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When should I get further treatment?

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Old 11-23-2009, 01:39 PM   #1
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lj82 HB User
When should I get further treatment?

I am 27 and have had abnormal paps for over two years now. Last year I had a colposcopy and three biopsies which came back only as having mild cell dysplasia. I was given another pap at 6 months after that, which also came back as abnormal. Instead of scheduling another colpo they decided for whatever reason to wait another 6 months and have me come back in for an HPV only test, which came back positive. I am not sure what I need to do at this point. My Dr. hasn't even looked over the current results (as she is on holiday and won't return until the 7th), so I don't know where to go from here. Should I request another colpo? Or let them tell me to wait yet another 6-12 months to be tested again? Or should I push for a more invasive procedure such as chryo/Cone biopsy/LEEP? Im not sure if it has any bearing on my situation or not, but I also have chronic UTI's. I'm just at a loss here. I would like to not have to worry whether or not I'm allowing it to turn into cancer by waiting so long. I'm getting married next fall and would like to start a family shortly thereafter, so I neep help asap.. Thanks.

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Old 11-23-2009, 06:21 PM   #2
Pickle Eyes
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Re: When should I get further treatment?

Hi LJ82, from reading your information (and thanks for all of it- it helps understand the situation) I wonder if your doctor is continuing with the wait-and-watch ever 6 months or so to help maintain your fertility. Procedures like LEEPs and/or CKCs (cold knife cone biopsies) can interfere with the cervix's competency (for lack of a better word - its ability to maintain a pregnancy). I don't know if the same type of problems can occur after cryo.

I have a few suggestions. If you haven't asked for copies of your pathology reports, then do so. Ask for all of them back to your first bad pap. They will tell you what type of tests were run, tissue was sampled, what the tissue looked like, what the problems were (if any), and the pathologist's impressions/recommendations.

If you are not totally sure that your doctor is being aggressive enough you could do one of two things (or both of them). Ask him/her why you are continuing with watch and wait after 2 years of the paps not improving. Get a second opinion. You might want to do the latter any way.

I hope that helps a bit. And congratulations on the upcoming marriage!

Old 11-23-2009, 06:21 PM   #3
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Re: When should I get further treatment?

Hi I am sorry to hear about your abnormal paps. I am 26, and had my first abnormal pap in Feb 2009. I had a colposcopy which came back as very low grade cell changes. I had a follow up pap in November 2009 which also came back abnormal, but the cell changes were identical to the pap in Feb so my doctor is not doing another colposcopy (she said she doesn't like to do more than 1 per year). My annual exam is due in Feb 2010 so I will have that done, as well as another pap to see what is going on. If things are still abnormal she said she will do another colposcopy just to double check things but as long as the cell changes remain low grade she plans to just keep me on a wait and watch schedule because it can take up to 24 months for the body to clear the virus. I'm not sure if any of this is helpful to you, or not. Do you know if you have had the HPV for the two years you have been having the abnormal paps? if so, chances are your body might not clear the infection and it could be best to have the cells removed. But if HPV was not determined until recently, then your doctor may want to continue to keep you on a wait and watch schedule to see if your body can take care of the infection on it's own.

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