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  • PCOS-diagnosed last year by 2 doctors, now the new one is saying this is not PCOS

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    Old 11-25-2013, 05:23 AM   #1
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    PCOS-diagnosed last year by 2 doctors, now the new one is saying this is not PCOS

    Hi All,

    I'm 27. Currently 205 lbs. Been on Metformin for a year, no other meds.

    - had been dealing with facial hair, thicker than average hair on my body and weight issues since I was 12-13.

    - 6 yrs ago I did permanent hair removal on my beard and mustache area for almost 2 years with absolutely no results.

    -got married and immediately got pregnant so I didn't worry about these issues for years.

    -my symptoms have worsened more and more. Now I have to remove my facial hair twice a day.

    The blood test result showed high testosterone so I was referred to an endocrinologist. The endo said he assumes it is PCOS, they did blood tests again, nothing outstanding, just mildly elevated testosterone then I was sent to a GYN to see if I have polycystic ovaries which I do have. So I was diagnosed with PCOS at the age of 26 in Sept, 2012 after many years of not knowing what is causing my excess hair growth, hair loss on my scalp, inability to lose weight, very quick weight gain.

    Now my problem is that I just moved to a new place and my new endo did even more thorough blood testing and sent me to a new GYN. The GYN saw the polycystic ovaries and when I went back to my endo, she said my blood test results are perfect, I have no thyroid problem, no hormonal imbalances, both my free testosterone index and regular testosterone are in normal ranges according to this new result. So she talked to my GYN on the phone and she said she cannot confirm my former diagnosis of PCOS with completely normal testosterone levels and ovulation present.

    My periods had been completely normal up to the age of 24. I have never taken BC pills or anything else. Since then, they haven't been that regular and my periods often start with brown discharge for the first 2 days. She said if I had PCOS, my periods would have never been regular but that's not the case and I even have a 5-year-old child. Therefore, she said I have no endocrine issue but MUST keep taking Metformin.

    My question is: how can a woman who has to remove facial hair twice a day have normal testosterone levels? I mean this is something you see on your face, it's not a delusion. I have a beard basically. My new endo said fat people store more testosterone, I would not have this if I was thin. But I said I was just mildly overweight as a teen, young adult and I had facial hair issues already. I did permanent hair removal for 2 years, if I didn't have any medical problems, it would have worked, wouldn't it? When I pointed out my androsterone level is high, she said that's just because obese people often have that. She said I probably inherited this hairiness from someone in the family and I gain weight easily because that's how my body is.

    I am confused as to what to think now since she said I have to keep taking Metformin. If she thinks I have no PCOS, why offer Metformin? I am so tired of going to medical appointments. What should I do now? I want to get rid of this facial hair and the excess weight I have even though I eat so clean.

    Last edited by Http86; 11-25-2013 at 07:51 AM.

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    Old 12-01-2013, 08:05 AM   #2
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    Re: PCOS-diagnosed last year by 2 doctors, now the new one is saying this is not PCOS

    This is confusing. PCOS can develop gradually and symptoms can vary quite a bit. It seems most women with PCOS do not have regular periods but some do but just don't ovulate each month and their cycles tend to be longer (at least 35 days). I have read that with PCOS one can have less than 9 menstrual cycles per year to no cycles. And not all women have the classic "strand of pearls" cystic ovaries either. And having cystic ovaries does not necessarily mean you have PCOS.

    Metformin is prescribed to control blood sugar. Of course, you can have elevated levels even if you don't have PCOS. Did you have elevated levels before your doctor prescribed Metformin? Have you ever tried to control blood sugar levels with diet (low carbs) and exercise?

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    diagnosis, metformin, pcos, testosterone

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