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  • Flowergirl re: b/p?

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    Old 06-07-2007, 07:36 PM   #1
    famnd
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    Flowergirl re: b/p?

    How's your b/p doing with not taking labetalol? Is your breathing better? Fam

     
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    Old 06-07-2007, 09:32 PM   #2
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    Re: Flowergirl re: b/p?

    Hi Fam!

    Quote:
    Originally Posted by famnd View Post
    How's your b/p doing with not taking labetalol? Is your breathing better? Fam
    Thanks for asking!

    My breathing is almost back to normal! What a relief that is! Thank goodness. It looks like the doctor was right to blame the meds for my breathing difficulties.

    I am still struggling with the withdrawal from Labetalol. My headache has been worse, I had an erratic heartbeat several times (very fast, racing, then slow, then fast again) and my face turned beet red (very flushed) on several occassions. I was dizzy all day yesterday and had to spend most of it lying down.

    Just saw the doctor today and he said not to worry re: irregular heartbeat-normal with beta blockers. (???) He did not give me a chance to mention my other withdrawal problems. Hopefully, they won't last much longer.

    Got a new rx today for Micardis. It's an ARB. The pharmacist just about fell over when I handed over my rx pad. He could not believe I was back for yet another drug from the same group I'd had such a bad reaction to. I took one earlier, and, so far, so good. It is just as expensive as Diovan. If all goes well, I'll be able to return to work in a few short weeks. My blood pressure has been in the 160's/100's while off Labetalol. The remaining meds I am on do not provide an even 24 hour coverage. As a result, I experience morning and evening surges in BP. This new drug takes up to 4 weeks of daily use to start working. It gives 24 hr even coverage and cardio protection better than beta blockers (supposedly), with fewer side effects.

    Flowergirl

     
    Old 06-08-2007, 08:20 PM   #3
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    Re: Flowergirl re: b/p?

    I can't believe your systolic is only 160 with lebetalol withwdrawal. Over all you are doing better than I'm sure I would if I tried to withdraw so quickly. Of course, I'm on 1800mg/day. I never heard about a irregular heartbeat with a beta blocker??? I hope you're to able to take this new drug. I'm feeling real good on my new med schedule. My b/p is settling down & hasn't been too high. I'm waiting to take my 900mg of Lebetalol until about 11 or 12Noon. This way I don't get that tireness that prevents me from getting stuff done plus the muscle stuff. I almost feel normal . But it means I'm not taking lebetalol 12 hrs apart. Had a new Dr's appoint. (GYN). When I called for an appointment they said there had been a cancelation so could I come right in. I jumped at the chance since I would have to wait at least 2 months with any other Dr. & then have the hassle about insurance (even though I have 3 forms of med insurance plus I'm willing to pay cash). Go figure!!! Well, I hadn't taken my lebetalol yet so even though I took an extra 200 mg my b/p shot up to 199/75. Filling out all the paper work didn't help. Also, that morning I had had a run in with my neighbor who insists on letting his dog (golden retriever) have the run of the neighborhood. I've talked to he & his wife many times telling them that this situation is a diaster waiting to happen cause the dog runs in front of cars which could put those of us who walk at risk. Luckily, my new Dr. understood & so did the assistant. Surprise!!! Suprise!!! I had to go back on Wed because they forgot to put the pap in the proper solution. This time I told them NO B/P cause I did not take extra meds. I just told them my b/p at home. I really hate having to take extra meds so they can have a decent b/p to write down. BTW my diastolic that day was 49- I read that your's goes low too.
    Well, I think I've taken care of the dog situation cause I kept the dog in my yard this morning when he walked home with me & my dog. Then the dog control officer picked him up. The owners will have to pay a big fine. Maybe that will motivate them. I would have done that a long time ago but I was told before that all they could do was write a letter. I really enjoy my walk & don't need the extra stress & the dog deserves to be properly taken care of. Fam

     
    Old 06-08-2007, 11:01 PM   #4
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    Re: Flowergirl re: b/p?

    Hi,

    thanks for your post.

    I am wondering why the docs put you on such a high dose of Labetalol! I just read a somewhat troubling article about the beta blockers, CCBs and bradycardia. My dose of Labetalol was 800mg/day (daily max is 1200mg) but I was (still am) on other BP lowering drugs as well. Why was it decided that your med of choice should be such a high dose of Labetalol? Why not a combo of three or more drugs instead? Is there another condition (thus a good reason) requiring the beta blockers? Even so, I still think it's WAY TOO MUCH!

    I think, reflecting on what I just read, that my SOB problems might have been caused by being on both Labetalol (large dose) AND a CCB. I am glad to be off of it. My new/old problem now is the potassium issue as I am now on THREE medications that increase its levels. That is making me very uneasy. It seems that one just can't win!

    When it came to choosing another BP med, it was a tossup between a cardio-selective beta blocker and another ARB. I should mention that the Micardis drug sheet lists respiratory tract infection and sinus congestion as possible side-effects.....grrrr...something I can do without!!! I hope I'll have no problems with this drug as I'd rather not go on Atenolol. Should there be a need for another drug, (if this one does not work out) I might as well just go back on a lower dose of Labetalol.

    Fam, you'd feel a lot less tired on a lower dose of Labetalol. I just remembered you mentioning an allergy to other BP meds, if my memory serves me well (it doesn't on some days)!

    Sounds like you've kept very busy with your walking, doctors' appointments and other activities. I am glad you are feeling better, now that the summer is fast approaching, and more energetic on your altered med-taking schedule.

    Flowergirl

     
    Old 06-09-2007, 03:31 PM   #5
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    Re: Flowergirl re: b/p?

    I checked my Nurses' PDR (drug book) & my pkg insert re: max dose of Lebatalol. Both say 2400mg. Do you remember where you read that the max dose is 1200mg? I can't go lower because I don't have any other drug options. I have so many restrictions. To start off, I can't swallow capsules or take drugs with the Yellow dye. Then there's a whole list of drugs which can cause drug induced Lupus which Cozaar caused to my body. HCTZ is on that list but it is labeled low probability of causing it. We had considered taking two diuretics but after researching it, I decided don't want to go down that road. As you know my HCTZ is not availiable in the US & comes from China. So I just read that the man in charge of drug/food safety was sentenced to death in China because he took approved fake drugs etc. & bribes. I guess I'll have to take another diuretic if HCTZ stops working or causes health problems because it is tainted. Maybe a miracle will happen & the researchers will find the cure for HBP. Fam

     
    Old 06-09-2007, 07:01 PM   #6
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    Re: Flowergirl re: b/p?

    Hi Fam,

    [/B]QUOTE]I checked my Nurses' PDR (drug book) & my pkg insert re: max dose of Lebatalol. Both say 2400mg. Do you remember where you read that the max dose is 1200mg?[/QUOTE]

    When I was really, really sick with side effects from my various drugs I figured my Labetalol dose was too high. I asked my doctor about the maximum daily dose, and was told I was still within the daily recommendation, with 1200mg being the max. Went to doublecheck with the pharmacist who looked it up for me and came back with the same answer. (1200mg). They were my primary source of information. I also have hypertension treatment guidelines here, which have (among many other things) tables of all of the available drugs for hypertension on the market today and the daily (usual dose/day) for each. Labetalol is listed as 200-800mg/day. I guess as with anything else there are special circumstances. Severe hypertension and an allergy to fillers in pills certainly qualify. My only concern is the long-term effects of such a high dose. I know how sick I was on 800mg. Having been off of that drug completely for a week I feel almost normal again. It's just incredible, I have not felt this good in AGES. I can walk up the stairs, vacuum without stopping every two minutes...etc.etc. I can do anything I want to do (well, almost) without having to wait for tomorrow morning and doing it BEFORE taking the pills.

    If you have to take this dose, split it into THREE increments and then you won't get as sick as you normally do.

    If you decide to go with the two diuretics,your optimal dosage of Labetalol will be lower and will have to be adjusted accordingly. I read somewhere that Spironolactone is not nearly as effective as the others, so why am I on it? I asked several doctors several times to switch me to other diuretics(mostly because of my fear of accumulating too much potassium in the body). I also asked the cardio to make the recommendation in his report. Never happened. A question to ask my doc.
    Judging by your BP readings you mentioned, your BP is not well controlled. Well, mine is not exactly,either. It's unstable in the best of times. I am really excited about this new drug (for me) - day two and no problems so far. I hope you will find something that will work for you!

    Quote:
    list of drugs which can cause drug induced Lupus which Cozaar caused to my body. HCTZ is on that list
    I'll have to read up on that! I am sorry this has happened to you. Plus your knee and joint problems from the meds. It's just so scary!

    I saw an eye specialist just a couple of hours ago and she confirmed the damage. Most of the vessels in my eyes have hardened. She told me it had happened over a long period of time.
    One thing puzzles me: her recommendation was taking ASPIRIN as a preventative. I am supposed to discuss it with my doctors.(I don't think it will go into her report.) I am now wondering if she meant I should consider taking it for my eyes, or for something else. I don't really want to take it but it will bug me now (not knowing what she meant).

    Good luck with finding a new supplier/maker of your HcTZ.

    Flowergirl

    Last edited by flowergirl2day; 06-09-2007 at 07:02 PM.

     
    Old 06-09-2007, 08:53 PM   #7
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    Re: Flowergirl re: b/p?

    I'm surprised that you are not on aspirin. Every Dr. I have seen has made sure I was on aspirin to prevent a stroke or heart attack from a clot. But I've read if you are younger than 60 plus, it isn't as effective. Your suggestion to take lebetalol would be a good one except I've already done that. In fact when I first tried it, I was taking it every 3 hrs & slowly tritrating to the final dose. Taking it like that just means I'm tired & have muscle problems all day instead of having the worst problems twice a day. What I'm doing now is eating & then taking a nap for 2-3 hrs. Taking it at noon works better cause the worst symptoms occur while I'm sleeping. Then I can swim for 1 1/2 hrs-luckily it doesn't affect my swimming but if I tried taking a walk outside it would be hard. My evening dose isn't as much of a problem because I'm just relaxing etc. You are right my b/p isn't controlled but it is what I have to live with because I'm not willing to risk further damage to my body from drug side effects. My present Dr. said she would not support any change in my meds or trying a new med after what she has gone through with me. She mentioned that when another Dr. suggested some change. For the past 4 yrs, I have done so much reading & research on hbp to find a solution. On the positive side, although I have a strong family history of HBP, my relatives have lived long healthy lives with no strokes until the late eighties even my aunt with the same type of b/p as me. Losing weight is something I'm focusing on because that is something that is possible & just might result in a decrease in my b/p. My son's b/p went back to normal from losing 30 lbs. I'm 163 lbs-the most I'm ever weighed even when pregnant with a 10.5 lb baby!!! I need to find a good support group for weigh loss. Thanks for the help. Fam

     
    Old 06-11-2007, 08:39 AM   #8
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    Re: Flowergirl re: b/p?

    Flowergirl,

    Do you still have the burning in your chest after getting off Lebetalol?
    Sorry to hear you still have the headache. My side effect headaches (at different spots on my head) lasted at least 2 wks & maybe 3 wks after stopping norvasc ( & that's a drug that can be stopped suddenly.) Fam
    Fam

     
    Old 06-11-2007, 09:22 AM   #9
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    Re: Flowergirl re: b/p?

    Hi Fam,

    I still experience occassional periods of shortness of breath and when that happens, my stomach is affected also (as before). I had the acid come up again just last night. I stopped taking the Nexium a few days ago. (I cannot afford all these drugs and the side effects are nothing to write home about, either.)

    I now have a "stuffed throat" feeling (a scratchy sock down the throat is how I'd describe it) as I had in the past. My ACE cough seems to have come back with full force and my sinuses are not quite right. I am hoping I am getting a cold. Nothing I could not learn to live with again, as long as I can breathe properly!

    On the upside, my head hardly hurts this morning, so I think my headache is retreating. My BP was 167/98 on awakening. I now split my dose of Ramipril and take 10mg in the a.m and 10 m.g. in the p.m. in hopes of bringing the numbers down a little but it does not seem to work that way. I'll just have to wait for the Micardis to kick in (up to 4 weeks). I hope my respiratory system will not be affected.

    Thanks for asking, Fam!

    Flowergirl

     
    Old 06-11-2007, 07:49 PM   #10
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    Re: Flowergirl re: b/p?

    I remember waiting a month for HCTZ to kick in so I can relate to your waiting period with Micardis plus we both have to be thinking about side effects!!! I'm taking 100mg AM dose of Lebatalol & moving it to my evening dose & see how that goes. I figure I need my greatest dose of meds in the am. Not to worry my Dr.approves of my experiementing-she knows I won't go overboard. When I first started Lebetalol she was cautious until she saw how resistent my b/p was-the she used to laugh & say: we don't have to worry about your b/p going too low . I wonder if the acid reflux you had caused your trachea to spasm from the acid. That has happened to me a few times. I couldn't take a breath-scary. Not being able to breath properly is the worst side effect/symptom in my opinion. Hope tomorrow is a better day. Fam

     
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