mean frightened, depressed, or anxious.

There's a fascinating "test" that very savvy doctors use to recognize this type of dizziness. They take the word 'dizzy' out of all the patient's sentences and replace it with the word 'anxious", "scared" or "depressed"...and the sentences suddenly make a lot more sense! This doesn't mean the dizziness isn't very real and experienced as one or MORE of the 4 "types".

But this leads me now to what they call MIXED-TYPE DIZZINESS:
This means that many people will have more than one type of dizziness. Which sounds like you.

It is common to see a person with vertigo from post-viral infection and ALSO from anxiety -- because vertigo makes them anxious -- so they have a combination of 2 types of dizziness. Or, they are dizzy because of near-fainting episodes because, for example, one doctor has put them on medications that cause dizziness, and this has made them anxious. A patient could have all four types of dizziness, but that would be REALLY rare.

Now the good news my dear I promise you, is that nearly everybody who is dizzy, WILL get better. This is because a person's sense of balance is a complex interaction between the brain, each ear's separate vestibular system, and the sense of vision. When one component breaks down, the others usually learn to compensate.
There is not a major chance of permanent dizziness. All the best experts now feel that there is no reason why the nervous system can't compensate for a broken vestibular system. People with vestibular problems due to physical "injury" (i.e. a real anatomical and physical change) nearly always compensate. So if you can't compensate when there is no physical injury, it means a problem of mental or emotional origin.

So, hang on kiddo...I'm sure the doctors will identify what's going on for sure and you'll soon be on the way to feeling much better. Try not to let the fear take over...This is not forever.

zuzu xx
Hey ZuZu,

Once again your reply is superb! I think you are so right i have two types of dizzyness the first form the vestibular problem and the second the anxiety.

They all tell me I will get better and you have so that lifts my spirits greatly!!

All that you describe is how I feel! Oh and the bouncy thing - its more me thats bouncy and off its like an extreme of the off balance feelings.

Nope I dont spin as such either........BUT I do have a strange sensation of movement if I stand stock still on the ground .......did you? All i do know for sure is the more I fear it the worse I get.

How did you get out and about and not just freak out? Did you have to force yourself?

I have brief spells of being dizzy - not movement - but plain dizzy in the head occasionally - dail I guess - short and transinet.

But the biggie for me is the imbalance - ick - I am not kidding you I feel off balance and unsteady. Also when it gets so bad with the bouncing I fee a sudden faint feeling - could be anxiety? I am not sure.

Can I ask you say felt imbalance etc but ine kind of vary I cannot tell if I am gonna feel fine, not right, really off or what day to day. Can u relate?

I soooooooooo appreciate your effort.

Ilia

 
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Old 12-06-2003, 10:58 AM   #17
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Hey zuzu, It sounds like you and I have a 95% match according to the symptoms you listed.....just out of curiousity, did you ever notice feeling different after eating meals or after eating certain things like caffeine, sugar etc.? Im very intrigued by your story and it gives me hope which is badly needed at this point 10 months in....anyway Im glad I had a chance to read your thoughts and comments and hope I can talk more with you....take care..thanks.. Fighter

 
Old 12-06-2003, 11:00 AM   #18
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Oh also zuzu, you mentioned something about maybe having to deal with emotional issues....is this something you did and started to find improvement after? thanks again. fighter

 
Old 12-06-2003, 11:55 AM   #19
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Re: weird, fuzzy, disoriented,light-headed, dizzy

WILLSMOM- Yes, I always felt like the earth was moving without me. Sometimes sitting still, if I just moved slightly, the sense of movement I felt seemed WAY out of proportion to what by body had just done.

I HAD to go to work every day, and tranquillzers helped during the worst days.
But when I had a choice, my inclination was to sit tight at home where I felt "safer". I was so terrified of losing my balance in a public place. Even though I actually never did fall over or truly lose balance, I always felt like I was going to.
Anxiety was probably THE factor in my case, although the whole thing might have been viral initially, which produced even more anxiety and it just became this montrous viscious circle. (Is it "cycle" or "circle"?.. I'm never sure!)

Like you, I could never predict what I was going to feel when. Although there were barely any times that I felt completely okay. That's where the fear of going out or doing things came in. If I KNEW that being in a dept. store (full of visual stimuli)would make me feel worse, I could simply have avoided shopping in busy places. But it was so erratic. When the doctors came back after all the tests and kept reassuring me that I was okay and that this would subside, that's when I started therapy. Got my anxiety under control, worked on a lot of unresolved issues in my life with a great therapist, began to really believe I was okay physically (and didn't have some catastrophic disease!) and slowly started to feel better and better.

When do you see the neurologist?

zuzu xx

 
Old 12-06-2003, 12:21 PM   #20
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Re: weird, fuzzy, disoriented,light-headed, dizzy

FIGHTER- Yes, once I went into therapy and started dealing with emotional issues, that's when I began to feel better. I had a lot of unresolved anger by the way, which I had no idea I had until I started "talking".... and I remember the therapist suggesting that it was "possible" that I had found (unconsciously of course) a way to deal with all this anger. "What better way", he said, "to take yourself out of the picture and not confront anything than to "feel dizzy" and unwell".

I don't remember foods affecting me either pro or con. They gave me a 6-hour glucose tolerance test I remember and it was normal.

Before therapy, I sure was taking a lot of Valium though (in the days before we knew how hooked you could get on it). And it helped in the moment. Would take the edge off the fear/and/or the sensations. But its effects were always only temporary.
Ultimately what helped was complete reassurance over time from my doctors that there was no physical disease, the tranquillizers (carefully monitored finally), and the therapy once a week. Finally didn't need the meds at all.

You say you're 10 months in....You will not necessarily be feeling this way for a long as I did but it took me about three years before I felt totally back to normal. That's not to say I felt the SAME every day for three years, just that it was an UPHILL process. Good days and not so good days...then eventually the good days became more and more frequent and "handleable".(if that's a word).
And ultimately it all went away completely never to return. This all happened to me when I was in my early thirties. I am now in my late fifties and going strong.

zuzu xx

Last edited by zuzu8; 12-06-2003 at 12:22 PM.

 
Old 12-06-2003, 01:46 PM   #21
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Quote:
Originally Posted by zuzu8
WILLSMOM- Yes, I always felt like the earth was moving without me. Sometimes sitting still, if I just moved slightly, the sense of movement I felt seemed WAY out of proportion to what by body had just done.

I HAD to go to work every day, and tranquillzers helped during the worst days.
But when I had a choice, my inclination was to sit tight at home where I felt "safer". I was so terrified of losing my balance in a public place. Even though I actually never did fall over or truly lose balance, I always felt like I was going to.
Anxiety was probably THE factor in my case, although the whole thing might have been viral initially, which produced even more anxiety and it just became this montrous viscious circle. (Is it "cycle" or "circle"?.. I'm never sure!)

Like you, I could never predict what I was going to feel when. Although there were barely any times that I felt completely okay. That's where the fear of going out or doing things came in. If I KNEW that being in a dept. store (full of visual stimuli)would make me feel worse, I could simply have avoided shopping in busy places. But it was so erratic. When the doctors came back after all the tests and kept reassuring me that I was okay and that this would subside, that's when I started therapy. Got my anxiety under control, worked on a lot of unresolved issues in my life with a great therapist, began to really believe I was okay physically (and didn't have some catastrophic disease!) and slowly started to feel better and better.

When do you see the neurologist?

zuzu xx
Hi Zuzu,

Its gets weirder! I get that too when I was majorly hyper over this (like really soooooo scared) I got what you describe like movements feel WAY out of proportion to what I have just done! its so strange! but thats nasty symptom has subsided.

In fact when I think about I get this symptom worse when I am out and about - I can be sitting at a table and all of a sudden I think hmmmm something is so off and if I move the feelings of movement get worse.

I find dept stores hellish too.

I have scared my self so badly with all this mess and I find that I can get myself into such a state when I am out that I feel sooooooooooo bad I feel like I am going to pass out. But the suddeness of feeling like I am going to pass ot can be so sudden- I end up more frightened and scared to go out at all.

Like you say the feeling is off being off balance, ungrounded and unsteady/ Like you I know my symptoms had a physical origin but like you I am thinking is it now anxiety gone haywire. I know I am anxious as my thoughts are in and on this subject 24/7.

I am not sure about emotional issues other than the main one which is that my whole life seems on 'stand by' and like I just cannot be normal. Its so weird and annoying and upsetting.

Like you I have never ever lost my balance either in public or at home - I look just fine and like you it was the fear more than anything that has me in this state of............what if.

Hmmmmmmmmmm this has me thinking so much. BUT from all the sites I have looked at about anxiety I find no description of our symptoms - it keeps saying unsteadiness but nothing that lasts 24/7.

As you say my symptoms are all over the place sometimes I think I feel almost normal and then in the next moment feel ghastly. I feel off then not then off then not........driving me nuts.

I find myself of constant - how am I alert - if you know what I mean - constantly monitoring the way I walk how it feels etc. I got in a merry state today cause I thought heck whats normal then. i watch other people and think how do u walk without noticing it!! crazy i know.

You say you had this for 3 years in all well thats not so long really if its an anxiety thing...........so well done for getting over it in the end. It obviously had a big impact on you since u remeber it from so long ago.

Its very kind of you to help me out!

I meant to say would the feelings ever reach a high point when u felt utterly horrendous like so off its unbelievable - I see to get this too occasionally and it scares me. Of course I am walking normally.

Oh I meant to say if there was nothing physically wrong then how why did u feel so off - I know anxiety is the reason but how exactly.

Also did you ever feel small amounts of lightheadedness like u may pass out of u got very off balance? did you feel better if u just lay down or sat down as I seem to. Othertimes sitting down can make me feel weird too like I sense motion but there is none.

Most odd. gee i so pray I can get over this,I went out for dinner tonight and just walking down the stairs and out the door was a big deal! were u really that bad?

Seeing the neurotologist this month hopefully b 4 xmas!!

Thanks,


Last edited by willsmom; 12-06-2003 at 01:51 PM.

 
Old 12-17-2003, 09:59 AM   #22
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Re: weird, fuzzy, disoriented,light-headed, dizzy

It sounds to me like you have Orthostatic Intolerance or Neurocardiogenic Syncope. (Look these terms up on google, there is lots of info out there). This is LOW blood pressure that goes too low and causes among other things: dizzyness, lightheadedness, difficulty breathing, nausea, cold & clammy skin, or feelings of being too hot, anxiety. If it goes too low, you faint. If this is what you have, there is a thread under the Rare Diseases titled "neurocardiogenic syncope" you should look at.
The next time you feel symptoms, you might try laying down with your feet raised up. This gets the blood back to your brain.
You can't always go with what your BP is at the doctors office. Some people with this have normal BP most of the time, and some people also get the "white coat" syndrome where there BP is higher at the Dr office than normally. I have a home BP monitor and mine goes down to 75/50 when I'm feeling symptoms (lower if I actually faint), but most of the time its around 115 and is usually much higher at the doctors office. You should probably be evaluated by a cardiologist and have something called a tilt table test done. This is a special test designed to induce symptoms while they measure BP and heart rate. If you are feeling "anxiety" you may have tachycardia (fast heart rythym).
Maggie

 
Old 09-10-2004, 05:09 AM   #23
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Smile Re: weird, fuzzy, disoriented,light-headed, dizzy

I have been having a strange experience with a fuzzy head/ slight dizziness feeling. It has happened for the last 11 months and no doctor can pinpoint it. I feel lightheaded and fuzzy in my head, and it comes and goes. There is no reason for it to start, ie. it can be morning, afternoon or middle of the day and lasts a few hours. I feel slightly disoriented and 'unreal' as if everything happening around me is a dream, yet I am alert. I sometimes think it affects my memory or makes me vague, but I remember everything, I just feel weird. Sometimes I can't feel my body, but it's in a kind of mental state. I am not stressed or under any pressure. I also sometimes get a physical feeling in my brain that there's a pressure in the middle of my brain, like I can actually feel my brain in my head, but I have not had any headaches at all. Sometimes if I shut my eyes, then open them I feel more 'real'. I am 33. I have been through thinking this is a physical problem, then it seems emtional, then mental. But all blood tests are fine. I don't lack iron or any vitamins. The only other thing is that I have taken preventative medicine for asthma for most of the last 20 years - maybe this is a side effect? It really annoys me sometimes.

 
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Old 09-10-2004, 04:44 PM   #24
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Do you take any kind of BP med?
I had similar experence with high dose of an ACE.
Cass

 
Old 09-11-2004, 02:51 PM   #25
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Re: weird, fuzzy, disoriented,light-headed, dizzy

I can relate. My symptoms like this are tied to anxiety attacks and hyperventilation BUT for a time they became very bad. The doctor said that I had fluid in my ears and after antibiotics it cleared up. Now I am just back to having it when I am anxious.

Last edited by DMGW; 09-11-2004 at 02:52 PM.

 
Old 04-03-2005, 04:46 PM   #26
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Exclamation Re: weird, fuzzy, disoriented,light-headed, dizzy

hi guys, i am asking for some advice....i am only 17...very anxious

same similar feeling as i seem to be reading on this post.

however, i often feel very tired and totally drained and my head feels heavy and just exhausted.

I went to doctors, had blood tests, they came back clean so he is saying its a viral infection but i had the same thing 3 months ago and it has come back, it went away after about 6-7 weeks the first time and now i feel like crap again. I had to have my ear siringed due to a lot of wax (3 months ago) and it has come back again now has and still is very itchy all the time and waxy...could this be linked with how i feel?....any replies would be a great help....cheers

 
Old 05-08-2005, 04:35 PM   #27
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Quote:
Originally Posted by Bugsy
Hi guys!
Thanks for the responses. My doctor just told me to take prilosec otc once a day for my heartburn. I'll try that. My main concern is my heart and my bp. Oh, TAH is total abdominal hsyterectomy. I had everything out. I tried to take the lowest dose of ERT, but it was causing headaches and leg cramps. I never could take birth control pills either because of the estrogen. I have gained weight since the hyst. Maybe that's causing the elevated bp. I think I need to find another doc. I've been taking Paxil off and on for a few years now and it seems that whenever I go to the doctor with a complaint, they think it's all due to " my depression" Their answer is to up my dosage for awhile . I need to go to a larger town with more choices for doctors and not even tell them that I've been on antidepressants. Maybe they won't look at me like I'm just crazy and really listen to me! I don't know, it's really aggravating!Thank you both for listening to me and giving me advice. That's more than my doctor seemed to do for me. Evelyn


Hey Evelyn I hope u still read this website.. I know how u feel.. I feel dizzy but noone listens I have wrote to the dizziness 24/7 and dizzy or vertigo one.. U can read it.. alison

 
Old 05-08-2005, 05:07 PM   #28
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Re: weird, fuzzy, disoriented,light-headed, dizzy

[QUOTE=willsmom]
Quote:
Originally Posted by zuzu8
FUZ- When I was in my mid-thirties, I went through a couple of years of feeling lightheaded, "dizzy-ish", just weird.
I felt not "grounded", unsteady, even though my gait was perfect. I always felt "tippy", like I MIGHT lose my balance, but never did.
One of the best descriptions I could come up with was a feeling of "sea-legs", as if I'd just stepped off a boat. The earth seemed to be moving underneath me inappropriately.
Regular doc ran a battery of tests, all bloods and urine normal. Neurologist gave me a thorough work-up and found all systems A-Okay.
I had a brain scan and tomographies of my inner ear...eveything normal.
The sensations alone made me fearful and anxious and exacerbated everything.
It was a vicious cycle. The sensations lead to fear which lead to more feelings of "tippiness" which lead to even more anxiety and on and on.

Low doses of tranquillizers helped and I also saw a therapist for a while who helped calm me enormously, because by this time I was sure I had some occult disease that everyone had missed. Along the way, I discovered I had some pretty important issues in my life that I was avoiding which I really hadn't been aware of.

PLEASE REPLY!!!!!!

Oh my lord,

This is what is wrong with me!! its so frightening! may I ask did you actually feel like your balance was off and like to steady yourself. I get that same the ground is moving thing too under my feet - its so scary!! I can get myself all into a state and I am at the stage where I dont want to go out incase it gets worse. I have also had this vile feeling that i am going to pass ot but never do. Like you I am so SCARED of the symptoms I am in a vicious cycle too. i am seeing a neuro this month and am praying for some answers. i have had an mri which is fine. I have had a posturograph tests too which shows that my balance is not normal for my age and indicates some inner ear issue. But its weird my symptoms are there 24/7 were yours? and did you find that they vary in intensity? how did you feel if you stood still? could you feel movement?So funny bout the occult disease that is sooooo where I am at with this deal. Did it make you nervous to walk and all? its funny I look perfect but feel like hell.
My life feels like one massive - I cannot do that ot go out or function as I feel so strange!!!!!!!

Thanks!!




Well I hope u visit this.. Did u all get any answers yet.. if so I need some thanx alison

 
Old 05-08-2005, 11:24 PM   #29
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Some of this is sounding familiar to what Ive been going thru recently, except for one thing that has been bothering me the most: When I am going to sleep, my ears start to "pop" to the point where I cant stay asleep!

This has been happening almost every night lately, and its driving me insane! It started out just doing it here and there, and the last time I went to my docs office they did the Tilt Test someone just mentioned a few posts back, the "lay down, check your BP" thing and said I was fine--but there was just one problem: This doesnt happen to me until I am actually starting to doze off, like when your breathing changes as you fall asleep. Im not sure what else that could mean, but the fact that Ive read a few things like this post here makes me wonder if my BP could be changing after I have been laying down awhile, and start to fall asleep? Im not sure what to do with this, but it is getting me to the point where I hate laying down to go to sleep lately b/c the "Ear Popping" is getting worse

Last edited by Phlox; 05-08-2005 at 11:25 PM.

 
Old 05-09-2005, 06:13 PM   #30
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Re: weird, fuzzy, disoriented,light-headed, dizzy

Quote:
Originally Posted by Phlox
Some of this is sounding familiar to what Ive been going thru recently, except for one thing that has been bothering me the most: When I am going to sleep, my ears start to "pop" to the point where I cant stay asleep!

This has been happening almost every night lately, and its driving me insane! It started out just doing it here and there, and the last time I went to my docs office they did the Tilt Test someone just mentioned a few posts back, the "lay down, check your BP" thing and said I was fine--but there was just one problem: This doesnt happen to me until I am actually starting to doze off, like when your breathing changes as you fall asleep. Im not sure what else that could mean, but the fact that Ive read a few things like this post here makes me wonder if my BP could be changing after I have been laying down awhile, and start to fall asleep? Im not sure what to do with this, but it is getting me to the point where I hate laying down to go to sleep lately b/c the "Ear Popping" is getting worse


maybe u can do the sleep study.. I feel dizzy liek I am tilting on a daily basis.. very frustratin..

 
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