It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

High & Low Blood Pressure Message Board

What type of doctor should I be seeing for a potential pheochromocytoma?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 01-28-2009, 11:05 AM   #1
Junior Member
Join Date: Nov 2008
Location: Richmond, MO, US
Posts: 11
nfwren HB User
Question What type of doctor should I be seeing for a potential pheochromocytoma?

My doctor suspects that I have a pheo. Originally she sent me to a urologis because they thought it was on my adrenal gland, however, it is not. the doctor and urologist still strongly suspect a pheo just in a different location and the urologist has now ordered some type of nuclear medicine scan that no one can seem to explain to me and now I'm wondering of since this no longer has anything to do with my kidneys or adrenal gland is a urologist the right specialist to be seeing. These specialists are at a University Hospital(because that is where I was told to go however, it is a long way from home and it is also not in my insurance provider area which is causing major problems and delays getting prior approval etc. Are we taking the right steps here?
Jenny wren

Sponsors Lightbulb
Old 04-22-2009, 07:52 PM   #2
Senior Member
Join Date: Mar 2008
Location: Canada
Posts: 102
dannyp HB User
Re: What type of doctor should I be seeing for a potential pheochromocytoma?


Is it a MIBG scan?

Old 04-22-2009, 08:18 PM   #3
Senior Veteran
Join Date: Jul 2008
Location: Canada
Posts: 999
harka HB Userharka HB Userharka HB Userharka HB Userharka HB Userharka HB Userharka HB Userharka HB User
Re: What type of doctor should I be seeing for a potential pheochromocytoma?

Pheochromocytomas are generally investigated and diagnosed by either a general internist or an endocrinologist--both are specialists in internal medicine. The scan they are talking about is likely an MIBG scan which is a nuclear scan that can be used to "find" a pheo in someone suspected of having one.

When diagnosing someone suspected of having a pheo, they will first try to prove biochemically you have it by testing your urine and plasma for evidence of "metenephrines", which are compounds produced by the pheo. After this is done, since >80% of pheos happen in the adrenal glands, a CT scan of the abdomen will be done to find out which adrenal is affected. If this is negative, the next thing that can be done is either a CT scan of the chest (sometimes pheos can reside there) or by doing an MIBG scan. This is a nuclear scan whereby a radioactive analogue of norepinephrine is injected to the body--this is taken up by the pheo and it will glow on a special type of picture. Once this is done, the area which lights up on the scan can be reimaged with a CT or MRI and then the surgeon goes in and takes it out.

Last edited by mod-anon; 04-22-2009 at 10:24 PM. Reason: Please use the Quick Reply button instead of Quote Reply.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
has anyone ever had surgery to remove a pheochromocytoma? nfwren High & Low Blood Pressure 28 06-08-2010 02:02 PM
What kind of doctor? SRJ Thyroid Disorders 30 08-18-2008 05:48 PM
I don't know what is wrong with me????? mindyr11 Open to All Other Health Topics 6 05-06-2008 05:20 PM
Successfull Lung Surgery -- NOW WHAT?? The_Shooter Family & Friends of Cancer Patients 13 08-08-2007 01:02 PM
what i have researched overitall Herpes 1 04-24-2007 12:46 PM
What is my doctor thinking?? SHMILY Thyroid Disorders 8 01-17-2006 08:15 AM
What is soma? Chaddyfriend Pain Management 19 11-24-2005 11:58 AM
What do you suggest - a little feeback, please Hiya Relationship Health 71 10-15-2005 03:49 PM
ENT visit, what a joke, joke, joke.... jtiegs Inner Ear Disorders 10 11-27-2003 06:10 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:49 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!